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Join NCF for July2026. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page https://www.youtube.com/watch?v=iTlGH2gbmcE ABOUT Caregivers share their experiences supporting a loved one with neuroendocrine cancer, including navigating treatment decisions, managing uncertainty, balancing caregiving responsibilities, and caring for themselves along the way. Through candid conversations about challenges, lessons learned, relationships, resilience, and hope, this session offers valuable insight into the realities of the caregiving journey. Interested in hearing the patient perspective as well? View our July 2025 webinar, Living with NET: The Patient Perspective: Living with NET: The Patient Perspective . SPEAKERS ALYSE KEFELI Caregiver Alyse Kefeli lives in Rhode Island with her husband and works as an Information Technology Program Manager in the financial industry. She enjoys gardening, cooking, biking, playing pickleball, walking by the ocean, and spending time with family. She is also active in her faith and values the sense of community and support it provides. Alyse's daughter, Serra, was diagnosed with a metastatic neuroendocrine tumor (NET) that originated in the small bowel at just 32 years old. Since then, Alyse has supported Serra through two major surgeries, ongoing treatment, and the many emotional and practical challenges that come with living with NET. Along the way, she has found strength through education, faith, and connecting with other caregivers. Alyse is a member of the Neuroendocrine Cancer Foundation's monthly Caregiver Support Group, where she meets with fellow caregivers to share experiences, learn from one another, and offer mutual encouragement. She hopes that sharing her family's journey will help other caregivers feel less alone, better informed, and more hopeful as they navigate life with NET. Patient & Caregiver Journey - Sara & Quintin CYNTHIA MUELLER CROCKER Caregiver Cynthia Mueller Crocker lives in Houston with her husband, Charlie, where they gladly trade icy winters for Texas heat and humidity. After caring for and advocating for both of her aging parents, Cynthia stepped into Charlie’s NET journey with compassion and hard-earned perspective. While neuroendocrine cancer was new to her, she found education, connection, and support through LACNETS, now NCF, in 2020 and has been an active part of its weekly support groups and monthly caregiver groups ever since. Her professional background is in organization and talent development, where she has found great satisfaction in recognizing potential, identifying opportunities, and creating strategies to support the success of organizations, teams, and individuals. Charlie and Cynthia share a love of college football and happily count football season as “the best time of the year,” especially when cheering on Charlie’s Crimson Tide and Cynthia’s beloved Texas Longhorns. But their favorite seats in the bleachers is the front row cheering section as they watch their large, coast-to-coast family grow and thrive! SHANE PETERS Caregiver and Advocate Shane has been walking alongside his mother through her neuroendocrine cancer journey that started in 2020 with a diagnosis of stage four pancreatic neuroendocrine tumor that had already spread to the liver. Shane hopes to continue to give back to the NET community by sharing all he’s learned through his mother’s experiences with lanreotide, surgeries, embolizations and PRRT. Watch "The Strength of Support: the Shane and Ilka Peters Story." Watch Shane and his mother share their NET journey. Read Shane Peters' blog post 'Scan Results: To Check or Not to Check' MODERATOR: HEATHER DAVIS Director of Community Engagement Heather was a medical advocate and caregiver for 12 years for her mother, Shaunie, who was diagnosed with pancreatic neuroendocrine cancer in 2012. The efforts required to navigate and manage a rare disease, with complications of Zollinger-Ellison Syndrome, motivated Heather to shift her 20-year marketing career to patient engagement. After learning from and volunteering for LACNETS, she was pleased to join the LACNETS Team in the Fall of 2022. Heather is passionate about supporting those affected by NET. She aspires to bridge the information gap between patients, physicians and healthcare resources. Spending time with her nephews, friends & family brings her levity and joy. Watch Heather and her mother share about their experience with PRRT. T he opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by the Neuroendocrine Cancer Foundation or the sponsors of this program. The Neuroendocrine Cancer Foundation does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments. THANKS TO OUR SPONSORS

Join NCF for Aug2026. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page REGISTER Some Topics Covered: Neuroendocrine cancer, Neuroendocrine tumors (NETs), Patients, Caregivers, Endocrinology, Hormones, Quality of Life, Thyroid Disorders, Immunotherapy, Hormone Replacement Therapy, Testosterone Replacement, GLP-1 Medications, Symptom Management, Survivorship. ABOUT Neuroendocrine cancers can sometimes produce hormones that cause symptoms affecting daily life, including flushing, diarrhea, abdominal discomfort, changes in blood sugar, fatigue, and other quality-of-life concerns. Hormones can have a profound impact on how you feel and function, and in neuroendocrine cancer they can affect far more than tumor growth alone. Join us for this educational session with Jaydira Del Rivero, a medical oncologist and endocrinologist at the National Cancer Institute, as we explore the "endocrine" side of neuroendocrine cancer and its impact on daily life. Building on her January 2026 overview of functional neuroendocrine tumors (NETs), Dr. Del Rivero will discuss common hormone-related issues that patients may encounter throughout their cancer journey. Topics will include: Thyroid disorders and their symptoms Hormone-related side effects associated with immunotherapy Testosterone replacement and other hormone replacement therapies, including when they may be appropriate and when they may not What patients should know about GLP-1 medications Practical considerations for recognizing and managing hormone-related symptoms Whether you are living with a functional or nonfunctional NET, this session will provide practical knowledge to help you better understand your symptoms, optimize quality of life, and have informed conversations with your healthcare team. ABOUT DR. JAYDIRA DEL RIVERO Jaydira Del Rivero, MD Medical Oncologist & Endocrinologist National Cancer Institute, National Institutes of Health Dr. Del Rivero earned her medical degree from the University of Veracruz in Veracruz, Mexico and completed her internal medicine residency at Woodhull Medical and Mental Health Center/NYU-Langone Medical Center. Dr. Del Rivero completed a fellowship in Endocrinology, Diabetes and Metabolism at The Inter-Institute Endocrinology Training Program (IETP) at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), The National Institute of Child Health and Human Development (NICHD), and The National Institute of Dental and Craniofacial Research (NIDCR) where she was part of a research team developing clinical trials for pheochromocytoma and paraganglioma. She then joined as Assistant Professor at the Montefiore Einstein Center for Cancer Care (MECCC) where she specialized in endocrine oncology involving thyroid cancer, parathyroid and adrenal tumors, and clinical research for gastroenteropancreatic neuroendocrine tumors. She subsequently completed a second fellowship in medical oncology at the National Cancer Institute (NCI) with a research focus on endocrine malignancies. Dr. Del Rivero is board certified in Internal Medicine, Endocrinology, Diabetes and Metabolism and Medical Oncology. Dr. Del Rivero is a Physician Scientist in the Developmental Therapeutics Branch. She is the Principal Investigator of the Natural History Study for Neuroendocrine Neoplasm and Adrenocortical Cancer to provide the basis of further development of therapeutic interventions, prevention/screening guidelines, endpoints for future clinical trials, and patient reported outcome measures. Dr. Del Rivero’s current efforts is the development of novel treatment approaches and targeted therapies for endocrine malignancies such as advanced gastroenteropancreatic neuroendocrine tumors, adrenocortical cancer and pheochromocytoma/paraganglioma. THANKS TO OUR SPONSORS T he opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by the Neuroendocrine Cancer Foundation or the sponsors of this program. The Neuroendocrine Cancer Foundation does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments.

Join NCF for July2025. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page ABOUT Patients share their experiences on topics, including decision-making, coping strategies, lessons learned, challenges, and navigating relationships while living with neuroendocrine cancer. Hear about their personal journeys—filled with resilience, realities, and hope, that offer powerful insight into what it's like living with neuroendocrine cancer. SPEAKERS DAVID David was born and raised in California, spending most of his life in San Diego where he and his wife raised two beautiful daughters. Most recently, the family has welcomed a new grandson who has provided much joy to an already happy family. In addition, a new puppy has successfully turned life upside down with his unbridled enthusiasm for simply being a “part of the pack.” Professionally, David worked at the University of California for many years, practicing and teaching medicine until the time of his diagnosis with neuroendocrine cancer. Opening a new chapter in life, David now spends much of his time as a patient advocate, continuing to seek avenues to educate patients with the same diagnosis. In addition, he now serves on several task force committees, including the National Cancer Institute at the National Institutes of Health, serving to help provide the patient voice to proposed studies designed to advance our knowledge and treatment options for patients with NET’s. In his free time, David is an avid photographer, taking pictures since his first camera purchase at the age of 8. Currently, his passion is in the growing area of astrophotography, travelling to some of the darkest skies in the world in search of the light from our universe, trying to capture and record its beauty. DUSTY Dusty Hurley is wife to a charming Irishman; mom to two loving, fun, and bright elementary-aged daughters; and the favorite human of two fluffy, playful dogs. Her professional background includes ministry, nonprofit and government leadership, and grant writing. She enjoys spending time with friends and family…bonus points if it can be around a campfire or traveling to somewhere new. Diagnosed with a pancreatic neuroendocrine tumor (pNET) in 2022, Dusty brings faith, optimism, and determination to her roles as both patient and advocate. She’s passionate about helping others navigate NET with clarity, courage, and hope. JUD After a year of worsening carcinoid syndrome symptoms and diagnostic dead ends, Jud was diagnosed with Stage IV, Grade 3 Small Bowel NET (with metastasis to his mesentery and liver) in the fall of 2022. Almost immediately, Jud decided to enroll in the NETTER-2 clinical trial of Lu-177 Dotatate as a first line NET treatment. Following radioligand therapy and resection / ablation procedures, Jud is reveling in his current lack of tumors and being able to channel his "cancer world" energy into patient education and advocacy efforts. Jud lives with his family in Saint Paul, Minnesota and his day job is as a public finance advisory to cities and counties. He enjoys reading, indoor rowing, and walking his golden retriever around the neighborhood. KIMBERLY Kimberly was born and raised on Oahu, Hawaii. She and her husband, Blake, live with their 3 sons in Mesa, Arizona. Kimberly finds joy in helping and mentoring others, showcased through her 20+ years as an educator and in her current role as a consultant for Banner Health. After her diagnosis with metastatic pNETs in 2020, she has found great purpose in encouraging others to “live well” with NETs through faith, gratitude, peace, and a positive perspective. When she’s not working, doing laundry, or food prepping, you can find her at the gym, quilting, or running around a pickleball court! T he opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by the Neuroendocrine Cancer Foundation or the sponsors of this program. The Neuroendocrine Cancer Foundation does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments. THANKS TO OUR SPONSORS

Join NCF for Caregiver Group. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page MONTHLY Virtual NET Caregiver Support Group Meetings Typically the last Saturday of every month 8:00 - 10:00 AM Pacific 2025 Dates: Jan 18, 2025 Apr 26, 2025 Jul 19, 2025 Oct 18, 2025 Feb 15, 2025 May 31, 2025 Aug 23, 2025 Nov 22, 2025 Mar 22, 2025 Jun 28, 2025 Sep 27, 2025 Dec 20, 2025 We provide a safe space where NET Caregivers can come together virtually for support, connection and community. We encourage you to express your experiences, thoughts and feelings in this safe space. Unlike our weekly networking group, our Caregiver Support Group does not focus on exchanging information on medical resources. Instead, we focus on the unique experiences and concerns of caregivers and provide emotional support to those affected by NET. *OPEN TO NET CAREGIVERS ONLY. The zoom link is provided in the RSVP confirmation and will also be emailed to you prior to the support meeting. Questions? Need technical support? Email events@LACNETS.org . *Limited spots available. REGISTER THANKS TO OUR SUPPORTERS

Join NCF for Sep2025. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page https://www.youtube.com/watch?v=_dE7__jhf9I ABOUT The field of PRRT (Peptide Receptor Radionuclide Therapy) is evolving rapidly, and patients are hearing more about new developments like alpha therapies, the recent NETTER-2 and COMPETE trial results, and other advances. Join medical oncologist Dr. Udhayvir Singh Grewal from the Winship Cancer Institute of Emory University as he breaks down what these changes mean for people living with neuroendocrine cancer. This webinar will help patients and caregivers make sense of emerging research and therapies—and what they may mean for the future of NET treatment. Download Presentation Slides >>> ABOUT DR. UDHAYVIR SINGH GREWAL Udhayvir Singh Grewal, MD Assistant Professor of Medical Oncology Winship Cancer Institute Emory University School of Medicine Udhayvir S. Grewal, MD, is a gastrointestinal and neuroendocrine tumor (GI/NET) medical oncologist at the Winship Cancer Institute of Emory University and an Assistant Professor of Medical Oncology at the Emory University School of Medicine in Atlanta, Georgia. His research focuses on drug development and care-delivery innovations for patients with neuroendocrine tumors. Dr. Grewal serves on the North American Neuroendocrine Tumor Society (NANETS) Membership & Diversity Committee and the European Neuroendocrine Tumor Society (ENETS) Grade 3 NENs Task Force. After medical school at Government Medical College in Patiala, India, Dr. Grewal completed his internal medicine residency at LSU Health Sciences Center–Shreveport and a hematology/medical oncology fellowship at the University of Iowa Holden Comprehensive Cancer Center, where he also remains an active collaborator with the UIowa NET SPORE team. T he opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by the Neuroendocrine Cancer Foundation or the sponsors of this program. The Neuroendocrine Cancer Foundation does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments. THANKS TO OUR SPONSORS

Join NCF for Nov2024. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page https://www.youtube.com/watch?v=FiYogD5g_9A Learn about Palliative Care: what it is, what it is not, and how it may help those affected by neuroendocrine cancer. Dr. Chandana Banerjee, palliative care and hospice specialist from the City of Hope Cancer Center in Los Angeles, demystifies these topics. ABOUT CHANDANA BANERJEE, M.D., M.P.A., HMDC Chandana Banerjee, M.D., M.P.A., HMDC, is the dean, director and designated institutional official for Graduate Medical Education at City of Hope. She is also an associate professor in the Department of Supportive Care Medicine , specializing in hospice and palliative care. She developed the City of Hope Hospice & Palliative Medicine Fellowship. She also established the Cancer Pain Rotation for Kaiser Permanente Los Angeles Hospice & Palliative Medicine Fellowship, which is now part of the core curriculum for the Kaiser Permanente Southern California Hospice & Palliative Medicine fellowship program. Dr Banerjee also developed and directed the End of Life Symposium, which was first held at City of Hope in September 2019 and was endowed by Arthur Riggs, Ph.D. She is the physician lead for Schwartz Rounds at City of Hope and serves as chair on the End of Life Option Act Subcommittee. She is also a member of the Continuing Medical Education and the Ethics and Quality of Life committees. She co-founded the City of Hope Expressions of Hope initiative in partnership with Diversity, Equity and Inclusion. She is currently chair-elect of the American Academy of Hospice & Palliative Medicine's (AAHPM) Medical Aid in Dying Special Interest Group. She served as chair-elect, chair and past chair on the AAHPM Humanities and Spirituality Special Interest Group from March 2019-2022. She serves on AAHPM's Editorial Board for the publication AAHPM Quarterly and has served on the assembly's Abstract Review Board. She is a reviewer for evidence-based research articles in hospice and palliative care submitted to McMaster University in Canada. Dr. Banerjee has written and published numerous articles and book chapters and spoken at conferences nationally and internationally. She is the editor for an upcoming book by Springer Publishing's CTAR series exploring views on end-of-life care, death, burial and bereavement within different cultures and religions. She also sits on the board of directors for Compassion & Choices, an organization dedicated to end-of-life issues. Dr. Banerjee is a contributing member on the National Comprehensive Cancer Network Fatigue Panel. Her leadership activities in education include excellence in teaching, faculty development and mentoring, and curriculum and program development. Dr. Banerjee earned her undergraduate degree with an honors scholar designation from University of Connecticut. She received her master's degree in public administration from New York University and her medical degree from Saba University School of Medicine. She completed her residency in pediatrics and her fellowship in adult hospice and palliative medicine from Kaiser Permanente Los Angeles. She is also a Hospice Medical Director Certified. Dr. Banerjee was recently selected as a Health Equity Scholar into the prestigious Cambridge Health Alliance - Center for Health Equity Education & Advocacy Program’s 2021-2022 Cohort. Dr. Banerjee loves to write poetry and her first collection, "Ashen Leaves," was published in July 2020. Her second book of poems, "Neruda in Bed," was published in November 2021. The opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by LACNETS or the sponsors of this program. LACNETS does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely solely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments. THANKS TO OUR SPONSORS

Join NCF for Sep24. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page LACNETS is hosting an in-person NET Educational Event for patients and caregivers in Minneapolis, Minnesota on Saturday, September 21st from 1:30-5:00 PM. Join us for an afternoon of NET information, connecting and networking. This program has been uniquely designed to maximize the opportunity to engage with NET specialists with two Q&A sessions. LOCATION W Minneapolis - The Foshay 821 S Marquette Ave, Minneapolis, MN 55402 For patients attending the LACNETS in-person NET Educational Event on Saturday, September 21st at the W Minneapolis – The Foshay, parking is available on-site. Please park with valet upon arrival and visit the registration desk to receive your parking validation ticket. At the time of departure, simply hand your validation ticket to the valet for complimentary parking. AGENDA Time Topic Speaker 1:30 - 2 PM Registration 2 - 2:10 PM Welcome LACNETS Team 2:10 - 2:55 PM Patient Panel with 4 NET patients Moderated by Lisa Yen, Patient Advocate & Caregiver, LACNETS 2:55 - 3:45 PM Q&A with NET Experts Chandrikha Chandrasekharan, MBBS, Medical Oncologist, University of Iowa Philip Boudreaux, MD, FACS, Surgical Oncologist, Louisiana State University 3:45 - 4 PM Break 4 - 4:20 PM Overview of Treatments Emil Lou, MD, Medical Oncologist, University of Minnesota 4:20 - 4:40 PM Sequencing of Treatments Thorvardur Halfdanarson, MD, Medical Oncologist, Mayo Clinic 4:40 - 5 PM Q&A with a NET Expert Panel Emil Lou, MD, Medical Oncologist, University of Minnesota Thorvardur Halfdanarson, MD, Medical Oncologist, Mayo Clinic Patrick McGarrah, MD, Medical Oncologist, Mayo Clinic Ajay Prakash, MD, Medical Oncologist, University of Minnesota Donna D'souza, MD, Interventional Oncologist, University of Minnesota Philip Boudreaux, MD, Surgeon, Louisiana State University Moderated by Lisa Yen, Patient Advocate & Caregiver, LACNETS The North American Neuroendocrine Tumor Society (NANETS) is hosting their Regional NET Education Event for medical providers. Help raise awareness and knowledge of neuroendocrine cancer in the medical community by telling your local healthcare professionals to attend the NANETS Regional NET Education Event on Saturday, September 21st. This event will not be broadcast or recorded. If you are newly diagnosed, or need a refresher on NET terms and basics, we encourage you to watch Dr. Chandrasekharan’s presentation “Understanding NET Diagnosis” from our 2024 LACNETS Patient Conference . SPEAKERS: Chandrikha Chandrasekharan, MBBS Medical Oncologist, University of Iowa Dr. Chandrikha Chandrasekharan is a Clinical Associate Professor at University of Iowa. She did her initial medical training in India at Kilpauk Medical College. She moved to the USA to complete her internal medicine residency at University of Florida College of Medicine at Jacksonville. Dr. Chandrasekharan is board certified in Medical Oncology and Palliative Medicine. After completing medical oncology fellowship at LSU Shreveport, she pursued an additional year of advanced oncology training in gastrointestinal malignancies at Mayo Clinic. Dr. Chandrasekharan's clinical practice and research interests include all gastrointestinal malignancies with a focus on neuroendocrine tumors. Thorvardur R. Halfdanarson, MD Medical Oncologist, Mayo Clinic Thor R. Halfdanarson, M.D., is a medical oncologist and Professor of Oncology at Mayo Clinic who specializes in the management of patients with neuroendocrine neoplasms, gastrointestinal malignancies and unknown primary malignancies. His specific research interests include the epidemiology, risk factors and treatment of neuroendocrine tumors and neuroendocrine carcinoma and improving outcomes for pancreatic adenocarcinoma and rare types of pancreatic tumors. He is a principal investigator and co-investigator for multiple industry-sponsored and cooperative group clinical trials. Dr. Halfdanarson holds several leadership positions within Mayo Clinic Comprehensive Cancer Center. He is chair of the Hepato-Pancreatico-Biliary Cancer Disease Group and co-chair of the Pancreatic/Neuroendocrine Tumor Board. He is associate medical director of the Cancer Clinical Trials Office in Rochester, Minnesota, co-chair of the Feasibility Committee, and a member of the Clinical Research Leadership Committee. He also represents Mayo Clinic on the Neuroendocrine Tumors Guidelines Panel of the National Comprehensive Cancer Network (NCCN). Dr. Halfdanarson currently serves as President for the North American Neuroendocrine Tumor Society (NANETS). Emil Lou, MD, PhD, FACP Medical Oncology, University of Minnesota Emil Lou, MD, PhD, FACP, is a medical oncologist and neuro-oncologist who provides adult patients with cancer care and treatment through chemotherapy, targeted therapy, and other tailored treatments. In addition to expertise in neuroendocrine tumors, he also specializes in helping patients with gastrointestinal cancers, paraneoplastic disorders, and solid tumor metastases to the brain. He sees patients at the University of Minnesota's Masonic Cancer Clinic at the main campus in Minneapolis. Dr. Lou is also a Professor of Medicine in the Division of Hematology, Oncology and Transplantation at the University of Minnesota Medical School. J. Philip Boudreaux, MD, FACS Surgical Oncologist, Louisiana State University J. Philip Boudreaux, MD, FACS, has been recognized for his outstanding contributions to the medical field. He is currently the Professor of Surgery at Louisiana State University Health Sciences Center School of Medicine in New Orleans, LA. Dr. Boudreaux educates medical students and provides high-quality care to patients. While he has held that role for over 20 years, he has spent the last 38 years expanding his knowledge and skills in liver, pancreas, kidney transplantation, organ donation, hepatobiliary and pancreatic surgery, radio frequency ablation of liver tumors, neuroendocrine tumors and carcinoids. His most recent new treatment for metastatic hepatic tumors includes Histotripsy, the destruction of tumor non-invasively with ultrasound. Dr. Boudreaux instituted the liver and pancreas transplant programs at LSU, performed the first pancreas transplant in Louisiana, and initiated the liver and kidney transplant programs at Children’s Hospital, New Orleans. He served as the Director of Liver/Pancreas/Kidney Transplant Services at LSU and Children’s Hospital pre-Katrina. Dr. Boudreaux has spoken publicly at a variety of conferences and educated residents regarding transplant and other related topics. He has published over 75 peer-reviewed publications. Dr. Boudreaux has operated upon over 2,000 patients with neuroendocrine tumors. His center continues to innovate, do research, and often finds ways to turn “inoperable” into “opportunity”. His patients enjoy some of the highest long term survival rates reported in the world’s literature to date. The NOLANETS program has expanded to include East Jefferson Hospital in partnership with the Louisiana Children’s Hospital Medical Network hospitals and the Joe Yenni Cancer Center. In his free time, Dr. Boudreaux enjoys sailing, playing music, fishing, hunting, amateur radio (call sign W5AY), and teaching. He has been a member of the Military Auxiliary Radio System (MARS) since 1968. He attributes his achievements to his education and his work ethic instilled by his parents and mentors. Patrick McGarrah, M.D. Medical Oncologist, Mayo Clinic Dr. Patrick W. McGarrah is a medical oncologist in Rochester, Minnesota and is affiliated with Mayo Clinic-Rochester. Dr. McGarrah specializes in head and neck, neuroendocrine, and gastrointestinal cancers. He received his medical degree from University of Minnesota Medical School and completed his training in 2023. Dr. McGarrah has expertise in treating neuroendocrine tumors, with special interest in poorly differentiated neuroendocrine carcinoma and NETs of the head and neck. Ajay Prakash, MD, PhD Medical Oncologist, University of Minnesota Dr. Ajay Prakash is a medical oncologist specializing in gastrointestinal malignancies. His research is focused on understanding the relationship between the tumor microenvironment, prognosis, and treatment response, with a specific focus on the role of the microbiome in this process. A better understanding of the microbiome, the community of organisms that reside in most human tissues, may allow us to better tailor treatments and offer patient specific guidance on cancer prevention. Clinically, Dr. Prakash is committed to healthcare equity and the delivery of high-quality, academic medicine to historically underserved communities. Donna D'souza, MD Interventional Radiologist, University of Minnesota Donna D’Souza MD, FSIR is an Associate Professor of Radiology and Interventional Radiologist at theUniversity of Minnesota, as well as the Interventional Radiology Medical Student Clerkship Director at the University of Minnesota. Her clinical interests are interventional oncology (especially treating cancers in the liver), portal hypertension interventions, thyroid interventions and women’s health. Dr D’Souza was born and raised in Australia. She completed her medical school at Monash University, and her Radiology Residency and Master of Medicine degree at University of Melbourne in Australia. She subsequently completed a Vascular and Interventional Radiology fellowship at the University of Toronto, followed by Interventional Radiology and Body Radiology fellowships at the University of Minnesota. In her free time she enjoys travelling the world with her husband, hiking, yoga, learning and speaking Japanese, indoor gardening, and spending time with her two dogs. The opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by LACNETS or the sponsors of this program. LACNETS does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely solely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments. REGISTER

Join NCF for Feb2024. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page https://www.youtube.com/watch?v=DcewKhYm8uY Learn about Carcinoid Heart Disease from Cardiologist Dr. S. Allen Luis, at the Mayo Clinic in Rochester, MN. He will describe the cause and symptoms of carcinoid heart disease and discuss diagnosis, treatment and surveillance. ABOUT DR. ALLEN LUIS Dr. S. Allen Luis, MD, Ph.D, is the Associate Dean for Student and Faculty Affairs at the Mayo Clinic School of Health Sciences and the Associate Chair for Education for the Department of Cardiovascular Diseases. He also serves as Medical Director for the Mayo Clinic School of Health Sciences Echocardiography and Advanced Cardiovascular Sonography Programs. He works in the Carcinoid Heart Disease Clinic, is Co-director of the Pericardial Diseases Clinic and is an Associate Professor of Medicine at Mayo Clinic (Rochester, Minnesota). Dr. Luis is an Associate Editor for Frontiers in Cardiovascular Medicine and a member of the American Journal of Cardiology Editorial Board. He serves on the Board of Directors for the American College of Cardiology (Minnesota Chapter) and the Committee on Accreditation for Advanced Cardiovascular Sonography. Dr. Luis’ principal clinical and research interests include the use of echocardiography and multimodality cardiac imaging in the investigation, management and prognostication of patients with carcinoid heart disease. His other clinical and research interests include cardio-oncology, valvular heart disease and pericardial diseases. THANKS TO OUR SPONSORS The information provided is for educational purposes only and does not substitute for medical advice. Talk to your medical team if you have any questions or concerns about your individual care and treatment. The opinions expressed in this program are those of the speakers and do not represent the opinion of LACNETS.

Join NCF for NCD2024. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page WATCH THE RECORDING Celebrate NET Cancer Day at the LACNETS NET Cancer Day Symposium in Santa Monica, California on Saturday, November 9th from 8:30 am - 3:30 pm. ABOUT Hear presentations from local NET experts and stories from those in the neuroendocrine cancer community. Learn about the latest in surgery, medical treatments, PRRT, symptom management, and clinical trials. Ask questions during the live question and answer sessions. Find out how you can spread awareness about neuroendocrine cancer. Show how you live well with Neuroendocrine Cancer in our "Show & Tell" Video Slideshow (will be played during our reception). Post-Event Ice Cream Social There is no cost to attend. This event is made possible by the generosity of donors and sponsors. This event will not be broadcast. LOCATION Santa Monica Bay Woman's Club 1210 4th St, Santa Monica, CA 90401 Parking will be fully validated at SP+ Parking Garage Structure 1 at 1234 4th St, Santa Monica, CA. AGENDA *Subject to change. Please check back closer to the event for the most accurate agenda. Time Topic Speaker 8:30 - 9 AM Registration & Breakfast 9 - 9:10 AM Welcome LACNETS Team 9:10 - 9:20 AM A NET Impact Story A NET Patient 9:20 - 9:35 AM A NET Surgeon's Perspective on What to Ask Your Surgeon & How to Prepare for Surgery Alexandra Gangi, MD, Surgical Oncologist, Cedars-Sinai 9:35 - 9:50 AM Alpha vs Beta PRRT: Which is for me? Martin Auerbach, MD, Nuclear Medicine, UCLA 9:50 - 10:20 AM Q&A Alexandra Gangi, MD, Surgical Oncologist, Cedars-Sinai & Martin Auerbach, MD, Nuclear Medicine, UCLA 10:20 - 10:50 AM Break 10:50 - 10:55 AM A NET Impact Story A NET Caregiver 10:55 - 11:15 AM The Latest in NET Medical Therapies Andrew Hendifar, MD, Medical Oncologist, Cedars-Sinai 11:15 - 11:35 AM The Endocrine in Neuroendocrine Run Yu, MD, Endocrinologist, UCLA 11:35 - 11:50 AM Liver Directed Therapy for Neuroendocrine Liver Tumors H. Gabriel Lipshutz MD, Interventional Radiologist, Cedars-Sinai 11:50 AM - 12:30 PM Q&A All Faculty (Moderated by Lisa Yen) 12:30 - 1:30 PM Lunch & Networking 1:30 - 2:05 PM The Future of NETs: Evolving Treatments & Clinical Trials Jaydira Del Rivero, MD, Medical Oncologist, Endocrinologist, National Cancer Institute, National Institutes of Health 2:05 - 2:25 PM Spreading Awareness Globally: INCA's Think NENs Stephanie Alband, INCA President & PPA Executive Director 2:25 - 2:35 PM Let's Talk About NETs: How YOU Can Spread Awareness Heather Davis, LACNETS Associate Director of Advocacy & Outreach 2:35 - 3:00 PM Music Heals Drum Healing with John Fitzgerald 3:05 - 3:15 PM Closing LACNETS Team 3:15 - 4:30 PM Networking Reception with Show & Tell Slideshow MODERATORS : Andrew Hendifar, MD, & Lisa Yen, Director of Programs and Outreach SPEAKERS: ALEXANDRA GANGI, MD Surgical Oncologist, Cedars-Sinai Medical Center Dr. Alexandra Gangi is a board-certified surgical oncologist at Cedars-Sinai Medical Center in Los Angeles. Dr. Gangi completed a general surgical residency at Cedars-Sinai and completed her surgical oncology fellowship at the H. Lee Moffitt Cancer Center in Tampa, Florida. She currently serves as the director of the Gastrointestinal Tumor and Cancer Regional Therapies Programs with specialization in Pancreatic and GI Neuroendocrine tumors, Metastatic colorectal cancer, and Peritoneal Surface Malignancies. Her research focuses on understanding GEPNET heterogeneity between and within tumors subtypes and mechanisms of chemotherapy induced liver injury. ANDREW HENDIFAR, MD Medical Oncologist, Cedars-Sinai Medical Center The current research focus of Andrew Hendifar, MD, is on developing new therapies for pancreatic cancer and neuroendocrine tumors. Dr. Hendifar has helped form multidisciplinary teams that specialize in the treatments of pancreatic cancer, and carcinoid and neuroendocrine tumors. Dr. Hendifar is the primary investigator for several groundbreaking therapies, including radioimmunotherapy for neuroendocrine tumors, anti-inflammatory therapy for pancreatic cancer and novel approaches to cancer cachexia. His national roles include SWOG GI Committee Member and a member of NIH Neuroendocrine Tumor Task Force. He also serves as the steering committee member for the Precision Promise Consortium and chairs the associated Supportive Care Committee. At Cedars-Sinai, he leads the Gastrointestinal Disease Research Group and is the founding Director of the Hematology and Oncology Fellowship Program. MARTIN AUERBACH, MD Nuclear Medicine, UCLA Dr. Allen-Auerbach is the Medical Director of UCLA Nuclear Medicine and Clinical Professor in Nuclear Medicine, Division of Pharmacology, at the David Geffen School of Medicine at UCLA. Apart from serving as attending physician in Nuclear Medicine, active research includes clinical studies investigating the role of molecular imaging with PET/CT to gain insights into malignant disease processes and as well as applications of Nuclear Medicine for the treatment of cancer. RUN YU, MD, PhD Endocrinologist, UCLA Run Yu, MD, PhD, received his MD degree from Peking Union Medical College in Beijing and his PhD degree in pharmacology from University of Rochester in New York. Dr. Yu completed an endocrine research fellowship, an internal medicine residency, and a clinical endocrinology fellowship at Cedars-Sinai Medical Center. Dr. Yu’s clinical and research interests include diabetes, thyroid, and endocrine tumors and syndromes. Dr. Yu enjoys describing novel clinical findings in endocrinology. H. GABRIEL LIPSHUTZ, MD Interventional Radiologist Cedars-Sinai Medical Center H. Gabriel Lipshutz, MD is a board-certified, fellowship-trained vascular and interventional radiologist with the Cedars-Sinai S. Mark Taper Foundation Imaging Center. Dr. Lipshutz performs all peripheral endovascular and interventional procedures including embolizations and minimally invasive oncological treatments (chemoembolization, Y-90 radioembolization, RFA, cryoablation, microwave ablation, and irreversible electroporation (IRE). His responsibilities include consultation and treatment of outpatients and inpatients, including the evaluation of patients in the IR outpatient clinic. After earning his bachelor's degree from Wesleyan University, Dr. Lipshutz earned his medical degree from the University of California, San Francisco. He completed his internship in internal medicine at the University of Washington, his radiology residency at the Oregon Health and Sciences University, and his fellowship in interventional radiology at UCLA. JAYDIRA DEL RIVERO, MD Medical Oncologist & Endocrinologist National Cancer Institute, National Institutes of Health Dr. Del Rivero earned her medical degree from the University of Veracruz in Veracruz, Mexico and completed her internal medicine residency at Woodhull Medical and Mental Health Center/NYU-Langone Medical Center. Dr. Del Rivero completed a fellowship in Endocrinology, Diabetes and Metabolism at The Inter-Institute Endocrinology Training Program (IETP) at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), The National Institute of Child Health and Human Development (NICHD), and The National Institute of Dental and Craniofacial Research (NIDCR) where she was part of a research team developing clinical trials for pheochromocytoma and paraganglioma. She then joined as Assistant Professor at the Montefiore Einstein Center for Cancer Care (MECCC) where she specialized in endocrine oncology involving thyroid cancer, parathyroid and adrenal tumors, and clinical research for gastroenteropancreatic neuroendocrine tumors. She subsequently completed a second fellowship in medical oncology at the National Cancer Institute (NCI) with a research focus on endocrine malignancies. Dr. Del Rivero is board certified in Internal Medicine, Endocrinology, Diabetes and Metabolism and Medical Oncology. Dr. Del Rivero is a Physician Scientist in the Developmental Therapeutics Branch. She is the Principal Investigator of the Natural History Study for Neuroendocrine Neoplasm and Adrenocortical Cancer to provide the basis of further development of therapeutic interventions, prevention/screening guidelines, endpoints for future clinical trials, and patient reported outcome measures. Dr. Del Rivero’s current efforts is the development of novel treatment approaches and targeted therapies for endocrine malignancies such as advanced gastroenteropancreatic neuroendocrine tumors, adrenocortical cancer and pheochromocytoma/paraganglioma. STEPHANIE ALBAND, MSBA Board President, INCA Executive Director, The Pheo Para Alliance Stephanie Alband, MSBA, joined Pheo Para Alliance in March of 2019. She has over 20 years of experience in the nonprofit industry, with ten years working exclusively for rare disease organizations, including the Huntington’s Disease Society of America and Angioma Alliance. Her experience with her daughter’s rare cancer has helped her better understand and successfully navigate the unique challenges faced by the rare disease community. She currently serves as the President for the International Neuroendocrine Cancer Alliance (INCA) and previously served as Communications Chair and a Member of the Board of Directors. JOHN FITZGERALD Drum Circle Facilitator & Coach Rhythm With a Purpose Before he fell in love with the transformational impact of coaching, and rhythm facilitation, John spent decades as a degreed percussionist performing jazz and classical music, and the amazing music of cultures from around the world. Rhythms, cycles, and improvisation have always been central to his joy and passion, the spontaneous personal expression that is such a vital part of all living cultures, and indeed, all our lives. As the Manager of Recreational Music Activities for Remo Inc., for 23 years, he created relationships with organizations and individuals, educating and advocating for the use of music for wellbeing in every imaginable population through a global network of partnerships, facilitators, and Remo’s distributor network. Presentations, training, and facilitated experiential activities at conferences and symposia were a central part of his work at Remo, and his passion as well. In addition to one on one work with individuals and organizational leaders, John designed and facilitated team-building, communication and leadership workshops for over 20 years. If you are newly diagnosed, or need a refresher on NET terms and basics, we encourage you to watch Dr. Aman Chauhan’s presentation “NETS 101: Overview of NET Terms & Concepts " or Dr. Chandrasekharan’s presentation “Understanding NET Diagnosis.” The opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by LACNETS or the sponsors of this program. LACNETS does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely solely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments. THANKS TO OUR SPONSORS

Join NCF for May2024. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page https://www.youtube.com/watch?v=oSqUgq6QdnM Learn about the latest in high grade neuroendocrine neoplasms and small cell lung cancer with medical oncologist Dr. Aman Chauhan, Leader of the Neuroendocrine Tumor Program and Co-Director of the Theragnostic Program at the Sylvester Comprehensive Cancer Center, University of Miami. ABOUT DR. AMAN CHAUHAN Aman Chauhan, MD, earned his medical degree from the Kasturba Medical College in Manipal, Karnataka, India, followed by a dual residency in internal medicine and pediatrics at Louisiana State University in New Orleans. Dr. Chauhan completed his fellowship in hematology and oncology at the University of Kentucky, especially focusing on neuroendocrine tumor (NETs). Additionally, Dr. Chauhan completed a Cancer Therapy Evaluation Program (CTEP) physician externship at the National Cancer institute (NCI) that focused on designing clinical trials and clinical research projects. His clinical interests include treating NETs, including carcinoid tumors, high-grade neuroendocrine carcinomas, and small and large cell neuroendocrine carcinoma. Dr Chauhan leads the University of Miami Neuroendocrine Cancer Program and co-leads Sylvester Theranostics Drug Development Program. He is national principal investigator on several investigator initiated neuroendocrine cancer clinical trials. He has authored over 70 scientific publications and book chapters and has received a career development award from NCI CTEP. Dr Chauhan also serves on AJCC and ASCO NET guideline committees and is an active member of NANETS communication committee. Dr. Chauhan is board certified in internal medicine and medical oncology. He is a member of the American Society of Clinical Oncology as well as the American Association of Cancer Research and the North American Neuroendocrine Tumor Society. SPONSORS The information provided is for educational purposes only and does not substitute for medical advice. Talk to your medical team if you have any questions or concerns about your individual care and treatment. The opinions expressed in this program are those of the speakers and do not represent the opinion of LACNETS.

Join NCF for Apr2026. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page https://www.youtube.com/watch?v=x-7k7GDS2CU Some Topics Covered: Neuroendocrine Cancer, Newly Diagnosed Download Presentation Slides >>> ABOUT Being newly diagnosed with neuroendocrine cancer can feel overwhelming. Many patients find themselves asking, “What exactly is neuroendocrine cancer, and how is it different from other cancers?” This webinar is designed to bring clarity, reassurance, and guidance during one of the most confusing stages of the neuroendocrine cancer journey. Join Dr. Osama MoSalem, medical oncologist at St. Luke’s in Kansas City , for a clear and compassionate overview of what every newly diagnosed NET patient should know. Dr. MoSalem will explain what neuroendocrine cancer is, why it behaves differently from more common cancers, and how its unique features influence diagnosis and treatment. This session will walk you through the most important early concepts, including: Grade and stage: what they mean and why they matter Key tests and scans used at diagnosis Treatment pathways , including when to consider surgery, medications, targeted therapies, radioligand therapy, or clinical trials Essential questions to ask your care team Practical first steps to help you feel more prepared and empowered Whether you’re newly diagnosed, supporting a loved one, or simply trying to better understand this disease, this webinar will provide a solid foundation to help you make informed decisions with greater clarity and confidence. ABOUT DR. OSAMA MOSALEM Medical Oncologist St. Luke's Health System Kansas City Osama MoSalem, MD is a board-certified hematologist and medical oncologist with Saint Luke’s Cancer Specialists in Kansas City, MO where he specializes in the care of adults with gastrointestinal (GI) cancers including neuroendocrine tumors. In addition to caring for patients, Dr. MoSalem has been involved in clinical research primarily focused on gastrointestinal cancers, neuroendocrine tumors and precision oncology. Dr MoSalem earned his medical degree from Cairo University, Egypt, residency training in internal medicine at Michigan State University, followed by fellowship training at the Mayo Clinic College of Medicine and Science in Jacksonville, Florida. Outside of medicine, Dr. MoSalem enjoys staying active, playing soccer, and spending time with his family. THANKS TO OUR SPONSORS T he opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by the Neuroendocrine Cancer Foundation or the sponsors of this program. The Neuroendocrine Cancer Foundation does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments.

Join NCF for Feb2025. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page https://www.youtube.com/watch?v=wgEoFAQ7lp8 ABOUT Learn the latest in genetics and genomics for neuroendocrine cancers from medical oncologist Dr. Kimberly Perez from Dana Farber Cancer Institute (DFCI) in Boston, Massachusetts. Dr. Perez has expertise in hereditary cancer syndromes and deciphers the topics of genetics and genomics. ABOUT DR. PEREZ Kim Perez, MD Medical Oncologist D ana Farber Cancer Institute (DFCI) Dr. Kimberly Perez, MD is a member of the Dana-Farber Cancer Institute/Harvard Cancer Center Gastrointestinal Oncology and Cancer Genetics and Prevention disease centers. She is a Senior Physician in Medical Oncology at Dana-Farber Cancer Institute, an Associate Physician in Medical Oncology at Brigham and Women’s Hospital, co-Director of the DFCI Gastrointestinal Clinical Trials program, and an Assistant Professor of Medicine at Harvard Medical School. She received her undergraduate training at Georgetown University in Washington DC and received her medical doctorate from George Washington University in Washington DC. She completed her residency and fellowship training at Rhode Island Hospital in 2010. After completing her fellowship, she joined the medical faculty at Warren Alpert School of Medicine at Brown University and served as a Gastrointestinal Oncologist at the Comprehensive Cancer Center at Rhode Island Hospital. She joined the faculty at the Dana-Farber Cancer Institute in 2015 as a medical oncology physician-scientist who provides patient care and conducts clinical research of novel therapies for patients diagnosed with gastrointestinal cancers and inherited cancer syndromes. Since she joined the faculty, she was designated a Hale Family Center for Pancreatic Cancer Research Clinical Investigator and has developed and led investigator-initiated bench to clinic multi-institutional clinical trials for patients with pancreatic adenocarcinoma. Within the Neuroendocrine and Carcinoid program, she has led multi-institutional clinical trials, translational efforts, and served and led national therapeutic guideline efforts. Dr. Perez is a medical oncology physician-scientist who provides patient care and conducts clinical research of novel therapies for patients diagnosed with gastrointestinal cancers and associated hereditary cancer syndromes. Since she joined the faculty at Harvard Medical School and the Dana-Farber Cancer Institute in 2015, she has developed and led investigator-initiated clinical trials investigating novel therapies for patients with pancreatic adenocarcinoma and neuroendocrine tumors. The opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by LACNETS or the sponsors of this program. LACNETS does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely solely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments.