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Educational Playlists by Topic PLAYLIST TOPICS LEARN LACNETS Patient Educational Events PRRT Research Clinical Trials High-Grade NETs Newly Diagnosed NET Testing Symptom Management Medical Testing/Sequencing Treatments Liver Directed Therapy Surgery Diarrhea Pheo/Para PATIENT CONFERENCES 2022 2021 2020 2019 2018 2017 2016 2015 BE INSPIRED Patient Advocacy Giovanna Joyce Imbesi, LACNETS Founder Inspirational Above & Beyond Awards PRRT Patient/Caregiver Stories WELLNESS & CAREGIVING Nutrition Wellness Caregiving / Palliative / Supportive Care Music Heals LEARN Patient Conferences LEARN Patient Educational Events Patient Educational Events Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Novel Targeted Therapies in Neuroendocrine Cancers • 2026 NCF Event • Mar 9, 2026 01:33:05 Play Video Now Playing The Latest in Neuroendocrine Cancer Clinical Trials • 2026 NCF Event • Feb 20, 2026 01:29:26 Play Video Now Playing The Latest on Immunotherapy for Neuroendocrine Cancer • 2025 NCF Event • Dec 11, 2025 01:31:30 Play Video Now Playing Understanding Alpha & The Evolving PRRT Landscape • Dr. Grewal • 2025 NCF Event • September 22, 2025 01:27:39 Play Video PRRT PRRT Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 08. PRRT: Current & New Trends • Holly Thompson, MD, MPH • @NCFCancer 15:02 Play Video Now Playing 5. PRRT for NETs • Dr. Boris Naraev • 2025 NET Cancer Day Symposium 20:02 Play Video Now Playing Understanding Alpha & The Evolving PRRT Landscape • Dr. Grewal • 2025 NCF Event • September 22, 2025 01:27:39 Play Video Now Playing 13. "What Matters About PRRT: What is PRRT & How Does It Work" • Dr. Carreras • @NCFCancer 12:35 Play Video Research/Clinical Trials Research / Clinical Trials Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing (STELLAR-311) Zanzalintinib Versus Everolimus in pNET and epNET • ClinicalTrials.gov ID: NCT06943755 06:46 Play Video Now Playing Tarlatamab in DLL3-Expressing Tumors Including NEN • ClinicalTrials.gov: NCT06788938 • Dr. Goldman 14:15 Play Video Now Playing A Study of ZL-1310 in Participants With Selected Solid Tumors • ClinicalTrials.gov ID: NCT06885281 13:57 Play Video Now Playing (CAREFNDR) Carcinoid Syndrome Efficacy Study Featuring an Oral Daily Paltusotine Regimen•NCT07087054 06:54 Play Video High Grade NETs High Grade NETs Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Novel Targeted Therapies in Neuroendocrine Cancers • 2026 NCF Event • Mar 9, 2026 01:33:05 Play Video Now Playing The Latest on Immunotherapy for Neuroendocrine Cancer • 2025 NCF Event • Dec 11, 2025 01:31:30 Play Video Now Playing "Large Cell Neuroendocrine Carcinoma & Small Cell Lung Cancer" • Session B • LACNETS • Dec 10, 2024 01:28:05 Play Video Now Playing "High Grade Neuroendocrine Neoplasms & Small Cell Lung Cancer" • LACNETS Event • May 7, 2024 01:30:41 Play Video Newly Diagnosed Newly Diagnosed Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing "The Latest in the Management of Functional Neuroendocrine Cancers • Jan, 2026 • Dr. Del Rivero 01:37:36 Play Video Now Playing 04. NETs 101: NET Terms & Concepts You Need to Know • Bassam Sonbol, MD • Arizona • @NCFCancer ⁩ 17:45 Play Video Now Playing "NETS 101" • Jaydira Del Rivero, MD • 2023 NET Cancer Day Symposium @NCFCancer 25:45 Play Video Now Playing "Understanding NET Diagnosis" with Dr. Chandrasekharan • 2024 #LACNETS Patient Conference 35:16 Play Video NET Testing NET Testing Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 06. NET Testing: The What, When, How and Why (Dr. Namrata Vijayvergia) - 2022 LACNETS Conference 18:28 Play Video Now Playing "Understanding NET Diagnosis" with Dr. Chandrasekharan • 2024 #LACNETS Patient Conference 35:16 Play Video Symptom Management Symptom Management Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing "The Latest in the Management of Functional Neuroendocrine Cancers • Jan, 2026 • Dr. Del Rivero 01:37:36 Play Video Now Playing "The Endocrine in Neuroendocrine" • Run Yu, MD, Endocrinologist, UCLA •2024 NET Cancer Day Symposium 18:45 Play Video Now Playing LACNETS • "Symptom Management" with Dr. David Metz • Oct 2023 01:33:48 Play Video Now Playing 13. Managing NET Symptoms & Treatment Side Effects (Dr. Sandy Kotiah) - 2022 LACNETS Conference 21:13 Play Video Medical Treatments/Sequencing Treatments Medical Treatments / Sequencing Treatments Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Novel Targeted Therapies in Neuroendocrine Cancers • 2026 NCF Event • Mar 9, 2026 01:33:05 Play Video Now Playing 16. Expert Panel: Systemic Therapies & Sequencing Treatments • Hecht, Gangi, Mittra & Zhen 39:29 Play Video Now Playing 12. What Matters About Systemic Treatments • Jennifer Chan, MD, MPH • @NCFCancer 18:44 Play Video Now Playing 6. Managing Side Effects of Systemic Therapy • Dr. Jason Starr • 2025 NET Cancer Day Symposium 17:19 Play Video Liver Directed Therapy Liver Directed Therapy Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 3. Liver-Directed Therapy • Dr. Lindsay Thornton • 2025 NET Cancer Day Symposium 12:56 Play Video Now Playing 06. Liver-Directed Therapy: Killing Liver Tumors Without a Big Scar • Gregory Woodhead, MD, PhD 15:59 Play Video Now Playing Episode 38: "NEN Treatments: Focus on Liver-Directed Therapies (Part 1) 31:32 Play Video Now Playing "Evolving Management of NET Liver Metastases" Dr. Gagandeep Singh • 2024 #LACNETS Educational Event 01:35:06 Play Video Surgery Surgery Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 2. Role of Surgery in NETs • Dr. Jashodeep Datta • 2025 NET Cancer Day Symposium 21:19 Play Video Now Playing "What to Ask your Surgeon & How to Prepare for Surgery" • Alexandra Gangi, MD • 2024 NET Cancer Day 19:04 Play Video Now Playing Episode 27: What to Know About Neuroendocrine Tumor Liver Metastases 46:13 Play Video Now Playing "Evolving Management of NET Liver Metastases" Dr. Gagandeep Singh • 2024 #LACNETS Educational Event 01:35:06 Play Video Diarrhea Diarrhea Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing "The Latest in the Management of Functional Neuroendocrine Cancers • Jan, 2026 • Dr. Del Rivero 01:37:36 Play Video Now Playing LACNETS • "Symptom Management" with Dr. David Metz • Oct 2023 01:33:48 Play Video Now Playing Episode 2: Diarrhea & NETs • The LACNETS Podcast 53:27 Play Video Now Playing Symptom Management: Diarrhea, Hyperglycemia & Diabetes - 2020 LACNETS Virtual NET Conference 49:02 Play Video Pheo/Para Pheo/Para Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing "The Latest in the Management of Functional Neuroendocrine Cancers • Jan, 2026 • Dr. Del Rivero 01:37:36 Play Video Now Playing Episode 12: Pheochromocytoma & Paraganglioma (PPGL) 01:07:09 Play Video Now Playing "Focus on Pheochromocytoma and Paraganglioma" - Jan 2023 LACNETS Educational Event 01:42:02 Play Video Now Playing Caregiver Story - Pheo/Para 09:47 Play Video LACNETS PATIENT CONFERENCES 2022 LACNETS Neuroendocrine Patient Conference 2022 Annual Patient Conference Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 01. Conference Welcome from LACNETS - 2022 LACNETS NET Patient Conference 10:49 Play Video Now Playing 02. Co-Moderators: Newly-Diagnosed + Conference Theme - 2022 LACNETS NET Patient Conference 15:24 Play Video Now Playing 3. What is NET? 05:29 Play Video Now Playing 04. Patient Story: Treatment Decisions & Navigating Insurance - 2022 LACNETS NET Patient Conference 06:38 Play Video 2021 LACNETS Neuroendocrine Patient Conference LACNETS 2021 Los Angeles NET Patient Education Virtual Conference (Playlist) Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 1. Conference Welcome - 2021 LACNETS Virtual Conference 09:41 Play Video Now Playing 02. Co-Moderators discuss NET expert consultation and surgery - 2021 LACNETS Virtual Conference 06:30 Play Video Now Playing 03. Patient Story (Federico) - 2021 LACNETS Virtual Conference 04:40 Play Video Now Playing 04. What to Expect with a NET Expert Consultation (Dr. Soares) - 2021 LACNETS Virtual Conference 30:23 Play Video 2020 LACNETS Neuroendocrine Patient Conference Virtual 2020 Annual LACNETS Patient Education Conference Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Finding a NET Expert + Surgery for NETs - 2020 LACNETS Virtual NET Conference 42:50 Play Video Now Playing "Systemic Therapy: GI, Lung, PNETS & Unknown Primary" 2020 LACNETS Virtual NET Conference 01:17:15 Play Video Now Playing Imaging & Role of IR (Liver-Directed Therapy) + PRRT - 2020 LACNETS Virtual NET Conference 01:20:02 Play Video Now Playing Symptom Management: Diarrhea, Hyperglycemia & Diabetes - 2020 LACNETS Virtual NET Conference 49:02 Play Video 2019 LACNETS Neuroendocrine Patient Conference LACNETS 2019 Annual Los Angeles NET Patient Education Conference hosted by Cedars-Sinai - June 8th, 2019 Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Opening: Giovanna Imbesi & Shlomo Melmed, MB, ChB - 2019 LA NET Conf 18:10 Play Video Now Playing Role of Oncologist + Year in Review: Andrew Hendifar, MD (Cedars Sinai) - 2019 LA NET Conf 10:18 Play Video Now Playing Giovanna Imbesi Cedars-Sinai Patient Leadership Award - 2019 LA NET Conf 11:43 Play Video Now Playing NET Vitals Workshop: Daneng (Dan) Li, MD - 2019 LA NET Conf 19:28 Play Video 2018 LACNETS Neuroendocrine Patient Conference LACNETS 2018 Los Angeles NET Patient Education Conference @ UCLA - May 19, 2018 Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 2018 LA NET Conf 01 - UCLA Welcome 05:54 Play Video Now Playing 2018 LA NET Conf 02 - LACNETS Team Welcome: Imbesi, Jeu De Vine, Yen 11:21 Play Video Now Playing 2018 LA NET Conf 03 - Clinical Trials Update: Kunz 21:25 Play Video Now Playing 2018 LA NET Conf 04 - Surgical Management : Girgis, Agopian 24:29 Play Video 2017 LACNETS Neuroendocrine Patient Conference LACNETS 2017 Los Angeles NET Patient Education Conference @ City of Hope Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 2017 LA NET CONF 01 Pathology: Dhall 19:39 Play Video Now Playing 2017 LA NET CONF-02 Surgery: Nissen 17:45 Play Video Now Playing 2017 LA NET CONF-03 Surgery: Singh 19:46 Play Video Now Playing 2017 LA NET CONF-04 Carcinoid Syndrome: Hendifar 15:47 Play Video 2016 LACNETS Neuroendocrine Patient Conference LACNETS 2016 Los Angeles NET Patient Ed Conference Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing LACNETS (1) - Welcome & Introductions Imbesi, Hollander 2016 LA NET Patient Ed Conference 07:27 Play Video Now Playing LACNETS (2) - Year in Review - Dr. Wolin - 2016 LA NET Patient Ed Conference 34:11 Play Video Now Playing LACNETS (3) - Liver Detected Therapy for NETS - Dr. Lipshutz - 2016 LA NET Patient Ed Conference 17:17 Play Video Now Playing LACNETS - (4) - Double Balloon Endoscopy - Dr. Amersi - 2016 LA NET Patient Ed Conference 20:01 Play Video 2015 LACNETS Neuroendocrine Patient Conference LACNETS 2015 Los Angeles NET Patient Education Conference @ Cedars-Sinai Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing (1) Welcome Statements, Giovanna Joyce Imbesi, Ron Hollander - LACNETS CFCF 2015 NET Conference 11:45 Play Video Now Playing (2) "Liver Tumors Then & Now" with Dr. Nicholas Nissen - LACNETS CFCF 2015 NET Conference 13:42 Play Video Now Playing (3) "NETs: How We Find, Classify, & Treat Them:" Dr. Phan - LACNETS CFCF 2015 NET Conference 28:10 Play Video Now Playing (4) Emerging Treatment Modalities - Ron Hollander - LACNETS CFCF 2015 NET Conference 19:44 Play Video BE INSPIRED Patient Advocacy Patient Advocacy Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 8. Role of Advocacy in Advancing Care for Neuroendocrine Cancer • Dr. Estelamari Rodriquez 15:35 Play Video Now Playing 5 - Q&A Panel 35:20 Play Video Now Playing 3 - “Patient Advocacy: How can YOU bring about change?” with Josh Mailman, MBA 15:23 Play Video Now Playing 6 - Wrap Up with LACNETS 03:43 Play Video Giovanna Joyce Imbesi, LACNETS Founder Giovanna Joyce Imbesi, LACNETS Founder Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Tribute Video: In Loving Memory of Giovanna Joyce Imbesi, LACNETS Founder 10:07 Play Video Inspirational Inspirational Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing "Riding the Cancer Wave – Spiritually Speaking" with Chaplain Michael Eselun 46:54 Play Video Now Playing LACNETS Webinar: "How to Live with Neuroendocrine Cancer" with Dr. Eric Liu 01:32:34 Play Video Now Playing 12. Patient Story: From Diagnosis to Patient Advocacy - 2022 LACNETS NET Patient Conference 07:12 Play Video Now Playing LACNETS Webinar: The Fortune & Folly of Self-Diagnosis" with Dr. Mark Lewis 01:38:00 Play Video Above & Beyond Awards LACNETS Above & Beyond Award Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Dusty Hurley • Above and Beyond Award • 2025 NET Cancer Day Symposium 08:07 Play Video Now Playing Above and Beyond Award • 2024 LACNETS NET Cancer Day Symposium 03:23 Play Video Now Playing @NCFCancer Above & Beyond Award: Tom, Musician/Composer & NET Patient • 2023 NET Cancer Day Symposium 04:33 Play Video Now Playing 7 - Above & Beyond Award with Michel DeQuevedo & Lisa Yen 03:45 Play Video PRRT Patient/Caregiver Stories Patient/Caregiver Stories Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 03. Patient Story - Kimberly, NET Patient • 2025 Regional Patient Event • Arizona • ⁨@NCFCancer⁩ 08:09 Play Video Now Playing A Patient Journey • Aramís Lorié • 2025 NET Cancer Day Symposium 03:38 Play Video Now Playing Living with NET: The Patient Perspective • 2025 NCF Event • July 10, 2025 01:16:25 Play Video Now Playing Jesse & Ellen • NET Patient & Caregiver Share Their Story of Living With Carcinoid Heart Disease 06:49 Play Video Caregiving & Wellness Nutrition Nutrition Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Nutrition & Diet Considerations for NETs • 2025 NCF Event • August 26, 2025 01:25:23 Play Video Now Playing Episode 29: Nutrition & Diet Considerations for NET 45:40 Play Video Now Playing Episode 1: Nutrition for NETs • The LACNETS Podcast 29:50 Play Video Now Playing LACNETS - "Nutrition Therapy for NETs" with Meghan Laszlo (Cedars-Sinai) 01:04:20 Play Video Wellness Wellness Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Coping With Neuroendocrine Cancer: Managing Distress, Worry & Grief • 2025 NCF Event • Oct 28, 2025 01:24:39 Play Video Now Playing Meditation with Ruth Wolever • 2025 Wellness Retreat • "Brilliance" 20:01 Play Video Now Playing Meditation with Ruth Wolever • 2025 Wellness Retreat • "Blossoming" 22:11 Play Video Now Playing Meditation with Ruth Wolever • 2024 LACNETS Wellness Retreat • "The Power of Play" 23:52 Play Video Caregiving / Palliative Care / Supportive Care Caregiving / Palliative Care / Supportive Care Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Episode 37: "Supportive Oncology for Neuroendocrine Cancer" 42:59 Play Video Now Playing "Palliative Care for Neuroendocrine Cancer" Dr. Chandana Banerjee • 2024 #LACNETS Educational Event 01:26:11 Play Video Now Playing Episode 14: Palliative Care 41:10 Play Video Now Playing 13. Complementary Medicine (Dr. Duma) - 2021 LACNETS Virtual Conference 16:29 Play Video Music Heals Music Heals Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing "Circle Song" - Laugh and sing along with NET Patient Samuel Prentice Jr. 13:54 Play Video Now Playing "Hush" by Giovanna Joyce Imbesi (Photography by David F. Coppedge) 04:17 Play Video Now Playing Neuroendocrine Tumor Song 06:52 Play Video Be Inspired Caregiving & Wellness DISCLAIMER: These resources are for informational and educational purposes only and are not substitute for professional medical advice. This information is not intended to provide a medical professional’s opinion or advice. You are advised to seek appropriate licensed medical professional help. Please do not delay treatment based on this information. Talk to your medical team if you have any questions or concerns about your individual care or treatment.

Nutrition Resources NUTRITION & RECIPE BOOKS “Food You Love” Cookbook for NETs Request a FREE copy from TerSera! Click here Nutrition & Neuroendocrine Cancer Booklet by NET Dietician Tara Whyand Download here Culinary Kit for Neuroendocrine Tumor Patients Download here Culinary Kit for NET Patients with Carcinoid Syndrome Download here Xermelo - Ask a Clinical Nurse Educator A designated Clinical Nurse Educator will be assigned to you at no cost to provide you with individualized support and answer questions about the management of carcinoid syndrome including symptom management and and how to keep a food journal. Note: it’s not just for those on xermelo. Click here for more information EDUCATIONAL WEBINARS "Nutrition & Diet Considerations" with Meghan Laszlo, MS, RD, CSO Download presentation slides >>> "Nutrition Therapy for NETs" with Meghan Laszlo, MS, RD, CSO "Nutrition & Neuroendocrine Cancer" with Tara Whyand, MSc, BSc "Luncheon with the Experts," featuring Sina Teskey, a dietician who specializes in GI cancers and neuroendocrine tumor patients. Also Watch: Carcinoid Cancer Foundation Video with NET Nutritionist Leigh Ann Burns PODCAST The LACNETS Podcast: Nutrition for NETS Meghan Laszlo, MS, RD, CSO of Cedars-Sinai Medical Center answers the top 10 NET nutrition questions, covering topics including carcinoid syndrome, prescription enzymes, diarrhea, recommended diet for NET patients, and much more! Listen Here The LACNETS Podcast: Diarrhea and NETS NET expert and gastroenterologist Dr. David Metz joins us for this month’s episode to answer the top 10 GI questions for NETs. Dr. Metz addresses diarrhea, diet, carcinoid syndrome and effective symptom management. Listen Here The LACNETS Podcast: Nutrition & Diet Considerations for NET NET dietician Sina Teskey from the Medical College of Wisconsin answers common questions about diet and nutrition raised among NET patients and caregivers. She addresses special diets, food restrictions, and whether sugar “feeds” cancer. Sina also speaks to diarrhea, and digestive enzymes and shares tips on how to maintain nutrition and weight. Listen Here Meghan Laszlo, MS, RD, CSO Meghan Laszlo MS, RD, CSO is an oncology dietitian at Cedars-Sinai in Los Angeles, California. For individuals outside of Cedars-Sinai, Meghan Laszlo sees patients through Nourish, a telehealth platform that accepts insurance (Aetna, BCBS, Cigna, United). Insurance for telehealth is available to those residing in Arizona, California, Colorado, Connecticut, Hawaii, Idaho, Indiana, Massachusetts, Michigan, New Hampshire, New Jersey, New York, Oklahoma, Oregon, Pennsylvania, Texas, Utah, Vermont, Virginia, Washington, West Virginia, Wisconsin, and Wyoming! Phone: 424-235-5026 ADDITIONAL NUTRITION RESOURCES Carcinoid Cancer Foundation's Nutrition Resources NET Research Foundation’s Nutrition Resources

Travel & Lodging Carcinoid Cancer Foundation - Lodging & Travel Resources Triage Cancer Financial Resources Including Travel Expenses and Lodging, Air Transportion and Ground Transportation TRAVEL RESOURCES PatientTravel.org or call 1-800-296-1217 Angel Flight Air Care Alliance Corporate Angel Network (Cancer Patients fly Free) LODGING Hope Lodge Homes that Help and Heal Hospitality Homes (Boston) Joe's House

Video Library This video library contains 400+ videos organized by NET topics. EDUCATIONAL VIDEOS Monthly Patient Educational Events Annual Educational Patient Conferences PRRT: Peptide Receptor Radionuclide Therapy High Grade NENs Newly Diagnosed Liver Directed Therapy Symptom Management Lung NET Medical Treatments/ Sequencing Treatments Research/ Clinical Trials NET Testing Surgery Diarrhea NET Imaging Pheo/Para Videos en Espanol BE INSPIRED Above & Beyond Awards Giovanna Joyce Imbesi, LACNETS Founder Inspirational Patient Advocacy Patient/Caregiver Stories WELLNESS & CAREGIVING Nutrition Wellness Caregiving/Palliative/ Supportive Care Music Heals

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< Back to the supporters page Defeating cancer with radiopharmaceutical medicines Despite therapeutic advances made in the last decade, there remains a high unmet need for new cancer treatments. Radiation therapy is a proven approach to treating many cancers and is typically administered by an external beam of high energy rays. In contrast, radiopharmaceuticals selectively deliver radioisotopes to tumors via the bloodstream. Radiopharmaceuticals have the unique advantage of being both diagnostic and therapeutic. The same drug conjugate could be used for both diagnostic imaging and therapeutic use by switching out the radioisotope. Direct visualization of drug conjugate uptake by tumors with imaging allows for proper patient selection to receive the therapeutic radioisotope (e.g. Actinium-225). RayzeBio is sponsoring the phase 1/3 ACTION-1 study for patients who have inoperable, progressive, somatostatin receptor positive (SSTR+) gastroenteropancreatic neuroendocrine tumors (GEP-NET). The trial is a part of larger international study and will compare the standard of care therapy with 225Ac-DOTATATE (RYZ101). The phase 1 portion of the study will look at the safety and tolerability of RYZ101. The phase 1 of the study is currently enrolling at sites across the country. Main Eligibility Criteria: Over 18 years of age Grade 1-2 well differentiated GEP-NET (GI or pancreas) Ki67 <= 20% Progressive GEP-NET following 2 to 4 cycles of treatment with 177Lu-DOTATATE / 177Lu-DOTATOC. If 177Lu-DOTATATE or 177Lu-DOTATOC treatment was stopped before completing 4 cycles, it should not have been stopped early due to disease progression. Must have had some response to PRRT, defined as tumor shrinkage or tumor stability, that lasted at least 3 months following the last dose of prior 177Lu-DOTATATE/DOTATOC No prior treatment with alkylating agents No prior use of anticancer agents within the following intervals prior to the first dose of study drug: Peptide Receptor Radionuclide Therapy (PRRT): within <8 weeks Chemotherapy: within <6 weeks Small molecule inhibitors: within <4 weeks Biological agents: within <7 days or <5 half-lives No prior external radiation therapy, including stereotactic body radiation therapy (SBRT) No prior radioembolization treatment No significant cardiovascular disease No known brain metastases If you are interested in learning more, please ask your doctor to contact clinicaltrials@rayzebio.com . SITES CURRENTLY ENROLLING: Samuel Mehr, MD Nebraska Cancer Specialists Omaha, NE SMehr@NebraskaCancer.com Michael Morris, MD, MS Advanced Molecular Imaging and Therapy Glen Burnie, MD morrism@amit.health Daneng Li, MD City of Hope Duarte, CA danli@coh.org For more information, contact ClinicalTrials@rayzebio.com. This information is for educational purposes only and does not substitute for medical advice or constitute an endorsement by the Neuroendocrine Cancer Foundation. Talk to your medical team about your individual care and treatment. Confirm Your Visit to the Novartis Virtual Booth! First name Last name Email Submit << Previous Next >>

Medical Advisory Council ABOUT MAC Our Medical Advisory Council (MAC) consists of distinguished neuroendocrine cancer experts committed to improving the lives of NET patients through multidisciplinary patient care, scientific research, and peer and patient education. Together, we aim to improve access to expert care, critical information, and groundbreaking medical treatments. MEET OUR COUNCIL CALLISIA CLARKE, MD Chief of MCW Surgery, Medical College of Wisconsin Dr. Clarke is Chief of Surgical Oncology and Associate Professor of Surgery at the Medical College of Wisconsin with a focus on tumors of the upper gastrointestinal tract, sarcomas, melanomas and regional therapies for advanced malignancies. She specializes in hepato-pancreatic-biliary malignancies, primary and metastatic neuroendocrine tumors, melanoma and sarcoma. Her research efforts focus on personalized cancer care and targeted approaches in pancreatic neuroendocrine tumors. Dr. Clarke also serves on the Executive Committee of the Association for Academic Surgery and is the Chair of the North American Neuroendocrine Tumor Society (NANETS) Mentoring and Early Career Development Committee. In 2024 President Biden announced her appointment as a Member of the National Cancer Advisory Board. Dr. Clarke plays a key role in guiding the Director of the National Cancer Institute in setting the course for the national cancer research program and helping advance breakthroughs to prevent, detect, and treat diseases like cancer. JAYDIRA DEL RIVERO, MD Endocrinologist, Oncologist, National Cancer Institute Dr. Del Rivero earned her medical degree from the University of Veracruz in Veracruz, Mexico and completed her internal medicine residency at Woodhull Medical and Mental Health Center/NYU-Langone Medical Center. Dr. Del Rivero completed a fellowship in Endocrinology, Diabetes and Metabolism at The Inter-Institute Endocrinology Training Program (IETP) at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), The National Institute of Child Health and Human Development (NICHD), and The National Institute of Dental and Craniofacial Research (NIDCR) where she was part of a research team developing clinical trials for pheochromocytoma and paraganglioma. She then joined as Assistant Professor at the Montefiore Einstein Center for Cancer Care (MECCC) where she specialized in endocrine oncology involving thyroid cancer, parathyroid and adrenal tumors, and clinical research for gastroenteropancreatic neuroendocrine tumors. She subsequently completed a second fellowship in medical oncology at the National Cancer Institute (NCI) with a research focus on endocrine malignancies. Dr. Del Rivero is board certified in Internal Medicine, Endocrinology, Diabetes and Metabolism and Medical Oncology. Dr. Del Rivero is a Physician Scientist in the Developmental Therapeutics Branch. She is the Principal Investigator of the Natural History Study for Neuroendocrine Neoplasm and Adrenocortical Cancer to provide the basis of further development of therapeutic interventions, prevention/screening guidelines, endpoints for future clinical trials, and patient reported outcome measures. Dr. Del Rivero’s current efforts is the development of novel treatment approaches and targeted therapies for endocrine malignancies such as advanced gastroenteropancreatic neuroendocrine tumors, adrenocortical cancer and pheochromocytoma/paraganglioma. ALEXANDRA GANGI, MD Division Director of Surgical Oncology, Cedars-Sinai Medical Center Dr. Alexandra Gangi is a board-certified surgical oncologist at Cedars-Sinai Medical Center in Los Angeles. Dr. Gangi completed a general surgical residency at Cedars-Sinai and completed her surgical oncology fellowship at the H. Lee Moffitt Cancer Center in Tampa, Florida. She currently serves as the Division Director of Surgical Oncology and Director of the Gastrointestinal Tumor and Cancer Regional Therapies Programs with specialization in Pancreatic and GI Neuroendocrine tumors, Metastatic colorectal cancer, and Peritoneal Surface Malignancies. Her research focuses on understanding GEPNET heterogeneity between and within tumors subtypes and mechanisms of chemotherapy induced liver injury. LINDA (LINDY) GARDNER, MSN, RN, VA-BC Lead Nurse, Nuclear Medicine, UCLA Health Lindy has over two decades of Interventional Radiology experience prior to transitioning over to Nuclear Medicine in March of 2017. She obtained her RN qualification in 1993 from John Moores University of Liverpool, (LJMU) United Kingdom, she is a graduate from the University Of Dundee, Scotland where she received her Bachelors, and Master’s of Science in Nursing. In her Nuclear Medicine role Lindy is the lead nurse for the Peptide Receptor Radionuclide Therapy (PRRT) program, from the expanded access program (EAP) thru to the FDA approved commercial program. She has presented this program to a national and international audience; her skills are utilized as an expert liaison for institutions commencing the PRRT program, focusing on the patient experience, education, and therapy administration. Lindy is the nursing pillar lead for The International Center for Precision Oncology foundation (ICPO), with her focus on education, support and navigation for the NET patient journey. She is also the lead nurse for Radio-Ligand Therapy (RLT) for prostate cancer within Theranostics at UCLA, covering both clinical application and research. Lindy is a member of the Association for Radiologic and Imaging Nursing (ARIN), and the Association for Vascular Access (AVA), holding her board certification in vascular access (VACC). She sits as a member on The Healing NET Scientific Advisory Committee. J. RANDOLPH HECHT, MD Medical Oncologist, UCLA Health Dr. Hecht is a Professor of Clinical Medicine in the David Geffen School of Medicine at UCLA School of Medicine. He holds the Carol and Saul Rosenzweig Chair for Cancer Therapies Development and is the Director of the UCLA Gastrointestinal Oncology Program. Dr. Hecht attended medical school at Eastern Virginia Medical School. He took his internal medicine residency at Northwestern and completed fellowships in gastroenterology research at the University of Chicago, and in gastroenterology and medical oncology at UCLA. Dr. Hecht is an internationally known clinical and translational researcher in the field of gastrointestinal cancers. He has published widely on the molecular biology, early detection, and treatment of gastrointestinal malignancies. He has lead and is currently directing small trials with new molecules as well as large international randomized trials. Current ongoing research includes preclinical models of therapy with biological agents, early studies with gene therapy vectors and tyrosine kinase inhibitors, and leading phase II and phase III trials with novel agents. ANDREW HENDIFAR, MD Medical Oncologist, Cedars-Sinai Medical Center The current research focus of Andrew Hendifar, MD, is on developing new therapies for pancreatic cancer and neuroendocrine tumors. Dr. Hendifar has helped form multidisciplinary teams that specialize in the treatments of pancreatic cancer, and carcinoid and neuroendocrine tumors. Dr. Hendifar is the primary investigator for several groundbreaking therapies, including radioimmunotherapy for neuroendocrine tumors, anti-inflammatory therapy for pancreatic cancer and novel approaches to cancer cachexia. His national roles include SWOG GI Committee Member and a member of NIH Neuroendocrine Tumor Task Force. He also serves on the steering committee member for the Precision Promise Consortium and chairs the associated Supportive Care Committee. At Cedars Sinai he leads the Gastrointestinal Disease Research Group and is the founding Director of the Hematology and Oncology Fellowship Program. DANENG LI, MD Medical Oncologist, City of Hope Daneng Li, M.D., is an associate professor in the Department of Medical Oncology & Therapeutics Research at City of Hope Comprehensive Cancer Center, specializing in treating gastrointestinal cancers. Dr. Li currently leads the liver tumors program and is also the co-director of the Neuroendocrine Tumor Program at City of Hope. Dr. Li embraces a multidisciplinary approach to treatment of patients with neuroendocrine tumors. He leads several clinical trials focused on improving outcomes for patients with NETs and works closely with scientists in the development of the next generation of novel therapeutics. Nationally, he has served on several NET committees including the NANETS Research Committee, NANETS Continuing Medical Education Committee, and the Patient-Physician Communication Task Force for the Healing NET Foundation, allowing him to work closely to support NET patient advocacy programs. For all his efforts, he was honored as a recipient of the inaugural 40 Under 40 in Cancer Award during the American Society of Clinical Oncology annual meeting in 2018.

NET VITALS Download NET VITALS NET VITALS can be filled out digitally or printed and filled out. WHAT IS NET VITALS? LACNETS (now the Neuroendocrine Cancer Foundation) created NET VITALS as a tool for patients and healthcare professionals to share the most important information about a patient’s neuroendocrine tumor, or NET. In just 20 questions, filling out NET VITALS helps you learn the “vitals” of your NET. With all the important information about your disease in one document, NET VITALS gets you and your physician on the same page about your neuroendocrine cancer. Our hope is that NET VITALS will empower patients and improve patient-provider communication. Fill out NET VITALS in preparation for your medical appointment and bring it with you. Carry it with you as an important emergency document. NET VITALS aids with record-keeping and prompts for scan image disks and reports. Watch to learn how to navigate NET VITALS NEWLY DIAGNOSED? Are you newly diagnosed and want to learn the most important information about your neuroendocrine cancer (its “vitals”)? NET VITALS is a guide to biomarkers, terminology, and common procedures and treatments. NET VITALS provides a working document for the patient to understand key vocabulary about their disease and a way to keep track of their status. You are not expected to be familiar with all these terms or know all the answers. NET VITALS may identify questions for you to ask your doctor. LIVING WITH NETS? NET VITALS helps the patient keep current on their disease status and more easily communicate with their physician. NET VITALS can be particularly helpful when seeing a new doctor as part of the multi-disciplinary team or seeking a second opinion. It’s a shortcut to communicate the patient’s disease status in a “snapshot” and all in one place. HOW CAN NET VITALS HELP? Prepare for your appointment with your NET specialist by getting organized and compiling your information and records. Educate yourself on your disease by understanding how this information relates to you. Clarify questions you have for your doctor(s). Makes your medical appointment more efficient. HOW DO I FILL OUT NET VITALS? Download NET VITALS here. Build your NET INTRO or NET elevator speech , which consists of items #2-6 of NET VITALS. Watch the NET VITALS webinar. When you encounter unfamiliar terms and treatments, refer to the resources on the last page of the NET VITALS document. CNETS provides an excellent comprehensive patient guide that can be found here. Filling out NET VITALS can help identify the information that the NET specialist can clarify. As you complete it, you can build your list of questions to bring to your appointment. The Neuroendocrine Cancer Foundation (previously LACNETS) thanks Dr. Dan Li at City of Hope for being our Medical Advisor on NET VITALS. NET VITALS is featured in the following publications: In 2022, NET VITALS was featured in the journal, Pancreas. The study concluded that NET VITALS is a feasible and acceptable self-assessment tool to potentially help patients improve communication about their NET diagnosis/treatment with their physician. Read the full article here. In 2023, NET VITALS was featured in the Journal of Clinical Medicine. The article describes a proposed infrastructure for its implementation into standard clinical care in both academic and community practice settings at City of Hope. We hope that incorporating NET VITALS into standard of care treatment for patients with neuroendocrine tumors may improve patients’ overall clinical care experience. Read the full article here. NOTE: NET VITALS is a document for personal use only. It is not submitted to nor collected by LACNETS. It is a document for you to fill out and take with you to your physician appointment. This document is intended for informational and educational purposes only and is not a substitute for professional medical advice. Always consult with your physician or health care provider.

THE LACNETS PODCAST Special Episode: The LACNETS Story ABOUT THIS EPISODE: In this special episode, we share the history of LACNETS – the who, what, and when. We journey down memory lane with eight special guests from before the birth of LACNETS to where it is today. This episode is dedicated to Giovanna Joyce Imbesi, the LACNETS Founder, whose vision and dedication inspires us all. Listen now! Do you have a special memory of Giovanna and LACNETS? Share your story with us here. Photo Reel: LACNETS Over the Years Storytellers THANKS TO OUR SPONSORS

In Loving Memory Giovanna Joyce Imbesi Our founder, hero & inspiration to live life fully… Giovanna Joyce Imbesi, LACNETS founder, was a patient advocate, pianist, and composer based in Los Angeles. She lived fully with neuroendocrine cancer for 14 years and served as a model of compassion, love and kindness. In 2005, after several years of misdiagnosis, Giovanna was diagnosed with metastatic small bowel neuroendocrine cancer. She understood that those with a rare cancer may feel isolated, and sharing similar experiences may lessen the fear of the unknown and offer comfort. It became her mission to help others in the NET community. Her vision was to create a community for a healing exchange of educational resources and emotional support for all affected by neuroendocrine cancer. Against all odds, Giovanna went on to receive an MBA from UCLA Anderson School of Management with the sole intent of launching LACNETS. In 2012, she founded the non-profit GeneratePossibility and the Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS) program. Giovanna's physician, Dr. Edward Wolin, was the inaugural speaker for the first LACNETS' patient education meeting. Through LACNETS, Giovanna's aspiration was to create a more "NET-fluent" world. She wanted to change the narrative from associating NET with famous people who die from the disease to raising awareness of the more than 180,000 people who live with the disease. Giovanna wrote, "Each one of us has the ability to help change those numbers in our own community. There are more opportunities to share more about NET and add one more person to the extended global family of NET awareness." Giovanna helped create tools, such as NET VITALS, to improve communication between patients and physicians. She believed that increased awareness equates to more research, which leads to improved treatments and patient outcomes. Giovanna received the 2016 Monica Warner Advocacy Award, as well as the 2019 Cedars-Sinai Patient Leadership Award , for her inspiring work in patient advocacy. Giovanna Joyce Imbesi passed away peacefully on November 24th, 2019. On her last day, Giovanna said with great pride that her greatest legacy was LACNETS. She felt blessed by this community. Giovanna often said, "Aging is a privilege." She celebrated life and connectedness. She believed in practicing gratitude, even appreciating the difficult times. She was grateful for the thousands of neuroendocrine tumor physicians, researchers and healthcare providers who work on the behalf of NET patients every day. The Neuroendocrine Cancer Foundation works daily to honor Giovanna's vision by serving the NET community she established and helping others to live life richly and fully with NET like she did. Participate in the Vision Watch the tribute video honoring Giovanna Joyce Imbesi by Rich Tamayo, Emmy Winning Video Producer & a friend of LACNETS GENERATE POSSIBILITY For Giovanna, music was medicine. Her musical compositions can be heard on "Short Stories - piano music for healing, meditation & relaxation" recorded while in recovery from neuroendocrine cancer surgery. These pieces were inspired by her belief in the healing power of music as a vital element of our well-being. She frequently contributed music to NET causes. A frequent speaker on living with neuroendocrine cancer and the healing power of music, Giovanna was featured as one of six leaders in Integrative Cancer Care at the 2018 Symington Public Forum at Commonweal. We hope that Giovanna's song and her own words, "Give Me Peace," bring some comfort and peace. I’ll always be grateful for Giovanna and her work through LACNETS (now Neuroendocrine Cancer Foundation). The information I learned and connections I made through the educational meetings changed the course of my medical care and helped me to get back to a place where I could enjoy life. — Tom, NET Patient

< Back to the upcoming events page https://www.youtube.com/watch?v=wgEoFAQ7lp8 ABOUT Learn the latest in genetics and genomics for neuroendocrine cancers from medical oncologist Dr. Kimberly Perez from Dana Farber Cancer Institute (DFCI) in Boston, Massachusetts. Dr. Perez has expertise in hereditary cancer syndromes and deciphers the topics of genetics and genomics. ABOUT DR. PEREZ Kim Perez, MD Medical Oncologist D ana Farber Cancer Institute (DFCI) Dr. Kimberly Perez, MD is a member of the Dana-Farber Cancer Institute/Harvard Cancer Center Gastrointestinal Oncology and Cancer Genetics and Prevention disease centers. She is a Senior Physician in Medical Oncology at Dana-Farber Cancer Institute, an Associate Physician in Medical Oncology at Brigham and Women’s Hospital, co-Director of the DFCI Gastrointestinal Clinical Trials program, and an Assistant Professor of Medicine at Harvard Medical School. She received her undergraduate training at Georgetown University in Washington DC and received her medical doctorate from George Washington University in Washington DC. She completed her residency and fellowship training at Rhode Island Hospital in 2010. After completing her fellowship, she joined the medical faculty at Warren Alpert School of Medicine at Brown University and served as a Gastrointestinal Oncologist at the Comprehensive Cancer Center at Rhode Island Hospital. She joined the faculty at the Dana-Farber Cancer Institute in 2015 as a medical oncology physician-scientist who provides patient care and conducts clinical research of novel therapies for patients diagnosed with gastrointestinal cancers and inherited cancer syndromes. Since she joined the faculty, she was designated a Hale Family Center for Pancreatic Cancer Research Clinical Investigator and has developed and led investigator-initiated bench to clinic multi-institutional clinical trials for patients with pancreatic adenocarcinoma. Within the Neuroendocrine and Carcinoid program, she has led multi-institutional clinical trials, translational efforts, and served and led national therapeutic guideline efforts. Dr. Perez is a medical oncology physician-scientist who provides patient care and conducts clinical research of novel therapies for patients diagnosed with gastrointestinal cancers and associated hereditary cancer syndromes. Since she joined the faculty at Harvard Medical School and the Dana-Farber Cancer Institute in 2015, she has developed and led investigator-initiated clinical trials investigating novel therapies for patients with pancreatic adenocarcinoma and neuroendocrine tumors. The opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by LACNETS or the sponsors of this program. LACNETS does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely solely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments.

<< Back Lung/Bronchial NETs PRRT/RLT Trials 225Ac-ABD147 to Establish Optimal Dose in Patients With SCLC and LCNEC of the Lung That Previously Received Platinum-based Chemotherapy Alpha PRRT with RYZ401 in PRRT-naive Solid Tumors Expressing SSTRs Alpha PRRT with Pb-212 (all NET) Alpha PRRT with Ac-225 + Standard of Care in SSTR+ SCLC Alpha PRRT with Pb-212 VMT Lu-177 + Carboplatin, Etoposide, and Atezolizumab in SCLC Lu-177 DOTATATE + Cabozantanib (all NET) Lu-177 DOTATATE vs Everolimus in Lung NETs Immunotherapies DAREON™- 5: DLL-3 BiTE for Neuroendocrine Cancers DAREON™-9: DLL-3 BiTE + Topotecan in Small Cell Lung Cancer (SCLC) IL13Rα2 CAR T Cell Study for Solid Tumor Cancers Survivin Long Peptide Vaccine (SurVaxM) in Metastatic NETs Tarlatamab in DLL3-Expressing Tumors Including Neuroendocrine Neoplasms Targeted Therapies Antibody Drug Conjugate ADCT-701 in Neuroendocrine Tumors and Carcinomas BRAVESST2: CRN09682 in SST2-Expressing NENs and Other Solid Tumors IDE849 (DLL3-Targeted ADC) ± Durvalumab in DLL3+ Tumors Nab-sirolimus in Patients With Well-differentiated Neuroendocrine Tumors (NETs) STELLAR-311: Zanzalintinib Versus Everolimus in pNET and epNET with Locally Advanced or Metastatic Neuroendocrine Tumors Tarlatamab in DLL3-Expressing Tumors Including Neuroendocrine Neoplasms