Search Results
396 results found with an empty search
Blog Posts (91)
- Why Attend the NCF NET Cancer Day Symposium on November 8th?
Neuroendocrine cancer (including neuroendocrine tumors/NET or neuroendocrine carcinoma/NEC) can feel isolating. Because the disease is uncommon and often misunderstood, many patients and caregivers spend months or years searching for clear information, experienced providers, and people who truly understand what they are facing. That is why in-person education and connection matters. The 2026 NET Cancer Day Symposium will bring the neuroendocrine cancer community together in Las Vegas, Nevada, on Sunday, November 8th, to focus on education, connection, and awareness. This is an opportunity for patients, caregivers, and advocates to interact with healthcare professionals in an intimate forum. You’ll be provided with the rare opportunity to hear directly from clinicians and specialists who understand neuroendocrine cancer and can help patients and caregivers build their knowledge, better understand the disease, learn about current therapies, and gain insight into questions they may want to discuss with their own care teams. This can help you feel more prepared and empowered to tackle your care and navigate complex decisions. The goal is not to replace conversations with your medical team. Instead, educational events can help you become a well-informed partner in those conversations. Education does not only come from the stage. It also comes from conversations in the room. The symposium is intended to create space for connection among patients, caregivers, clinicians, advocates, and supporters. Living with neuroendocrine cancer can bring uncertainty, stress, and emotional challenges. In-person gatherings can help patients and caregivers feel less alone and more connected to a community that understands the realities of neuroendocrine cancer. Hearing from others who are living with neuroendocrine cancer, caring for a loved one, or working to advance the field can offer encouragement, perspective, and a renewed sense of solidarity. “I have been part of the NET community for more than a decade, and some of my most meaningful experiences have come from sitting with the NCF team, exchanging ideas and shaping topics for meetings throughout the years—not only for NET Cancer Day. We do this because we genuinely love the work and care deeply about creating valuable experiences for the NET community. It is especially meaningful to have such an active role in planning and hosting the 2026 NET Cancer Day Symposium, and I am truly looking forward to welcoming everyone for a productive, engaging, and exciting meeting.” - Taymeyah Al-Toubah, Interim NCF Program Director RAISE AWARENESS TOGETHER NET Cancer Day is a global opportunity to increase awareness of neuroendocrine cancer. The 2026 NET Cancer Day Symposium will be part of that broader effort by bringing people together to learn, connect, and help expand understanding of this complex and often misdiagnosed disease. When patients, caregivers, advocates, clinicians, and supporters gather in person, they help enhance neuroendocrine cancer awareness within your community. JOIN US IN LAS VEGAS The 2026 NET Cancer Day Symposium will take place in Las Vegas, Nevada, from 8:30 AM to 3:00 PM, on Sunday, November 8th, at the JW Marriott Las Vegas Resort & Spa, 221 N Rampart Blvd Las Vegas, NV 89145. Whether you are newly diagnosed, have been living with neuroendocrine cancer for years, are caring for a loved one, or want to better understand this disease, the symposium is an opportunity to learn, connect, and take the next step with support. Thanks to the generosity of sponsors, we invite you to join us at no cost. Breakfast, lunch and beverages will be provided. Register for this in-person event: NCF.net/events/ncd2026 THANKS TO OUR SPONSORS
- Welcoming Taymeyah Al-Toubah
Taymeyah Al-Toubah, MPH, CCRP The Neuroendocrine Cancer Foundation ("NCF") is grateful to welcome Taymeyah Al-Toubah, MPH, CCRP, in a special support role as the Interim Program Director during the remainder of 2026. Taymeyah will support NCF’s programs and educational efforts from July 1 through December 31, 2026, helping ensure continuity for the patients, caregivers, clinicians, and community members who rely on NCF for trusted education, resources, and connection. This temporary support comes as Lisa Yen, NP, NBC-HWC, NCF’s Director of Programs & Outreach, takes time following the passing of her beloved husband, Tom Bajoras. Taymeyah brings more than a decade of experience in academic medicine, clinical research, oncology, and neuroendocrine tumor research. She holds dual bachelor’s degrees in Biomedical Sciences and Psychology and a Master of Public Health in Epidemiology. Her interest in neuroendocrine tumors began during her MPH thesis, which became one of her first NET publications. From 2018 to 2023, Taymeyah served as the primary neuroendocrine tumor (NET) coordinator at Moffitt Cancer Center, managing clinical trials, leading the GI team, and supporting retrospective and non-interventional research. She later served as Senior Project Manager of the NET program, overseeing protocol development, database creation, manuscript writing, and the curation of a master database of more than 10,000 NET patients. Taymeyah has published more than 45 manuscripts and has presented at both Europeon Neuroendocrine Tumor Society (ENETS) and the North American Neuroendocrine Tumor Soceity (NANETS). She serves on the Board of Directors of NANETS and co-founder and medical advisory committee of FLaNET Carcinoid Community, and she continues to mentor students pursuing neuroendocrine tumor research. In 2025, she began medical school in Italy, continuing her path toward becoming a physician-scientist dedicated to advancing care for neuroendocrine cancer patients. We are thankful to Taymeyah for stepping in during this meaningful time and grateful to our staff, Board, volunteers, medical advisors, and community partners for continuing to support NCF’s mission. As always, NCF remains committed to providing trusted education, support, and resources for people impacted by neuroendocrine cancer. If you have any questions, email the NCF team at info@NCF.net. THANKS TO OUR SPONSORS
- Team Craig Lacrosse Supports the Neuroendocrine Cancer Community
Team Craig chose the Neuroendocrine Cancer Foundation (NCF) to support its work on behalf of patients and families affected by neuroendocrine cancer. Team Craig is named in honor of Craig Adams, who lost his battle with a form of neuroendocrine cancer in 2015. His sons, Ben and John Adams, promised to honor his legacy and give back to the community that helped give their family eight extra years with him. What began as a tribute to their father has grown into a powerful tradition: each year, a lacrosse team made up of friends and teammates from across the country competes in the Vail Lacrosse Shootout, united by Craig’s legacy and a shared passion for the game. Team Craig has quickly become one of the top competitors in the tournament, finishing third in 2024 and winning the tournament championship in 2025. In 2026, the team returned to compete again with a renewed mission to raise awareness and funds for families affected by neuroendocrine cancer. This year, Team Craig took that mission one step further by dedicating its efforts to supporting NCF’s work to expand awareness, education, and patient resources for those impacted by this complex and uncommon disease. The effort included a casual community gathering at Ratio Beerworks - OVERLAND in Denver, where supporters came together for live music, refreshments, conversation, and community in support of NCF. Neuroendocrine cancer can be difficult to diagnose and treat, and many patients experience years of misdiagnosis or undiagnosed symptoms. NCF works to change that by providing education and resources for patients and caregivers, increasing awareness and understanding of neuroendocrine cancers, connecting patients to experts and information about treatment options and clinical trials, and supporting a community for people navigating diagnosis and care. As Heather Davis, NCF’s Director of Community Engagement, reflected, navigating a difficult cancer can feel a lot like the unpredictable path of a loose ground ball in lacrosse. You never know exactly which way it will bounce, and the next challenge can come quickly. For many people living with neuroendocrine cancer, that uncertainty is part of daily life. There is often a constant need to adapt, make decisions, overcome obstacles, and prepare for what comes next. In lacrosse, one of the most important skills is cradling the ball: keeping it secure in the pocket of the stick while running, dodging defenders, preparing to pass, or taking a shot. That image feels especially meaningful for the neuroendocrine cancer community. Living with an uncommon cancer requires strategy, skill, focus, and agility. It requires a team that can help protect, guide, and support patients and families as they move through each stage of care. That is why NCF is so grateful to Team Craig, the Adams family, Chase Konkel, and everyone who helped bring this effort to life. Their generosity and commitment are helping NCF “cradle” the neuroendocrine cancer community by supporting those living with this uncommon cancer and helping connect more people to the resources and expertise they need. Although Team Craig did not take home the championship this year, their presence on the field represented something far greater than a final score. They played with purpose, honoring Craig’s memory and continuing a legacy rooted in teamwork, resilience, and care for others. NCF believes it takes a strong team to face cancer and to live well despite it. Team Craig is helping make that possible so that no one has to face neuroendocrine cancer alone. A special shoutout to Bodango for bringing the music and positive energy to the event and helping make the gathering even more memorable. We extend our heartfelt thanks to Ben and John Adams, Chase Konkel, the Adams family, donors, supporters, and Team Craig Lacrosse. Your commitment to this community is deeply meaningful, and your support will help NCF continue providing education, connection, and hope to patients and families affected by neuroendocrine cancer.
Other Pages (305)
- NCF Events (List) | NeuroendocrineCancer
Neuroendocrine Cancer Foundation Upcoming Patient & Caregiver Events When Hormones Interfere With Quality of Life in Neuroendocrine Cancers August 27, 2026, 1:30 - 3 PM Pacific Join Dr. Jaydira Del Rivero, medical oncologist and endocrinologist at the National Cancer Institute, for a discussion on how hormones can affect quality of life in people living with neuroendocrine cancer. Topics will include thyroid disorders, hormone-related side effects from immunotherapy, hormone replacement therapies, GLP-1 medications, and practical considerations for managing hormone-related symptoms and concerns. Register 2026 NET Cancer Day Symposium Las Vegas, NV 8:30 am - 3 pm The 2026 NET Cancer Day Symposium will bring the neuroendocrine cancer community together in Las Vegas, Nevada for a day of education, connection, and awareness. Register Neuroendocrine Tumor (NET) Patient & Caregiver Support Group Weekly on Wednesdays Aug: 5, 12, 19, 26, 2026 We provide a welcoming space to come together virtually for knowledge sharing and community support. The focus of the meeting is to connect with others living with, or supporting someone living with, neuroendocrine cancer. Both patients & caregivers discuss treatments, symptoms, living well and information uniquely related to this disease. This group is open to NET patients and caregivers. Register Neuroendocrine Tumor (NET) Caregiver Support Group Typically on the Last Saturday of the Month Upcoming Dates: Aug 29, 2026 Sep 26, 2026 Oct 24, 2026 Nov 21, 2026 Dec 19, 2026 Neuroendocrine Cancer Foundation's Monthly NET Caregiver-Only support group is a virtual space to come together for support, connection and community with other care partners who support, or have supported, those with Neuroendocrine Cancer. Unlike our Weekly Wednesday Support Group for Caregivers & Patients that focuses on medical aspects of NETs, this group focuses on the unique experiences and psycho-social concerns of caregivers. *OPEN TO NET CAREGIVERS ONLY. Register Click here for recent events
- Partner Spotlight | NeuroendocrineCancer
Patient & Caregiver Events in the Neuroendocrine Cancer Community "Managing Health Insurance Transitions" July 22, 2026 We’re partnering with Triage Cancer on their upcoming webinar, Managing Health Insurance Transitions, on July 22, 2026. Life changes such as moving, changing jobs, or losing coverage can significantly impact access to care. This session will outline options for moving between employer plans, transitioning after loss of coverage, and switching insurance when relocating. It will also cover changes between Mediaid, Medicare, and Marketplace plans, and highlight key considerations when comparing multiple coverage options to ensure continuous protection. Free CE for professionals. Register here: TriageHealth.org/Webinars Register "Beyond Medical Care: Finding the Help You Need" June 23, 2026 We’re partnering with Triage Cancer on their upcoming webinar, Beyond Medical Care, on June 23, 2026. This webinar is focused on practical resources to navigate life after a serious medical diagnosis. This session will explore the legal, financial, and emotional challenges that often accompany health concerns and highlight key programs designed to help. Attendees will learn about financial and legal assistance options, mental health services, patient advocacy and navigation support, and other valuable resources. The webinar will also share tips for working with financial planners and completing essential paperwork to access available benefits. Free CE for professionals. Register here: TriageHealth.org/Webinars Register "Coping With Stress" May 27, 2026 We’re partnering with Triage Cancer on their upcoming webinar Coping With Stress on May 27, 2026. This webinar explores how to cope with stress and uncertainty. For individuals living with serious health conditions and their caregivers, uncertainty can feel especially heavy. This session will unpack the emotional impact of uncertainty and provide practical strategies to manage stress, worry, and fear. Attendees will learn tools to strengthen self-awareness, regulate intense emotions, and build lasting resilience. In recognition of Mental Health Awareness Month, the webinar will focus on realistic ways to find calm, stay grounded, and create stability in times of change. Free CE for professionals. Register here: TriageHealth.org/Webinars Register Triage Health Online Conference May 15 & 16, 2026 We’re proud to partner with Triage Cancer for the Triage Health Conference, taking place May 15-16. This FREE online event provides valuable information on navigating the practical and legal issues that may arise after a chronic or serious medical diagnosis. Topics for this year’s conference include: • Health insurance options & picking a plan • Tips for using health insurance, navigating prior authorizations, & appealing denials • Managing finances, medical bills, & financial help • Tools for making decisions about work • Estate planning • Getting organized • Becoming an empowered patient and advocate Free continuing education credits are also available for professionals. Find answers to your questions at this important event. For more information and to register, visit: TriageCancer.org/Conferences or TriageHealth.org/Conferences . Register "Medicare Made Simple: A Guide for First-Time Enrollees" April 22, 2026 We’re partnering with Triage Health on their upcoming webinar, 'Medicare Made Simple: A Guide for First-Time Enrollees,' on April 22, 2026. Join Triage Cancer for a FREE webinar on April 22 to learn about Medicare basics. This session is for those turning 65 or qualifying for Medicare through Social Security Disability Insurance. It will cover Parts A, B, C and D, key enrollment deadlines, and how Medicare works with employer, retiree, and COBRA plans. Learn how to make the best coverage choices and avoid common, costly mistakes. FREE CE for professionals. Register here: TriageHealth.org/Webinars Register "Health Insurance Options for Immigrants" April 14, 2026 We’re partnering with Triage Health on their upcoming webinar, 'Health Insurance Options for Immigrants,' on April 14, 2026. Join Triage Cancer for a FREE webinar on April 14 about health insurance options for immigrants. Noncitizens of the United States may have different rights to health care based on a variety of factors. This session will explain the health insurance and health care options available for different types of immigrants, including those who are lawfully present in the U.S. This webinar will be delivered in Spanish. Únete al seminario gratuito de @TriageCancer el 14 de abril donde comentaremos sobre las opciones de seguro médico para migrantes. Las personas que no son ciudadanos de los estados unidos tienen derecho a seguro médico basado en diferentes factores. Este seminario explicará seguro médico y cuidados disponibles para migrantes incluyendo aquellos que están legalmente presentes en los estados unidos. El seminario será en español. FREE CE for professionals. Register here: TriageHealth.org/seminariosweb Registro: TriageHealth.org/seminariosweb Register "Steps to Navigate Common Insurance Hurdles" Mar 24, 2026 We’re partnering with Triage Health on their upcoming webinar 'Steps to Navigate Common Insurance Hurdles' on March 24, 2026. Join TriageHealth for a FREE webinar on March 24 focused on navigating common health insurance hurdles. Learn how to understand and address challenges such as prior authorizations, co-pay accumulators, alternative funding programs, step therapy, and coverage denials to help ensure timely access to care. + FREE CE for professionals. Register here: TriageHealth.org/Webinars Register Accommodations, Leave, Disability & Retirement Feb 24, 2026 We’re partnering with Triage Cancer on their upcoming webinar, Decisions About Work: Accommodations, Leave, Disability & Retirement , on Feb 24, 2026. This FREE webinar will explain Decisions About Work: Accommodations, Leave, Disability & Retirement . This webinar series discusses the practical and legal issues impacting people beyond diagnosis. Every webinar is open to the general public, and health care professionals can receive free continuing education. Learn more and register at TriageCancer.org/Webinars Register If you want to list an event here, please contact us at info@NCF.net . Click here for NCF Events
- Aug2026 | NCF
Join NCF for Aug2026. Explore event details, dates, times, and discover opportunities to connect, learn, and get involved. < Back to the upcoming events page REGISTER Some Topics Covered: Neuroendocrine cancer, Neuroendocrine tumors (NETs), Patients, Caregivers, Endocrinology, Hormones, Quality of Life, Thyroid Disorders, Immunotherapy, Hormone Replacement Therapy, Testosterone Replacement, GLP-1 Medications, Symptom Management, Survivorship. ABOUT Neuroendocrine cancers can sometimes produce hormones that cause symptoms affecting daily life, including flushing, diarrhea, abdominal discomfort, changes in blood sugar, fatigue, and other quality-of-life concerns. Hormones can have a profound impact on how you feel and function, and in neuroendocrine cancer they can affect far more than tumor growth alone. Join us for this educational session with Jaydira Del Rivero, a medical oncologist and endocrinologist at the National Cancer Institute, as we explore the "endocrine" side of neuroendocrine cancer and its impact on daily life. Building on her January 2026 overview of functional neuroendocrine tumors (NETs), Dr. Del Rivero will discuss common hormone-related issues that patients may encounter throughout their cancer journey. Topics will include: Thyroid disorders and their symptoms Hormone-related side effects associated with immunotherapy Testosterone replacement and other hormone replacement therapies, including when they may be appropriate and when they may not What patients should know about GLP-1 medications Practical considerations for recognizing and managing hormone-related symptoms Whether you are living with a functional or nonfunctional NET, this session will provide practical knowledge to help you better understand your symptoms, optimize quality of life, and have informed conversations with your healthcare team. ABOUT DR. JAYDIRA DEL RIVERO Jaydira Del Rivero, MD Medical Oncologist & Endocrinologist National Cancer Institute, National Institutes of Health Dr. Del Rivero earned her medical degree from the University of Veracruz in Veracruz, Mexico and completed her internal medicine residency at Woodhull Medical and Mental Health Center/NYU-Langone Medical Center. Dr. Del Rivero completed a fellowship in Endocrinology, Diabetes and Metabolism at The Inter-Institute Endocrinology Training Program (IETP) at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), The National Institute of Child Health and Human Development (NICHD), and The National Institute of Dental and Craniofacial Research (NIDCR) where she was part of a research team developing clinical trials for pheochromocytoma and paraganglioma. She then joined as Assistant Professor at the Montefiore Einstein Center for Cancer Care (MECCC) where she specialized in endocrine oncology involving thyroid cancer, parathyroid and adrenal tumors, and clinical research for gastroenteropancreatic neuroendocrine tumors. She subsequently completed a second fellowship in medical oncology at the National Cancer Institute (NCI) with a research focus on endocrine malignancies. Dr. Del Rivero is board certified in Internal Medicine, Endocrinology, Diabetes and Metabolism and Medical Oncology. Dr. Del Rivero is a Physician Scientist in the Developmental Therapeutics Branch. She is the Principal Investigator of the Natural History Study for Neuroendocrine Neoplasm and Adrenocortical Cancer to provide the basis of further development of therapeutic interventions, prevention/screening guidelines, endpoints for future clinical trials, and patient reported outcome measures. Dr. Del Rivero’s current efforts is the development of novel treatment approaches and targeted therapies for endocrine malignancies such as advanced gastroenteropancreatic neuroendocrine tumors, adrenocortical cancer and pheochromocytoma/paraganglioma. THANKS TO OUR SPONSORS T he opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by the Neuroendocrine Cancer Foundation or the sponsors of this program. The Neuroendocrine Cancer Foundation does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments.




