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  • Team Craig Lacrosse Carries Forward a Legacy of Strength, Connection, and Hope

    Team Craig chose the Neuroendocrine Cancer Foundation (NCF) to support its work on behalf of patients and families affected by neuroendocrine cancer. Team Craig is named in honor of Craig Adams, who lost his battle with a form of neuroendocrine cancer in 2015. His sons, Ben and John Adams, promised to honor his legacy and give back to the community that helped give their family eight extra years with him. What began as a tribute to their father has grown into a powerful tradition: each year, a lacrosse team made up of friends and teammates from across the country competes in the Vail Lacrosse Shootout, united by Craig’s legacy and a shared passion for the game. Team Craig has quickly become one of the top competitors in the tournament, finishing third in 2024 and winning the tournament championship in 2025. In 2026, the team returned to compete again with a renewed mission to raise awareness and funds for families affected by neuroendocrine cancer. This year, Team Craig took that mission one step further by dedicating its efforts to supporting NCF’s work to expand awareness, education, and patient resources for those impacted by this complex and uncommon disease. The effort included a casual community gathering at Ratio Beerworks - OVERLAND in Denver, where supporters came together for live music, refreshments, conversation, and community in support of NCF. Neuroendocrine cancer can be difficult to diagnose and treat, and many patients experience years of misdiagnosis or undiagnosed symptoms. NCF works to change that by providing education and resources for patients and caregivers, increasing awareness and understanding of neuroendocrine cancers, connecting patients to experts and information about treatment options and clinical trials, and supporting a community for people navigating diagnosis and care. As Heather Davis, NCF’s Director of Community Engagement, reflected, navigating a difficult cancer can feel a lot like the unpredictable path of a loose ground ball in lacrosse. You never know exactly which way it will bounce, and the next challenge can come quickly. For many people living with neuroendocrine cancer, that uncertainty is part of daily life. There is often a constant need to adapt, make decisions, overcome obstacles, and prepare for what comes next. In lacrosse, one of the most important skills is cradling the ball: keeping it secure in the pocket of the stick while running, dodging defenders, preparing to pass, or taking a shot. That image feels especially meaningful for the neuroendocrine cancer community. Living with an uncommon cancer requires strategy, skill, focus, and agility. It requires a team that can help protect, guide, and support patients and families as they move through each stage of care. That is why NCF is so grateful to Team Craig, the Adams family, Chase Konkel, and everyone who helped bring this effort to life. Their generosity and commitment are helping NCF “cradle” the neuroendocrine cancer community by supporting those living with this uncommon cancer and helping connect more people to the resources and expertise they need. Although Team Craig did not take home the championship this year, their presence on the field represented something far greater than a final score. They played with purpose, honoring Craig’s memory and continuing a legacy rooted in teamwork, resilience, and care for others. NCF believes it takes a strong team to face cancer and to live well despite it. Team Craig is helping make that possible so that no one has to face neuroendocrine cancer alone. A special shoutout to Bodango for bringing the music and positive energy to the event and helping make the gathering even more memorable. We extend our heartfelt thanks to Ben and John Adams, Chase Konkel, the Adams family, donors, supporters, and Team Craig Lacrosse. Your commitment to this community is deeply meaningful, and your support will help NCF continue providing education, connection, and hope to patients and families affected by neuroendocrine cancer.

  • NCF's Patient Education Event Brings Neuroendocrine Cancer Community Together in Atlanta

    On Saturday, May 16, approximately 110 people, including neuroendocrine cancer patients, caregivers, clinicians, scientists, advocates, and industry partners, gathered in Atlanta, Georgia, for the Neuroendocrine Cancer Foundation Patient Education Event. Designed specifically for individuals living with neuroendocrine cancer (or NET) and their loved ones, this full-day program brought together leading regional experts from Emory University, the University of Alabama at Birmingham (UAB), and Vanderbilt University Medical Center to provide practical, up-to-date education on the diagnosis and management of neuroendocrine cancer. Attendees traveled from across the Southeast and beyond to learn more about their disease, connect with others who understand the NET journey, and gain hope through education and community. For many, this was their very first NET patient education event. Notably, none of the attendees had previously participated in clinical trials or research, underscoring the importance of continuing efforts to improve patient education and awareness around emerging treatment opportunities. Participants remained highly engaged throughout the day, asking thoughtful questions and sharing meaningful conversations with both experts and fellow attendees. Prior to the event, Dr. Daniel Halperin shared his thoughts on the value of attending in-person educational programs during this rapidly evolving time in neuroendocrine cancer care: The day opened with an inspiring patient story from Jay, who shared his experience living with neuroendocrine cancer and his perspective on learning to live “symbiotically” with the disease. He spoke candidly about refusing to let NET define or limit his life and about maintaining emotional steadiness even during moments of tumor progression or treatment changes. His honesty, humor, and optimism resonated deeply with attendees and helped set the tone for a patient-centered day grounded in resilience and hope. Eight outstanding speakers covered a broad range of clinical and practical topics, including surgery, liver-directed therapy, systemic treatments, imaging, PRRT, and clinical trials. Attendees also learned about emerging research exploring GLP-1 agents and neuroendocrine tumors from a leading scientist in the field. Event Recording To help attendees continue learning and revisit the information shared during the program, watch the full event recording below. To download speaker slides, click the link beneath each presentation title. Two Q&A panel discussions gave attendees the opportunity to ask questions spanning a wide range of topics, from preparing for a first NET appointment and navigating treatment decisions to understanding clinical trials and the growing role of artificial intelligence in research and clinical care. Welcome & Introductions A Patient Journey Multidisciplinary Approach to Surgery for NET Liver-Directed Therapy: Understanding Minimally Invasive Options to Treat Liver Tumors Understanding Your Scans and PRRT: How Imaging Guides Treatment Preparing for PRRT: What Patients Need to Know Systemic Therapy for Neuroendocrine Cancer: What Patients Need to Know Q&A Session + Expert Panel #1 How Do GLP-1 Agents Factor Into Neuroendocrine Tumor Care Strategies? What It Means To Be Part of a Clinical Trial Clinical Trials: What's on the Horizon? Q&A Session + Expert Panel #2 Whether newly diagnosed or living with NET for more than 20 years, participants consistently shared that the information was practical, understandable, and highly relevant to their daily lives. Beyond the educational sessions, attendees valued the opportunity to connect personally with speakers, patient advocates, and industry supporters. Many especially enjoyed learning fun and humanizing facts about the clinicians’ hobbies and interests outside of medicine. Participants were also treated to a moving reading of healing poetry by Dr. Saima Muzahir, which brought an especially meaningful and reflective moment to the day. By the close of the program, attendees left with new knowledge, new connections, and renewed hope. The event highlighted not only the tremendous progress being made in neuroendocrine cancer research and treatment, but also the collective commitment across the NET community to help people live longer and better with this uncommon disease. The post-event survey, completed by approximately 15% of the attendees, highlighted the success of the conference: Conference Success Highlights 100% of respondents said the event was worthwhile 100% would recommend the conference to others 100% said they visited Supporter's Exhibit Tables 100% of the respondents said they have an increased knowledge of various procedures and/or treatments specific to my diagnosis. Attendees rated the event an average of 4.75 out of 5 overall More than 91% reported a better understanding of neuroendocrine cancer Participants rated their increased awareness of NCF resources at an average of 4.7 out of 5 Participants described the event as: “Terrific” “Very informative” “Helpful in understanding treatment options.” “A wonderful opportunity to connect with experts and other patients” Following the Neuroendocrine Cancer Foundation’s Patient Education Conference in Atlanta, Drs. Seth Concors and Udhay Grewal of Emory University discussed the value of multidisciplinary care for people living with neuroendocrine cancer. They highlighted how bringing multiple specialists together in a coordinated team approach helps patients better understand their options, streamline care, and develop comprehensive treatment plans closer to home. Special thanks to Dr. Udhayvir Grewal for his collaboration and partnership with the Neuroendocrine Cancer Foundation in making this event possible. To learn more about upcoming Neuroendocrine Cancer Foundation in-person and virtual programs, visit the NCF Upcoming Events & Meetings page. THANKS TO OUR SPONSORS

  • A Day Focused on Nuclear Medicine, Molecular Imaging, and Theranostics

    Recapping the SNMMI Neuroendocrine Cancer Patient Education Event On May 31st, the 2026 Society of Nuclear Medicine and Molecular Imaging (SNMMI) Neuroendocrine Cancer Patient Education Day brought the NET community to the Los Angeles Convention Center, co-organized by the Neuroendocrine Cancer Foundation (NCF) and NorCal CarciNET's Josh Mailman alongside the SNMMI Annual Conference. Offered completely free and in a hybrid format, the event opened doors for patients and families, whether they attended in person or tuned in from home. From morning sessions on imaging and clinical trials to an afternoon deep dive into the frontiers of theranostics, the day was anchored by a throughline that never let up: the patient is at the center of all of it. This video is a recap of the Patient Education Day at SNMMI. Starting with the big picture: nuclear medicine and clinical trials The morning opened with a grounding overview of nuclear medicine and molecular imaging from Martin Tornai, PhD, of the National Institutes of Health's National Institute of Biomedical Imaging and Bioengineering. For many patients, terms like DOTATATE and PRRT carry enormous weight, and this session gave attendees a clearer foundation for understanding the tools being used in their care. George Fisher, MD, PhD, of Stanford Cancer Center, then walked through one of the most practical topics a NET patient can navigate: how to understand and evaluate clinical trials. From how trials are structured to what questions to ask your care team, this session was designed to help patients feel more empowered, not overwhelmed, when considering their options. 10:10 AM Welcome and Announcements 10:10 - 11:00 AM What is Nuclear Medicine and Molecular Imaging?/Radiation Safety Martin Tornai, PhD, National Institute of Biomedical Imaging and Bioengineering, National Institutes of Health 11:00 - 11:45 AM How to Understand and Evaluate Clinical Trials George Fisher, MD, PhD, Stanford Cancer Center, Palo Alto, CA Recording of the Morning Session Over Lunch: Innovations in Imaging For those attending in person, lunch was more than a meal. Simon Cherry, PhD, of UC Davis, offered an exclusive mid-day talk, "Seeing is Believing," on the latest imaging innovations and how advances in technology are translating into better, more precise patient care. The Afternoon: All of This, So We Can Live The afternoon opened in the most meaningful way possible: with a patient story. NCF community member Brenna Bash took the stage and set the tone for everything that followed. Her story was a reminder that behind every data point, every clinical breakthrough, and every hour spent in a treatment chair is a person who wants to be present for their life. Not just to survive, but to truly live. That spirit carried through every session that followed. 1:20 PM Neuroendocrine Tumor Overview George Fisher, MD, PhD · Stanford University 1:40 PM Meet the Author poster presentations Lisa Bodei, MD, PhD (MSK) & Frank Lin, MD (NCI) 2:00 PM Optimizing your health for your NET journey Eric Liu, MD · Healing NET Foundation 2:40 PM The role of interventional radiology Gabriel Fine, MD · City of Hope Cancer Center 3:00 to 3:50 PM Theranostics: where we are now and where we're going Lisa Bodei, MD, PhD · Erik Mittra, MD, PhD · Richard Baum, MD, PhD Dr. Eric Liu's session on optimizing health for the NET journey brought this theme into sharpest focus, addressing not just treatment but the whole person navigating it. And the theranostics sessions with Drs. Bodei, Mittra, and Baum made clear how rapidly the field is expanding, with options growing for patients whose tumors express somatostatin receptors and, crucially, for those in G3 NET and beyond who have historically had fewer paths forward. Professor Richard Baum brought the afternoon to a close with words that felt like the perfect summation of everything the day had stood for. Recording of the Afternoon Session "Nothing in life is to be feared, it is only to be understood. Now is the time to understand more, so that we may fear less." - Marie Curie, as shared by Prof. Richard Baum The Experts Who Made It Possible Richard Baum, MD Curanosticum Wiesbaden, Germany Lisa Bodei, MD, PhD Memorial Sloan Kettering, NY Gabriel Fine, MD City of Hope, Duarte, CA George Fisher, MD, PhD Stanford Cancer Center Eric Liu, MD Healing NET Foundation Erik Mittra, MD, PhD Oregon Health & Science University More Than Education: A Community What makes events like this special isn't just the science. It's the moment a patient realizes they're not navigating this alone, that there's a room full of people who understand the fear, the hope, and the determination it takes to live with a neuroendocrine cancer diagnosis. The in-person networking reception that closed the day gave attendees space to connect, share, and simply be with others who truly get it. The NCF Team, including Lisa Yen, Heather Davis & Mary Donlevy Thanks to Josh Mailman, NorCal CarciNET, the Society of Nuclear Medicine and Molecular Imaging, and to every speaker who gave their expertise and their time. Thank you to Brenna for her courage in sharing her story. We do all of this because patients deserve to live, and to live well. Stay connected with NCF To watch more educational webinars on a variety of topics, visit our YouTube Channel and explore more resources at NCF.net. Our support line, virtual support groups, and NETCONNECT peer-to-peer program are here for you year-round. THANKS TO NCF SPONSORS

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  • Luncheon With The Experts | NeuroendocrineCancer

    LUNCHEON WITH THE EXPERTS “Luncheon With The Experts” is a recurring educational opportunity (previously hosted by the Carcinoid Cancer Foundation) that connects patients and caregivers with extraordinary experts in neuroendocrine cancer. The sessions are hosted by Rain Bennett. This program gives the unique opportunity for neuroendocrine specialists — like oncologists, surgeons, interventional radiologists, gastroenterologists, endocrinologists, etc. to answer and address broad-based questions from patients and caregivers globally via live chat. Programs are typically delivered live (over Facebook Live and YouTube Live) at noon Eastern Time, allowing participants to join during their lunch break. Live sessions are recorded and will be available after the live event. Recent Episodes Dr. Jason Starr May 28, 2026 “Luncheon With The Experts” is a recurring educational outreach series (previously hosted by the Carcinoid Cancer Foundation) aimed at patients, caregivers, and the broader neuroendocrine cancer community. The sessions are hosted by Rain Bennett. Visit the Event Page Dr. Jaydira Del Rivero Apr 30, 2026 “Luncheon With The Experts” is a recurring educational outreach series (previously hosted by the Carcinoid Cancer Foundation) aimed at patients, caregivers, and the broader neuroendocrine cancer community. The sessions are hosted by Rain Bennett. Visit the Event Page Dr. Boris G. Naraev March 26, 2026 Dr. Naraev is a board-certified medical oncologist at the Tampa General Hospital’s Cancer Institute, specializing in caring for people living with neuroendocrine and endocrine tumors. He is an Associate Professor of Medicine at the Division of Hematology and Medical Oncology of the University of South Florida, Morsani College of Medicine. Visit the Event Page

  • NCF Events (List) | NeuroendocrineCancer

    Neuroendocrine Cancer Foundation Upcoming Patient & Caregiver Events 2026 Annual Patient Conference June 20, 2026, 7:00 AM - 1 PM Pacific Join the Virtual 2026 Neuroendocrine Cancer Patient Conference, featuring 19 leading NET experts and the theme Navigating a Changing Neuroendocrine Cancer Landscape. Learn about key topics in NET care, hear patient stories, and get your questions answered during a live Q&A. Watch Team Craig Fundraiser Benefitting Neuroendocrine Cancer Foundation Denver, Colorado July 1, 2026, 6 - 10 PM Mountain Join Team Craig for a casual fundraiser at a local brewery in support of the Neuroendocrine Cancer Foundation. This relaxed event brings together patients, caregivers, advocates, friends and supporters for an event of connection, conversation, and awareness-building for the neuroendocrine cancer community. Come enjoy great company, live music, refreshments, food, and community while supporting efforts to advance education, support, and patient resources for those impacted by neuroendocrine cancer. Buy Tickets or Sponsor Neuroendocrine Cancer Patient Support Group Weekly on Wednesdays May: 6, 13, 20, 27, 2026 June: 3, 10, 17, 24, 2026 We provide a welcoming space to come together virtually for knowledge sharing and community support. The focus of the meeting is to connect with others living with, or supporting someone living with, neuroendocrine cancer. Both patients & caregivers discuss treatments, symptoms, living well and information uniquely related to this disease. This group is open to neuroendocrine cancer patients and caregivers. Register Neuroendocrine Cancer Caregiver Support Group Typically on the Last Saturday of the Month Dates: Feb 28, 2026 Mar 28, 2026 Apr 25, 2026 May 30, 2026 Jun 27, 2026 Jul 25, 2026 Aug 29, 2026 Sep 26, 2026 Oct 24, 2026 Nov 21, 2026 Dec 19, 2026 Neuroendocrine Cancer Foundation's Monthly NET Caregiver-Only support group is a virtual space to come together for support, connection and community with other care partners who support, or have supported, those with Neuroendocrine Cancer. Unlike our Weekly Wednesday Support Group for Caregivers & Patients that focuses on medical aspects of NETs, this group focuses on the unique experiences and psycho-social concerns of caregivers. *OPEN TO NET CAREGIVERS ONLY. Register Click here for recent events

  • Partner Spotlight | NeuroendocrineCancer

    Patient & Caregiver Events in the Neuroendocrine Cancer Community "Beyond Medical Care: Finding the Help You Need" June 23, 2026 We’re partnering with Triage Cancer on their upcoming webinar, Beyond Medical Care, on June 23, 2026. This webinar is focused on practical resources to navigate life after a serious medical diagnosis. This session will explore the legal, financial, and emotional challenges that often accompany health concerns and highlight key programs designed to help. Attendees will learn about financial and legal assistance options, mental health services, patient advocacy and navigation support, and other valuable resources. The webinar will also share tips for working with financial planners and completing essential paperwork to access available benefits. Free CE for professionals. Register here: TriageHealth.org/Webinars Register "Coping With Stress" May 27, 2026 We’re partnering with Triage Cancer on their upcoming webinar Coping With Stress on May 27, 2026. This webinar explores how to cope with stress and uncertainty. For individuals living with serious health conditions and their caregivers, uncertainty can feel especially heavy. This session will unpack the emotional impact of uncertainty and provide practical strategies to manage stress, worry, and fear. Attendees will learn tools to strengthen self-awareness, regulate intense emotions, and build lasting resilience. In recognition of Mental Health Awareness Month, the webinar will focus on realistic ways to find calm, stay grounded, and create stability in times of change. Free CE for professionals. Register here: TriageHealth.org/Webinars Register Triage Health Online Conference May 15 & 16, 2026 We’re proud to partner with Triage Cancer for the Triage Health Conference, taking place May 15-16. This FREE online event provides valuable information on navigating the practical and legal issues that may arise after a chronic or serious medical diagnosis. Topics for this year’s conference include: • Health insurance options & picking a plan • Tips for using health insurance, navigating prior authorizations, & appealing denials • Managing finances, medical bills, & financial help • Tools for making decisions about work • Estate planning • Getting organized • Becoming an empowered patient and advocate Free continuing education credits are also available for professionals. Find answers to your questions at this important event. For more information and to register, visit: TriageCancer.org/Conferences or TriageHealth.org/Conferences . Register "Medicare Made Simple: A Guide for First-Time Enrollees" April 22, 2026 We’re partnering with Triage Health on their upcoming webinar, 'Medicare Made Simple: A Guide for First-Time Enrollees,' on April 22, 2026. Join Triage Cancer for a FREE webinar on April 22 to learn about Medicare basics. This session is for those turning 65 or qualifying for Medicare through Social Security Disability Insurance. It will cover Parts A, B, C and D, key enrollment deadlines, and how Medicare works with employer, retiree, and COBRA plans. Learn how to make the best coverage choices and avoid common, costly mistakes. FREE CE for professionals. Register here: TriageHealth.org/Webinars Register "Health Insurance Options for Immigrants" April 14, 2026 We’re partnering with Triage Health on their upcoming webinar, 'Health Insurance Options for Immigrants,' on April 14, 2026. Join Triage Cancer for a FREE webinar on April 14 about health insurance options for immigrants. Noncitizens of the United States may have different rights to health care based on a variety of factors. This session will explain the health insurance and health care options available for different types of immigrants, including those who are lawfully present in the U.S. This webinar will be delivered in Spanish. Únete al seminario gratuito de @TriageCancer el 14 de abril donde comentaremos sobre las opciones de seguro médico para migrantes. Las personas que no son ciudadanos de los estados unidos tienen derecho a seguro médico basado en diferentes factores. Este seminario explicará seguro médico y cuidados disponibles para migrantes incluyendo aquellos que están legalmente presentes en los estados unidos. El seminario será en español. FREE CE for professionals. Register here: TriageHealth.org/seminariosweb Registro: TriageHealth.org/seminariosweb Register "Steps to Navigate Common Insurance Hurdles" Mar 24, 2026 We’re partnering with Triage Health on their upcoming webinar 'Steps to Navigate Common Insurance Hurdles' on March 24, 2026. Join TriageHealth for a FREE webinar on March 24 focused on navigating common health insurance hurdles. Learn how to understand and address challenges such as prior authorizations, co-pay accumulators, alternative funding programs, step therapy, and coverage denials to help ensure timely access to care. + FREE CE for professionals. Register here: TriageHealth.org/Webinars Register Accommodations, Leave, Disability & Retirement Feb 24, 2026 We’re partnering with Triage Cancer on their upcoming webinar, Decisions About Work: Accommodations, Leave, Disability & Retirement , on Feb 24, 2026. This FREE webinar will explain Decisions About Work: Accommodations, Leave, Disability & Retirement . This webinar series discusses the practical and legal issues impacting people beyond diagnosis. Every webinar is open to the general public, and health care professionals can receive free continuing education. Learn more and register at TriageCancer.org/Webinars Register If you want to list an event here, please contact us at info@NCF.net . Click here for NCF Events

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NEUROENDOCRINE CANCER FOUNDATION
 
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