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Join our mission to support the neuroendocrine cancer community. Your contribution helps raise awareness and bring hope to patients today. Make a Difference: Donate to the Neuroendocrine Cancer Foundation Your donation helps us provide a community of support and education for those affected by neuroendocrine cancer and to advocate for all people impacted by this rare disease. Special donations may be made in honor of or in memory of a loved one. DONATE ONLINE The Neuroendocrine Cancer Foundation is a 501(c)(3) non-profit corporation, Tax ID #20-0062062. All donations are tax-deductible as allowed by law. The Neuroendocrine Cancer Foundation may show up as LACNETS or GeneratePossibility (our former names) when searching by our Tax ID. We accept checks made to the Neuroendocrine Cancer Foundation or LACNETS. MORE WAYS TO GIVE BY CHECK To donate by check, please make checks payable to "Neuroendocrine Cancer Foundation" and mail to: Neuroendocrine Cancer Foundation PO Box 370466 Denver, CO 80237 DONOR-ADVISED FUND A donor-advised fund allows you to maximize your tax benefits while supporting the Neuroendocrine Cancer Foundation. Initiate gift through DAF Direct STOCK OR SECURITIES Make a gift of publicly-traded securities to the Neuroendocrine Cancer Foundation and save on income tax and capital gains tax. Contact info@ncf.net for instructions LEGACY GIFT The Neureondocrine Cancer Foundation can be included as a beneficiary of your will, trust, retirement plan, or life insurance plan. Contact us at info@ncf.net FACEBOOK FUNDRAISER Personal Facebook fundraisers can support the Neuroedocrine Cancer Foundation, while raising awareness of NET. Start a Facebook fundraiser MATCHING GIFTS A matching gift from your employer may double or triple your donation. See if your employer will match your donation. DONATE YOUR CAR Vehicle donations are eligible to be claimed as deductions for federal income tax purposes. Contact info@ncf.net There are many ways to give. Contact Kavya Velagapudi, Executive Director, at Kavya@NCF.net to discuss your idea.

Lantheus is a leading radiopharmaceutical-focused company with proven expertise in developing, manufacturing and commercializing cutting-edge radiodiagnostics. Learn more about Lantheus' commitment to neuroendocrine tumors>> Have questions or want to learn more? Please reach out to Anita Roach, Patient Advocacy Director at Lantheus Anita.Roach@Lantheus.com This information is for educational purposes only and does not substitute for medical advice or constitute an endorsement by NCF. Talk to your medical team about your individual care and treatment.

ABOUT CURIUM "At Curium, we have a singular focus – to develop, manufacture and supply world-class radiopharmaceutical products around the globe. We strive to innovate further in nuclear diagnostics and therapies so we can enhance the lives of people with cancer." Download the Detectnet™ Brochure >>> Download the Oncology Patient Education Brochure >>> Download the Nuclear Medicine Patient Education Brochure >>> CONTACT Jenny Yessaian RN, MBA Sr Director of Marketing C: +1.626.696.0535 111 Westport Plaza, Suite 800 St. Louis, MO 63146 This information is for educational purposes only and does not substitute for medical advice or constitute an endorsement by the Neuroendocrine Cancer Foundation. Talk to your medical team about your individual care and treatment.

Diarrhea < Back to Topics Diarrhea Play Video Play Video 01:37:36 "The Latest in the Management of Functional Neuroendocrine Cancers • Jan, 2026 • Dr. Del Rivero Join this @NCFCancer educational patient event for an easy-to-understand overview of functional neuroendocrine tumors (NETs) with Dr. Jaydira Del Rivero, a medical oncologist and endocrinologist at the National Cancer Institute. Functional NETs can cause the body to produce too many hormones, leading to challenging symptoms such as low blood sugar (often seen in insulinoma), high blood sugar (glucagonoma), and other hormone-related issues. Dr. Del Rivero will explain what these syndromes are, how they’re diagnosed, and the latest updates in treatment. She will also discuss conditions that can occur because of NETs or their treatments. She will help patients understand why symptoms like hypoglycemia are more common in some NET types. Whether you’re a patient, caregiver, or simply want to better understand functional NETs, this webinar will offer practical, up-to-date information to help you feel more informed and empowered. Potential Topics: Functional NET, Hormone-producing, Insulinoma, Gastrinoma, VIPoma, Zollinger-Ellison syndrome (ZES), Carcinoid, Hypoglycemia, Diarrhea, Flushing ABOUT DR. JAYDIRA DEL RIVERO Medical Oncologist & Endocrinologist National Cancer Institute, National Institutes of Health Dr. Del Rivero earned her medical degree from the University of Veracruz in Veracruz, Mexico and completed her internal medicine residency at Woodhull Medical and Mental Health Center/NYU-Langone Medical Center. Dr. Del Rivero completed a fellowship in Endocrinology, Diabetes and Metabolism at The Inter-Institute Endocrinology Training Program (IETP) at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), The National Institute of Child Health and Human Development (NICHD), and The National Institute of Dental and Craniofacial Research (NIDCR) where she was part of a research team developing clinical trials for pheochromocytoma and paraganglioma. She then joined as Assistant Professor at the Montefiore Einstein Center for Cancer Care (MECCC) where she specialized in endocrine oncology involving thyroid cancer, parathyroid and adrenal tumors, and clinical research for gastroenteropancreatic neuroendocrine tumors. She subsequently completed a second fellowship in medical oncology at the National Cancer Institute (NCI) with a research focus on endocrine malignancies. Dr. Del Rivero is board certified in Internal Medicine, Endocrinology, Diabetes and Metabolism and Medical Oncology. Dr. Del Rivero is a Physician Scientist in the Developmental Therapeutics Branch. She is the Principal Investigator of the Natural History Study for Neuroendocrine Neoplasm and Adrenocortical Cancer to provide the basis of further development of therapeutic interventions, prevention/screening guidelines, endpoints for future clinical trials, and patient reported outcome measures. Dr. Del Rivero’s current efforts is the development of novel treatment approaches and targeted therapies for endocrine malignancies such as advanced gastroenteropancreatic neuroendocrine tumors, adrenocortical cancer and pheochromocytoma/paraganglioma. For more information, visit https://www.ncf.net/events/jan2026 Play Video Play Video 01:33:48 LACNETS • "Symptom Management" with Dr. David Metz • Oct 2023 Join LACNETS to hear Neuroendocrinologist, Dr. David Metz from University of Pennsylvania discuss symptom management. The presentation will cover carcinoid syndrome, pancreatic enzymes, bile acid secretion, and short bowel syndrome. He will explain current treatments, supplements, and diets that might be helpful to control NET-related symptoms. For more information, visit LACNETS.org. Play Video Play Video 53:27 Episode 2: Diarrhea & NETs • The LACNETS Podcast ABOUT THIS EPISODE: For our second episode, NET expert and gastroenterologist Dr. David Metz answers the top 10 GI questions for NETs. Dr. Metz addresses diarrhea, diet, the difference between carcinoid tumor vs. carcinoid syndrome, and effective symptom management. MEET DR. DAVID METZ Dr. Metz is the Professor of Medicine and Co-director of the Neuroendocrine Tumor Program at the University of Pennsylvania. He is actively involved in clinical research, patient care, and teaching of students, residents, and fellows. Dr Metz’s clinical research program is particularly active in acid-peptic conditions including hypersecretory states such as Zollinger-Ellison syndrome, Helicobacter pylori infection, nonsteroidal anti-inflammatory drug gastropathy, and gastroesophageal reflux disease. He also has particular expertise in the diagnosis and management of patients with functional and non-functional neuroendocrine tumors of the pancreas and alimentary tract. He has been a principal investigator on a number of trials evaluating upper gastrointestinal disease states. He is also active in national gastroenterology societies and was a prior member of the Liason Committee for Recertification of the American Board of Internal Medicine (American Gastroenterological Association representative), the US Food and Drug Administration Gastrointestinal Drugs Advisory Committee and chair emeritus of the North American neuroendocrine Tumor Society (NANETS). Dr. Metz earned his MBBCh (MD equivalent) from the University of the Witwatersrand in Johannesburg, South Africa. He moved to the United States in 1986 and pursued a residency in internal medicine at Albert Einstein Medical Center in Philadelphia. He completed a fellowship in gastroenterology in Washington, DC, in the combined Georgetown/Veterans Affairs Medical Center/National Institutes of Health (NIH) program. He remained on staff at the NIH for 2 more years as a senior staff fellow, performing basic research in pancreatic acinar cell secretion and clinical research in Zollinger-Ellison syndrome specifically. In 1993, Dr. Metz moved to Philadelphia in the role of Assistant Professor in the clinician educator track at the University of Pennsylvania. He was promoted to Associate Professor in 1998 and Full Professor in 2003. TOP 10 QUESTIONS 1. What is the difference between carcinoid syndrome and carcinoid tumor? 2. What are the most common causes of diarrhea? How do I know if my diarrhea is from NET, medication, diet, or another reason? (What is the difference between diarrhea and fat-absorption diarrhea?") 3. How do I know if diarrhea is part of carcinoid syndrome or not? 4. Discuss cramping, bloating, and abdominal pain. Is this part of carcinoid syndrome? (How do I know if these are from the tumor, treatment, or something else?) 5. Why do they take out the gallbladder and what effect does this have on GI symptoms? 6. Are there other syndromes besides carcinoid syndrome that cause diarrhea? 7. How might my doctor evaluate my diarrhea? When should someone have EGD, colonoscopy, and capsule endoscopy and how might it affect symptom management? 8. What do I do to control my diarrhea? 9. What treatment/diet/meds would help prevent chronic cramping, bloating, loud gurgling of GI tract for a midgut patient on SSAs ? 10. What is the best diet for diarrhea? For more resources and a transcript of this episode, visit https://www.lacnets.org/podcast2. Play Video Play Video 49:02 Symptom Management: Diarrhea, Hyperglycemia & Diabetes - 2020 LACNETS Virtual NET Conference Virtual 2020 Los Angeles Neuroendocrine Tumor Patient Education Conference Presented by LACNETS Presentations & Times: "Patient Story" (0:00 - 6:30) Brent, NET Patient "Symptom Management: Diarrhea" (6:30 - 29:05) David C. Metz, MD, Gastroenterology Penn Medicine "Symptom Management: NET-related Hyperglycemia and Diabetes" (29:05 - end of video) Run Yu, MD, PhD , Endocrinology UCLA Health For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 01:38:07 LACNETS Webinar: "Management of Diarrhea in NETs” with Dr. Shirley Paski Management of Diarrhea in NETs” with Dr. Shirley Paski Recorded on October 13th, 2020 Speaker: Shirley Paski, MD, IM/Gastroenterology, Cedars-Sinai Medical Center Learn more here: www.LACNETS.org Audio/Video - www.TVPlive.com < Back to Topics Next Topic >

Symptom Management < Back to Topics Play Video Play Video 20:32 13. Navigating Treatment Side Effects • Jason Starr, DO • Mayo Clinic • 2026 NCF Conference In this session from the Neuroendocrine Cancer Foundation’s 2026 Virtual Annual Patient Conference, Dr. Jason Starr, medical oncologist at Mayo Clinic in Jacksonville, Florida, presents “Navigating Treatment Side Effects.” Dr. Starr discusses how patients and care teams can balance treatment effectiveness with quality of life when using therapies for neuroendocrine cancers. He emphasizes the importance of early communication with the medical team, recognizing side effects promptly, holding medication when appropriate, using acute care resources when needed, and adjusting doses to find the right balance for each patient. This presentation reviews potential side effects and management strategies for somatostatin analogs, Lutetium-177 dotatate/Lutathera, PRRT, everolimus/Afinitor, CAPTEM, capecitabine, temozolomide, and tyrosine kinase inhibitors such as sunitinib and cabozantinib. Topics include fatigue, diarrhea, nausea, injection site pain, exocrine pancreatic insufficiency, blood sugar changes, gallbladder issues, bone marrow suppression, mouth sores, skin rash, blood pressure changes, wound healing concerns, thyroid issues, and medication interactions. Learn more about the Neuroendocrine Cancer Foundation and access patient resources at www.NCF.net. For more information about this conference, visit https://www.ncf.net/events/2026conference This video is for educational purposes only and is not a substitute for professional medical advice. Please consult your medical team with questions about your individual care or treatment. #NeuroendocrineCancer #NeuroendocrineTumors #NETCancer #NETs #TreatmentSideEffects #SideEffectManagement #PRRT #Lutathera #CAPTEM #Everolimus #Cabozantinib #SomatostatinAnalogs #MayoClinic #NCF #PatientConference Play Video Play Video 09:44 "Practical Tips For Patients Preparing For Chemotherapy" • Lisa Yen, NP, NBC-HWC NET caregiver Lisa Yen’s “show and tell” of tips, tricks, and items she and her husband found to be helpful when dealing with chemotherapy. Read LACNETS blogpost Practical Tips For Patients Preparing For Chemotherapy: https://www.lacnets.org/post/practical-tips-for-patients-preparing-for-chemotherapy. For more information on LACNETS, visit www.LACNETS.org. Play Video Play Video 06:36 "Tips and Tricks for Cabozantinib" with Lisa Yen Starting a new cancer treatment can feel overwhelming—but you don’t have to navigate it alone. In this video, Lisa Yen, Director of Programs and Outreach at the Neuroendocrine Cancer Foundation, shares practical tips and real-life insights for patients preparing to take Cabozantinib (Cabometyx). Drawing from both her professional experience and her personal journey supporting her husband with a neuroendocrine tumor, Lisa walks through what to expect, how to prepare, and how to manage common side effects. You’ll learn about: Key resources, including oncology pharmacists and free patient care kits What’s included in the Cabometyx care kit and how it can help Common side effects like nausea, diarrhea, hand-foot syndrome, and high blood pressure Tips for tracking symptoms and staying organized with a treatment journal How and when to take Cabozantinib safely The importance of communication with your healthcare team This video is designed to help reduce uncertainty and empower patients and caregivers with actionable, experience-based guidance. 💡 Whether you’re just starting Cabozantinib or supporting someone who is, these tips can help you feel more prepared and confident in your treatment journey. Disclaimer: Always consult your healthcare team with any questions or concerns about your care. This content is for educational purposes only and does not replace professional medical advice, diagnosis, or treatment. Play Video Play Video 01:37:36 "The Latest in the Management of Functional Neuroendocrine Cancers • Jan, 2026 • Dr. Del Rivero Join this @NCFCancer educational patient event for an easy-to-understand overview of functional neuroendocrine tumors (NETs) with Dr. Jaydira Del Rivero, a medical oncologist and endocrinologist at the National Cancer Institute. Functional NETs can cause the body to produce too many hormones, leading to challenging symptoms such as low blood sugar (often seen in insulinoma), high blood sugar (glucagonoma), and other hormone-related issues. Dr. Del Rivero will explain what these syndromes are, how they’re diagnosed, and the latest updates in treatment. She will also discuss conditions that can occur because of NETs or their treatments. She will help patients understand why symptoms like hypoglycemia are more common in some NET types. Whether you’re a patient, caregiver, or simply want to better understand functional NETs, this webinar will offer practical, up-to-date information to help you feel more informed and empowered. Potential Topics: Functional NET, Hormone-producing, Insulinoma, Gastrinoma, VIPoma, Zollinger-Ellison syndrome (ZES), Carcinoid, Hypoglycemia, Diarrhea, Flushing ABOUT DR. JAYDIRA DEL RIVERO Medical Oncologist & Endocrinologist National Cancer Institute, National Institutes of Health Dr. Del Rivero earned her medical degree from the University of Veracruz in Veracruz, Mexico and completed her internal medicine residency at Woodhull Medical and Mental Health Center/NYU-Langone Medical Center. Dr. Del Rivero completed a fellowship in Endocrinology, Diabetes and Metabolism at The Inter-Institute Endocrinology Training Program (IETP) at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), The National Institute of Child Health and Human Development (NICHD), and The National Institute of Dental and Craniofacial Research (NIDCR) where she was part of a research team developing clinical trials for pheochromocytoma and paraganglioma. She then joined as Assistant Professor at the Montefiore Einstein Center for Cancer Care (MECCC) where she specialized in endocrine oncology involving thyroid cancer, parathyroid and adrenal tumors, and clinical research for gastroenteropancreatic neuroendocrine tumors. She subsequently completed a second fellowship in medical oncology at the National Cancer Institute (NCI) with a research focus on endocrine malignancies. Dr. Del Rivero is board certified in Internal Medicine, Endocrinology, Diabetes and Metabolism and Medical Oncology. Dr. Del Rivero is a Physician Scientist in the Developmental Therapeutics Branch. She is the Principal Investigator of the Natural History Study for Neuroendocrine Neoplasm and Adrenocortical Cancer to provide the basis of further development of therapeutic interventions, prevention/screening guidelines, endpoints for future clinical trials, and patient reported outcome measures. Dr. Del Rivero’s current efforts is the development of novel treatment approaches and targeted therapies for endocrine malignancies such as advanced gastroenteropancreatic neuroendocrine tumors, adrenocortical cancer and pheochromocytoma/paraganglioma. For more information, visit https://www.ncf.net/events/jan2026 Play Video Play Video 18:45 "The Endocrine in Neuroendocrine" • Run Yu, MD, Endocrinologist, UCLA •2024 NET Cancer Day Symposium Dr. Run Yu, Endocrinologist from UCLA, discusses "The Endocrine in Neuroendocrine" at the 2024 NET Cancer Day Symposium. Play Video Play Video 01:33:48 LACNETS • "Symptom Management" with Dr. David Metz • Oct 2023 Join LACNETS to hear Neuroendocrinologist, Dr. David Metz from University of Pennsylvania discuss symptom management. The presentation will cover carcinoid syndrome, pancreatic enzymes, bile acid secretion, and short bowel syndrome. He will explain current treatments, supplements, and diets that might be helpful to control NET-related symptoms. For more information, visit LACNETS.org. Play Video Play Video 21:13 13. Managing NET Symptoms & Treatment Side Effects (Dr. Sandy Kotiah) - 2022 LACNETS Conference Dr. Sandy Kotiah addresses the management of #NET symptoms and treatment side effects. Speaker: Sandy Kotiah, MD Medical Oncologist, Mercy Medical 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 05:17 Patient Story: NET Patient shares how she is thriving as a NET patient (LACNETS) NET Patient Cindy shares how she is thriving as a NET patient. November 7, 2020 To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 04:26 Patient Story: NET Patient shares about symptom management (LACNETS) NET Patient Brent shares about symptom management. June 20, 2020 To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 06:00 11. Patient Story about Symptom Management (Val) - 2021 LACNETS Virtual Conference NET Patient Val shares her experience with symptom management and NETs. 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 01:02:18 LACNETS - "Pain Management for NETs" Dr. Najmeh Sadoughi Dr. Najmeh Sadoughi "Multidisciplinary Approaches to Pain Management for Neuroendocrine Tumors" Najmeh Sadoughi, MD Board Certified Interventional Pain Specialist LACNETS Patient Education Seminar January 9, 2018 UCLA Los Angeles, California LACNETS is a program by Generate Possibility, a 501(c)(3) non-profit corporation. Los Angeles Carcinoid Neuroendocrine Tumor Society www.LACNETS.org Play Video Play Video 01:38:07 LACNETS Webinar: "Management of Diarrhea in NETs” with Dr. Shirley Paski Management of Diarrhea in NETs” with Dr. Shirley Paski Recorded on October 13th, 2020 Speaker: Shirley Paski, MD, IM/Gastroenterology, Cedars-Sinai Medical Center Learn more here: www.LACNETS.org Audio/Video - www.TVPlive.com Play Video Play Video 49:02 Symptom Management: Diarrhea, Hyperglycemia & Diabetes - 2020 LACNETS Virtual NET Conference Virtual 2020 Los Angeles Neuroendocrine Tumor Patient Education Conference Presented by LACNETS Presentations & Times: "Patient Story" (0:00 - 6:30) Brent, NET Patient "Symptom Management: Diarrhea" (6:30 - 29:05) David C. Metz, MD, Gastroenterology Penn Medicine "Symptom Management: NET-related Hyperglycemia and Diabetes" (29:05 - end of video) Run Yu, MD, PhD , Endocrinology UCLA Health For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 17:19 12. Symptom Management (Dr. Del Rivero) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Jaydira Del Rivero, MD Endocrinologist, Oncologist NIH This presentation is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 45:02 "Manejo Sintomatico de los Tumores Neuroedocrinos Funcionales" con Dr. Jaydira Del Rivero "Manejo Sintomatico de los Tumores Neuroedocrinos Funcionales" con Dr. Jaydira Del Rivero Presentadora: Jaydira Del Rivero, MD Endocrinologist, Oncologist; NIH Para obtener más recursos en español, visite www.LACNETS.org/spanish-resources. < Back to Topics Next Topic >

See videos from the previous annual conferences of the Neuroendocrine Cancer Foundation Annual Conferences < Back to Topics 2023 Virtual LACNETS NET Patient Conference Play Video Play Video 13:08 Welcome & Introduction • 2023 LACNETS Neuroendocrine Tumor Patient Conference • June 17, 2023 The LACNETS team welcomes viewers to the 2023 LACNETS Neuroendocrine Tumor Patient Conference on June 17, 2023. For more information, visit LACNETS.org. Play Video Play Video 21:51 NETS 101: Overview of NET Terms & Concepts • Dr. Aman Chauhan • 2023 LACNETS Patient Conference Watch "NETS 101: Overview of NET Terms & Concepts" with Dr. Aman Chauhan. This presentation is part of the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit, LACNETS.org. Play Video Play Video 27:33 A Conversation with Three NET Surgeons • Dr. Clarke, Dr. Gangi & Dr. Anaya • 2023 LACNETS Conference Watch 'A Conversation with Three NET Surgeons' featuring Dr. Callisia Clarke, Dr. Alexandra Gangi and Dr. Daniel Anaya Saenz. This presentation is part of the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit LACNETS.org. Play Video Play Video 05:02 Kimberly Shares About Her NET Journey • 2023 LACNETS Patient Education Conference Kimberly shares her inspiring NET journey as part of the 2023 LACNETS Patient Education Conference. Play Video Play Video 04:49 Navigating Treatments • Moderators: Dr. Hendifar, Dr. Li & Mary Donlevy • 2023 LACNETS Conference Moderators of the 2023 LACNETS Patient Education Conference discuss "navigating treatments." For more information, visit LACNETS.org. Play Video Play Video 17:02 The Latest in Liver-Directed Therapy • Dr. Osmanuddin Ahmed • 2023 LACNETS Patient Conference Watch "The Latest in Liver-Directed Therapy" with Dr. Ahmed. This presentation is part of the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit LACNETS.org. Play Video Play Video 19:08 The Latest in NET Imaging • Dr. Nadine Mallak • 2023 LACNETS Patient Education Conference Watch "The Latest in NET Imaging" with Dr. Nadine Mallak. This presentation is part of the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit LACNETS.org. Play Video Play Video 17:55 The Latest in PRRT • Dr. Carina Mari Aparici • 2023 LACNETS Patient Education Conference Watch "The Latest in PRRT" with Dr. Carina Mari Aparici. This presentation is part of the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit LACNETS.org. Play Video Play Video 08:50 Symptom Management & Clinical Trials • Moderators: Dr. Hendifar, Dr. Li & Donlevy • 2023 Conference Co-Moderators discuss "Symptom Management and Clinical Trials" during the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference on June 17, 2023. For more information, visit LACNETS.org. Play Video Play Video 06:59 Don & Beth Share Their NET Journey • 2023 LACNETS Patient Conference Don & Beth share their inspiring NET journey. For more information, visit LACNETS.org. Play Video Play Video 21:49 The Latest in Systemic Treatments & Considerations for Treatment Sequencing • Dr. Kunz • LACNETS Watch "The Latest in Systemic Treatments & Considerations for Treatment Sequencing" with Dr. Pamela Kunz. This presentation is part of the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit LACNETS.org. Play Video Play Video 18:39 The Latest in NET Clinical Trials • Dr. Simron Singh • 2023 LACNETS Patient Education Conference Watch "The Latest in NET Clinical Trials" with Dr. Simron Singh. This presentation is part of the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit LACNETS.org. Play Video Play Video 17:07 Clinical Trials: Why, What & How • Josh Mailman • 2023 LACNETS Patient Education Conference Watch "Clinical Trials: Why, What & How" with Josh Mailman. This presentation is part of the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit LACNETS.org. Play Video Play Video 36:37 Live Q&A with NET Experts Moderated by Lisa Yen • 2023 LACNETS Patient Education Conference Watch NET Experts in this live Q&A moderated by Director of Programs and Outreach Lisa Yen. This Q&A is part of the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit LACNETS.org. Play Video Play Video 34:54 Live Q&A with NET Experts Moderated by Josh Mailman • 2023 LACNETS Patient Education Conference Watch NET Experts in this live Q&A moderated by President of NorCal CarciNET & Patient Advocate Josh Mailman. This Q&A is part of the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit LACNETS.org. Play Video Play Video 05:00 Closing • Co-Moderators & the LACNETS Team • 2023 LACNETS Conference Co-Moderators and the LACNETS Team close the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit LACNETS.org. 2022 Virtual LACNETS NET Patient Conference Play Video Play Video 10:49 01. Conference Welcome from LACNETS - 2022 LACNETS NET Patient Conference 2022 LACNETS NET Patient Conference Presented by LACNETS LACNETS Staff: Lindsey Jeu De Vine, Director of Communications Lisa Yen, NP, NBC-HWC, Program Director For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 15:24 02. Co-Moderators: Newly-Diagnosed + Conference Theme - 2022 LACNETS NET Patient Conference Conference co-moderators discuss what they would say to someone who has just been diagnosed with neuroendocrine cancer (NET), as well as the conference theme, "Empowering You to Make NET Decisions." 2022 LACNETS NET Patient Conference Presented by LACNETS Co-moderators: Beth DeBlase, NET Patient Mary Donlevy, NET Patient, LACNETS Board Member Andrew Hendifar, MD, Medical Oncologist, Cedars-Sinai Daneng Li, MD, Medical Oncologist, Cedars-Sinai Lisa Yen, NP, HWC-NBC, Program & Outreach Director, LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 05:29 3. What is NET? Many NET patients find it challenging to explain their diagnosis to loved ones. To help patients and loved ones understand and explain neuroendocrine tumors (NETs), we created this short educational video with the help of NET experts and patient advocates. We hope this video serves as a helpful tool to share with your loved ones. For more information on neuroendocrine cancer, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Music by Tom Bajoras. Video produced by tvplive.com. Play Video Play Video 06:38 04. Patient Story: Treatment Decisions & Navigating Insurance - 2022 LACNETS NET Patient Conference Diagnosed in 2021 with NETs in the small bowel, NET Patient Julie shares her path to treatment in hopes of providing guidance to newly-diagnosed patients. 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 15:22 05. NET Surgery: Making Decisions & Preparing for Surgery (Dr. Clarke) - 2022 LACNETS Conference Dr. Callisia Clarke addresses surgery for neuroendocrine cancer including decision-making & preparing for surgery. Presenter: Callisia Clarke, MD Surgical Oncologist Medical College of WI 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 18:28 06. NET Testing: The What, When, How and Why (Dr. Namrata Vijayvergia) - 2022 LACNETS Conference Dr. Neena Vijayvergia addresses the what, when, how and why of NET testing. Presenter: Namrata Vijayvergia, MD Medical Oncologist, Fox Chase Cancer Center 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 04:29 07. Co-Moderators: Navigating Treatment Decisions Conference co-moderators discuss what they'd share with a NET patient who considering the many treatment options for NETs. 2022 LACNETS NET Patient Conference Presented by LACNETS Co-moderators: Beth DeBlase, NET Patient Mary Donlevy, NET Patient, LACNETS Board Member Andrew Hendifar, MD, Medical Oncologist, Cedars-Sinai Daneng Li, MD, Medical Oncologist, Cedars-Sinai Lisa Yen, NP, HWC-NBC, Program & Outreach Director, LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 22:57 08. NET Treatments: Medical Therapies & Clinical Trials (Dr. Diane Reidy) - 2022 LACNETS Conference Dr. Diane Reidy-Lagunes joins us for her presentation on NET treatments, including medical therapies & clinical trials. *This presentation is also available in Spanish: lacnets.org/spanish-resources Speaker: Diane Reidy-Lagunes, MD Medical Oncologist, Memorial Sloan Kettering 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 15:21 09. The Latest in Liver Directed Therapy + Histotripsy (Dr. Osman Ahmed) - 2022 LACNETS Conference International radiologist Dr. Osman "Os" Ahmed addresses the latest in liver-directed therapy and histotripsy for neuroendocrine cancer. Speaker: Osman Ahmed, MD International Radiologist, University of Chicago 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 16:32 10. The Latest in NET Imaging & PRRT (Dr. Thomas Hope) Radiologist Dr. Thomas Hope addresses the latest in NET imaging and PRRT. Speaker: Thomas Hope, MD Radiologist, UCSF 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 04:44 11. Co-Moderators: Finding a “new normal” - 2022 LACNETS NET Conference Conference co-moderators discuss what they'd say to a NET patient who wonders how to find a “new normal” in this rollercoaster ride of living with NETs. 2022 LACNETS NET Patient Conference Presented by LACNETS Co-moderators: Beth DeBlase, NET Patient Mary Donlevy, NET Patient, LACNETS Board Member Andrew Hendifar, MD, Medical Oncologist, Cedars-Sinai Daneng Li, MD, Medical Oncologist, Cedars-Sinai Lisa Yen, NP, HWC-NBC, Program & Outreach Director, LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 07:12 12. Patient Story: From Diagnosis to Patient Advocacy - 2022 LACNETS NET Patient Conference Diagnosed with neuroendocrine cancer (NET) in 2021, NET patient Michel shares how the lack of information and awareness of his uncommon diagnosis inspired him to start a patient support group in Mexico called NETs Mexico. This patient story is also available in Spanish, found here: www.LACNETS.org/spanish-resources 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 21:13 13. Managing NET Symptoms & Treatment Side Effects (Dr. Sandy Kotiah) - 2022 LACNETS Conference Dr. Sandy Kotiah addresses the management of #NET symptoms and treatment side effects. Speaker: Sandy Kotiah, MD Medical Oncologist, Mercy Medical 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 16:36 14. Best Outcomes for NETs (Dr. Julie Hallet) - 2022 LACNETS Conference Surgical oncologist Dr. Julie Hallet addresses how to achieve the best outcomes for NETs and what we know about how care is delivered. Speaker: Julie Hallet, MD, MSc, FRCSC Surgical Oncologist, Sunnybrook 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 15:11 15. Being an Engaged Patient (Josh Mailman) - 2022 LACNETS Conference NET patient advocate Josh Mailman discusses the importance of being an engaged patient. Speaker: Josh Mailman, MBA President, NorCal CarciNET Community 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 03:03 16. Co-Moderators: Q&A - The importance of being an engaged patient Conference co-moderators discuss the importance of being an engaged patient. 2022 LACNETS NET Patient Conference Presented by LACNETS Co-moderators: Beth DeBlase, NET Patient Mary Donlevy, NET Patient, LACNETS Board Member Andrew Hendifar, MD, Medical Oncologist, Cedars-Sinai Daneng Li, MD, Medical Oncologist, Cedars-Sinai Lisa Yen, NP, HWC-NBC, Program & Outreach Director, LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 02:32 17. Learn Your NET Intro To help improve patient-physician communication, we are excited to share that we have developed another helpful communication tool for NET patients and caregivers called NET Intro. Your NET Intro is a downloadable wallet-sized card to help you learn to introduce yourself to someone who doesn’t yet know your NET history. Download your NET Intro card here: lacnets.org/netintro *A special thank you to LACNETS Program Director Lisa Yen and our weekly support group for helping us create this important tool for NETs. Play Video Play Video 01:02:59 18. Live Q&A with the NET Experts (All Speakers) - 2022 LACNETS Conference 8 NET experts from around the country join us for a live Q&A on neuroendocrine cancer. 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 05:28 19. Conference Closing Remarks from LACNETS - 2022 LACNETS Conference 2022 LACNETS NET Patient Conference Presented by LACNETS LACNETS Staff: Lindsey Jeu De Vine, Director of Communications Lisa Yen, NP, NBC-HWC, Program Director For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. 2021 Virtual LACNETS NET Patient Conference Play Video Play Video 09:41 1. Conference Welcome - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS LACNETS Staff: Lindsey Jeu De Vine, Director of Communications Lisa Yen, NP, NBC-HWC, Program Director For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 06:30 02. Co-Moderators discuss NET expert consultation and surgery - 2021 LACNETS Virtual Conference Conference co-moderators discuss NET expert consultation and surgery for NETs 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Co-moderators: Beth DeBlase, NET Patient Mary Donlevy, NET Patient, LACNETS Board Member Andrew Hendifar, MD, Medical Oncologist, Cedars-Sinai Daneng Li, MD, Medical Oncologist, Cedars-Sinai For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 04:40 03. Patient Story (Federico) - 2021 LACNETS Virtual Conference NET Patient Federico and his wife share their journey with NET. 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS This video is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 30:23 04. What to Expect with a NET Expert Consultation (Dr. Soares) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Heloisa Soares, MD, PhD Medical Oncologist Huntsman Cancer Institute This presentation is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 15:08 05. To Cut or Not to Cut? Surgery for NETs (Dr. Clarke) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Callisia Clarke, MD Surgical Oncologist Medical College of WI For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 03:40 06. Co-moderators discuss treatment for NETs - LACNETS 2021 Virtual Conference Conference co-moderators discuss treatment for NETs. 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Co-moderators: Beth DeBlase, NET Patient Mary Donlevy, NET Patient, LACNETS Board Member Andrew Hendifar, MD, Medical Oncologist, Cedars-Sinai Daneng Li, MD, Medical Oncologist, Cedars-Sinai For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 20:56 07. Surveillance, Maintenance, More Treatments (Dr. Halfdanarson) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Thorvadur (Thor) Halfdanarson, MD Medical Oncologist; Mayo Clinic For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 19:16 08. Radiation Safety with PRRT (Dr. Hope) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Tom Hope, MD Radiologist UCSF For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 17:16 09. Liver-directed Therapy (Dr. Nutting) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Charles Nutting, DO Interventional Radiologist Endovascular Consultants of Colorado For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 04:29 10. Co-moderators discuss symptom management Co-moderators discuss symptom management. 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Co-moderators: Beth DeBlase, NET Patient Mary Donlevy, NET Patient, LACNETS Board Member Andrew Hendifar, MD, Medical Oncologist, Cedars-Sinai Daneng Li, MD, Medical Oncologist, Cedars-Sinai For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 06:00 11. Patient Story about Symptom Management (Val) - 2021 LACNETS Virtual Conference NET Patient Val shares her experience with symptom management and NETs. 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 17:19 12. Symptom Management (Dr. Del Rivero) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Jaydira Del Rivero, MD Endocrinologist, Oncologist NIH This presentation is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 16:29 13. Complementary Medicine (Dr. Duma) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Narjust Duma, MD Assistant Professor & Thoracic Oncologist UW Madison This presentation is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 06:27 14. Co-moderators discuss NET Research, Advocacy & Support - 2021 LACNETS Virtual Conference Co-moderators discuss NET Research, Advocacy & Support 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Co-moderators: Beth DeBlase, NET Patient Mary Donlevy, NET Patient, LACNETS Board Member Andrew Hendifar, MD, Medical Oncologist, Cedars-Sinai Daneng Li, MD, Medical Oncologist, Cedars-Sinai For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 18:28 15. NET Research: What's on the Horizon? (Dr. Kunz) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Pam Kunz, MD Medical Oncologist Yale Cancer Center For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 05:40 16. Caregiver Story (Federico and Gilda) - 2021 LACNETS Virtual Conference NET caregiver Gilda shares her story about the importance of NET patient advocacy and support. 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS This video is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 01:03:41 18. Q&A with the NET Experts (All Faculty) - 2021 LACNETS Virtual Conference Description: 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS All presenters of the 2021 LACNETS Virtual Conference. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 04:58 19. Conference Closing Remarks (Co-Moderators & LACNETS Staff) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Co-moderators: Beth DeBlase, NET Patient Mary Donlevy, NET Patient, LACNETS Board Member Andrew Hendifar, MD, Medical Oncologist, Cedars-Sinai Daneng Li, MD, Medical Oncologist, Cedars-Sinai LACNETS Staff: Lindsey Jeu De Vine, Director of Communications Lisa Yen, NP, NBC-HWC, Program Director For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. 2020 Virtual LACNETS NET Patient Conference Play Video Play Video 42:50 Finding a NET Expert + Surgery for NETs - 2020 LACNETS Virtual NET Conference Virtual 2020 Los Angeles Neuroendocrine Tumor Patient Education Conference Presented by LACNETS Presentations & Times: LACNETS Conference Welcome (0:00 - 5:44) Lindsey Jeu De Vine, Director of Communications, LACNETS Lisa Yen, NBC-HWC, Program Director, LACNETS "Finding a NET Expert" (5:44 - 22:25) Cindy Lovelace , Executive Director Healing NET Foundation "Surgery for NETs" (22:25 - end of video) Alexandra Gangi, MD , Surgical Oncology Cedars-Sinai Medical Center For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 01:17:15 "Systemic Therapy: GI, Lung, PNETS & Unknown Primary" 2020 LACNETS Virtual NET Conference Virtual 2020 Los Angeles Neuroendocrine Tumor Patient Education Conference Presented by LACNETS Presentations & Times: "Patient Story" (0:00 - 7:03) Eric, NET Patient "Systemic Therapy: GI NETs" (7:03 - 28:13) Dan Li, MD , Medical Oncology City of Hope "Systemic Therapy: Lung NETs" (28:13 - 52:08) Robert Ramirez, DO, FACP, Neuroendocrine & Thoracic Oncology Ochsner Medical Center "Systemic Therapy: PNETs and NETs of Unknown Primary" (52:08 - end of video) Andrew Hendifar, MD, Medical Oncology Cedars-Sinai Medical Center For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 01:20:02 Imaging & Role of IR (Liver-Directed Therapy) + PRRT - 2020 LACNETS Virtual NET Conference Virtual 2020 Los Angeles Neuroendocrine Tumor Patient Education Conference Presented by LACNETS Presentations & Times: "Patient Story" (0:00 - 6:06) Mary, NET Patient "Imaging & Role of IR (Liver-Directed Therapy)" (6:06 - 43:31) Michael C. Soulen, MD , Radiology Penn Medicine "Patient & Caregiver Story" (43:31 - 50:52) Shaunie, NET Patient; Heather, NET Caregiver "PRRT" (50:52 - end of video) Erik S. Mittra, MD, PhD, Diagnostic Radiology, Nuclear Medicine Oregon Health & Science University For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 49:02 Symptom Management: Diarrhea, Hyperglycemia & Diabetes - 2020 LACNETS Virtual NET Conference Virtual 2020 Los Angeles Neuroendocrine Tumor Patient Education Conference Presented by LACNETS Presentations & Times: "Patient Story" (0:00 - 6:30) Brent, NET Patient "Symptom Management: Diarrhea" (6:30 - 29:05) David C. Metz, MD, Gastroenterology Penn Medicine "Symptom Management: NET-related Hyperglycemia and Diabetes" (29:05 - end of video) Run Yu, MD, PhD , Endocrinology UCLA Health For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 01:00:23 Live Q&A with 10 NET Experts - 2020 LACNETS Virtual NET Conference Virtual 2020 Los Angeles Neuroendocrine Tumor Patient Education Conference Presented by LACNETS Q&A Panel Speakers: • Alexandra Gangi, MD , Surgical Oncology, Cedars-Sinai Medical Center • Andrew Hendifar, MD, Medical Oncology, Cedars-Sinai Medical Center • Dan Li, MD , Medical Oncology, City of Hope • David C. Metz, MD , Gastroenterology, Penn Medicine • Erik S. Mittra, MD, PhD, Diagnostic Radiology, Nuclear Medicine, Oregon Health & Science University • Robert Ramirez, DO, FACP, Neuroendocrine & Thoracic Oncology, Ochsner Medical Center • Michael C. Soulen, MD , Radiology, Penn Medicine • Run Yu, MD, PhD , Endocrinology, UCLA Health Q&A Moderators: • Josh Mailman, MBA, President, NorCal CarciNET • Lisa Yen, NP, NBC-HWC Program Director, LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. 2019 LACNETS NET Patient Conference at Cedars-Sinai Play Video Play Video 18:10 Opening: Giovanna Imbesi & Shlomo Melmed, MB, ChB - 2019 LA NET Conf Opening: Giovanna Imbesi & Shlomo Melmed, MB, ChB Shlomo Melmed, MB, ChB, FRCP, MACP Executive Vice President of Academic Affairs, Dean of the Medical Faculty and Professor of Medicine, Cedars-Sinai Medical Center Giovanna Joyce Imbesi, MBA Executive Director, LACNETS Saturday, June 8th, 2019 www.LACNETS.org Play Video Play Video 10:18 Role of Oncologist + Year in Review: Andrew Hendifar, MD (Cedars Sinai) - 2019 LA NET Conf Role of Oncologist + Year in Review Andrew Hendifar, MD Gastrointestinal Oncology, Cedars-Sinai Medical Center Play Video Play Video 11:43 Giovanna Imbesi Cedars-Sinai Patient Leadership Award - 2019 LA NET Conf Giovanna Imbesi Cedars-Sinai Patient Leadership Award Giovanna Joyce Imbesi, MBA Executive Director, LACNETS 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 19:28 NET Vitals Workshop: Daneng (Dan) Li, MD - 2019 LA NET Conf NET Vitals Workshop: Daneng (Dan) Li, MD - 2019 LA NET Conf Download NET VITALS: www.LACNETS.org/netvitals Andrew E. Hendifar, MD, MPH Gastrointestinal Oncology, Cedars-Sinai Medical Center Daneng (Dan) Li, MD Medical Oncologist, City of Hope 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 09:31 Pathology: Alberto Marchevsky, MD - 2019 LA NET Conf Pathology: Alberto Marchevsky, MD Alberto Marchevsky, MD Professor, Pathology; Director, Pulmonary and Mediastinal Pathology, Cedars-Sinai Medical Center 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 34:00 Surgery - Liver + Pancreas: Kambiz Kosari, MD, FACS - 2019 LA NET Conf Surgery - Liver + Pancreas: Kambiz Kosari, MD, FACS Kambiz Kosari, MD, FACS Surgeon, Cedars-Sinai Medical Center 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 17:47 Surgery - GI: Farin Amersi, MD - 2019 LA NET Conf Surgery - GI: Farin Amersi, MD Farin Amersi, MD Surgical Oncology, Cedars-Sinai Medical Center 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 19:30 Interventional Radiology: Gabriel Lipshutz, MD - 2019 LA NET Conf Interventional Radiology: Gabriel Lipshutz, MD H. Gabriel Lipshutz, MD Interventional Radiology, Cedars-Sinai Medical Center 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 58:21 Tumor Board + Q&A: All Faculty - 2019 LA NET Conf Tumor Board + Q&A: All Faculty 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 11:09 NET Patient & Daughter Comedic Stand-up Piece: Andie & Terry Bolt - 2019 LA NET Conf NET Patient & Daughter Comedic Stand-up Piece: Andie & Terry Bolt Andie Bolt Comedian, TV Writer/Producer, and Podcaster Terry Bolt NET Patient 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 14:49 Functional Tumors - Carcinoid Syndrome: Daniel M. Halperin, MD - 2019 LA NET Conf Functional Tumors - Carcinoid Syndrome: Daniel M. Halperin, MD Daniel M Halperin, MD Medical Oncologist and Clinical Investigator, Department of Gastrointestinal Medical Oncology, Division of Cancer Medicine, MD Anderson Cancer Center 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 31:14 Nuclear Medicine Imaging & PRRT: Louise Thomson, MD - 2019 LA NET Conf Nuclear Medicine Imaging & PRRT: Louise Thomson, MD Louise E. Thomson, MD Nuclear Medicine, Cedars-Sinai Medical Center 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 11:31 Genomics: Jun Gong, MD - 2019 LA NET Conf Genomics: Jun Gong, MD Jun Gong, MD Hematology/Oncology, Cedars-Sinai Medical Center 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 14:58 Q&A - All Faculty - 2019 LA NET Conf Q&A - All Faculty 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 21:53 Insurance for NETs: Laurie Todd, “The Insurance Warrior” - 2019 LA NET Conf Insurance for NETs: Laurie Todd, “The Insurance Warrior” 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 45:34 Patient Panel + Above & Beyond Award- 2019 LA NET Conf Patient Panel 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org 2018 Conference at UCLA Health Playlist >>> 2017 Conference at City of Hope Playlist >>> 2016 Conference at Cedars-Sinai Playlist >>> 2015 Conference at Cedars-Sinai Playlist >>> < Back to Topics Next Topic >

RESOURCES & RESEARCH FOR PROVIDERS HYPOGLYCEMIA Are your cancer patients experiencing hypoglycemia? This is a valuable resource for physicians as we continue to build educational content in non-islet cell tumor hypoglycemia (NICTH). Key elements of the site focus on: Pathophysiology Presentation and diagnosis Limitations in current management The impact of living with NICTH Resources and FAQs Go to CancerHypoglycemia.com READ Comprehensive Overview of Gastroenteropancreatic Neuroendocrine Tumors (GEP-NETs) Gastroenteropancreatic Neuroendocrine Tumors Vijayvergia et al., Gastroenterology (2025) https://doi.org/10.1053/j.gastro.2025.07.004 This high-quality review article provides an up-to-date, clinically relevant overview of gastroenteropancreatic neuroendocrine tumors (GEP-NETs). It summarizes current understanding of epidemiology, advances in diagnostic imaging—including the expanding role of SSTR-PET—and evidence-based management strategies across surgery, somatostatin analogs, PRRT, and emerging targeted therapies (e.g., mTOR and anti-VEGF inhibitors). An excellent reference for clinicians seeking a concise, authoritative update on the fundamentals and evolving landscape of NET care. DOWNLOAD ARTICLE Paradigm Shift in Neuroendocrine Neoplasm Classification Neuroendocrine neoplasm classification: The missing piece of the puzzle Grewal et al., Cell Reports Medicine (2025) https://doi.org/10.1016/j.medj.2025.100897 Current NET classifications mostly rely on where the tumor started (site of origin), how fast it’s growing (Ki-67), and how differentiated the cells are. This article by Grewal et al. highlights how adding molecular information—unique genetic or biological “fingerprints” of a tumor—can provide important clues about prognosis and help guide more personalized treatment options and clinical trial opportunities. The authors also show that combining advanced imaging with blood-based molecular tests can offer a clearer, more dynamic picture of how the disease is behaving. Why this matters: These advances may help patients and care teams make more informed decisions, detect changes earlier, and move toward more individualized, precision-based NET care. DOWNLOAD ARTICLE Integrating Patient Priorities Into NET Treatment Sequencing Radioligand Therapy and Sequencing in Gastroenteropancreatic Neuroendocrine Tumors: A Patient Perspective Review Lewis et al., JCO Oncology Practice (2025) https://ascopubs.org/doi/10.1200/OP-25-00474 Co-authored in partnership with patient advocates, including our Director of Programs & Outreach, Lisa Yen, this review underscores the critical role of the patient perspective in treatment planning for gastroenteropancreatic NETs. It highlights how treatment sequencing—particularly the use and timing of radioligand therapy (RLT)—can meaningfully influence both clinical outcomes and patient quality of life. The article emphasizes the importance of clear communication, transparency around rationale, and shared decision-making so that treatment plans reflect not only evidence-based best practices but also patient goals, preferences, and lived experience. TAKE-HOME MESSAGE FOR HCPs: Patients and caregivers bring essential insight into how treatments impact their daily lives, priorities, and tolerance for side effects. Inviting and integrating their perspectives—early and often—supports more individualized care, strengthens trust, and ensures that treatment sequencing aligns with what matters most to the patient, not just the disease biology. DOWNLOAD ARTICLE

Find a range of financial assistance resources tailored to your needs at LACNETS. Get the support you deserve today. Access Financial Assistance Resources WATCH Watch "Navigating Health & Disability Insurance" with Joanne Fawzy Morales, Esq. READ Read our blog post on Insurance Resources RESOURCES Boehringer Ingelheim created a resource designed to educate patients on the recent Medicare Part D changes. Click here to learn more. Advanced Accelerator Applications (AAA) has a patient support program to deliver assistance for eligible patients. Click here to learn more. GoodRx is a free website and mobile app that compares prescription drug price and provides drug coupons for discounts on medications. IpsenCares provides coverage, access, reimbursement, and education support for lanreotide (Somatuline Depot). Go to ipsencares.com or call 866-435-5677. Novartis Patient Assistance Foundation (NPAF) provides access to Novartis medications including Afinitor (everolimus), Lutathera (lutetium Lu177 dotatate), and Sandostatin LAR (octreotide acetate). Click here to check eligibility and application instructions. For the Novartis universal co-pay program, go to Copay.NovartisOncology.com or call 877-577-7756. Novartis - Patient Financial Assistance & Government Insurance TerSera offers co-pay assistance for Xermelo (telotristat ethyl), a prescription pill, used along with somatostatin analog (SSA) therapy for carcinoid syndrome diarrhea in adults who are not adequately controlled by SSA therapy. For more information, go to copay.xermelo.com. Patient Advocate Foundation provides co-pay relief and financial aid. Triage Cancer offers a lengthy list of financial resources including travel expenses and lodging, transportation, young adult specific assistance, prescription drugs, and much more. Neuroendocrine Cancer Awareness Network - Patient Financial Assistance Healthwell Foundation NeedyMeds NCI Travel and Lodging Reimbursement Info Packet Creon Financial Assistance The CureNET Project is offering a $5,000 patient grant for any NET patient that is 18 years or older. It is meant to help cover medical costs, travel to see a NET specialist, pay bills, allow families to spend time together - whatever the recipient feels necessary. The submission deadline is October 15, 2023. Click here for more information. The HealthWell Foundation® , an independent non-profit charitable organization that provides financial assistance for underinsured Americans has launched a new fund to assist individuals living with neuroendocrine tumors. Through the fund, HealthWell will provide up to $15,000 in medication copayment or insurance premium assistance to patients for prescription drugs and biologics for the treatment of their disease. Eligible patients must have household incomes up to 500 percent of the federal poverty level. To determine eligibility and apply for assistance, visit HealthWell's Neuroendocrine Tumors Fund page. Note that all new fund openings and fund re-openings occur at 11:00 a.m. Eastern Daylight Time (8:00 a.m. Pacific) Monday through Friday. For more information go to: https://www.healthwellfoundation.org/fund/neuroendocrine-tumors/ . Transportation Resources

Be Inspired < Back to Topics Above & Beyond Awards Above & Beyond Awards Play Video Play Video 08:07 Dusty Hurley • Above and Beyond Award • 2025 NET Cancer Day Symposium The video captures a meaningful moment from the 2025 NET Cancer Day Symposium, where the Giovanna Joyce Imbesi Above and Beyond Award is presented to Dusty Hurley. This award honors outstanding individuals who have made a significant and lasting impact on the neuroendocrine tumor (NET) community through advocacy, volunteerism, education, or peer support. The 2025 award recipient, Dusty Hurley, is recognized for her dedication to helping others navigate a NET diagnosis, offering guidance, mentorship, and compassionate support. The presentation serves as a reminder that while medical advances and research remain important, the emotional and community aspects of living with a rare cancer are equally meaningful. The award reinforces the values of generosity, leadership, and unity within the NET community. Through this recognition, the Neuroendocrine Cancer Foundation highlights the power of peer connection and honors those whose commitment helps others feel informed, supported, and less alone. #NETCancer #NeuroendocrineCancer #NETAwareness #RareCancer #CancerCommunity #Advocacy #NCF #LACNETS #AboveAndBeyondAward #NETCancerDay #CancerEducation #NETSupport Play Video Play Video 03:23 Above and Beyond Award • 2024 LACNETS NET Cancer Day Symposium The video captures a meaningful moment from the 2024 NET Cancer Day Symposium, where the Giovanna Joyce Imbesi Above and Beyond Award is presented. This award honors outstanding individuals who have made a significant and lasting impact on the neuroendocrine tumor (NET) community through advocacy, volunteerism, education, or peer support. The 2024 award recipient, Val Tippy, is recognized for her dedication to helping others navigate a NET diagnosis, offering guidance, mentorship, and compassionate support. Although she was unable to attend the event in person, the award was celebrated during a family brunch, surrounded by loved ones — reflecting not only her personal contribution, but also the shared journey of patients, caregivers, and community members affected by NETs. The presentation serves as a reminder that while medical advances and research remain important, the emotional and community aspects of living with a rare cancer are equally meaningful. The award reinforces the values of generosity, leadership, and unity within the NET community. Through this recognition, the Neuroendocrine Cancer Foundation highlights the power of peer connection and honors those whose commitment helps others feel informed, supported, and less alone. #NETCancer #NeuroendocrineCancer #NETAwareness #RareCancer #CancerCommunity #Advocacy #NCF #LACNETS #AboveAndBeyondAward #NETCancerDay #CancerEducation #NETSupport Play Video Play Video 04:33 @NCFCancer Above & Beyond Award: Tom, Musician/Composer & NET Patient • 2023 NET Cancer Day Symposium The Giovanna Joyce Imbesi Above & Beyond Award is given to individuals in recognition of outstanding dedication to NET patient advocacy. Recipients of this award demonstrate an attitude of excellence, awareness, and hope for the neuroendocrine cancer community. The award is in honor of the late founder of @NCFCancer, Giovanna Joyce Imbesi. In 2023, NET Patient, Musician and Composer Tom received the Above & Beyond Award for his dedication to patient advocacy. For more information, visit LACNETS.org. Play Video Play Video 03:45 7 - Above & Beyond Award with Michel DeQuevedo & Lisa Yen Honor NET Cancer Day with LACNETS! Three NET patient advocates, including one who is also a NET oncologist, who joins us for the 2022 Annual NET Cancer Day Virtual Symposium This year’s theme is, “Patient Perspectives on Making NET Decisions.” (Re-broadcast from original Live Webcast on on Wednesday, November 9) For more info, visit www.LACNETS.org. Play Video Play Video 09:36 2018 LA NET Conf 10 - LACNETS 2018 Above and Beyond Award LACNETS 2018 Above and Beyond Award Awarded to Beth DeBlase NET Patient Play Video Play Video 45:34 Patient Panel + Above & Beyond Award- 2019 LA NET Conf Patient Panel 2019 Annual Los Angeles NET Patient Education Conference Saturday, June 8th www.LACNETS.org Play Video Play Video 05:56 2020 Giovanna Joyce Imbesi Above & Beyond Award (LACNETS) 2020 Giovanna Joyce Imbesi Above & Beyond Award December 8, 2020 2020 Recipient: Mary Donlevy, NET Patient To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 06:10 Announcing the recipient of the 2021 Giovanna Joyce Imbesi Above & Beyond Award Watch as we announce the recipient of the 2021 Giovanna Joyce Imbesi Above & Beyond Award. In memory of our late founder, this annual award is given to individuals who demonstrate outstanding dedication to NET patient advocacy. 2021 Recipient: Samuel Prentice Jr. To learn more about this award, visit www.lacnets.org/lacnets-above-beyond-award. Giovanna Joyce Imbesi, LACNETS Founder Giovanna Imbesi Play Video Play Video 10:07 Tribute Video: In Loving Memory of Giovanna Joyce Imbesi, LACNETS Founder Tribute Video honoring Giovanna Joyce Imbesi by Rich Tamayo, TVP Live, 12/10/2020 Learn more about Giovanna: https://www.lacnets.org/giovanna Inspirational Inspirational Play Video Play Video 46:54 "Riding the Cancer Wave – Spiritually Speaking" with Chaplain Michael Eselun TEDx speaker Michael Eselun, BCC of Simms/Mann UCLA joins LACNETS for his inspirational talk, "Riding the Cancer Wave – Spiritually Speaking." Michael explores the qualities he’s observed that help patients and families ride the cancer wave with greater ease. He shares what can sometimes happen when lifelong beliefs meet the challenge of cancer—to the religious and secular alike. Michael discusses how it is that we tend to find meaning in the unlikeliest of places—including on the cancer wave. To learn more about LACNETS, please visit www.LACNETS.org. Play Video Play Video 01:32:34 LACNETS Webinar: "How to Live with Neuroendocrine Cancer" with Dr. Eric Liu How do you navigate decisions in your NET journey? How do you learn to cope with your cancer diagnosis? How do you find your "new normal" and learn to thrive? Renowned NET Surgeon Dr. Eric Liu of Rocky Mountain Cancer Center addresses the importance of finding your NET team, prioritizing self-care, and how to let go of what you can't control. This video includes a presentation and Q&A. Speaker: Eric Liu, MD Surgeon, NET Specialist Rocky Mountain Cancer Center To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 07:12 12. Patient Story: From Diagnosis to Patient Advocacy - 2022 LACNETS NET Patient Conference Diagnosed with neuroendocrine cancer (NET) in 2021, NET patient Michel shares how the lack of information and awareness of his uncommon diagnosis inspired him to start a patient support group in Mexico called NETs Mexico. This patient story is also available in Spanish, found here: www.LACNETS.org/spanish-resources 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 01:38:00 LACNETS Webinar: The Fortune & Folly of Self-Diagnosis" with Dr. Mark Lewis NET expert Dr. Mark Lewis shares how he was diagnosed with NET and how he has been navigating the patient journey. Dr. Lewis addresses the importance of shared decision-making and patient-physician communication. This webinar was recorded on May 6, 2022. Speaker: Mark A. Lewis, MD Medical Oncologist, Director of Gastrointestinal Oncology, Intermountain Healthcare To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 04:17 "Hush" by Giovanna Joyce Imbesi (Photography by David F. Coppedge) [Written by David F. Coppedge] "Giovanna Imbesi, founder of LACNETS (Los Angeles County Neuroendocrine Tumor Society), died on November 24, 2019 after a 14-year battle with the disease. She worked tirelessly to educate and help patients with neuroendocrine cancer and support efforts to find new treatments. Giovanna was also an accomplished musician, pianist and composer. This is her song "Hush" from her album "Short Stories" that I put to some of my photographs of fall colors in Utah and Colorado. When I presented it to her in 2016, she was very appreciative, calling it "beautiful and touching." I offer it here on YouTube as a tribute to her hard work on behalf of others suffering from this rare cancer, and as a sample of her quiet spirit and desire for peace in the midst of years of surgeries and treatments for the life-threatening disease." Play Video Play Video 05:17 Patient Story: NET Patient shares how she is thriving as a NET patient (LACNETS) NET Patient Cindy shares how she is thriving as a NET patient. November 7, 2020 To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 12:03 Patient Story: NET Patient shares her inspiring story of strength & resilience (LACNETS) NET Patient Beth shares her inspiring story of strength and resilience titled "A Shared Experience." December 8, 2020 To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 07:56 NET Patient shares how she has learned not just to survive, but also to thrive. Kelli Edwards is a 19-year NET thriver. Kelli shares how her world initially crumbled after her diagnosis and how she has since learned not just to survive, but also to thrive. Check out her recent LACNETS blog post titled "Cancer Thriver," found here: www.lacnets.org/blog/2021/9/6/cancer-thriver To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 01:05:15 LACNETS - "Cancer: Journey or Pilgrimage?" with Michael Eselun, BCC Chaplain (UCLA) LACNETS meeting, "Cancer: Journey or Pilgrimage?" Tuesday, December 10th, 2020 Venue: UCLA Faculty center SPEAKER: Michael Eselun, BCC Chaplain Board Certified Chaplain, Simms/Mann-UCLA Center for Integrative Oncology www.LACNETS.org Play Video Play Video 01:41:38 LACNETS Webinar: "Restringing the Beads of Our Own Story" with Michael Eselun, BCC LACNETS Webinar: "Restringing the Beads of Our Own Story" with Michael Eselun, BCC He shares an honest perspective and rich insights that resonates with cancer patients. Speaker: Michael Eselun Board Certified Chaplain, Simms/Mann UCLA Center for Integrative Oncology Learn more about LACNETS: www.LACNETS.org Audio/Video - www.TVPlive.com Patient Advocacy Patient Advocacy Play Video Play Video 15:35 8. Role of Advocacy in Advancing Care for Neuroendocrine Cancer • Dr. Estelamari Rodriquez Dr. Estelamari Rodriquez speaks about the "Role of Advocacy in Advancing Care for Neuroendocrine Cancer" at the 2025 NET Cancer Day Symposium. The 2025 NET Cancer Day Symposium was a collaboration between the Neuroendocrine Cancer Foundation and the Sylvester Comprehensive Cancer Center, part of UHealth – University of Miami Health System, in Miami, Florida, on Sunday, November 9th. #netcancer #neuroendocrinecancer #netawareness #rarecancer #cancercommunity #advocacy #ncf #lacnets #AboveAndBeyondAward #netcancerday #cancereducation #netsupport Play Video Play Video 35:20 5 - Q&A Panel Three NET patients advocates from around the country answer your questions about patient advocacy work. Speakers: Cindy Lovelace, Co-founder & Executive Director of The Healing NET Foundation Josh Mailman, President of NorCal CarciNET Community Dr. Mark Lewis, NET patient AND a NET oncologist of Intermountain Healthcare To learn more, visit www.LACNETS.org. Play Video Play Video 15:23 3 - “Patient Advocacy: How can YOU bring about change?” with Josh Mailman, MBA Josh Mailman, President of NorCal CarciNET Community, shares how YOU can become involved in patient advocacy work and inspire change within the NET community. 2021 Annual NET Cancer Day Virtual Symposium November 10, 2021 To learn more, visit www.LACNETS.org. Play Video Play Video 03:43 6 - Wrap Up with LACNETS Patient advocates from around the country join us for the 2021 Annual NET Cancer Day Virtual Symposium. To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 17:27 2 - “Navigating a NET Cancer Journey & Living Life with Joy” with Cindy Lovelace Cindy Lovelace, Co-founder & Executive Director of The Healing NET Foundation, shares how she has learned to navigate her NET cancer journey while also living her life with joy. 2021 Annual NET Cancer Day Virtual Symposium November 10, 2021 To learn more, visit www.LACNETS.org. Play Video Play Video 35:20 4 - "NET Advocacy in the Modern Era: From A Patient-Physician Perspective" with Dr. Mark Lewis Dr. Mark Lewis, NET patient AND a NET oncologist of Intermountain Healthcare, joins us for his talk, "NET Advocacy in the Modern Era: From A Patient-Physician Perspective." perts from around the country. 2021 Annual NET Cancer Day Virtual Symposium November 10, 2021 To learn more, visit www.LACNETS.org. Play Video Play Video 42:50 Finding a NET Expert + Surgery for NETs - 2020 LACNETS Virtual NET Conference Virtual 2020 Los Angeles Neuroendocrine Tumor Patient Education Conference Presented by LACNETS Presentations & Times: LACNETS Conference Welcome (0:00 - 5:44) Lindsey Jeu De Vine, Director of Communications, LACNETS Lisa Yen, NBC-HWC, Program Director, LACNETS "Finding a NET Expert" (5:44 - 22:25) Cindy Lovelace , Executive Director Healing NET Foundation "Surgery for NETs" (22:25 - end of video) Alexandra Gangi, MD , Surgical Oncology Cedars-Sinai Medical Center For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 13:14 17. Patient Advocacy & Support (Josh Mailman) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Josh Mailman, MBA, Advocate, President NorCal CarciNet For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 01:38:00 LACNETS Webinar: The Fortune & Folly of Self-Diagnosis" with Dr. Mark Lewis NET expert Dr. Mark Lewis shares how he was diagnosed with NET and how he has been navigating the patient journey. Dr. Lewis addresses the importance of shared decision-making and patient-physician communication. This webinar was recorded on May 6, 2022. Speaker: Mark A. Lewis, MD Medical Oncologist, Director of Gastrointestinal Oncology, Intermountain Healthcare To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 08:05 1 - Welcome Statements: 2021 Annual NET Cancer Day Virtual Symposium Patient advocates from around the country join us for the 2021 Annual NET Cancer Day Virtual Symposium. To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 15:11 15. Being an Engaged Patient (Josh Mailman) - 2022 LACNETS Conference NET patient advocate Josh Mailman discusses the importance of being an engaged patient. Speaker: Josh Mailman, MBA President, NorCal CarciNET Community 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Patient/Caregiver Stories Patient/Caregiver Stories Play Video Play Video 06:50 Patient Journey • Katie Shares Her Story • 2026 NCF Patient Conference In this patient story from NCF’s 2026 Virtual Annual Patient Conference, Katie shares her experience living with grade 3, stage 4 pancreatic neuroendocrine cancer. Katie discusses surgery, CapTEM, systemic chemotherapy, liver ablation, recurrence, and her decision to join a clinical trial. She reflects on weighing treatment risks, preserving future options, managing uncertainty, and balancing aggressive treatment with quality of life. Learn more and access patient resources at www.NCF.net. For more information about this conference, visit https://www.ncf.net/events/2026conference This video is for educational purposes only and is not a substitute for professional medical advice. Please consult your medical team with questions about your care or treatment. #NeuroendocrineCancer #PancreaticNET #NETCancer #ClinicalTrials #PatientStory #CancerTreatment #NCF #PatientConference Play Video Play Video 06:12 Patient & Caregiver Journey - Sara & Quintin In this patient and caregiver story from NCF’s 2026 Virtual Annual Patient Conference, Sara and Quintin share Sara’s journey with small bowel neuroendocrine cancer, from diagnosis and surgery to caregiving, support, and hope. Sara reflects on the importance of second opinions, expert care, NCF resources, community support, and staying resilient while living with stage IV neuroendocrine cancer. Quintin shares his perspective as Sara’s husband and caregiver, highlighting the role of partnership, humor, and support through appointments, scans, surgeries, and everyday life. Learn more and access patient resources at www.NCF.net. For more information about this conference, visit https://www.ncf.net/events/2026conference This video is for educational purposes only and is not a substitute for professional medical advice. Please consult your medical team with questions about your care or treatment. #NeuroendocrineCancer #NETCancer #NeuroendocrineTumors #PatientStory #CaregiverStory #SmallBowelNET #CancerSupport #NCF #PatientConference Play Video Play Video 05:47 Bob, NET Patient Bob, NET Patient Play Video Play Video 06:45 Dusty shares her NET journey • NET Patient • LACNETS Dusty, a NET Patient shares her NET Journey. Play Video Play Video 05:52 Gwendolyn shares her NET journey • NET Patient • LACNETS Gwendolyn, a NET patient, shares her NET journey. Play Video Play Video 08:41 LACNETS • NET Patient Mary Donlevy's Story Play Video Play Video 08:09 03. Patient Story - Kimberly, NET Patient • 2025 Regional Patient Event • Arizona • ⁨@NCFCancer⁩ Kimberly, a NET patient, shares her NET journey. Play Video Play Video 03:38 A Patient Journey • Aramís Lorié • 2025 NET Cancer Day Symposium NET Patient Aramís Lorié shares this story at the 2025 NET Cancer Day Symposium. The 2025 NET Cancer Day Symposium was a collaboration between the Neuroendocrine Cancer Foundation and the Sylvester Comprehensive Cancer Center, part of UHealth – University of Miami Health System, in Miami, Florida, on Sunday, November 9th. #netcancer #neuroendocrinecancer #netawareness #rarecancer #cancercommunity #advocacy #ncf #lacnets #AboveAndBeyondAward #netcancerday #cancereducation #netsupport Play Video Play Video 01:16:25 Living with NET: The Patient Perspective • 2025 NCF Event • July 10, 2025 Patients share their experiences on topics, including decision-making, coping strategies, lessons learned, challenges, and navigating relationships while living with neuroendocrine cancer. Hear about their personal journeys—filled with resilience, realities, and hope, that offer powerful insight into what it's like living with neuroendocrine cancer. Visit NCF.net/July2025 for more information. Play Video Play Video 05:33 17. Jud, NET Patient • NET Patient Journey • @NCFCancer 2025 Annual Patient Conference Jud, a NET patient, shares his journey during the 2025 Neuroendocrine Cancer Foundation Annual Patient Conference. Play Video Play Video 06:22 10. Rashilda, NET Patient • NET Patient Journey • @NCFCancer 2025 Annual Patient Conference Rashilda, a NET Patient, shares her journey during the 2025 NCF Annual Patient Conference Play Video Play Video 06:49 Jesse & Ellen • NET Patient & Caregiver Share Their Story of Living With Carcinoid Heart Disease Jesse & Ellen share their NET journey • NET Patient & Caregiver Play Video Play Video 10:53 "A NET Journey with Samantha, daughter of a NET patient" • 2024 NET Cancer Day Symposium Samantha, a daughter of a NET patient, shared her NET journey at the 2024 NET Cancer Day Symposium. Play Video Play Video 07:51 "A NET Journey: Dorinda, NET Patient" • 2024 NET Cancer Day Symposium Dorinda Gardner shares her NET journey at the 2024 NET Cancer Day Symposium. Play Video Play Video 32:58 Patient Panel with NET Patients Beth, Burt, Denny & Mary • 2023 NET Cancer Day @NCFCancer Patient Panel with NET Patients Beth, Burt, Denny & Mary • 2023 NET Cancer Day Symposium • Santa Monica, CA • @LACNETS For more information, visit LACNETS.org Play Video Play Video 04:50 13) "A NET Journey" - Ilka & Shane Share Their Story • 2024 Neuroendocrine Tumor Patient Conference 13) A NET Journey - Ilka & Shane • 2024 Neuroendocrine Tumor Patient Conference Our 2024 LACNETS Neuroendocrine Tumor Patient Conference is designed for neuroendocrine cancer (NET) patients and caregivers to deepen your understanding of NETs. Whether you are newly diagnosed or have been living with NET for many years, we encourage you to attend: - Learn from top NET experts from across North America on a range of topics relevant to the NET patient journey. - Topics include work-ups, scans, surgery, carcinoid crisis, liver-directed therapy, PRRT, systemic treatments, treatment sequencing, NET guidelines, and clinical trials. - Gain insight into NET decision-making through the NET tumor board panel discussion. - Hear stories from NET patients and caregivers. - Join virtually, where you can pause, rewind, or replay. - There is no cost to attend. This event is made possible by the generosity of donors and sponsors. #LACNETS #neuroendocrinecancer #clinicaltrials #lungcancer #NETcancer #Letstalkaboutnets For more information, visit LACNETS.org. Play Video Play Video 08:13 "A NET Journey" - Karla Shares her Story • 2024 Neuroendocrine Tumor Patient Conference 4) A NET Journey - Karla • 2024 Neuroendocrine Tumor Patient Conference Our 2024 LACNETS Neuroendocrine Tumor Patient Conference is designed for neuroendocrine cancer (NET) patients and caregivers to deepen your understanding of NETs. Whether you are newly diagnosed or have been living with NET for many years, we encourage you to attend: - Learn from top NET experts from across North America on a range of topics relevant to the NET patient journey. - Topics include work-ups, scans, surgery, carcinoid crisis, liver-directed therapy, PRRT, systemic treatments, treatment sequencing, NET guidelines, and clinical trials. - Gain insight into NET decision-making through the NET tumor board panel discussion. - Hear stories from NET patients and caregivers. - Join virtually, where you can pause, rewind, or replay. - There is no cost to attend. This event is made possible by the generosity of donors and sponsors. #LACNETS #neuroendocrinecancer #clinicaltrials #lungcancer #NETcancer #Letstalkaboutnets For more information, visit LACNETS.org. Play Video Play Video 03:40 NET Patient Dorinda Shares her Journey - LACNETS Hear Dorinda's story Play Video Play Video 06:59 Don & Beth Share Their NET Journey • 2023 LACNETS Patient Conference Don & Beth share their inspiring NET journey. For more information, visit LACNETS.org. Play Video Play Video 05:02 Kimberly Shares About Her NET Journey • 2023 LACNETS Patient Education Conference Kimberly shares her inspiring NET journey as part of the 2023 LACNETS Patient Education Conference. Play Video Play Video 05:49 Patient Story: Zollinger-Ellison Syndrome and Gastrinoma Patient story of someone living with Zollinger-Ellison syndrome and a functioning gastrinoma of the pancreas Play Video Play Video 07:53 Patient Story: How to Prepare for Surgery NET patient Julie’s “show and tell” of tips, tricks, and specific items she found useful during her hospital stay and recovery at home Click here for a list of the items Julie mentioned in this video: bit.ly/3vEenQf Read our blog post, 'Practical Tips for Patients Preparing for Surgery" here: bit.ly/3Ac0xHF For more information on LACNETS, visit www.LACNETS.org. Play Video Play Video 06:38 04. Patient Story: Treatment Decisions & Navigating Insurance - 2022 LACNETS NET Patient Conference Diagnosed in 2021 with NETs in the small bowel, NET Patient Julie shares her path to treatment in hopes of providing guidance to newly-diagnosed patients. 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 07:12 12. Patient Story: From Diagnosis to Patient Advocacy - 2022 LACNETS NET Patient Conference Diagnosed with neuroendocrine cancer (NET) in 2021, NET patient Michel shares how the lack of information and awareness of his uncommon diagnosis inspired him to start a patient support group in Mexico called NETs Mexico. This patient story is also available in Spanish, found here: www.LACNETS.org/spanish-resources 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 01:38:00 LACNETS Webinar: The Fortune & Folly of Self-Diagnosis" with Dr. Mark Lewis NET expert Dr. Mark Lewis shares how he was diagnosed with NET and how he has been navigating the patient journey. Dr. Lewis addresses the importance of shared decision-making and patient-physician communication. This webinar was recorded on May 6, 2022. Speaker: Mark A. Lewis, MD Medical Oncologist, Director of Gastrointestinal Oncology, Intermountain Healthcare To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 06:41 NET Patient Story: Re-treatment with PRRT (salvage PRRT) A patient living with neuroendocrine cancer shares his experience undergoing multiple rounds of PRRT treatments. This video was recorded in April 2022. Additional PRRT resources can be found here: https://www.lacnets.org/prrt To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 07:20 Patient Story - Living with High Grade Neuroendocrine Cancer A patient living and thriving with high grade neuroendocrine cancer shares her inspiring story. This video was recorded in March 2022. High grade NETs resources can be found here: lacnets.org/high-grade-nets-resources To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 09:47 Caregiver Story - Pheo/Para Aimee Powell, a caregiver and advocate for family members diagnosed with pheochromocytoma and paraganglioma shares what led her to a life of patient advocacy and assisting patients with these rare tumors. Aimee is the founder of The Pheo Para Project – www.pheoparaproject.org. To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 07:56 NET Patient shares how she has learned not just to survive, but also to thrive. Kelli Edwards is a 19-year NET thriver. Kelli shares how her world initially crumbled after her diagnosis and how she has since learned not just to survive, but also to thrive. Check out her recent LACNETS blog post titled "Cancer Thriver," found here: www.lacnets.org/blog/2021/9/6/cancer-thriver To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 05:40 16. Caregiver Story (Federico and Gilda) - 2021 LACNETS Virtual Conference NET caregiver Gilda shares her story about the importance of NET patient advocacy and support. 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS This video is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. 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Join us at the 2023 LACNETS NET Cancer Day Symposium in Santa Monica, California: - Well-rounded agenda featuring NET experts from the medical community and patient stories. - Learn about active clinical trials and hear from patients who are participating in clinical trials. - Celebrate World NET Cancer Day with inspiring, original music by a NET patient. 2023 NET Cancer Day Symposium • Santa Monica, CA • @LACNETS 2023 NET Cancer Day Symposium • Santa Monica, CA • @LACNETS Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing "NETS 101" • Jaydira Del Rivero, MD • 2023 NET Cancer Day Symposium @NCFCancer 25:45 Play Video Now Playing "Surgical Treatments" • Alexandra Gangi, MD • 2023 NET Cancer Day Symposium @NCFCancer 20:38 Play Video Now Playing "Medical Treatments" • Andrew Hendifar, MD • 2023 NET Cancer Day Symposium @NCFCancer 16:08 Play Video Agenda Speaker Bios OUR SPONSORS Agenda Read 2023 NCD: A Memorable Celebration ABOUT Join us at the 2023 LACNETS NET Cancer Day Symposium in Santa Monica, California: Well-rounded agenda featuring NET experts from the medical community and patient stories. Learn about hot topics including surgery, medical treatments, PRRT, and clinical trials. Celebrate NET Cancer Day with inspiring, original music by a NET patient. Connect with NET experts, patients and caregivers. No cost to attend. This event is made possible by the generosity of donors and sponsors. AGEN DA (Subject to change) Speakers SPEAKERS THE LATEST IN PRRT MARTIN AUERBACH, MD Nuclear Medicine, UCLA Dr. Allen-Auerbach is the Medical Director of UCLA Nuclear Medicine and Clinical Professor in Nuclear Medicine, Division of Pharmacology, at the David Geffen School of Medicine at UCLA. Apart from serving as attending physician in Nuclear Medicine, active research includes clinical studies investigating the role of molecular imaging with PET/CT to gain insights into malignant disease processes and as well as applications of Nuclear Medicine for the treatment of cancer. NETS 101 & OPPORTUNITIES TO ACCESS NET RESOURCES AND CLINICAL TRIALS JAYDIRA DEL RIVERO, MD Endocrinologist and Oncologist National Cancer Institute Dr. Del Rivero earned her medical degree from the University of Veracruz in Veracruz, Mexico and completed her internal medicine residency at Woodhull Medical and Mental Health Center/NYU-Langone Medical Center. Dr. Del Rivero completed a fellowship in Endocrinology, Diabetes and Metabolism at The Inter-Institute Endocrinology Training Program (IETP) at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), The National Institute of Child Health and Human Development (NICHD), and The National Institute of Dental and Craniofacial Research (NIDCR) where she was part of a research team developing clinical trials for pheochromocytoma and paraganglioma. She then joined as Assistant Professor at the Montefiore Einstein Center for Cancer Care (MECCC) where she specialized in endocrine oncology involving thyroid cancer, parathyroid and adrenal tumors, and clinical research for gastroenteropancreatic neuroendocrine tumors. She subsequently completed a second fellowship in medical oncology at the National Cancer Institute (NCI) with a research focus on endocrine malignancies. Dr. Del Rivero is board certified in Internal Medicine, Endocrinology, Diabetes and Metabolism and Medical Oncology. Dr. Del Rivero is a Physician Scientist in the Developmental Therapeutics Branch. She is the Principal Investigator of the Natural History Study for Neuroendocrine Neoplasm and Adrenocortical Cancer to provide the basis of further development of therapeutic interventions, prevention/screening guidelines, endpoints for future clinical trials, and patient reported outcome measures. Dr. Del Rivero’s current efforts is the development of novel treatment approaches and targeted therapies for endocrine malignancies such as advanced gastroenteropancreatic neuroendocrine tumors, adrenocortical cancer and pheochromocytoma/paraganglioma. SURGICAL TREATMENTS ALEXANDRA GANGI, MD Surgical Oncologist, Cedars-Sinai Medical Center Dr. Alexandra Gangi is a board-certified surgical oncologist at Cedars-Sinai Medical Center in Los Angeles. Dr. Gangi completed a general surgical residency at Cedars-Sinai and completed her surgical oncology fellowship at the H. Lee Moffitt Cancer Center in Tampa, Florida. She currently serves as the director of the Gastrointestinal Tumor and Cancer Regional Therapies Programs with specialization in Pancreatic and GI Neuroendocrine tumors, Metastatic colorectal cancer, and Peritoneal Surface Malignancies. Her research focuses on understanding GEPNET heterogeneity between and within tumors subtypes and mechanisms of chemotherapy induced liver injury. The Nuts & Bolts of PRRT LINDA (LINDY) GARDNER, MSN, RN, VA-BC Lead Nurse, Nuclear Medicine, UCLA Health Lindy has over two decades of Interventional Radiology experience prior to transitioning over to Nuclear Medicine in March of 2017. She obtained her RN qualification in 1993 from John Moores University of Liverpool, (LJMU) United Kingdom, she is a graduate from the University Of Dundee, Scotland where she received her Bachelors, and Master’s of Science in Nursing. In her Nuclear Medicine role Lindy is the lead nurse for the Peptide Receptor Radionuclide Therapy (PRRT) program, from the expanded access program (EAP) thru to the FDA approved commercial program. She has presented this program to a national and international audience; her skills are utilized as an expert liaison for institutions commencing the PRRT program, focusing on the patient experience, education, and therapy administration. Lindy is the nursing pillar lead for The International Center for Precision Oncology foundation (ICPO), with her focus on education, support and navigation for the NET patient journey. She is also the lead nurse for Radio-Ligand Therapy (RLT) for prostate cancer within Theranostics at UCLA, covering both clinical application and research. Lindy is a member of the Association for Radiologic and Imaging Nursing (ARIN), and the Association for Vascular Access (AVA), holding her board certification in vascular access (VACC). She sits as a member on The Healing NET Scientific Advisory Committee. CLINICAL TRIALS 101 J. RANDOLPH HECHT, MD Medical Oncologist, UCLA Health Dr. Hecht is a Professor of Clinical Medicine in the David Geffen School of Medicine at UCLA School of Medicine. He holds the Carol and Saul Rosenzweig Chair for Cancer Therapies Development and is the Director of the UCLA Gastrointestinal Oncology Program. Dr. Hecht attended medical school at Eastern Virginia Medical School. He took his internal medicine residency at Northwestern and completed fellowships in gastroenterology research at the University of Chicago, and in gastroenterology and medical oncology at UCLA. Dr. Hecht is an internationally known clinical and translational researcher in the field of gastrointestinal cancers. He has published widely on the molecular biology, early detection, and treatment of gastrointestinal malignancies. He has lead and is currently directing small trials with new molecules as well as large international randomized trials. Current ongoing research includes preclinical models of therapy with biological agents, early studies with gene therapy vectors and tyrosine kinase inhibitors, and leading phase II and phase III trials with novel agents. MEDICAL TREATMENTS ANDREW HENDIFAR, MD Medical Oncologist, Cedars-Sinai Medical Center The current research focus of Andrew Hendifar, MD, is on developing new therapies for pancreatic cancer and neuroendocrine tumors. Dr. Hendifar has helped form multidisciplinary teams that specialize in the treatments of pancreatic cancer, and carcinoid and neuroendocrine tumors. Dr. Hendifar is the primary investigator for several groundbreaking therapies, including radioimmunotherapy for neuroendocrine tumors, anti-inflammatory therapy for pancreatic cancer and novel approaches to cancer cachexia. His national roles include SWOG GI Committee Member and a member of NIH Neuroendocrine Tumor Task Force. He also serves as the steering committee member for the Precision Promise Consortium and chairs the associated Supportive Care Committee. At Cedars-Sinai, he leads the Gastrointestinal Disease Research Group and is the founding Director of the Hematology and Oncology Fellowship Program. HOW PATIENT PREFERENCES IMPACT TREATMENT DECISIONS DANENG LI, MD Medical Oncologist, City of Hope Daneng Li, M.D., is an associate professor in the Department of Medical Oncology & Therapeutics Research at City of Hope Comprehensive Cancer Center, specializing in treating gastrointestinal cancers. Dr. Li currently leads the liver tumors program and is also the co-director of the Neuroendocrine Tumor Program at City of Hope. Dr. Li embraces a multidisciplinary approach to treatment of patients with neuroendocrine tumors. He leads several clinical trials focused on improving outcomes for patients with NETs and works closely with scientists in the development of the next generation of novel therapeutics. Nationally, he has served on several NET committees including the NANETS Research Committee, NANETS Continuing Medical Education Committee, and the Patient-Physician Communication Task Force for the Healing NET Foundation, allowing him to work closely to support NET patient advocacy programs. For all his efforts, he was honored as a recipient of the inaugural 40 Under 40 in Cancer Award during the American Society of Clinical Oncology annual meeting in 2018. PIANO CONCERT TOM BAJORAS Composer & NET Patient Tom Bajoras began playing piano and composing music as a young child growing up in Pennsylvania. Music has been his constant companion ever since, leading him to Los Angeles, where he pursued dual careers in music and music technology. In 1991 he founded a company that develops custom software for the entertainment industry. In January 2015 Tom's life took a sudden detour when he was diagnosed with metastatic pancreatic NET. This prompted an early retirement from his software company, which allowed him to work full-time in his home studio. He currently records his own music, as well as producing music for other artists and spoken-word projects such as audiobooks and podcasts. In 2018 Tom released a CD, Surprised By Beauty, a collection of music he wrote during the first two years of his journey with NET. Since then he has written a wide variety of music, videos, and poetry, all focused on discovering beauty in unexpected places. He finds joy through sharing his music and stories of hope in small, intimate concerts. When not creating in his studio or performing for audiences, Tom enjoys travel, theater, and hiking with his wife, Lisa, and their rescue dog, Skyler. THANKS TO OUR SPONSORS Up The information provided is for educational purposes only and does not substitute for medical advice. Talk to your medical team if you have any questions or concerns about your individual care and treatment. The opinions expressed in this program are those of the speakers and do not represent the opinion of LACNETS.

Our Vision The Vision initiative is in memory of Giovanna Joyce Imbesi, the late founder of LACNETS (now Neuroendocrine Cancer Foundation), whose vision was to empower neuroendocrine cancer patients and caregivers by providing a healing exchange of educational resources. The Neuroendocrine Cancer Foundation provides education, advocacy, and support through its programs, which play a key role in treatment decisions. Giovanna left behind a profound legacy. The Neuroendocrine Cancer Foundation has a great responsibility to help sustain this organization and keep her vision alive due to the impact she had on the neuroendocrine cancer community. The Neuroendocrine Cancer Foundation invites you to participate in our vision initiative supporting neuroendocrine cancer patients and their loved ones. Be a part of the healing. Make a difference today! Large or small, every gift matters and is genuinely appreciated. Your generous contribution will go towards funding the Neuroendocrine Cancer Foundation's greatest needs, such as the production of our educational webinars, podcasts, and conferences. Donate to the Neuroendocrine Cancer Foundation to carry on Giovanna's legacy and vision. Thanks to the generosity of a few committed donors, your gift will be matched dollar for dollar. Help Fund the Vision Watch the tribute video honoring Giovanna Joyce Imbesi by Rich Tamayo, Emmy Winning Video Producer & a friend In Loving Memory Giovanna Joyce Imbesi Our founder, hero & inspiration to live life fully… Giovanna Joyce Imbesi, LACNETS founder, was a patient advocate, pianist, and composer based in Los Angeles. She lived fully with neuroendocrine cancer for 14 years and served as a model of compassion, love and kindness. In 2005, after several years of misdiagnosis, Giovanna was diagnosed with metastatic small bowel neuroendocrine cancer. She understood that those with a rare cancer may feel isolated, and sharing similar experiences may lessen the fear of the unknown and offer comfort. It became her mission to help others in the NET community. Her vision was to create a community for a healing exchange of educational resources and emotional support for all affected by neuroendocrine cancer. Against all odds, Giovanna went on to receive an MBA from UCLA Anderson School of Management with the sole intent of launching LACNETS. In 2012, she founded the non-profit GeneratePossibility and the Los Angeles Carcinoid Neuroendocrine Tumor Society (LACNETS) program. Giovanna's physician, Dr. Edward Wolin, was the inaugural speaker for the first LACNETS' patient education meeting. Through LACNETS, Giovanna's aspiration was to create a more "NET-fluent" world. She wanted to change the narrative from associating NET with famous people who die from the disease to raising awareness of the more than 180,000 people who live with the disease. Giovanna wrote, "Each one of us has the ability to help change those numbers in our own community. There are more opportunities to share more about NET and add one more person to the extended global family of NET awareness." Giovanna helped create tools, such as NET VITALS, to improve communication between patients and physicians. She believed that increased awareness equates to more research, which leads to improved treatments and patient outcomes. Giovanna received the 2016 Monica Warner Advocacy Award, as well as the 2019 Cedars-Sinai Patient Leadership Award , for her inspiring work in patient advocacy. Giovanna Joyce Imbesi passed away peacefully on November 24th, 2019. On her last day, Giovanna said with great pride that her greatest legacy was LACNETS. She felt blessed by this community. Giovanna often said, "Aging is a privilege." She celebrated life and connectedness. She believed in practicing gratitude, even appreciating the difficult times. She was grateful for the thousands of neuroendocrine tumor physicians, researchers and healthcare providers who work on the behalf of NET patients every day. The Neuroendocrine Cancer Foundation works daily to honor Giovanna's vision by serving the NET community she established and helping others to live life richly and fully with NET like she did. Participate in the Vision GENERATE POSSIBILITY For Giovanna, music was medicine. Her musical compositions can be heard on "Short Stories - piano music for healing, meditation & relaxation" recorded while in recovery from neuroendocrine cancer surgery. These pieces were inspired by her belief in the healing power of music as a vital element of our well-being. She frequently contributed music to NET causes. A frequent speaker on living with neuroendocrine cancer and the healing power of music, Giovanna was featured as one of six leaders in Integrative Cancer Care at the 2018 Symington Public Forum at Commonweal. We hope that Giovanna's song and her own words, "Give Me Peace," bring some comfort and peace. I’ll always be grateful for Giovanna and her work through LACNETS (now Neuroendocrine Cancer Foundation). The information I learned and connections I made through the educational meetings changed the course of my medical care and helped me to get back to a place where I could enjoy life. — Tom, NET Patient

Videos en Español < Back to Topics Play Video Play Video 20:24 Dr. Carina Mari Aparici “Lo ultimo en PRRT” en español Dr. Carina Mari Aparici shares the latest in PRRT in Spanish. Play Video Play Video 09:47 Historia del paciente - vivir con cancer neuroendocrino Michél vive con cáncer neuroendocrino. Escuche su historia inspiradora y cómo mantiene la esperanza. Gracias a Michél por compartir su inspiradora historia. Para obtener más información sobre el cáncer neuroendocrino, visite www.LACNETS.org. Play Video Play Video 19:53 Tratamientos de Tumores Neuroendocrinos: Terapias médicas y ensayos clínicos with Dr. Reidy-Lagunes Tratamientos de Tumores Neuroendocrinos: Terapias médicas y ensayos clínicos Presentadora: Diane Reidy-Lagunes, MD Oncólogo Médico, Memorial Sloan Kettering Para obtener más recursos en español, visite www.LACNETS.org/spanish-resources. Play Video Play Video 58:55 "Feocromocitomas y Paragangliomas" con Dr. Jaydira Del Rivero "Feocromocitomas y Paragangliomas" con Dr. Jaydira Del Rivero. Download a copy of the presentation slides here: bit.ly/3Mdj226 Presentadora: Jaydira Del Rivero, MD Endocrinologist, Oncologist; NIH Para obtener más recursos en español, visite www.LACNETS.org/spanish-resources. Play Video Play Video 45:02 "Manejo Sintomatico de los Tumores Neuroedocrinos Funcionales" con Dr. Jaydira Del Rivero "Manejo Sintomatico de los Tumores Neuroedocrinos Funcionales" con Dr. Jaydira Del Rivero Presentadora: Jaydira Del Rivero, MD Endocrinologist, Oncologist; NIH Para obtener más recursos en español, visite www.LACNETS.org/spanish-resources. Play Video Play Video 12:40 "Medicina Complementaria" con Dr. Narjust Duma (LACNETS) "Medicina Complementaria" Presentadora: Narjust Duma, MD Assistant Professor & Thoracic Oncologist; UW Madison Para obtener más recursos en español, visite www.LACNETS.org. Play Video Play Video 50:48 "Tratamiento de Tumores Neuroendocrinos Avanzados" con Jaydira Del Rivero (LACNETS) "Tratamiento de Tumores Neuroendocrinos Avanzados" Presentadora: Jaydira Del Rivero, MD Endocrinologist, Oncologist; NIH Para obtener más recursos en español, visite www.LACNETS.org. Play Video Play Video 04:46 Historia de un paciente (LACNETS) Historia de un paciente, Federico. Para obtener más recursos en español, visite www.LACNETS.org. Play Video Play Video 04:37 Historia de una cuidadora (LACNETS) Historia de una cuidadora, Gilda. Para obtener más recursos en español, visite www.LACNETS.org. Play Video Play Video 20:22 "Qué esperar de una consulta de expertos de NET" con Dr. Heloisa Soares (LACNETS) "Qué esperar de una consulta de expertos de NET" con Dr. Heloisa Soares (LACNETS) Presentadora: Heloisa Soares, MD, PhD Medical Oncologist; Huntsman Cancer Institute Para obtener más recursos en español, visite www.LACNETS.org. < Back to Topics Next Topic >