Calls to Action
Every question you’ve asked, every challenge you’ve faced, and every choice you’ve made along the way holds meaningful insight. Patients and caregivers don’t just navigate care — you influence it.
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Your voice helps researchers, clinicians, and advocates better understand what matters most, what’s working, and what must change.
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By sharing your perspectives, you play an active role in moving neuroendocrine cancer care forward. You help ensure that future treatment decisions, support resources, and research priorities reflect the real needs of the people living this journey every day.
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Your lived experience is powerful — and it deserves to be heard.
Take action.
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CURRENT OPPORTUNITIES
VOICE epNEC Patient Survey
November, 2025
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Take part in this online research survey to help better understand the real-life experiences of people living with neuroendocrine carcinoma. The goal of this study is to learn directly from patients so we can help improve future care, resources, and support for the NET community.
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This survey takes approximately 30 minutes to complete, and eligible participants will receive an $80 Amazon gift card as a thank you for their time. Participation is completely voluntary, and all responses will remain confidential.
Diagnosed with Insulinoma?
Market Research Opportunity
November, 2025
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We are seeking individuals diagnosed with insulinoma to participate in an important research study. The goal of this project is to better understand the real-life experiences of people living with insulinoma — especially how hypoglycemia affects daily life, routines, relationships, and well-being.
What Participation Involves
Participants will take part in a one-hour confidential interview with Mike Reilly, an experienced and independent market research professional with extensive knowledge of insulinoma. Mike is dedicated to creating a respectful, comfortable experience, and all information shared will remain strictly anonymous.
Compensation and Donation
As a thank-you for your time:
- Participants will receive a $250 honorarium
- OLG Research will donate an additional $100 to the Neuroendocrine Cancer Foundation for each completed interview
Interested in Participating?
Please contact Nicole Maurer at OLG Research:
Email: nmaurer@olgresearch.com
Phone: +1-973-575-0019
Have You been Treated With AlphaMedix™?​
November, 2025
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We’re looking for patients who would like to share their experiences in a one-hour, one-on-one interview with a company that wants to better understand the patient journey.
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No preparation needed
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An opportunity to share your story
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Participants will be compensated at fair market value
Your voice and experience matter!
Interested in Participating?
Please contact Lisa Yean, Director of Programs and Outreach at NCF:
Are You Diagnosed With GEP-NETS and Currently Taking Lutathera?
November, 2025
Share Your GEP-NET Journey to Help Drive Better Care
Living with a gastroenteropancreatic neuroendocrine tumor means navigating a rare and often misunderstood condition — and your experience matters.
Brightside Research Solutions is seeking adults diagnosed with GEP-NET to take part in a compensated research project. We are specifically looking for those with this diagnosis that are undergoing active treatment. Your insights can help improve future treatments, support, and understanding for the GEP-NET community.
What to expect:
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A confidential research interview taking place completely online
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Compensation for your time and insights
If you’d like to help shape the future of GEP-NET care, please take a moment to answer a few screening questions. If you qualify, you will immediately be transferred to the full survey. For completing the 30-minute survey, we will reward you with $50 for your time in the project.
Your voice can spark change.
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