Be Inspired

Patients share their experiences on topics, including decision-making, coping strategies, lessons learned, challenges, and navigating relationships while living with neuroendocrine cancer.  Hear about their personal journeys—filled with resilience, realities, and hope, that offer powerful insight into what it's like living with neuroendocrine cancer.  Visit NCF.net/July2025 for more information.

Kimberly, a NET patient, shares her NET journey.

Jesse & Ellen share their NET journey • NET Patient & Caregiver

Samantha, a daughter of a NET patient, shared her NET journey at the 2024 NET Cancer Day Symposium.

Dorinda Gardner shares her NET journey at the 2024 NET Cancer Day Symposium.

Patient Panel with NET Patients Beth, Burt, Denny & Mary • 2023 NET Cancer Day Symposium • Santa Monica, CA • @LACNETS For more information, visit LACNETS.org

NET caregiver Lisa Yen’s “show and tell” of tips, tricks, and items she and her husband found to be helpful when dealing with chemotherapy. Read LACNETS blogpost Practical Tips For Patients Preparing For Chemotherapy: https://www.lacnets.org/post/practical-tips-for-patients-preparing-for-chemotherapy. For more information on LACNETS, visit www.LACNETS.org.

13) A NET Journey - Ilka & Shane • 2024 Neuroendocrine Tumor Patient Conference Our 2024 LACNETS Neuroendocrine Tumor Patient Conference is designed for neuroendocrine cancer (NET) patients and caregivers to deepen your understanding of NETs. Whether you are newly diagnosed or have been living with NET for many years, we encourage you to attend: - Learn from top NET experts from across North America on a range of topics relevant to the NET patient journey. - Topics include work-ups, scans, surgery, carcinoid crisis, liver-directed therapy, PRRT, systemic treatments, treatment sequencing, NET guidelines, and clinical trials. - Gain insight into NET decision-making through the NET tumor board panel discussion. - Hear stories from NET patients and caregivers. - Join virtually, where you can pause, rewind, or replay. - There is no cost to attend. This event is made possible by the generosity of donors and sponsors. #LACNETS #neuroendocrinecancer #clinicaltrials #lungcancer #NETcancer #Letstalkaboutnets For more information, visit LACNETS.org.

4) A NET Journey - Karla • 2024 Neuroendocrine Tumor Patient Conference Our 2024 LACNETS Neuroendocrine Tumor Patient Conference is designed for neuroendocrine cancer (NET) patients and caregivers to deepen your understanding of NETs. Whether you are newly diagnosed or have been living with NET for many years, we encourage you to attend: - Learn from top NET experts from across North America on a range of topics relevant to the NET patient journey. - Topics include work-ups, scans, surgery, carcinoid crisis, liver-directed therapy, PRRT, systemic treatments, treatment sequencing, NET guidelines, and clinical trials. - Gain insight into NET decision-making through the NET tumor board panel discussion. - Hear stories from NET patients and caregivers. - Join virtually, where you can pause, rewind, or replay. - There is no cost to attend. This event is made possible by the generosity of donors and sponsors. #LACNETS #neuroendocrinecancer #clinicaltrials #lungcancer #NETcancer #Letstalkaboutnets For more information, visit LACNETS.org.

Hear Dorinda's story

Gwendolyn, a NET patient, shares her NET journey.

Dusty, a NET Patient shares her NET Journey.

Bob, NET Patient

Don & Beth share their inspiring NET journey. For more information, visit LACNETS.org.

Kimberly shares her inspiring NET journey as part of the 2023 LACNETS Patient Education Conference.

Patient story of someone living with Zollinger-Ellison syndrome and a functioning gastrinoma of the pancreas

NET patient Julie’s “show and tell” of tips, tricks, and specific items she found useful during her hospital stay and recovery at home Click here for a list of the items Julie mentioned in this video: bit.ly/3vEenQf Read our blog post, 'Practical Tips for Patients Preparing for Surgery" here: bit.ly/3Ac0xHF For more information on LACNETS, visit www.LACNETS.org.

Diagnosed in 2021 with NETs in the small bowel, NET Patient Julie shares her path to treatment in hopes of providing guidance to newly-diagnosed patients. 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com.

Diagnosed with neuroendocrine cancer (NET) in 2021, NET patient Michel shares how the lack of information and awareness of his uncommon diagnosis inspired him to start a patient support group in Mexico called NETs Mexico. This patient story is also available in Spanish, found here: www.LACNETS.org/spanish-resources 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com.

NET expert Dr. Mark Lewis shares how he was diagnosed with NET and how he has been navigating the patient journey. Dr. Lewis addresses the importance of shared decision-making and patient-physician communication. This webinar was recorded on May 6, 2022. Speaker: Mark A. Lewis, MD Medical Oncologist, Director of Gastrointestinal Oncology, Intermountain Healthcare To learn more about LACNETS, visit www.LACNETS.org.

A patient living with neuroendocrine cancer shares his experience undergoing multiple rounds of PRRT treatments. This video was recorded in April 2022. Additional PRRT resources can be found here: https://www.lacnets.org/prrt To learn more about LACNETS, visit www.LACNETS.org.

A patient living and thriving with high grade neuroendocrine cancer shares her inspiring story. This video was recorded in March 2022. High grade NETs resources can be found here: lacnets.org/high-grade-nets-resources To learn more about LACNETS, visit www.LACNETS.org.

Aimee Powell, a caregiver and advocate for family members diagnosed with pheochromocytoma and paraganglioma shares what led her to a life of patient advocacy and assisting patients with these rare tumors. Aimee is the founder of The Pheo Para Project – www.pheoparaproject.org. To learn more about LACNETS, visit www.LACNETS.org.

Kelli Edwards is a 19-year NET thriver. Kelli shares how her world initially crumbled after her diagnosis and how she has since learned not just to survive, but also to thrive. Check out her recent LACNETS blog post titled "Cancer Thriver," found here: www.lacnets.org/blog/2021/9/6/cancer-thriver To learn more about LACNETS, visit www.LACNETS.org.

NET caregiver Gilda shares her story about the importance of NET patient advocacy and support. 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS This video is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com.

NET Patient Federico and his wife share their journey with NET. 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS This video is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com.

NET Patient Val shares her experience with symptom management and NETs. 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com.

NET Patient Denny shares his experience with PRRT. April 13th, 2021 To learn more about the LACNETS , visit www.LACNETS.org.

NET Patient DeAnne shares her experience with Alpha PRRT. March 16th, 2021 To learn more about the LACNETS , visit www.LACNETS.org.