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We all have bad days. Some days are especially bad. Getting out of bed feels like a chore. Favorite foods are unappealing. Activities...

(This blog post is also available in Spanish, found here . ) When my brother was diagnosed with a carotid body tumor in 2005, we felt as...

Escrito por Aimee Powell - 23 de agosto de 2021 (This blog post is also available in English, found here .) Cuando a mi hermano le...

Many NET patients undergo surgery as part of their treatment course. While their medical team might have specific preparation...

I never received a manual on how to be a caregiver. — Lisa Yen Becoming a caregiver to someone living with NET cancer looks different ...

“Does it spark joy?” This is the central question of the widely popular Kondo organization method from Marie Kondo’s best-selling 2014...

“Educated patients tend to be happier patients as they have better expectations and feel more comfortable navigating this journey.” —...

Rare Disease Day is recognized every year on the last day of February to raise awareness of rare diseases. While having a rare disease...

You are never too old to set another goal or to dream a new dream. — C.S.Lewis New Year, New You? It’s the beginning of a new year! You...

JOIN ME in giving back on # GivingTuesday ™. On Tuesday, November 30, 2021, people from all over the world will come together for one...