High Grade Neuroendocrine Tumor (NET)
and Neuroendocrine Carcinoma (NEC) Resources
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LISTEN
Extrapulmonary neuroendocrine carcinoma (EP-NEC) is a rare and complex cancer that can be difficult to recognise, diagnose, and treat. This short video helps patients and care partners understand the disease, including what to expect from diagnosis and treatment, the urgency needed, and where support is available. It is designed to help patients and their families navigate this challenging condition.
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In this video podcast by COR2ED, Neuroendocrine Patient Advocate Susan Meckler-Plummer joins Medical Oncologist Dr. Aman Chauhan to discuss extra-pulmonary neuroendocrine carcinomas (EP-NECs).
VOICE epNEC Care Partner Survey
February, 2026
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​We invite you to take part in an online survey to better understand your role as a care partner/caregiver in supporting an individual with neuroendocrine carcinoma. We want to learn more about the challenges you encounter while providing care and the areas where care and support can be improved.​
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If you are interested, please click on the link or scan the QR code below to enter your email address: https://s-hab.medefield.com/wix/p294869318978.aspx
We’ll send you a short questionnaire to confirm your eligibility, along with an informed consent form that explains the study in more detail.
If you qualify and choose to participate, you will be directed to the full survey. Upon completing the survey, you will receive an honorarium as a thank-you for your time and contribution.
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Please note: The survey will come from Paradigm Sample (invite@decipherinc.com) within 2-3 days. Please keep an eye on your inbox and check your spam or junk folder just in case.
Your email will be used solely for the purpose of sending the survey invitation and will
be deleted after the study concludes. Your information will be kept strictly confidential.
Thank you for considering taking part in this important study.​​
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SCHOLARLY ARTICLES: WELL DIFFERENTIATED HIGH-GRADE NETS
PATIENT STORY
A patient living and thriving with high grade neuroendocrine cancer shares her inspiring story.
FACEBOOK GROUP
For more information & and support, contact high grade patient advocate Susan Meckler Plummer, who supported her late husband with NEC.
Susan Meckler Plummer
609-731-0322