High Grade Neuroendocrine Tumor (NET)
and Neuroendocrine Carcinoma (NEC) Resources
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Extrapulmonary neuroendocrine carcinoma (EP-NEC) is a rare and complex cancer that can be difficult to recognise, diagnose, and treat. This short video helps patients and care partners understand the disease, including what to expect from diagnosis and treatment, the urgency needed, and where support is available. It is designed to help patients and their families navigate this challenging condition.
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In this video podcast by COR2ED, Neuroendocrine Patient Advocate Susan Meckler-Plummer joins Medical Oncologist Dr. Aman Chauhan to discuss extra-pulmonary neuroendocrine carcinomas (EP-NECs).
VOICE epNEC Patient Survey
November, 2025
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Take part in this online research survey to help better understand the real-life experiences of people living with neuroendocrine carcinoma. The goal of this study is to learn directly from patients so we can help improve future care, resources, and support for the NET community.
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This survey takes approximately 30 minutes to complete, and eligible participants will receive an $80 Amazon gift card as a thank you for their time. Participation is completely voluntary, and all responses will remain confidential.
SCHOLARLY ARTICLES: WELL DIFFERENTIATED HIGH-GRADE NETS
PATIENT STORY
A patient living and thriving with high grade neuroendocrine cancer shares her inspiring story.
FACEBOOK GROUP
For more information & and support, contact high grade patient advocate Susan Meckler Plummer, who supported her late husband with NEC.
Susan Meckler Plummer
609-731-0322