The Neuroendocrine Cancer Foundation at ENETS

The Neuroendocrine Cancer Foundation (formerly LACNETS) attended the 2025 Annual European Neuroendocrine Tumor Society (ENETS) Conference, a 3-day medical and scientific meeting of presentations on ground-breaking research and late-breaking study results, in Krakow, Poland. We learned from experts from around the world and collaborated with global partners.

While many of the sessions focus on medical and scientific data, the value of patient advocates was highlighted during the interactive INCA/ENETS joint session where the topic was on collaboration of NET researchers and patient advocates to improve neuroendocrine cancer research. While the Neuroendocrine Cancer Foundation was not a presenter during this session, we were mentioned by presenters as some of the examples of meaningful involvement in research. The key takeaway was that clinical research should involve patient advocacy organizations early and throughout the clinical trial process. To this aim, we strive to forge and deepen relationships to further research collaborations globally so that we can ultimately improve the lives of patients.

Watch our interviews from the ENETS Symposium with NANETS President Emeritus Dr. Thor Halfdanarson and Ohio State University Comprehensive Cancer Center (OSUCCC)’s Medical Oncologist Dr. Vineeth Sukrithan.

NANETS President Emeritus Dr. Thor Halfdanarson discusses the positive news and results from ITM’s phase 3 COMPETE trial at the 2025 ENETS Annual Medical and Scientific Conference in Krakow, Poland. The COMPETE trial was the first prospective, randomized phase 3 study comparing PRRT with an active treatment (everolimus).

Click here to learn about COMPOSE, another ITM ongoing trial, for Well-differentiated, G2 and G3 GEP-NETs comparing PRRT versus CAPTEM (Capecitabine and Temozolomide), Everolimus or FOLFOX (Folinic acid + Fluorouracil + Oxaliplatin)>>>

OSUCCC’s Medical Oncologist Dr. Vineeth Sukrithan discusses his takeaways from the 2025 ENETS Annual Medical and Scientific Conference in Krakow, Poland.