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Take some time to enjoy our Summer virtual Wellness Retreat* on Saturday, August 2nd 2025, from 8:15 AM to 12:15 PM Pacific Daylight Time. The theme of the retreat is "Blossoming." REGISTRATION IS CLOSED Take some time to enjoy our Summer virtual Wellness Retreat* on Saturday, August 2nd 2025, from 8:15 AM to 12:15 PM Pacific Daylight Time. The theme of the retreat is "Blossoming." Living with, or supporting someone living with, cancer can feel limiting and intimidating, especially when it is an uncommon and uniquely challenging disease like neuroendocrine cancer. This retreat gives us a moment to stop and “smell the roses,” or blooms along our journey. This interactive wellness retreat blends movement, mindfulness, and creative expression in a safe, empathetic space. Together we will explore “blossoming” and make room to breathe, bloom, and be. While reflecting upon ways to express appreciation and admiration for others, and recognize and celebrate ourselves as well. The retreat will take place on Zoom (a two-way stream), meaning everyone will be able to see and interact with one another during the activities. Retreat Activities: Chair Yoga with Julie Wolinsky : Gentle and accessible yoga for all levels, focusing on breath and movement. Art Therapy with Angie Madama : Let your creativity and emotions bloom through a guided artwork creation. Guided Meditation with Ruth Q. Wolever, PhD, NDC-HWC : Be mindful and tranquil during a guided meditation session. Reflections, Connections & Sharing facilitated by Lisa Yen, NP, NBC-HWC This special biannual event is offered at no charge to neuroendocrine cancer patients and caregivers. *Limited spots are available. First come, first served. *By registering, you agree to RSVP via email and provide additional information needed for the art therapy session. A mailing address will be required in the RSVP. Art supply delivery may not be possible outside of the Continental U.S. Please give 72 hours notice if you cannot attend. Register below by July 26th, 2025. MEET THE INSTRUCTORS & FACILITATORS Julie JULIE WOLINSKY Registered Yoga Teacher Julie Wolinsky is an Experienced-Registered Yoga Teacher who has taught a variety of in-person and online yoga formats, including Chair Yoga, Vinyasa Flow Yoga, Yoga with Weights and Cardio, and Yin Yoga, for nearly ten years. Passionate about helping others to live their healthiest and happiest lives, Julie has taught yoga to cancer patients, senior citizens, those in wheelchairs, as well as professional athletes and teenagers. She is certified in Reiki Second Degree Natural Healing, and is working toward a certification as a professional coach. With a MBA from Harvard Business School, her professional background is in international development, business strategy and entrepreneurship, and includes living and working in Spain and Latin America. She loves languages and has taught yoga in Spanish and Farsi. Julie developed 5M Yoga, a transformational program for anyone with limited mobility. Through Movement, Meditation, Music, Message & Massage, her students receive a powerful work-out and work-in, along with the tender loving attention they need and deserve. She is inspired to motivate, guide, and learn from her students and believes movement and mindfulness are medicine. ANGIE MADAMA Art Therapist Angie Madama was inspired to form "Reach heART" in March 2020, when the pandemic began, to offer art lessons for kids through Zoom that combine her passion for the arts and mindfulness (she prefers to call it "presentfulness"). It was her intention to provide a safe space to create, physically and emotionally, in addition to supporting an outlet for social engagement, as well as to encourage a sense of connectedness--to think of and support others in our community through our art. Her background stems from a degree in technical Theatre (Costume and Scene Design), the entertainment industry, her love for the arts, yoga, sports (both playing and coaching), and being a parent herself. She has a constant thirst for creativity and learning, particularly in the field of social and emotional development, neuroscience, and the various ways we all can cultivate a practice of BEING present. Angie RUTH Q WOLEVER PhD, NBC-HWC (CST) Guided Meditation Facilitator Ruth Q. Wolever, PhD, NBC-HWC serves as Interim Director of the Osher Center for Integrative Medicine at Vanderbilt and the Director of Vanderbilt Health Coaching . She is an Associate Professor of Physical Medicine & Rehabilitation at Vanderbilt University Medical Center, with secondary appointments in the Department of Psychiatry & Behavioral Sciences and the Vanderbilt University School of Nursing, and an Adjunct Associate Professor at Meharry Medical College. Ruth is the Chief Science Officer for eMindful, Inc. , is a founding member and was the inaugural President of the National Board for Health and Wellness Coaching . A clinical health psychologist and nationally-board certified health and wellness coach (NBC-HWC) , Ruth has over 25 years of experience training and mentoring medical and allied health professionals in behavioral medicine, emotional health and coaching. She also has over 25 years of experience designing, implementing, and evaluating behavior change programs for medical patients and those at risk for chronic disease. Internationally recognized for her expertise on mindfulness and health coaching, Ruth studies mindfulness-based approaches to self-regulation and lifestyle change. Her research has been funded by the National Institutes of Health (NCCAM – now NCCIH, Office of Women’s Health, NHLBI, NIDCD, and NIDDK), the United States Air Force, Centers for Medicare and Medicaid Services, industry, and philanthropy. Ruth is particularly interested in the intersection of mindfulness, behavior change, and inter-professional training. Ruth LISA YEN NP, NBC-HWC Director of Programs & Outreach, LACNETS Lisa Yen was a nurse practitioner hospitalist for over 12 years prior to her husband’s diagnosis with advanced, metastatic pancreatic NET in January 2015. As a medical professional, a caregiver, and a health coach to NET patients, she brings a unique perspective to LACNETS. In her role as Director of Programs & Outreach, she works with the team to plan content for the monthly educational meetings and annual patient educational conference as well as developing programs such as NETCONNECT , the LACNETS Health Coaching Program , the weekly virtual NET support group , and the monthly virtual NET caregiver support group . Lisa also co-created NET VITALS with LACNETS founder Giovanna Joyce Imbesi and City of Hope NET expert Dr. Dan Li. Lisa was the recipient of the 2020 Monica Warner Award. Her passion is to help improve the quality of life for those who have been touched by NET. Lisa earned a bachelor of arts in psychology from Wheaton College in Illinois in 1997, a bachelor of science in nursing from Loyola University of Chicago in 1998, a master of science in nursing from the University of California, Los Angeles School of Nursing’s Acute Care Nurse Practitioner Program in 2003, and a post-graduate certification in Health Coaching from Vanderbilt University in 2018. She is a Nationally Board Certified Health and Wellness Coach (NBC-HWC) , a credential offered in collaboration with the National Board of Medical Examiners. She has been active in community service and has served in medical missions in Kenya and Haiti. Other than her passion for helping people, she also enjoys traveling, snowboarding, and attending theater. Lisa THANKS TO OUR SPONSORS

Novartis is reimagining cancer care with radioligand therapies (RLTs) for patients with advanced cancers, including neuroendocrine tumors. We are proud of our 30-year legacy as an innovator in the neuroendocrine tumor community, leading developments that strive to transform the lives of people with this rare disease. At Novartis, we have a commitment to working together with patients. Our significant investment in research and development underpins our commitment to using science-based innovation to address some of society's most challenging healthcare issues. Only by working together can we improve outcomes for patients and change the practice of medicine. For more information, please visit: https://us.lutathera.com . Submit Your Question to Novartis 2025 ANNUAL PATIENT CONFERENCE Confirm Your Visit to the Novartis Virtual Booth! First name Last name Email Submit This information is for educational purposes only and does not substitute for medical advice or constitute an endorsement by NCF. Talk to your medical team about your individual care and treatment.

< Back to the upcoming events page https://www.youtube.com/watch?v=FiYogD5g_9A Learn about Palliative Care: what it is, what it is not, and how it may help those affected by neuroendocrine cancer. Dr. Chandana Banerjee, palliative care and hospice specialist from the City of Hope Cancer Center in Los Angeles, demystifies these topics. ABOUT CHANDANA BANERJEE, M.D., M.P.A., HMDC Chandana Banerjee, M.D., M.P.A., HMDC, is the dean, director and designated institutional official for Graduate Medical Education at City of Hope. She is also an associate professor in the Department of Supportive Care Medicine , specializing in hospice and palliative care. She developed the City of Hope Hospice & Palliative Medicine Fellowship. She also established the Cancer Pain Rotation for Kaiser Permanente Los Angeles Hospice & Palliative Medicine Fellowship, which is now part of the core curriculum for the Kaiser Permanente Southern California Hospice & Palliative Medicine fellowship program. Dr Banerjee also developed and directed the End of Life Symposium, which was first held at City of Hope in September 2019 and was endowed by Arthur Riggs, Ph.D. She is the physician lead for Schwartz Rounds at City of Hope and serves as chair on the End of Life Option Act Subcommittee. She is also a member of the Continuing Medical Education and the Ethics and Quality of Life committees. She co-founded the City of Hope Expressions of Hope initiative in partnership with Diversity, Equity and Inclusion. She is currently chair-elect of the American Academy of Hospice & Palliative Medicine's (AAHPM) Medical Aid in Dying Special Interest Group. She served as chair-elect, chair and past chair on the AAHPM Humanities and Spirituality Special Interest Group from March 2019-2022. She serves on AAHPM's Editorial Board for the publication AAHPM Quarterly and has served on the assembly's Abstract Review Board. She is a reviewer for evidence-based research articles in hospice and palliative care submitted to McMaster University in Canada. Dr. Banerjee has written and published numerous articles and book chapters and spoken at conferences nationally and internationally. She is the editor for an upcoming book by Springer Publishing's CTAR series exploring views on end-of-life care, death, burial and bereavement within different cultures and religions. She also sits on the board of directors for Compassion & Choices, an organization dedicated to end-of-life issues. Dr. Banerjee is a contributing member on the National Comprehensive Cancer Network Fatigue Panel. Her leadership activities in education include excellence in teaching, faculty development and mentoring, and curriculum and program development. Dr. Banerjee earned her undergraduate degree with an honors scholar designation from University of Connecticut. She received her master's degree in public administration from New York University and her medical degree from Saba University School of Medicine. She completed her residency in pediatrics and her fellowship in adult hospice and palliative medicine from Kaiser Permanente Los Angeles. She is also a Hospice Medical Director Certified. Dr. Banerjee was recently selected as a Health Equity Scholar into the prestigious Cambridge Health Alliance - Center for Health Equity Education & Advocacy Program’s 2021-2022 Cohort. Dr. Banerjee loves to write poetry and her first collection, "Ashen Leaves," was published in July 2020. Her second book of poems, "Neruda in Bed," was published in November 2021. The opinions expressed by the guest presenters, as well as the questions asked by the audience, have not been created or suggested by LACNETS or the sponsors of this program. LACNETS does not endorse or promote any of the views, opinions or information provided in this presentation. Audience members should not rely solely on the opinions or information expressed by the guest presenter and should seek guidance and direction from their own medical advisors regarding any choices they make about their health or treatments. THANKS TO OUR SPONSORS

Lung NET Resources WATCH Click here to download the presentation slides from the above video. Click here to download the presentation slides from the above video. Click here to download the presentation slides from the above video. Lung NET specialist Dr. Sukhmani Padda gives an update on lung NETs. EPISODE 26: WHAT TO KNOW ABOUT LUNG NETS What are lung NETs? What is DIPNECH? How is lung NET similar or different from lung cancer? Dr. Vineeth Sukrithan from Ohio State University Comprehensive Cancer Center gives a comprehensive overview of lung NET and DIPNECH, including the work-up and treatment options. He also discusses open clinical trials and exciting advances in lung NET research on the horizon. LISTEN NOW LISTEN OTHER RESOURCES Lung NET infographic, courtesy of Neuroendocrine Tumor Research Foundation. ADDITIONAL LUNG NET RESOURCES: NetWise Podcast - Lung NETS Episode Our Cancer Stories - "Neuroendocrine Tumors of the Lung" Our Cancer Stories - "What is Lung Carcinoid?" Our Cancer Stories - "Key Statistics for Lung Carcinoid Tumor" Our Cancer Stories - "Hormonal Syndromes Caused by Lung Neuroendocrine Tumors" OPEN CLINICAL TRIALS: PRRT TRIAL for lung NET: phase 2 trial studying the effect of lutetium Lu 177 dotatate (PRRT) compared to the usual treatment (everolimus) in treating patients with somatostatin receptor positive ADVANCED bronchial Neuroendocrine Tumors OTHER CLINICAL TRIALS FOR LUNG NETS: Lung/Bronchial NETs TREATMENT GUIDELINES & RESEARCH ARTICLES: 2021 CommNETS/NANETS Guidelines for the Diagnosis and Management of Patients With Lung NETs: An International Collaborative Endorsement and Update of the 2015 European Neuroendocrine Tumor Society Expert Consensus Guidelines SPINET Trial Scholarly articles on Lung Carcinoid Tumors (Recommended by Dr. Robert Ramirez) 2022 Review Article by Dr Robert Ramirez et al: A multidisciplinary approach to the work up and management of pulmonary carcinoid tumors and DIPNECH: a narrative review 'OUR CANCER STORIES' SURVEY Researchers are currently conducting an international study approved by the NUS Ethics Committee (NUS-IRB-2023-320) to examine the relationship between emotional well-being and recovery for cancer patients. Our Cancer Stories' goal is to gather anonymous insights from individuals (aged 30-70) diagnosed with prostate and lung cancer about their personal experiences. To ensure the success of this research, they are seeking cancer patients willing to share their stories through an online survey with the option of reimbursement of $20 USD upon completion. This is a confidential, online survey that will take about 30 minutes to complete. Survey responses will be used to create stories that will be published on a website called Our Cancer Stories (www.ourcancerstories.com ). These stories are aimed at providing readers (e.g. cancer patients, survivors, caregivers, and those with loved ones affected by cancer) with information useful in making informed decisions in fighting cancer, while providing comfort and solidarity. PATIENT STORIES NET Patient Dorinda Shares Her Journey "In Sickness and in Health" shares Lauren's journey. Lauren is a former beauty pageant queen turned professional dancer for the Sacramento Kings.

NET Intro - Your NET Elevator Speech The NET Intro card can be filled out digitally using a PDF editor or printed and filled out. DOWNLOAD THE NET INTRO CARD Esta página también está disponible en español, se encuentra aquí. WHAT IS A NET ELEVATOR SPEECH? An elevator speech is a way of introducing yourself. The reason it’s called an “elevator speech” is because it should be short enough to say during a brief elevator ride. We define a NET elevator speech as a two-sentence synopsis of your NET cancer which can be communicated in 30 seconds or less. If you were in an elevator with a NET expert and had only 30 seconds, your NET elevator speech is your concise two-sentence introduction that relates the most important things they need to know about your disease. This is your NET Intro, the way you introduce yourself to someone who doesn’t yet know your NET history. Your NET elevator speech consists of two sentences, and contains items #2-6 on page 1 of NET VITALS . SENTENCE #1: 1. Your relationship to NET: If you are living with NET, you might start the sentence with: “I am living with…” “I was diagnosed with…” If you are an ally or loved one of someone living with NET, you might start the sentence with: “My spouse/child/parent/relative/friend/other relation is living with…” “My spouse/child/parent/relative/friend/other relation was diagnosed with…” Note: Because we believe words are powerful, we discourage identifying yourself as a patient or by the disease. Instead, we encourage using “I am living with” or “I was diagnosed with” or “I was diagnosed X year with…” or even “I have…” Some people even say “I am living well with…” because it gives the message that people can thrive while living with NETs. 2. Tumor differentiation: This is either "well differentiated" or "poorly differentiated.” It refers to how abnormal the cells look when compared to the surrounding healthy, non-cancer cells under the microscope. 3. Tumor grade: This is grade 1, 2, or 3. If you know your ki-67, you can add this element, as it determines the grade of the tumor. This refers to how quickly the tumor cells are dividing. It can be found on your pathology report, a report that is done whenever tissue is taken from your body, usually from a biopsy or surgery. Grade is different from stage which refers to how far the cancer has travelled from the original site of the tumor. It’s easy to confuse grade with stage, but they actually say very different things. The general public is familiar with staging, because it is a common way to describe a cancer and gives an idea of someone’s prognosis. However, it’s important to remember that stage 4 with neuroendocrine cancer does not mean the same thing as stage 4 with other cancers. Please note that lung NETs are not classified by grade; they are classified as typical carcinoma, atypical carcinoma, large cell neuroendocrine carcinoma, and small cell carcinoma. Pheochromocytomas and paragangliomas are also not classified by grade. NETWise Infographic Stage, Differentiation & Grade, courtesy of Neuroendocrine Tumor Research Foundation - Download Here Lung NET infographic, courtesy of Neuroendocrine Tumor Research Foundation - Download here Lung NET resources can be found here. 4. Functional status of the tumor: This is either functional or nonfunctional. This means specifically whether the tumors produce hormones (functional), or they do not produce hormones (nonfunctional). This is different from stating if you experience symptoms, since symptoms could be from a variety of reasons. This specifically refers to whether or not your tumors produce hormones that cause symptoms. 5. Site of tumor origin and metastases: This is where your tumor originates from (i.e. pancreas, small intestine, lung, colon, etc.) and anywhere else it might be located (i.e. liver, bones, etc.). The primary site of your tumor remains the same even after it has been removed and even if you no longer have evidence of disease. One reason the primary site of your tumor is important is that it helps your doctor determine what treatment options are available and best suited for you. 6. Year of diagnosis (optional) This is my example of sentence #1: "My husband has been living with well-differentiated, Grade 2 (ki-67 15) nonfunctional pancreatic NET with metastases to the liver and bones since 2015.” "My husband was diagnosed in 2015 with well-differentiated, Grade 2 (ki-67 15) nonfunctional pancreatic NET that has metastasized to the liver and bones.” SENTENCE #2: Sentence #1 is foundational. Once you’ve mastered sentence #1, then -- and only then-- are you ready to build on it by adding sentence #2. Most of us have an easier time with sentence #2 because we usually know what treatments we’ve had. Sentence #2 consists of a brief summary of your surgeries and treatments. The key here is to be succinct. This is my example of sentence #2: “My husband has had surgery, somatostatin analog (lanreotide or octreotide), liver directed therapy, and PRRT.” There it is—your NET story as a brief two-sentence NET Intro that takes less than 30 seconds. While it may sound simple, we recognize that building your elevator speech may not be easy. Furthermore, it takes work and practice to become comfortable delivering your elevator speech. Write it down. Have it handy. Then practice, practice, practice ! It takes repetition to become fluent in this new language so it rolls easily off the tongue. WHAT ARE THE BENEFITS OF LEARNING YOUR NET INTRO? You are learning to “speak NET” so you’re on the same page as a NET expert. By sharing your NET elevator speech, you are communicating the critical elements that they need to know to guide treatment decisions. It’s important that YOU know and understand your own disease, and don’t just rely on your medical team to do so. Learning to speak NET helps you know what information or treatments are relevant to you. When you participate in educational meetings, you might be better able to interpret and apply the information. When you look at clinical trials, you might be better able to understand whether you are a candidate for certain trials. It helps you communicate the essential elements of your neuroendocrine cancer concisely, clearly, and efficiently. Communicating the critical elements of the disease efficiently means that time can be better spent on other things such as talking about treatments or getting your questions answered. This might be in a support group setting or with others living with NETs. This might be when speaking to your NET expert at a medical appointment or perhaps a NET expert you meet at an educational conference. Using your NET elevator speech, you can speak NET to better communicate your “NET VITALS.” WHAT SHOULDN’T BE IN YOUR NET INTRO? Words are powerful. We discourage people from identifying themselves or their loved ones as a patient or as a disease. We want to use words that empower and that show we view ourselves as whole people rather than being defined by an illness. Note that your NET Intro is not the same thing as your story. There is a time and a place for telling your story of how you were diagnosed and how NET has impacted you personally. Giving an elevator speech does not replace telling your story; it is a different skill that serves a different purpose. Knowledge is powerful! In this rollercoaster journey where things may sometimes feel out of control, here is something you can control. Learning your NET elevator speech helps you to communicate in the language of NET experts. We can be better patients and advocates by bridging our knowledge gaps and understanding foundational NET terms and concepts. Now go forth and build your own NET elevator speech. Let’s learn to “speak NET” together! DOWNLOAD THE NET INTRO CARD The NET Intro card can be filled out digitally or printed and filled out. Esta página también está disponible en español, se encuentra aquí. RESOURCES If you're not sure what the above terms mean or how to find the differentiation, grade, or ki-67 on your pathology report, we recommend the following resources: NETRF’s NETWise infographic “Stage, Differentiation, & Grade” NETRF’s NETWise podcast Episode 1: What You Need to Know About NETs NET VITALS webinar (starting @14:20) Pathology webinar by Dr. Sue Chang (starting @ 36:43) Symptom Management presentation by Dr. Del Rivero (covers functional tumors and management of carcinoid syndrome) NOTE: NET Intro is a document for personal use only. It is not submitted to nor collected by LACNETS. It is a document for you to fill out and take with you to your physician appointment. This document is intended for informational and educational purposes only and is not a substitute for professional medical advice. Always consult with your physician or health care provider.

<< Go back to the Podcast page EPISODE 11: PATHOLOGY FOR NETS Download a Transcript of this Episode >> ABOUT THIS EPISODE How do you understand your pathology report? What is tumor grade, differentiation, mitotic index, and ki67? How do you get a second opinion on your pathology? NET expert and pathologist Dr. Sue Chang of City of Hope answers ten common questions about pathology for neuroendocrine tumors. Dr. Chang defines important keywords to help you understand your pathology report which is instrumental in guiding treatment decisions. MEET DR. SUE CHANG Sue Chang, M.D., is an assistant clinical professor and interim chief of the Division of Anatomic Pathology in the Department of Pathology . Dr. Chang graduated cum laude from Harvard University in Cambridge, Massachusetts, and went on to receive her medical doctorate from New York Medical College in Valhalla, New York. Later, she completed an anatomical/clinical pathology residency at UCLA Health, where she was a chief resident and a resident informaticist. She furthered her training with a cytopathology fellowship at UCLA Health and a surgical pathology fellowship at Brigham and Women's Hospital in Boston. Board certified in anatomic pathology, clinical pathology, cytopathology and clinical informatics, Dr. Chang is the recipient of many honors and awards. She has published several articles in the peer reviewed literature, and has been invited to present her work nationally. Dr. Chang's professional interests include thyroid pathology and pathology informatics. She is active in the College of American Pathologists, currently serving as the chair for the Professional and Community Engagement Committee. She has written several blog posts and participates in patient-facing informational panels, with the goal of increasing public awareness and knowledge of pathology reports and laboratory testing. In her free time, she enjoys collecting rare and vintage medical books, reading historical fiction, karaoke and home gardening. TOP 10 PATHOLOGY QUESTIONS 1. How do I find and understand my pathology report? What should I pay attention to in my pathology report? 2. What type of staining should be done for NET tumors? 3. How does the tumor location play a role in what testing a pathologist might do? 4. What is tumor grade, why is it important, and how is that determined? How is grade different from stage? 5. What is ki67? How reliable is this? 6. What is mitosis or mitotic index? 7. What is differentiation and how do you decide this? Is it ever ambiguous? How are poorly differentiated tumors different from other tumors? 8. What do typical and atypical mean and when might we see this? 9. Can there be different grades within the same tumor or between multiple tumors? How do I understand a pathology report that showed mixed neuroendocrine neoplasms? 10. Should I get a second opinion with my pathology? If so, how is that done? Also, how long are pathology specimens typically stored? ADDITIONAL RESOURCES https://www.youtube.com/watch?v=VkgoByozjX0 "Your Pathologist & Your Pathology Report" with Dr. Chang and Dr. Li Click here for another helpful resource on how to read your pathology report. DISCLAIMER LACNETS Podcasts are created for educational purposes only and do not substitute for medical advice. The views shared in this Podcast are the personal opinions of the experts and do not necessarily reflect the views of LACNETS. Please contact your medical team with questions or concerns about your individual care or treatment. THANK YOU TO OUR SPONSORS

Resources for Children CancerCare for Kids® provides free, professional support services for parents, children, and adolescents affected by cancer, as well as information about helping children understand cancer and additional resources. Help with Hope is a support group to the children whose parent has cancer. If you are a parent with cancer and have a child between the ages of 8 and 17, they can attend an online meditation support group with other kids who understand what they are going through, parents are also invited! Kesem is committed to creating a world where every child who has a parent with a cancer diagnosis or has lost a parent to cancer is never alone. Kesem supports these children through and beyond their parent’s cancer with free, fun-filled creative programs and a lasting community. Lynn Lyons helps families navigate through fear and anxiety. GRIEF RESOURCES FOR CHILDREN Child Life Services at City of Hope – addresses the needs of infants, children, teens, and families during hospitalization and outpatient treatment. Our House Grief Support – provides children with grief support services, education, resources, and hope. Comfort Zone – offers a two-day camp for grieving kids. Inner Harbor – offers mental health support for grieving students. They also train high school and college teachers and counselors and even Greek houses to support young adults. High Mark Caring Place – manages the Children's Grief Awareness Day page, helping to remind us that grieving kids need our love. Click here for Caregiver Resources SPREADING AWARENESS Designer: Lauren Buntin Download

High Grade Neuroendocrine Tumor (NET) and Neuroendocrine Carcinoma (NEC) Resources CLINICAL TRIALS Learn more about clinical trials specifically for High Grade, Grade 3 (G3) Neuroendocrine Tumor (NET) and Neuroendocrine Carcinoma (NEC). Visit High Grade NET & NEC Clinical Trials Page WATCH The Latest in High-Grade Neuroendocrine Carcinoma (NEC): A Conversation with Dr. Chauhan "Large Cell Neuroendocrine Carcinoma & Small Cell Lung Cancer" with Aman Chauhan, MD Click here to download the presentation slides from the above video. "High Grade Neuroendocrine Neoplasms & Small Cell Lung Cancer" with Aman Chauhan, MD "Updates in High Grade Neuroendocrine Neoplasms" with Jason Starr, MD "Updates in High Grade Neuroendocrine Cancers" with Aman Chauhan, MD "Focus on Immunotherapy & High-Grade NETs" with Namrata Vijayvergia, MD "The Latest on Immunotherapy for Neuroendocrine Cancer" with Rohit Thummalapalli, MD "The Latest on Immunotherapy for Neuroendocrine Cancer" with Aman Chauhan, MD Click here to download the presentation slides from the above video. LISTEN Extrapulmonary neuroendocrine carcinoma (EP-NEC) is a rare and complex cancer that can be difficult to recognise, diagnose, and treat. This short video helps patients and care partners understand the disease, including what to expect from diagnosis and treatment, the urgency needed, and where support is available. It is designed to help patients and their families navigate this challenging condition. Click here for more information >>> In this video podcast by COR2ED, Neuroendocrine Patient Advocate Susan Meckler-Plummer joins Medical Oncologist Dr. Aman Chauhan to discuss extra-pulmonary neuroendocrine carcinomas (EP-NECs). Click here for more information >>> Click here for the podcast, transcript and resources >> Click here for the podcast, transcript and resources >> Listen to the NETWise Podcast here >> TAKE ACTION VOICE epNEC Care Partner Survey February, 2026 We invite you to take part in an online survey to better understand your role as a care partner/caregiver in supporting an individual with neuroendocrine carcinoma. We want to learn more about the challenges you encounter while providing care and the areas where care and support can be improved. If you are interested, please click on the link or scan the QR code below to enter your email address: https://s-hab.medefield.com/wix/p294869318978.aspx We’ll send you a short questionnaire to confirm your eligibility, along with an informed consent form that explains the study in more detail. If you qualify and choose to participate, you will be directed to the full survey. Upon completing the survey, you will receive an honorarium as a thank-you for your time and contribution. Please note: The survey will come from Paradigm Sample (invite@decipherinc.com ) within 2-3 days. Please keep an eye on your inbox and check your spam or junk folder just in case. Your email will be used solely for the purpose of sending the survey invitation and will be deleted after the study concludes. Your information will be kept strictly confidential. Thank you for considering taking part in this important study. Download Flyer READ Patient Guide for High-Grade Neuroendocrine Cancers By HealingNET Foundation Download Here Expert Consensus Practice Recommendations of NANETS for the Management of High Grade Gastroenteropancreatic and Gynecologic Neuroendocrine Neoplasms Read Here SCHOLARLY ARTICLES: WELL DIFFERENTIATED HIGH-GRADE NETS Management of Well-Differentiated High-Grade (G3) Neuroendocrine Tumors Treatment Outcomes of Well-Differentiated High-Grade Neuroendocrine Tumors BLOG POST Practical Tips For Patients Preparing For Chemotherapy PATIENT STORY A patient living and thriving with high grade neuroendocrine cancer shares her inspiring story. FACEBOOK GROUP Join the High Grade Neuroendocrine Carcinoma FB group here. For more information & and support, contact high grade patient advocate Susan Meckler Plummer, who supported her late husband with NEC. Susan Meckler Plummer 609-731-0322 susan@netsmission.org

Recursos en Español Información en Español Aquí hay recursos útiles en español para pacientes y cuidadores con tumores neuroendocrinos. A continuación, encontrará videos educativos, grupos de apoyo, historias de pacientes y cuidadores, información útil sobre seguros medicos y otros servicios de apoyo. Haga clic aquí para obtener recursos para los recién diagnosticados. Para comunicarse con NCF, envíe un correo electrónico a info@NCF.net . Tenga en cuenta que no podemos responder en español. Lo sentimos. Presentaciones Educativas Presentaciones Educativas Mas Videos en español ¿Qué importa sobre: las terapias dirigidas al hígado? Dr. Alejandro Gabutti 2025 NCF Conference Lo Importante de PRRT: ¿Qué es PRRT y Cómo Funciona? Cecilia Carreras Velázquez, MD Medicina Nuclear Hospital Ángeles Lomas 2025 NCF Conference Download "Comprensión de las Guías de losTumores Neuroendocrinos (TNEs)" Presentation Slides >>> Download "Actualizaciónes en los Tumores Neuroendocrinos" Presentation Slides >>> Click here to download the presentation slides. Historias de Pacientes Historias de Pacientes Michél vive con cáncer neuroendocrino. Escuche su historia inspiradora y cómo mantiene la esperanza. ver el vídeo Historias de Pacientes y Cuidadores Historias de Pacientes y Cuidadores Introducción NETs Introducción NETs La “Presentación NETs de Elevador” es una forma de presentarte. La razón por la que se llama de “Elevador" es porque debe ser lo suficientemente breve para poder decirla durante un viaje en elevador. Aprende más aquí Tumores neuroendocrinos Cancer.NET ofrece información sobre los tumores neuroendocrinos. Aprende más aquí Guías ASCO Terapia sistémica para control de tumores en tumores neuroendocrinos gastroenteropancreáticos bien diferenciados metastásicos Publicado antes de su impresión el 29 de septiembre de 2023, DOI: 10.1200/JCO.23.01529 Haga clic aquí "El notorio Feo/Para" - Escrito por Aimee Powell - 23 de agosto de 2021 Información Adicional Información Adicional Un analisis del cancer neuroendocrino The Carcinoid Cancer Foundation proporciona un analisis del cancer neuroendocrino. Haga clic aquí Recursos en español - videos, materiales, y seminarios web Triage Cancer tiene información disponible en español. Haga clic aquí. Haga clic aquí Cancer Support Community Los Angeles - grupos de apoyo CSC ofrece varios grupos de apoyo para pacientes y cuidadores. Haga clic aquí INCA - videos y guías educativas INCA tiene mas información en español sobre tumores neuroendocrinos. Haga clic aquí. Descargue el paquete de información para pacientes de Global NET - haga clic aquí. UCLA Health - meditación guiada UCLA ofrece sesiones de meditación guiadas en español. Haga clic aquí La Sociedad Estadounidense de Oncología Clínica Información confiable y compasiva para personas con cáncer, sus familiares y sus cuidadores, de parte de expertos de la American Society of Clinical Oncology (la Sociedad Estadounidense de Oncología Clínica, ASCO por sus siglas en inglés), la voz de los médicos del cáncer y los profesionales oncológicos del mundo. Haga clic aquí

Wellness < Back to Topics Nutrition Nutrition Play Video Play Video 01:25:23 Nutrition & Diet Considerations for NETs • 2025 NCF Event • August 26, 2025 Nutrition can play a key role in living well with neuroendocrine cancer (neuroendocrine tumors or NETs). Join NET dietitian Meghan Laszlo for an informative session on nutrition and diet considerations for people living with neuroendocrine cancer. She will cover key topics including the use of pancreatic enzymes, managing hyperglycemia, navigating special diets, and understanding supplements. Whether you're newly diagnosed or further along in your journey, this webinar offers practical guidance to help you make informed nutrition choices that support your health and quality of life. For more information, visit ncf.net. Play Video Play Video 45:40 Episode 29: Nutrition & Diet Considerations for NET NET dietician Sina Teskey from the Medical College of Wisconsin answers common questions about diet and nutrition raised among NET patients and caregivers. She addresses special diets, food restrictions, and whether sugar “feeds” cancer. Sina also speaks to diarrhea, and digestive enzymes and shares tips on how to maintain nutrition and weight. MEET SINA TESKEY, RD, CD Sina Teskey, RD, CD received her B.S. from the University of Wisconsin-Madison in 2006 and completed her dietetic internship at the University of Minnesota Medical College-Fairview in 2007. She has spent most of her career working with cancer and eating disorder patients. Sina practiced in the Twin Cities area for 10 years where she also spent time guest starring on a local TV show called Twin Cities Live to share nutrition advice. She moved to Milwaukee and has worked at Froedtert Hospital and the Medical College of Wisconsin since 2018. Sina sees all patients with cancer but specializes in GI cancers and neuroendocrine tumor patients. When she’s not working, Sina is a mom to three kids and a Labrador retriever. She loves to cook and bring people together with food. Her youngest son was diagnosed with Non-Hodgkin’s Lymphoma in 2019. His cancer journey gave insight into what having cancer means to a family and has impacted her practice profoundly. Her son Milo is now 7 years old and in remission. TOP TEN QUESTIONS 1. Is there a diet NET patients should follow? Are there foods NET patients should avoid? Some people say there are certain “trigger foods” to avoid. What CAN I eat? 2. What diet is helpful after bowel surgery? What about pancreas surgery? 3. Are there vitamins or supplements recommended for NET patients? 4. What can NET patients do about diarrhea? What diet or medications might help? 5. What can NET patients do if they struggle with a poor appetite? 6. What can NET patients do if they are struggling to keep on or gain weight? 7. What can NET patients do to stay hydrated? 8. What are pancreatic enzymes and how are they taken? Who are they recommended for? 9. What proteins can people take if they are vegetarian or vegan given soy may be a trigger for carcinoid syndrome? 10. What do you think of alternative diets such as the keto diet or other “special diets?” Does sugar feed cancer? What about intermittent fasting? For more information, visit https://www.lacnets.org/podcast/29. Play Video Play Video 29:50 Episode 1: Nutrition for NETs • The LACNETS Podcast ABOUT THE EPISODE For our very first episode, we welcome NET Dietician Meghan Laszlo, MS, RD, CSO of Cedars-Sinai Medical Center. Meghan answers the top 10 NET nutrition questions, covering topics including carcinoid syndrome, prescription enzymes, diarrhea, recommended diet for NET patients, and much more! MEET THE SPEAKER Meghan Laszlo is a Registered Dietitian (R.D.) and a Board-Certified Specialist in Oncology Nutrition (C.S.O.) at Cedars Sinai’s Samuel Oschin Cancer Center. As an outpatient dietitian, she provides medical nutrition therapy to patients through nutrition counseling, education, and coordination of care. Meghan is fascinated by the nutritional aspects of gastrointestinal, neuroendocrine, and head and neck cancers and is dedicated to helping patients meet their individualized goals. In October 2019, Meghan gave a presentation for LACNETS titled "Nutrition for NETs." TOP NET NUTRITION QUESTIONS 1. What kind of diet benefits NET patients? 2. Which foods cause carcinoid syndrome symptoms? 3. Which foods make diarrhea better and worse? 4. What kinds of fluids and how much are needed with diarrhea? 5. Which dietary supplements are beneficial for NET patients? 6. What is niacin and why is it important for individuals with carcinoid syndrome? 7. How does fat malabsorption effect digestion? 8. How do I know if the prescription enzymes are working? 9. What is small intestinal bacterial overgrowth (SIBO)? For more resources and a transcript of this episode, visit https://www.lacnets.org/podcast1. Play Video Play Video 01:04:20 LACNETS - "Nutrition Therapy for NETs" with Meghan Laszlo (Cedars-Sinai) LACNETS meeting, "Nutrition Therapy for NETs" Tuesday, October 8th Venue: Cedars-Sinai Medical Center The discussion focuses on trigger foods, Carcinoid Syndrome, and more. SPEAKER: Meghan Laszlo, MS, RD, CSO www.LACNETS.org Play Video Play Video 01:35:02 LACNETS Webinar: "Nutrition and Neuroendocrine Cancer" with Tara Whyand, NET Dietician Diet is one of the biggest concerns for NET patients. If you have questions about the foods you should or shouldn't be eating, this is the webinar for you! Join LACNETS & Tara Whyand, NET Nutritionist, for her presentation on "Nutrition & Neuroendocrine Cancer." Recorded on February 16th, 2021. Speaker: Tara Whyand, MSc, BSc NET Dietician To learn more about LACNETS, visit www.LACNETS.org. Audio/Video - www.TVPlive.com Wellness Wellness Play Video Play Video 01:24:39 Coping With Neuroendocrine Cancer: Managing Distress, Worry & Grief • 2025 NCF Event • Oct 28, 2025 A neuroendocrine cancer diagnosis can bring emotional, mental, and psychological challenges that are just as difficult as the physical ones. Join licensed clinical psychologist Dr. Karen Kersting from the Medical College of Wisconsin for a supportive discussion on Coping with Neuroendocrine Cancer: Managing Distress, Worry & Grief. She will offer insights and practical strategies to help patients and caregivers navigate the full emotional and psychological impact of living with NETs. Visit NCF.net/events/oct2025 for more information. Play Video Play Video 20:01 Meditation with Ruth Wolever • 2025 Wellness Retreat • "Brilliance" Join Ruth Wolever for a meditation session. This is a recording from the 2025 Neuroendocrine Cancer Foundation Wellness Retreat: Brilliance held in March 2025. Play Video Play Video 22:11 Meditation with Ruth Wolever • 2025 Wellness Retreat • "Blossoming" Join Ruth Wolever for a meditation session. This is a recording from the 2025 Wellness Retreat: Blossoming, held in August 2025. Play Video Play Video 23:52 Meditation with Ruth Wolever • 2024 LACNETS Wellness Retreat • "The Power of Play" Join Ruth Wolever for a meditation session. This is a recording from the 2024 LACNETS Wellness Retreat: The Power of Play held on Feb 17, 2024. Play Video Play Video 48:33 Episode 18: Mental Health & NETs ABOUT THIS EPISODE What are the common mental health issues associated with NET? How can they be managed? How does NET impact young adults, NET patients and children of NET patients? Health psychologist Dr. Kersting of the Medical College of Wisconsin elaborates on mental health challenges facing NET patients and their loved ones. Hear coping strategies for anxiety, eating and sleeping difficulties, fatigue and depression. Dr. Kersting discusses what you can expect when meeting a mental health professional and why supporting your mental health is an integral part of your overall care. MEET THE SPEAKER Dr. Karen Kersting, Psychologist, Assistant Professor in the Department of Surgery at Medical College of Wisconsin Karen Kersting, PhD, is a licensed clinical psychologist who provides counseling and psychotherapy to patients treated by surgeons in the Division of Surgical Oncology at the Medical College of Wisconsin. She completed an undergraduate degree in Journalism at the University of Wisconsin—Madison, a PhD in Counseling Psychology at Virginia Commonwealth University in Richmond, VA, and a postdoctoral fellowship in clinical health psychology at the Dayton Veterans Administration Medical Center in Dayton, OH. She joined the faculty of MCW in 2016. Dr. Kersting’s research interests include the development and assessment of integrated psychosocial services for people coping with cancer diagnosis and treatment, with an emphasis on patients diagnosed with cancer of the pancreas. Additionally, her work aims to highlight issues related to social determinants of health and Acceptance and Commitment Therapy interventions. TOP 10 QUESTIONS 1. How common are mental health issues in NET patients? What are the most common mental health issues you see in NET and what can be done about it? 2. How does anxiety impact NET patients? Why is it so prevalent in these patients? When do I know I need to reach out for support with my anxiety? What does treatment for anxiety look like? 3. How does depression impact NET patients? 4. What kind of sleep problems do you see in NET patients? 5. How do you work with patients who have long periods of fatigue? 6. How can a psychologist help people who are struggling to eat after treatment? 7. How can a patient, loved one, or physician tell the difference between a symptom such as fatigue or anxiety caused by NET tumors vs. a psychological trigger? Does it matter? How does one’s mental health impact one’s NET disease or the effectiveness of treatments? 8. Discuss how NET may impact young adult NET patients? How does NET impact young adult children, teenagers, and young children of NET patients? 9. Who should see a psychologist? When should someone see a psychologist? How does one find a psychologist? What should a patient expect when they come for a first visit with a mental health professional such as a psychologist, therapist, social worker or other? 10. What coping strategies or advice do you have for NET patients? What coping strategies or advice for family members or loved ones? For more resources and a transcript of this episode, visit https://www.lacnets.org/podcast18. Play Video Play Video 59:50 Episode 15: Psycho-Oncology ABOUT THIS EPISODE What is psycho-oncology and how can it benefit those living with NET? Psychiatrist Dr. Mona Mojtahedzadeh of Simms/Mann UCLA Center for Integrative Oncology discusses whole-person care for cancer patients and caregivers. From “scanxiety” to sleep hygiene, she acknowledges the range of challenges of living with cancer and shares solutions to improve mental well-being and overall health. MEET DR. MONA MOJTAHEDZADEH Mona Mojtahedzadeh, MD, is a psychiatrist at Simms-Mann/UCLA Center for Integrative Oncology, which allows her to continue to perform a work of meaning within a valued population who embrace her into some of their most pivotal moments along their cancer illness trajectory. Dr. Mojtahedzadeh is board certified in Psychiatry as well as in Consultation-Liaison Psychiatry. She obtained her MD from Tehran, Iran’s Shahid Beheshti University of Medical Sciences. She was a general and family practitioner at an underserved health and urgent care clinic in Iran. She completed her psychiatry training through residencies at Texas Tech University Health and Science Center coupled with Loma Linda University Health, where she was granted the department’s research award of the year. She completed a consultation-liaison (C-L) psychiatry fellowship at the University of Southern California and Los Angeles County (LAC+USC) and later served as an Assistant Professor in the Department of Supportive Care Medicine at City of Hope National Medical Center and an Adjunct Assistant Professor of Psychiatry at USC. Her scholarly work includes over 32 publications, posters, and book chapters in areas of medicine, mental health, and their overlap. TOP 10 PSYCHO-ONCOLOGY QUESTIONS 1. Who might seek a psychiatrist? How does one go about finding a psychiatrist that is right for him or her? 2. What is psycho-oncology? If someone living with NET is looking for a psychiatrist, should they seek someone who has trained in psycho-oncology? How does one find such a person? 3. How do you determine if symptoms such as depression, anxiety, mood swing, or fatigue are symptoms caused by their NET cancer or not? 4. Is it safe for NET patients, particularly those with high levels of serotonin, to take antidepressants such as SSRIs that may increase levels of serotonin? 5. If someone living with NET struggles with depression, what is your approach? How do you determine the best treatment option? 6. If someone living with NET struggles with anxiety, how would you approach this patient and how might you manage it? 7. If someone living with NET struggles with sleep issues, what might your thoughts be? 8. What suggestions might you have for loved ones of someone living with cancer who is trying to support someone struggling with depression, anxiety, or mood swings? 9. What suggestions do you have for coping with one’s cancer diagnosis? How might one find some stability and peace during what often feels like a rollercoaster ride? 10. What last words of hope would you leave with the audience? For more resources and a transcript of this episode, visit https://www.lacnets.org/podcast15. Play Video Play Video 20:24 Guided Meditation with Ruth - August 5, 2023 - LACNETS Virtual Wellness Retreat on Resilience Watch this guided meditation with Ruth. This session is part of the August 2023 LACNETS Virtual Wellness Retreat on Resilience. Play Video Play Video 20:29 Guided Meditation with Ruth - February 11, 2023 - LACNETS Virtual Wellness Retreat on Centeredness Watch this guided meditation with Ruth. This session is part of the LACNETS Virtual Wellness Retreat on Centeredness that took place on February 11, 2023. Play Video Play Video 32:11 Yoga with Julie • Feb 2023 • LACNETS Health & Wellness Retreat Health Coach Julie takes us through a gentle yoga session. For more information, visit LACNETS.org Play Video Play Video 32:38 Yoga with Julie - LACNETS 2022 Virtual Wellness Retreat Julie leads a yoga session as part of the 2022 LACNETS Virtual Wellness Retreat. Play Video Play Video 26:26 Meditation with Ruth - 2022 LACNETS Virtual Wellness Retreat Ruth leads a meditation session as part of the 2022 LACNETS Virtual Wellness Retreat. Play Video Play Video 28:09 Yoga as Gentle Mindful Movement for All Levels This is a 32-minute gentle yoga class geared specifically for those new to yoga or those who are interested in a gentle practice. Have a chair, mat and pillow handy. To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 20:31 Guided Meditation for Cultivating Intentions (20 minutes) This 20-minute guided meditation offers powerful techniques to reduce stress, cultivate intentions and find your inner calm. Meditation teacher: Ruth Q. Wolever, PhD, NBC-HWC Chief Science Officer, eMindful To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 33:05 Gentle Yoga for Body Awareness (for All Levels) This is a 30-minute gentle yoga class geared specifically for those new to yoga or those who are interested in a gentle practice. Have a chair, mat, wall space, and pillow handy. To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 19:13 Guided Meditation for Self-Healing This 19-minute meditation offers a powerful reset for your own self-healing. Meditation teacher: Ruth Q. Wolever, PhD, NBC-HWC Chief Science Officer, eMindful To learn more about LACNETS, visit www.LACNETS.org. Caregiving/Palliative/Supportive Care Caregiving/Palliative/Supportive Care Play Video Play Video 42:59 Episode 37: "Supportive Oncology for Neuroendocrine Cancer" What is supportive care or supportive oncology? What is cancer-related distress? How might NET patients benefit from supportive care? Yale oncologist Dr. Maryam Lustberg suggests strategies to manage cancer-related fatigue, diarrhea, nausea, mouth sores, peripheral neuropathy, distress, anxiety, and anxiety. She also addresses considerations for fertility and sexual health. MEET DR. MARYAM LUSTBERG Dr. Maryam Lustberg is an American breast oncologist. She is the Director of The Breast Center at Smilow Cancer Hospital and Chief of Breast Medical Oncology at Yale Cancer Center. Dr. Lustberg previously served as the Medical Director of Cancer Supportive Care Services at Ohio State’s Comprehensive Cancer Center. She is the Immediate Past President of the Multinational Association of Supportive Care in Cancer. She is also an Associate Editor for the Journal of Cancer Survivorship. TOP TEN QUESTIONS ABOUT SUPPORTIVE CARE: 1. What is supportive care in cancer (or supportive oncology)? What is survivorship? How do these concepts apply to the NET community? 2. What is the 1st step for patients to get supportive care? 3. What are the most common treated-related adverse events or side effects? What are risk factors for them? (Will all patients experience all potential side effects?) 4. What causes cancer-related fatigue (CRF)? What are some strategies to manage cancer-related fatigue? 5. What are some strategies to manage diarrhea? 6. What are some strategies to manage nausea? 7. What are some strategies to manage mouth sores? 8. What is peripheral neuropathy? When do patients experience it and what can be done to prevent it? 9. What should patients understand about sexual health and fertility? 10. How can psychosocial needs such as distress, anxiety, and depression be addressed and supported? For more information, visit https://www.lacnets.org/podcast/37 Play Video Play Video 01:26:11 "Palliative Care for Neuroendocrine Cancer" Dr. Chandana Banerjee • 2024 #LACNETS Educational Event Learn about Palliative Care: what it is, what it is not, and how it may help those affected by neuroendocrine cancer. Dr. Chandana Banerjee, a palliative care and hospice specialist from the City of Hope Cancer Center in Los Angeles, demystifies these topics. Visit LACNETS.org for more information. Play Video Play Video 41:10 Episode 14: Palliative Care ABOUT THIS EPISODE What is palliative care and how does this relate to NET? Palliative care physician Dr. Chandana Banerjee of City of Hope shares insights and tips on communication, coping, and managing grief and loss. MEET DR. CHANDANA BANERJEE Chandana Banerjee, M.D., M.P.A., HMDC, is the Dean, Director and designated institutional official for Graduate Medical Education at City of Hope. She is also an assistant clinical professor in the Department of Supportive Care Medicine, specializing in hospice and palliative care. She developed the City of Hope Hospice & Palliative Medicine Fellowship. She also established the Cancer Pain Rotation for Kaiser Permanente Los Angeles Hospice & Palliative Medicine Fellowship, which is now part of the core curriculum for the Kaiser Permanente Southern California Hospice & Palliative Medicine fellowship program. Dr Banerjee also developed and directed the End of Life Symposium, which was first held at City of Hope in September 2019 and was endowed by Arthur Riggs, Ph.D. She is the physician lead for Schwartz Rounds at City of Hope and serves as chair on the End of Life Option Act Subcommittee. She is also a member of the Continuing Medical Education and the Ethics and Quality of Life committees. She co-founded the City of Hope Expressions of Hope initiative in partnership with Diversity, Equity and Inclusion. TOP 10 PALLIATIVE CARE QUESTIONS 1. What is palliative care? How is it different from hospice? 2. Who should be in palliative care? Who should not be in palliative care? 3. How does someone ask for palliative care? 4. Give an example of how palliative care can help someone living with NET. 5. What does coping with a cancer diagnosis look like? What suggestions do you have to help with coping? 6. What advice do you have for NET caregivers? 7. What insights or advice do you have to help with communication between NET patients and providers? NET patients and their loved ones? 8. What does end-of-life care planning look like? When should it begin? 9. What does the end of life look like for NET patients? 10. How can one manage grief and loss related to the cancer diagnosis? For more resources and a transcript of this episode, visit https://www.lacnets.org/podcast14. Play Video Play Video 16:29 13. Complementary Medicine (Dr. Duma) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Narjust Duma, MD Assistant Professor & Thoracic Oncologist UW Madison This presentation is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 01:02:18 LACNETS - "Pain Management for NETs" Dr. Najmeh Sadoughi Dr. Najmeh Sadoughi "Multidisciplinary Approaches to Pain Management for Neuroendocrine Tumors" Najmeh Sadoughi, MD Board Certified Interventional Pain Specialist LACNETS Patient Education Seminar January 9, 2018 UCLA Los Angeles, California LACNETS is a program by Generate Possibility, a 501(c)(3) non-profit corporation. Los Angeles Carcinoid Neuroendocrine Tumor Society www.LACNETS.org Play Video Play Video 05:40 16. Caregiver Story (Federico and Gilda) - 2021 LACNETS Virtual Conference NET caregiver Gilda shares her story about the importance of NET patient advocacy and support. 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS This video is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 05:58 Patient Story: NET Patient shares her experience with the LACNETS health coaching program NET Patient Vivian shares her experience with the LACNETS health coaching program. August 28, 2020 To learn more about the LACNETS Health Coaching Program, visit www.LACNETS.org/healthcoaching. Play Video Play Video 01:37:15 LACNETS Webinar: Thriving with NETs - How Health & Wellness Coaching Can Help You LACNETS webinar - “Thriving with NETs - How Health & Wellness Coaching Can Help You" Friday, August 28th, 2020 SPEAKERS: Leeann Hays, RN, NBC-HWC Julie Oijala, RN, NBC-HWC Katherine Smith, NBC-HWC Ruth Q. Wolever, PhD, NBC-HWC Lisa Yen, NP, NBC-HWC Learn more here about the LACNETS Free Health Coaching Program: www.LACNETS.org/healthcoaching Audio/Video - www.TVPlive.com www.LACNETS.org Play Video Play Video 03:48 Caregiver Story: NET Caregiver shares about his experience as a caregiver to his wife (LACNETS) NET Caregiver Jack shares about his experience as a caregiver to his wife who is living with NET. November 7, 2020 To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 12:59 3. LACNETS 2020 Symposium - Living with Cancer & Covid, Patient Story LACNETS - 2020 Virtual NET Cancer Day Symposium Recorded on November 7th, 2020 Presentations: - LACNETS Intro (start - 1:21) - Patient Story (1:21 - 6:34) - "Living with Cancer & Covid" with Chandana Banerjee, MD, MPA, Assistant Clinical Professor Department of Supportive Care Medicine City of Hope (6:34 - end) To learn more about LACNETS, visit www.LACNETS.org. AV/Production by Rich Tamayo at TVPLive.com. Play Video Play Video 01:29:36 LACNETS Webinar - "What Matters Most? Meaningful Advance Care Planning as a Gift to Your Loved Ones" LACNETS webinar - "What Matters Most? Meaningful Advance Care Planning as a Gift to Your Loved Ones" Wednesday, May 6th, 2020 SPEAKER: Redwing Keyssar, RN Palliative Care Clinician, Author of "What Matters Most" Learn more here: www.LACNETS.org Audio/Video - www.TVPlive.com Play Video Play Video 01:42:18 LACNETS Webinar: "How to Ask For, Accept and Get the Help You Need" with Kim Hamer LACNETS Webinar: "How to Ask For, Accept and Get the Help You Need" with Kim Hamer Kim shares special insights on how to ask for and receive help, gained from losing her own husband to lung cancer. Speaker: Kim Hamer Author, 100 Acts of Love: A Girlfriend's Guide to Loving Your Friend through Cancer or Loss www.100actsoflove.com Learn more about LACNETS: www.LACNETS.org Audio/Video - www.TVPlive.com Music Heals Music Heals Play Video Play Video 13:54 "Circle Song" - Laugh and sing along with NET Patient Samuel Prentice Jr. Laugh and sing-along with NETCONNECT mentor Samuel Prentice Jr. He shares a song he wrote for the NET community titled "Circle Song." To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 04:17 "Hush" by Giovanna Joyce Imbesi (Photography by David F. Coppedge) [Written by David F. Coppedge] "Giovanna Imbesi, founder of LACNETS (Los Angeles County Neuroendocrine Tumor Society), died on November 24, 2019 after a 14-year battle with the disease. She worked tirelessly to educate and help patients with neuroendocrine cancer and support efforts to find new treatments. Giovanna was also an accomplished musician, pianist and composer. This is her song "Hush" from her album "Short Stories" that I put to some of my photographs of fall colors in Utah and Colorado. When I presented it to her in 2016, she was very appreciative, calling it "beautiful and touching." I offer it here on YouTube as a tribute to her hard work on behalf of others suffering from this rare cancer, and as a sample of her quiet spirit and desire for peace in the midst of years of surgeries and treatments for the life-threatening disease." Play Video Play Video 06:52 Neuroendocrine Tumor Song A tongue-in-cheek Neuroendocrine Tumor awareness song about this uncommon and typically uncurable cancer and potential treatments to manage it long-term. For entertainment purposes only. I'm sure this information will be outdated (and corrected) soon because of the faithful efforts underway by dedicated researchers. Reliable and current medical information, resources, and support for patients and caregivers can be found at the Neuroendocrine Cancer Foundation website - https://www.ncf.net Link to "NET Vitals" worksheet referenced in this video: https://www.ncf.net/netvitals Disclosures: 1. While the author endorses the NCF organization, this content is not endorsed by the NCF organization. Refer instead to their website. 2. Images resembling copyrighted images are unintentional. < Back to Topics Next Topic >

<< Go back to the Podcast page EPISODE 23: WHAT TO KNOW ABOUT HINDGUT & APPENDICEAL NETS Download a Transcript of this Episode >> ABOUT THIS EPISODE What are Hindgut NETs (distal colon and rectum) and how are they treated? How is rectal NET different from rectal cancer? What makes appendiceal NETs difficult to diagnose? Dr. Hagen Kennecke from Providence Cancer Institute in Portland, Oregon shares insights on the diagnosis and management of Hindgut NETs and appendix NET. MEET DR. HAGEN KENNECKE Dr. Hagen Kennecke is a Medical Oncologist and Medical Director of GI Oncology at Providence Cancer Institute and Associate Member of the Chiles Research Institute in Portland, Oregon. He has worked passionately to improve the treatment, education and outcomes of those affected by neuroendocrine tumors. Dr. Kennecke is an active clinician researcher, the recipient of numerous research awards and has authored numerous guidelines on the treatment of neuroendocrine tumors. He is a member of the US NCI GI Steering Committee and is a prior member of the NCI-NET Task Force, and has worked extensively within the neuroendocrine community including NANETS, Carcinoid Cancer Foundation, LACNETS and Healing NETS. TOP 10 QUESTIONS What are hindgut NETs? Where are they located? What are the different types of hindgut NETs? How are hindgut NETs found? What are the symptoms of a hindgut NET? What types of labs, scans, or testing is done to determine if someone has a hindgut NET? Could you discuss why people with appendix NET often have a challenging time getting a diagnosis. How is rectal NET different from rectal cancer? What are some ways that hindgut NETs differ from other types of NETs? What makes rectal NET unique? How do you decide if the hindgut NET(s) can be surgically removed? What type of surgeon would make that determination? There are people diagnosed with appendix NET who have been told by their doctor to have a hemicolectomy. What is your opinion about this? How are hindgut NETs treated medically or nonsurgically? How are treatments sequenced? How are the treatments different from other NETs? How are hindgut NETs monitored What types of bloodwork or tests should be done and how often should they be done? What is the best type of scan for hindgut NETs? What are clinical trials we should be aware of or exciting new treatments in the pipeline for hindgut NETs? And what words of hope would you like to share with the NET community? RESOURCES WATCH https://www.youtube.com/watch?v=2mfxKxBYdoY Bob Shares His NET Journey READ An Update on Appendiceal Neuroendocrine Tumor s Management of Appendix Neuroendocrine Neoplasms: Insights on the Current Guidelines - December 2022 Are Hemicolectomies Justified for Appendiceal Neuroendocrine Tumours Smaller Than 2 CM? Hemicolectomy Versus Appendectomy for Patients with Appendiceal Neuroendocrine Tumours 1-2 CM in Size: A Retrospective, Europe-Wide, Pooled Cohort Study NANETS Guidelines Library DISCLAIMER LACNETS Podcasts are created for educational purposes only and do not substitute for medical advice. The views shared in this Podcast are the personal opinions of the experts and do not necessarily reflect the views of LACNETS. Please contact your medical team with questions or concerns about your individual care or treatment. THANK YOU TO OUR SPONSORS

<< Go back to the Podcast page EPISODE 34: NET TREATMENTS: FOCUS ON PRRT Download a Transcript of this Episode >>> ABOUT THIS EPISODE What is PRRT? How is it different from the more commonly used radiation treatment? What are the possible side effects? Dr. Riham El Khouli from the University of Kentucky in Lexington discusses common questions and concerns about PRRT and shares some of the latest advances. MEET DR. RIHAM EL KHOULI, MD, PHD Associate Professor of Radiology, UK College of Medicine Chief, Division of Nuclear Medicine/Molecular Imaging & Radiotheranostics (NM/MI&R) Director, Radiotheranostics Program University of Kentucky Dr. Riham El Khouli, MD PhD, is the director of the Radiotheranostics program and Chief of the division of NM/MI&R at the University of Kentucky and an Associate Professor of Radiology, Nuclear Medicine and Molecular Imaging at UK school of Medicine. The Radiotheranostics Program at UK is a multidisciplinary program that provides state of art standard of care clinical radiopharmaceutical therapy (RPT) techniques as well as a robust research program that constantly runs multiple RPT clinical trials aiming to explore new RPT management options for various cancers. Dr. El Khouli is fellowship trained double board certified, ABR and ABNM, academic Nuclear Radiologist with two decades of clinical and research experience. Her research initially focused on the evaluation and improvement of the acquisition and interpretation of advanced MRI techniques such as dynamic contrast enhanced (DCE) MRI, Diffusion weighted imaging (DWI), and 1H MR Spectroscopy in breast cancer. On 2013, Dr. El Khouli started a new journey in Nuclear Medicine, Molecular Imaging and Radioheranostics (NM/MI&R) and completed a nuclear medicine and dedicated PET/CT fellowships. During her new training, her passion toward molecular imaging and PET/CT grew and she participated in multiple nuclear medicine and PET/CT related research projects. Dr. El Khouli is passionate about research and education and active in the field of neuroendocrine tumor. She is one of the key team members of the dedicated biweekly intramural NET tumor boards. She also attended and presented in multiple regional NANETS and NET awareness group meetings (NCAN). Dr. El Khouli serves as a peer reviewer for multiple prestigious Journals such as Radiology and Radiographics, among others, and is an active member of the Radiologic Society of North America (RSNA), Society of Nuclear Medicine and Molecular Imaging (SNMMI), and the American College of Radiology (ACR). She serves as an active member of the RSNA Awards Committee, RSNA Scientific Abstract Review Committee, and Radiographic NMMI review panel committee. Dr. El Khouli is an active panel member of multiple ACR Appropriateness Criteria Panels. TOP TEN QUESTIONS ABOUT NET TREATMENTS: What is PRRT? How does it work? What is theranostics and what does it mean? What are the terms radiotheranostics, radiopharmaceutical, radioligand therapy, PRRT? How do you determine who is eligible for PRRT? When is PRRT given in one’s treatment journey? How does PRRT differ from other treatments? What are the common side effects of Lutathera? Does Lutathera have long-lasting effects? Would receiving Lutathera affect one’s blood counts? How might Lutathera affect one’s liver function? When, if ever is there concern about liver failure? How might PRRT affect my quality of life and my day-to-day ability to work and function? What is the risk and effects of radiation with receiving Lutathera? What precautions do I need to follow? Can I hug my child? Can I pet my dog? Would receiving Lutathera cause someone to be immunocompromised? How to you decide who should get PRRT? What is peritoneal disease and how effective is PRRT with peritoneal disease? How do you assess the response to PRRT? What advances in PRRT are you most excited about? RESOURCES PRRT Clinical Trials PRRT Resources WATCH https://www.youtube.com/watch?v=oSqUgq6QdnM May 2024 LACNETS Educational Event with Dr. Aman Chauhan: "High Grade Neuroendocrine Neoplasms & Small Cell Lung Cancer" DISCLAIMER LACNETS Podcasts are created for educational purposes only and do not substitute for medical advice. The views shared in this Podcast are the personal opinions of the experts and do not necessarily reflect the views of LACNETS. Please contact your medical team with questions or concerns about your individual care or treatment. THANK YOU TO OUR SPONSORS