Carcinoid Heart Disease < Back to Topics Play Video Play Video 01:37:36 "The Latest in the Management of Functional Neuroendocrine Cancers • Jan, 2026 • Dr. Del Rivero Join this @NCFCancer educational patient event for an easy-to-understand overview of functional neuroendocrine tumors (NETs) with Dr. Jaydira Del Rivero, a medical oncologist and endocrinologist at the National Cancer Institute. Functional NETs can cause the body to produce too many hormones, leading to challenging symptoms such as low blood sugar (often seen in insulinoma), high blood sugar (glucagonoma), and other hormone-related issues. Dr. Del Rivero will explain what these syndromes are, how they’re diagnosed, and the latest updates in treatment. She will also discuss conditions that can occur because of NETs or their treatments. She will help patients understand why symptoms like hypoglycemia are more common in some NET types. Whether you’re a patient, caregiver, or simply want to better understand functional NETs, this webinar will offer practical, up-to-date information to help you feel more informed and empowered. Potential Topics: Functional NET, Hormone-producing, Insulinoma, Gastrinoma, VIPoma, Zollinger-Ellison syndrome (ZES), Carcinoid, Hypoglycemia, Diarrhea, Flushing ABOUT DR. JAYDIRA DEL RIVERO Medical Oncologist & Endocrinologist National Cancer Institute, National Institutes of Health Dr. Del Rivero earned her medical degree from the University of Veracruz in Veracruz, Mexico and completed her internal medicine residency at Woodhull Medical and Mental Health Center/NYU-Langone Medical Center. Dr. Del Rivero completed a fellowship in Endocrinology, Diabetes and Metabolism at The Inter-Institute Endocrinology Training Program (IETP) at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), The National Institute of Child Health and Human Development (NICHD), and The National Institute of Dental and Craniofacial Research (NIDCR) where she was part of a research team developing clinical trials for pheochromocytoma and paraganglioma. She then joined as Assistant Professor at the Montefiore Einstein Center for Cancer Care (MECCC) where she specialized in endocrine oncology involving thyroid cancer, parathyroid and adrenal tumors, and clinical research for gastroenteropancreatic neuroendocrine tumors. She subsequently completed a second fellowship in medical oncology at the National Cancer Institute (NCI) with a research focus on endocrine malignancies. Dr. Del Rivero is board certified in Internal Medicine, Endocrinology, Diabetes and Metabolism and Medical Oncology. Dr. Del Rivero is a Physician Scientist in the Developmental Therapeutics Branch. She is the Principal Investigator of the Natural History Study for Neuroendocrine Neoplasm and Adrenocortical Cancer to provide the basis of further development of therapeutic interventions, prevention/screening guidelines, endpoints for future clinical trials, and patient reported outcome measures. Dr. Del Rivero’s current efforts is the development of novel treatment approaches and targeted therapies for endocrine malignancies such as advanced gastroenteropancreatic neuroendocrine tumors, adrenocortical cancer and pheochromocytoma/paraganglioma. For more information, visit https://www.ncf.net/events/jan2026 Play Video Play Video 16:09 7. The Latest in Managing Carcinoid Syndrome • Dr. Jason Starr • 2025 NET Cancer Day Symposium Dr. Jason Starr speaks about "The Latest in Managing Carcinoid Syndrome" at the 2025 NET Cancer Day Symposium. The 2025 NET Cancer Day Symposium was a collaboration between the Neuroendocrine Cancer Foundation and the Sylvester Comprehensive Cancer Center, part of UHealth – University of Miami Health System, in Miami, Florida, on Sunday, November 9th. #netcancer #neuroendocrinecancer #netawareness #rarecancer #cancercommunity #advocacy #ncf #lacnets #AboveAndBeyondAward #netcancerday #cancereducation #netsupport Play Video Play Video 01:33:27 "Evolving Management of Carcinoid Heart Disease" • Prashanth Venkatesh, MD, FACC • April 29, 2025 Learn from Cardiologist and Congenital Heart Disease Specialist, Dr. Prashanth Venkatesh from Cedars-Sinai Smidt Heart Institute in a virtual educational event on carcinoid heart disease. Dr. Venkatesh demystifies the topic and shares the latest developments in its diagnosis and treatment, including a novel minimally invasive approach to replace heart valves damaged by carcinoid heart disease. For more information and resources, visit NCF.net. Play Video Play Video 06:49 Jesse & Ellen • NET Patient & Caregiver Share Their Story of Living With Carcinoid Heart Disease Jesse & Ellen share their NET journey • NET Patient & Caregiver Play Video Play Video 01:29:36 "Carcinoid Heart Disease" • 2024 LACNETS Event • Feb 14, 2024 Learn about Carcinoid Heart Disease from Cardiologist Dr. S. Allen Luis, at the Mayo Clinic in Rochester, MN. He will describe the cause and symptoms of carcinoid heart disease and discuss diagnosis, treatment and surveillance. Visit LACNETS.org for more information. < Back to Topics Next Topic >

Educational Playlists by Topic PLAYLIST TOPICS LEARN LACNETS Patient Educational Events PRRT Research Clinical Trials High-Grade NETs Newly Diagnosed NET Testing Symptom Management Medical Testing/Sequencing Treatments Liver Directed Therapy Surgery Diarrhea Pheo/Para PATIENT CONFERENCES 2022 2021 2020 2019 2018 2017 2016 2015 BE INSPIRED Patient Advocacy Giovanna Joyce Imbesi, LACNETS Founder Inspirational Above & Beyond Awards PRRT Patient/Caregiver Stories WELLNESS & CAREGIVING Nutrition Wellness Caregiving / Palliative / Supportive Care Music Heals LEARN Patient Conferences LEARN Patient Educational Events Patient Educational Events Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Just Diagnosed With Neuroendocrine Cancer? What to Know and Understand • 2026 NCF Event • Apr 23, 26 01:34:59 Play Video Now Playing Novel Targeted Therapies in Neuroendocrine Cancers • 2026 NCF Event • Mar 9, 2026 01:33:06 Play Video Now Playing The Latest in Neuroendocrine Cancer Clinical Trials • 2026 NCF Event • Feb 20, 2026 01:29:26 Play Video Now Playing The Latest on Immunotherapy for Neuroendocrine Cancer • 2025 NCF Event • Dec 11, 2025 01:31:30 Play Video PRRT PRRT Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 10. Navigating Targeted Therapies & PRRT • Dr. Jennifer Chan • 2026 NCF Conference 19:58 Play Video Now Playing Preparing for PRRT: What Patients Need to Know • Dr. Muzahir • 2026 Patient Conference in Atlanta 15:19 Play Video Now Playing Understanding Your Scans and PRRT: How Imaging Guides Treatment • Dr. Cole • Atlanta Conference 14:38 Play Video Now Playing 08. PRRT: Current & New Trends • Holly Thompson, MD, MPH • @NCFCancer 15:02 Play Video Research/Clinical Trials Clinical Trials: Individual Clinical Trials Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing DAREON®-NEC-1: Obrixtamig Plus Chemotherapy vs Standard Chemotherapy in Advanced epNEC • Dr. Grewal 19:41 Play Video Now Playing (STELLAR-311) Zanzalintinib Versus Everolimus in pNET and epNET • ClinicalTrials.gov ID: NCT06943755 06:46 Play Video Now Playing Tarlatamab in DLL3-Expressing Tumors Including NEN • ClinicalTrials.gov: NCT06788938 • Dr. Goldman 14:15 Play Video Now Playing A Study of ZL-1310 in Participants With Selected Solid Tumors • ClinicalTrials.gov ID: NCT06885281 13:57 Play Video High Grade NETs High Grade NETs Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Novel Targeted Therapies in Neuroendocrine Cancers • 2026 NCF Event • Mar 9, 2026 01:33:06 Play Video Now Playing The Latest on Immunotherapy for Neuroendocrine Cancer • 2025 NCF Event • Dec 11, 2025 01:31:30 Play Video Now Playing "Large Cell Neuroendocrine Carcinoma & Small Cell Lung Cancer" • Session B • LACNETS • Dec 10, 2024 01:28:05 Play Video Now Playing "High Grade Neuroendocrine Neoplasms & Small Cell Lung Cancer" • LACNETS Event • May 7, 2024 01:30:41 Play Video Newly Diagnosed Newly Diagnosed Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 2. Understanding Neuroendocrine Cancer: What Should I Know About My Cancer? • Dr. Udhayvir Grewal 17:40 Play Video Now Playing Just Diagnosed With Neuroendocrine Cancer? What to Know and Understand • 2026 NCF Event • Apr 23, 26 01:34:59 Play Video Now Playing "The Latest in the Management of Functional Neuroendocrine Cancers • Jan, 2026 • Dr. Del Rivero 01:37:36 Play Video Now Playing 04. NETs 101: NET Terms & Concepts You Need to Know • Bassam Sonbol, MD • Arizona • @NCFCancer ⁩ 17:45 Play Video NET Testing NET Testing Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 06. NET Testing: The What, When, How and Why (Dr. Namrata Vijayvergia) - 2022 LACNETS Conference 18:28 Play Video Now Playing "Understanding NET Diagnosis" with Dr. Chandrasekharan • 2024 #LACNETS Patient Conference 35:16 Play Video Symptom Management Symptom Management Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Practical Tips in Managing Neuroendocrine Cancer Care • • Sep 29, 2026 01:24:02 Play Video Now Playing Episode 49: "Understanding Carcinoid Syndrome & GLP-1 Drugs in Neuroendocrine Tumors" - Dr. Dillon 01:09:03 Play Video Now Playing Episode 20 - Gastric NET, Gastrinomas & Zollinger-Ellison Syndrome (ZES) 01:01:43 Play Video Now Playing 5. What Matters About Symptom Management • Vineeth Sukrithan, MD • Neuroendocrine Cancer Foundation 17:59 Play Video Medical Treatments/Sequencing Treatments Medical Treatments / Sequencing Treatments Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Practical Tips in Managing Neuroendocrine Cancer Care • • Sep 29, 2026 01:24:02 Play Video Now Playing 14. Panel: Navigating Treatment Decisions• Drs. Del Rivero, Chandrasekharan, Clarke and Mittra 35:11 Play Video Now Playing 12. Navigating Treatment Sequencing • Dr. Pamela Kunz • Yale Medicine • 2026 NCF Conference 15:26 Play Video Now Playing 9. Navigating SSAs and Chemotherapy • Dr. Guillaume Pegna • Oregon Health & Science University 14:24 Play Video Liver Directed Therapy Liver Directed Therapy Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 7. Navigating Liver-Directed Therapy • Dr. Michael Soulen • Penn Medicine • 2026 NCF Conference 20:09 Play Video Now Playing 3. Liver-Directed Therapy • Dr. Lindsay Thornton • 2025 NET Cancer Day Symposium 12:56 Play Video Now Playing 06. Liver-Directed Therapy: Killing Liver Tumors Without a Big Scar • Gregory Woodhead, MD, PhD 15:59 Play Video Now Playing Episode 38: "NEN Treatments: Focus on Liver-Directed Therapies (Part 1) 31:32 Play Video Surgery Surgery Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 6. Navigating Surgery • Dr. Julie Hallet • Sunnybrook Health Sciences Centre • 2026 Conference 17:02 Play Video Now Playing 2. Role of Surgery in NETs • Dr. Jashodeep Datta • 2025 NET Cancer Day Symposium 21:19 Play Video Now Playing "What to Ask your Surgeon & How to Prepare for Surgery" • Alexandra Gangi, MD • 2024 NET Cancer Day 19:04 Play Video Now Playing Episode 27: What to Know About Neuroendocrine Tumor Liver Metastases 46:13 Play Video Diarrhea Diarrhea Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing "The Latest in the Management of Functional Neuroendocrine Cancers • Jan, 2026 • Dr. Del Rivero 01:37:36 Play Video Now Playing LACNETS • "Symptom Management" with Dr. David Metz • Oct 2023 01:33:48 Play Video Now Playing Episode 2: Diarrhea & NETs • The LACNETS Podcast 53:27 Play Video Now Playing Symptom Management: Diarrhea, Hyperglycemia & Diabetes - 2020 LACNETS Virtual NET Conference 49:02 Play Video Pheo/Para Pheo/Para Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing "The Latest in the Management of Functional Neuroendocrine Cancers • Jan, 2026 • Dr. Del Rivero 01:37:36 Play Video Now Playing Episode 12: Pheochromocytoma & Paraganglioma (PPGL) 01:07:09 Play Video Now Playing "Focus on Pheochromocytoma and Paraganglioma" - Jan 2023 LACNETS Educational Event 01:42:02 Play Video Now Playing Caregiver Story - Pheo/Para 09:47 Play Video LACNETS PATIENT CONFERENCES 2022 LACNETS Neuroendocrine Patient Conference 2022 Annual Patient Conference Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 01. Conference Welcome from LACNETS - 2022 LACNETS NET Patient Conference 10:49 Play Video Now Playing 02. Co-Moderators: Newly-Diagnosed + Conference Theme - 2022 LACNETS NET Patient Conference 15:24 Play Video Now Playing 3. What is NET? 05:29 Play Video Now Playing 04. Patient Story: Treatment Decisions & Navigating Insurance - 2022 LACNETS NET Patient Conference 06:38 Play Video 2021 LACNETS Neuroendocrine Patient Conference LACNETS 2021 Los Angeles NET Patient Education Virtual Conference (Playlist) Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 1. Conference Welcome - 2021 LACNETS Virtual Conference 09:41 Play Video Now Playing 02. Co-Moderators discuss NET expert consultation and surgery - 2021 LACNETS Virtual Conference 06:30 Play Video Now Playing 03. Patient Story (Federico) - 2021 LACNETS Virtual Conference 04:40 Play Video Now Playing 04. What to Expect with a NET Expert Consultation (Dr. Soares) - 2021 LACNETS Virtual Conference 30:23 Play Video 2020 LACNETS Neuroendocrine Patient Conference Virtual 2020 Annual LACNETS Patient Education Conference Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Finding a NET Expert + Surgery for NETs - 2020 LACNETS Virtual NET Conference 42:50 Play Video Now Playing "Systemic Therapy: GI, Lung, PNETS & Unknown Primary" 2020 LACNETS Virtual NET Conference 01:17:15 Play Video Now Playing Imaging & Role of IR (Liver-Directed Therapy) + PRRT - 2020 LACNETS Virtual NET Conference 01:20:02 Play Video Now Playing Symptom Management: Diarrhea, Hyperglycemia & Diabetes - 2020 LACNETS Virtual NET Conference 49:02 Play Video 2019 LACNETS Neuroendocrine Patient Conference LACNETS 2019 Annual Los Angeles NET Patient Education Conference hosted by Cedars-Sinai - June 8th, 2019 Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Opening: Giovanna Imbesi & Shlomo Melmed, MB, ChB - 2019 LA NET Conf 18:10 Play Video Now Playing Role of Oncologist + Year in Review: Andrew Hendifar, MD (Cedars Sinai) - 2019 LA NET Conf 10:18 Play Video Now Playing Giovanna Imbesi Cedars-Sinai Patient Leadership Award - 2019 LA NET Conf 11:43 Play Video Now Playing NET Vitals Workshop: Daneng (Dan) Li, MD - 2019 LA NET Conf 19:28 Play Video 2018 LACNETS Neuroendocrine Patient Conference LACNETS 2018 Los Angeles NET Patient Education Conference @ UCLA - May 19, 2018 Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 2018 LA NET Conf 01 - UCLA Welcome 05:54 Play Video Now Playing 2018 LA NET Conf 02 - LACNETS Team Welcome: Imbesi, Jeu De Vine, Yen 11:21 Play Video Now Playing 2018 LA NET Conf 03 - Clinical Trials Update: Kunz 21:25 Play Video Now Playing 2018 LA NET Conf 04 - Surgical Management : Girgis, Agopian 24:29 Play Video 2017 LACNETS Neuroendocrine Patient Conference LACNETS 2017 Los Angeles NET Patient Education Conference @ City of Hope Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 2017 LA NET CONF 01 Pathology: Dhall 19:39 Play Video Now Playing 2017 LA NET CONF-02 Surgery: Nissen 17:45 Play Video Now Playing 2017 LA NET CONF-03 Surgery: Singh 19:46 Play Video Now Playing 2017 LA NET CONF-04 Carcinoid Syndrome: Hendifar 15:47 Play Video 2016 LACNETS Neuroendocrine Patient Conference LACNETS 2016 Los Angeles NET Patient Ed Conference Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing LACNETS (1) - Welcome & Introductions Imbesi, Hollander 2016 LA NET Patient Ed Conference 07:27 Play Video Now Playing LACNETS (2) - Year in Review - Dr. Wolin - 2016 LA NET Patient Ed Conference 34:11 Play Video Now Playing LACNETS (3) - Liver Detected Therapy for NETS - Dr. Lipshutz - 2016 LA NET Patient Ed Conference 17:17 Play Video Now Playing LACNETS - (4) - Double Balloon Endoscopy - Dr. Amersi - 2016 LA NET Patient Ed Conference 20:01 Play Video 2015 LACNETS Neuroendocrine Patient Conference LACNETS 2015 Los Angeles NET Patient Education Conference @ Cedars-Sinai Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing (1) Welcome Statements, Giovanna Joyce Imbesi, Ron Hollander - LACNETS CFCF 2015 NET Conference 11:45 Play Video Now Playing (2) "Liver Tumors Then & Now" with Dr. Nicholas Nissen - LACNETS CFCF 2015 NET Conference 13:42 Play Video Now Playing (3) "NETs: How We Find, Classify, & Treat Them:" Dr. Phan - LACNETS CFCF 2015 NET Conference 28:10 Play Video Now Playing (4) Emerging Treatment Modalities - Ron Hollander - LACNETS CFCF 2015 NET Conference 19:44 Play Video BE INSPIRED Patient Advocacy Patient Advocacy Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 8. Role of Advocacy in Advancing Care for Neuroendocrine Cancer • Dr. Estelamari Rodriquez 15:35 Play Video Now Playing 5 - Q&A Panel 35:20 Play Video Now Playing 3 - “Patient Advocacy: How can YOU bring about change?” with Josh Mailman, MBA 15:23 Play Video Now Playing 6 - Wrap Up with LACNETS 03:43 Play Video Giovanna Joyce Imbesi, LACNETS Founder Giovanna Joyce Imbesi, LACNETS Founder Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Tribute Video: In Loving Memory of Giovanna Joyce Imbesi, LACNETS Founder 10:07 Play Video Inspirational Inspirational Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing "Riding the Cancer Wave – Spiritually Speaking" with Chaplain Michael Eselun 46:54 Play Video Now Playing LACNETS Webinar: "How to Live with Neuroendocrine Cancer" with Dr. Eric Liu 01:32:34 Play Video Now Playing 12. Patient Story: From Diagnosis to Patient Advocacy - 2022 LACNETS NET Patient Conference 07:12 Play Video Now Playing LACNETS Webinar: The Fortune & Folly of Self-Diagnosis" with Dr. Mark Lewis 01:38:00 Play Video Above & Beyond Awards LACNETS Above & Beyond Award Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Dusty Hurley • Above and Beyond Award • 2025 NET Cancer Day Symposium 08:07 Play Video Now Playing Above and Beyond Award • 2024 LACNETS NET Cancer Day Symposium 03:23 Play Video Now Playing @NCFCancer Above & Beyond Award: Tom, Musician/Composer & NET Patient • 2023 NET Cancer Day Symposium 04:33 Play Video Now Playing 7 - Above & Beyond Award with Michel DeQuevedo & Lisa Yen 03:45 Play Video PRRT Patient/Caregiver Stories Patient/Caregiver Stories Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Patient Journey • Katie Shares Her Story • 2026 NCF Patient Conference 06:50 Play Video Now Playing Patient & Caregiver Journey - Serra & Quintin 06:12 Play Video Now Playing Bob, NET Patient 05:47 Play Video Now Playing Dusty shares her NET journey • NET Patient • LACNETS 06:45 Play Video Caregiving & Wellness Nutrition Nutrition Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Nutrition & Diet Considerations for NETs • 2025 NCF Event • August 26, 2025 01:25:23 Play Video Now Playing Episode 29: Nutrition & Diet Considerations for NET 45:40 Play Video Now Playing Episode 1: Nutrition for NETs • The LACNETS Podcast 29:50 Play Video Now Playing LACNETS - "Nutrition Therapy for NETs" with Meghan Laszlo (Cedars-Sinai) 01:04:20 Play Video Wellness Wellness Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Coping With Neuroendocrine Cancer: Managing Distress, Worry & Grief • 2025 NCF Event • Oct 28, 2025 01:24:39 Play Video Now Playing Meditation with Ruth Wolever • 2025 Wellness Retreat • "Brilliance" 20:01 Play Video Now Playing Meditation with Ruth Wolever • 2025 Wellness Retreat • "Blossoming" 22:11 Play Video Now Playing Meditation with Ruth Wolever • 2024 LACNETS Wellness Retreat • "The Power of Play" 23:52 Play Video Caregiving / Palliative Care / Supportive Care Caregiving / Palliative Care / Supportive Care Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing 4. Panel • Navigating Supportive Care • Panelists Dr. Banerjee, Lindsay, NP, and Ramirez, LCSW 24:02 Play Video Now Playing Episode 37: "Supportive Oncology for Neuroendocrine Cancer" 42:59 Play Video Now Playing "Palliative Care for Neuroendocrine Cancer" Dr. Chandana Banerjee • 2024 #LACNETS Educational Event 01:26:11 Play Video Now Playing Episode 14: Palliative Care 41:10 Play Video Music Heals Music Heals Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing "Circle Song" - Laugh and sing along with NET Patient Samuel Prentice Jr. 13:54 Play Video Now Playing "Hush" by Giovanna Joyce Imbesi (Photography by David F. Coppedge) 04:17 Play Video Now Playing Neuroendocrine Tumor Song 06:52 Play Video Be Inspired Caregiving & Wellness DISCLAIMER: These resources are for informational and educational purposes only and are not substitute for professional medical advice. This information is not intended to provide a medical professional’s opinion or advice. You are advised to seek appropriate licensed medical professional help. Please do not delay treatment based on this information. Talk to your medical team if you have any questions or concerns about your individual care or treatment.

WEEKLY Virtual NET Support Group Meetings Wednesday, Oct. 14 12:00 - 1:30 PM Pacific Register We provide a welcoming space to come together virtually for knowledge sharing and community support. The focus of the meeting is to connect with others living with, or supporting someone living with, Neuroendocrine Tumor (NET). Both patients & caregivers discuss treatments, symptoms, living well and information uniquely related to this disease. This group is open to NET patients and caregivers. Join us via Zoom every Wednesday at 12 -1:30 PM Pacific Time. Before the live support meeting, please be sure to download Zoom on your preferred device: zoom.us/download Click here to watch a tutorial on how to download and join Zoom. *Please note all Zoom meeting details will be emailed to you within 24 hours of your registration. Questions? Email events@ncf.net . *Limited spots available. NET Support Group Registratin Register THANKS TO OUR SUPPORTERS

Join us in person for a rare opportunity to gather at the National Cancer Institute (NCI) in Bethesda, Maryland, for our first joint patient educational event between the NCI, LACNETS & the Pheo Para Alliance (PPA).  On Saturday, September 9th, renowned NET experts from across North America will cover an array of topics from surgery, PRRT, systemic treatments and clinical trials.  Registration Closed Join us in person for a rare opportunity to gather at the National Cancer Institute (NCI) in Bethesda, Maryland, for our first joint patient educational event between the NCI, LACNETS & the Pheo Para Alliance (PPA) . On Saturday, September 9th, renowned NET experts from across North America will cover an array of topics from surgery, PRRT, systemic treatments and clinical trials. LACNETS is honored to partner with the NCI, the leader in cancer research, and the PPA, a non-profit organization dedicated to empowering those with pheochromocytoma or paraganglioma through advocacy, education, research and support. A special thank you to our partner The Carcinoid Cancer Foundation for their support in awareness and outreach efforts. All NET Patients and Caregivers are welcome. This conference will not be live-streamed or recorded. Breakfast and lunch provided. Networking opportunities with other patients, caregivers, and NET experts. *Please note there is a NANETS Regional NET Education Event for the medical community on September 8th, also hosted at the NCI. Tell your local healthcare professionals about this NANETS regional event to help raise awareness of and knowledge about NET. LACNETS Track Click Here for LACNETS Track Speaker Bios >>> PPA Track Click Here for PPA Track Speaker Bios >>> ACCOMMODATIONS Recommended hotels: The Bethesdan Tapestry Collection by Hilton 8120 Wisconsin Avenue Bethesda, MD 20814 Hyatt Regency Bethesda One Bethesda Metro Center (7400 Wisconsin Ave) Bethesda, MD 20814 TRANSPORTATION Airport Click here for more information about the nearest airports >>> GOVT ID/Security Check Required For All Participants Valid government-issued photo identification is accepted to receive a visitor pass. Acceptable identification include: REAL ID Driver’s License or State Identification Card Passport or Passport Card HSPD-12 PIV or CAC Card Permanent Resident Card Federally recognized, tribal-issued photo ID Canadian provincial driver's license, or Indian and Northern Affairs Canada Cards. Any visitor 16 years of age and older is required to provide identification to receive a visitor ID. Getting to the Natcher Conference Center Note: The Gateway Center Visitor Entrance is only open from 6:30 - 10 AM. Shuttles from Hotels to the Gateway Center Visitor Entrance, Building 66: Natcher Conference Center (Building 45) Shuttles from Hotels to Gateway Center Visitor Entrance, Building 66. (Please note these are outside Shuttles, not Hotel Courtesy Shuttles). Shuttles from 7 - 8 AM Shuttles will run from the Hyatt Regency, The Bethesdan Hotel by Hilton and the Gateway Center Visitor Entrance, Building 66, 9000 Rockville Pike, Bethesda, MD 20894 beginning at 7 AM. Drop off at Gateway Center for security clearance. Gateway Center to Natcher Conference Center (Building 45) Walk to Natcher Conference Center Please exit the Gateway Center via stairs or elevator on the second floor and follow the paved walkway to building 45 (Natcher Conference Center). You will approach the back of the building. The doors will be open. Take the stairs or elevators one floor down. This is the Natcher Conference Center entrance for pedestrians walking from the Gateway Center. Rideshare to the NIH Gateway Center + Walk to the Natcher Conference Center (Building 45) Take a taxi, Uber or Lyft to the NIH Gateway Center, 9000 Rockville Pike, Bethesda, MD 20894 Drop off at the Gateway Center for security clearance Gateway Center to Natcher Conference Center (Building 45) Walk over to Natcher Conference Center Please exit the Gateway Center via stairs or elevator on the second floor and follow the paved walkway to building 45 (Natcher Conference Center). You will approach the back of the building. The doors will be open. Take the stairs or elevators one floor down. This is the Natcher Conference Center entrance for pedestrians walking from the Gateway Center. Take the Metro's Red Line to the Medical Center Station + Walk to the Gateway Center + Walk to the Natcher Conference Center (Building 45) Take the Metro's Red Line to the Medical Center Station Visit the Metro website for more information about the Medical Center Station hours, timetables and 'Plan A Trip' tool. The Medical Center Station is located at 8810 Rockville Pike, Bethesda, MD 20814. Walk to the NIH Gateway Center at 9000 Rockville Pike, Bethesda, MD 20894 Head south on Rockville Pike toward South Dr (171 ft) Gateway Center to Natcher Conference Center (Building 45) Please exit the Gateway Center via stairs or elevator on the second floor and follow the paved walkway to building 45 (Natcher Conference Center). You will approach the back of the building. The doors will be open. Take the stairs or elevators one floor down. This is the Natcher Conference Center entrance for pedestrians walking from the Gateway Center. Drive your car to the NIH Commercial Vehicle Inspection Facility (CVIF) + Park in the lot next to the Natcher Conference Center (Building 45) Download + Print the Visitor Entry Processing Information Form >> Clear Security at the NIH CVIF The NIH CVIF is located at: 9000 Rockville Pike Bethesda, MD 20892. You must fill out the Visitor Entry Processing Information Form. Please print this form before arriving at the security gate for faster processing. Drive from CVIF to the Natcher Conference Center (Building 45) After exiting CVIF, take a left at the two-way traffic sign. Take a right on Wilson Drive. Take a left on Center Drive. You will pass several buildings. Please note that the building numbers are not in numerical order. Park in the lot next to the Natcher Conference Center. *Note: Parking garages are closed on Saturday. Only surface/outside lots and parking spots are available near the Natcher building. Look for this sign for the CVIF Entrance Take a left at this two-way traffic sign The Natcher Conference Center is a cement and glass building. #45 is visible in the area circled green below. Park in the surface lots circled here in red next to Natcher, Medlars St, and Center Dr. All parking restrictions are lifted and won't be enforced, except for handicapped parking spaces. LEAVING THE CONFERENCE CENTER 2:30 PM - 4:30 PM Two shuttles will run between: Natcher Conference Center Hyatt Regency The Bethesdan Hotel by Hilton Up The information provided is for educational purposes only and does not substitute for medical advice. Talk to your medical team if you have any questions or concerns about your individual care and treatment. The opinions expressed in this program are those of the speakers and do not represent the opinion of LACNETS.

Find a range of financial assistance resources tailored to your needs at LACNETS. Get the support you deserve today. Access Financial Assistance Resources WATCH Watch "Navigating Health & Disability Insurance" with Joanne Fawzy Morales, Esq. READ Read our blog post on Insurance Resources RESOURCES Boehringer Ingelheim created a resource designed to educate patients on the recent Medicare Part D changes. Click here to learn more. Advanced Accelerator Applications (AAA) has a patient support program to deliver assistance for eligible patients. Click here to learn more. GoodRx is a free website and mobile app that compares prescription drug price and provides drug coupons for discounts on medications. IpsenCares provides coverage, access, reimbursement, and education support for lanreotide (Somatuline Depot). Go to ipsencares.com or call 866-435-5677. Novartis Patient Assistance Foundation (NPAF) provides access to Novartis medications including Afinitor (everolimus), Lutathera (lutetium Lu177 dotatate), and Sandostatin LAR (octreotide acetate). Click here to check eligibility and application instructions. For the Novartis universal co-pay program, go to Copay.NovartisOncology.com or call 877-577-7756. Novartis - Patient Financial Assistance & Government Insurance TerSera offers co-pay assistance for Xermelo (telotristat ethyl), a prescription pill, used along with somatostatin analog (SSA) therapy for carcinoid syndrome diarrhea in adults who are not adequately controlled by SSA therapy. For more information, go to copay.xermelo.com. Patient Advocate Foundation provides co-pay relief and financial aid. Triage Cancer offers a lengthy list of financial resources including travel expenses and lodging, transportation, young adult specific assistance, prescription drugs, and much more. Neuroendocrine Cancer Awareness Network - Patient Financial Assistance Healthwell Foundation NeedyMeds NCI Travel and Lodging Reimbursement Info Packet Creon Financial Assistance The CureNET Project is offering a $5,000 patient grant for any NET patient that is 18 years or older. It is meant to help cover medical costs, travel to see a NET specialist, pay bills, allow families to spend time together - whatever the recipient feels necessary. The submission deadline is October 15, 2023. Click here for more information. The HealthWell Foundation® , an independent non-profit charitable organization that provides financial assistance for underinsured Americans has launched a new fund to assist individuals living with neuroendocrine tumors. Through the fund, HealthWell will provide up to $15,000 in medication copayment or insurance premium assistance to patients for prescription drugs and biologics for the treatment of their disease. Eligible patients must have household incomes up to 500 percent of the federal poverty level. To determine eligibility and apply for assistance, visit HealthWell's Neuroendocrine Tumors Fund page. Note that all new fund openings and fund re-openings occur at 11:00 a.m. Eastern Daylight Time (8:00 a.m. Pacific) Monday through Friday. For more information go to: https://www.healthwellfoundation.org/fund/neuroendocrine-tumors/ . Transportation Resources

Save the Date - June 17, 2023 Watch the 2023 LACNETS Neuroendocrine Tumor Patient Conference 2023 LACNETS Neuroendocrine Tumor Patient Conference 2023 LACNETS Neuroendocrine Tumor Patient Conference Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Welcome & Introduction • 2023 LACNETS Neuroendocrine Tumor Patient Conference • June 17, 2023 13:08 Play Video Now Playing NETS 101: Overview of NET Terms & Concepts • Dr. Aman Chauhan • 2023 LACNETS Patient Conference 21:51 Play Video Now Playing A Conversation with Three NET Surgeons • Dr. Clarke, Dr. Gangi & Dr. Anaya • 2023 LACNETS Conference 27:33 Play Video Join us virtually for our biggest event of the year to hear from 12 NET experts from North America. Click Here to Read Speaker Bios Visit Sponsor Booths 2023 Conference Sponsors VISIT SPONSOR BOOTHS IPSEN Booth TerSera Booth Curium Booth AAA Booth Crinetics Booth Camurus Booth The information provided is for educational purposes only and does not substitute for medical advice. Talk to your medical team if you have any questions or concerns about your individual care and treatment. The opinions expressed in this program are those of the speakers and do not represent the opinion of LACNETS.

Neuroendocrine Cancer Foundation Upcoming Patient & Caregiver Events "Zeal for Life" Movie Screening Mar 7, 2026 Join the Neuroendocrine Cancer Foundation on Saturday afternoon, March 7th, for a special screening of Zeal for Life. To see firsthand what makes those living with neuroendocrine cancer, the experts who treat them, and their caregivers - zealous. Optimism, determination, and wholehearted dedication collectively contribute to longevity and living with zeal! Register "Novel Targeted Therapies in Neuroendocrine Cancers" Mar 9, 2026 Join us for a discussion of targeted therapies in neuroendocrine cancer, one of the fastest-growing areas of NET treatment. Unlike traditional chemotherapy, targeted therapies focus on specific pathways or features of cancer cells. Understanding how these treatments work can help patients feel more confident and informed when discussing options with their care team. Register "Just Diagnosed With Neuroendocrine Cancer? What to Know and Understand" April 23, 2026 Being newly diagnosed with neuroendocrine cancer (NETs) can feel overwhelming. Many patients find themselves asking, “What exactly is neuroendocrine cancer, and how is it different from other cancers?” This webinar is designed to bring clarity, reassurance, and guidance during one of the most confusing stages of the NET journey. Register Neuroendocrine Cancer Patient Support Group Weekly on Wednesdays Next Meeting on Wednesday, March 4, 2026 We provide a welcoming space to come together virtually for knowledge sharing and community support. The focus of the meeting is to connect with others living with, or supporting someone living with, neuroendocrine cancer. Both patients & caregivers discuss treatments, symptoms, living well and information uniquely related to this disease. This group is open to neuroendocrine cancer patients and caregivers. Register Neuroendocrine Cancer Caregiver Support Group Typically on the Last Saturday of the Month Dates: Feb 28, 2026 Mar 28, 2026 Apr 25, 2026 May 30, 2026 Jun 27, 2026 Jul 25, 2026 Aug 29, 2026 Sep 26, 2026 Oct 24, 2026 Nov 21, 2026 Dec 19, 2026 Neuroendocrine Cancer Foundation's Monthly NET Caregiver-Only support group is a virtual space to come together for support, connection and community with other care partners who support, or have supported, those with Neuroendocrine Cancer. Unlike our Weekly Wednesday Support Group for Caregivers & Patients that focuses on medical aspects of NETs, this group focuses on the unique experiences and psycho-social concerns of caregivers. *OPEN TO NET CAREGIVERS ONLY. Register Click here for recent events

The Neuroendocrine Cancer Foundation Podcast (previously known as the LACNETS Podcast) is a monthly series where we interview neuroendocrine tumor (NET) experts on various NET topics. Each expert will answer the top 10 FAQs in their area of expertise. Whether a listener is newly diagnosed, a longtime NET survivor, or a family member or loved one, the Neuroendocrine Cancer Foundation Podcast serves as a tool to help anyone better understand NET. The Neuroendocrine Cancer Foundation Podcast is also available on Apple Music, Spotify, Google Podcasts, and Amazon Music. A new episode will be released every month. Be sure to subscribe to our podcast to receive notifications when new episodes are released! EPISODE 41: TOP 10 HIGHLIGHTS OF THE 2024 NANETS SYMPOSIUM In this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist Dr. Guillaume (Will) Pegna recaps the North American Neuroendocrine Tumor Society (NANETS) 2024 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and how they matter to the NET patient community. LISTEN NOW EPISODE 40: NEN TREATMENTS: FOCUS ON EXTERNAL RADIATION THERAPY What is radiation oncology, and how is it used for neuroendocrine cancer? UCSF radiation oncologists Dr. Will Chen and Dr. Alexandra Hotca-Cho describe external radiation therapy (SBRT) and how, when, and where it may be used for select patients with neuroendocrine cancers. They address common concerns about the planning process, safety concerns, and treatment sequencing. LISTEN NOW EPISODE 39: NEN TREATMENTS: FOCUS ON LIVER-DIRECTED THERAPIES (Part II: Intra-Arterial Techniques & Sequencing) In this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this second episode, he details the embolization techniques including bland embolization (TAE), chemoembolization (TACE), and radioembolization (TARE, SIRT, y90). He discusses decision-making, sequencing, and follow-up after these procedures. LISTEN NOW EPISODE 38: NEN TREATMENTS: FOCUS ON LIVER-DIRECTED THERAPIES (Part I: Overview and Ablative Techniques Including Histotripsy) In this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this first episode, he outlines the types of liver-directed therapies and elaborates on ablative techniques including the newest technique, histotripsy. Listen to a frank discussion of how histotripsy works, when it might be used, and what its current limitations are. LISTEN NOW EPISODE 37: SUPPORTIVE ONCOLOGY FOR NEUROENDOCRINE CANCER What is supportive care or supportive oncology? What is cancer-related distress? How might NET patients benefit from supportive care? Yale oncologist Dr. Maryam Lustberg suggests strategies to manage cancer-related fatigue, diarrhea, nausea, mouth sores, peripheral neuropathy, distress, anxiety, and anxiety. She also addresses considerations for fertility and sexual health. LISTEN NOW EPISODE 36: NEN TREATMENTS: FOCUS ON IMMUNOTHERAPY What is immunotherapy? How effective are they for neuroendocrine neoplasms (NENs)? Dr. Jennifer Eads from Penn Medicine answers common questions about immunotherapy. She discusses the latest in CAR T therapy, DLL3, and vaccine therapy for NENs. LISTEN NOW EPISODE 35: NEN TREATMENTS: FOCUS ON CHEMOTHERAPY What is chemotherapy? When are they used for neuroendocrine neoplasms (NENs)? Dr. Pamela Kunz from Yale Medicine discusses the benefits, potential side effects and latest advances in chemotherapy for NENs. She explains how it differs from other treatments for NENs and how she counsels patients as they consider chemotherapy. LISTEN NOW EPISODE 34: NET TREATMENTS: FOCUS ON PRRT What is PRRT? How is it different from the more commonly used radiation treatment? What are the possible side effects? Dr. Riham El Khouli from the University of Kentucky in Lexington discusses common questions and concerns about PRRT and shares some of the latest advances. LISTEN NOW EPISODE 33: FOCUS ON TARGETED THERAPIES What are Targeted Therapies and how do they work? How and when would they be used in NETs? Dr. Scott Paulson from Baylor Cancer Center in Dallas discusses common questions and concerns about targeted therapies including side effects, dosing and treatment sequencing. Bonus: Dr. Paulson shares how we can learn from Harry Potter’s invisibility cloak in understanding treatment goals with NETs. LISTEN NOW EPISODE 32: FOCUS ON SOMATOSTATIN ANALOGUES (SSAs) How do SSAs work? Should all NET patients be on one? What are the side effects? Dr. Edward Wolin from Mount Sinai Health System answers several common questions about the current and future role of somatostatin analogues in NET treatment. LISTEN NOW EPISODE 31: CLINICAL TRIALS: EXPECTATIONS VS. REALITIES (PART I & II) In this 2-part series, we reprise “Navigating Clinical Trials: Expectations vs Realities” with Taymeyah Al-Toubah. This was previously broadcast on August 19th, 2023, as a LACNETS monthly educational webinar. In Part 1, Taymeyah discusses clinical trial terminology, timeline, questions to ask, and misconceptions. In Part 2, Taymeyah answers questions about logistics and practical aspects of clinical trials, such as costs, response time, and follow-up. She also answers frequently asked questions about PRRT trials, including alpha trials. LISTEN NOW EPISODE 30: BONE & BRAIN METASTASES IN NEUROENDOCRINE CANCER When and how often do NETs spread to the bones or brain? How are they found? What is the treatment? Dr. Robert Ramirez of Vanderbilt University addresses concerns surrounding bone metastases (or “mets”) as well as rare brain metastases. LISTEN NOW EPISODE 29: NUTRITION & DIET CONSIDERATIONS FOR NET NET dietician Sina Teskey from the Medical College of Wisconsin answers common questions about diet and nutrition raised among NET patients and caregivers. She addresses special diets, food restrictions, and whether sugar “feeds” cancer. Sina also speaks to diarrhea, and digestive enzymes and shares tips on how to maintain nutrition and weight. LISTEN NOW EPISODE 28: TOP 10 HIGHLIGHTS OF THE 2023 NANETS SYMPOSIUM In this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist, Dr. Guillaume (Will) Pegna, recaps the North American Neuroendocrine Tumor Society (NANETS) 2023 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and discusses why they matter to the NET patient community. LISTEN NOW EPISODE 27: WHAT TO KNOW ABOUT NEUROENDOCRINE TUMOR LIVER METASTASES What do you call NETs in the liver? How often do NETs spread and what causes NETs to spread? How do you determine if surgery is an option? Dr Xavier Keutgen from University of Chicago brings clarity to NET tumors found in the liver and describes how surgery fits in with other treatments for metastatic NETs. LISTEN NOW EPISODE 26: WHAT TO KNOW ABOUT LUNG NETS What are lung NETs? What is DIPNECH? How is lung NET similar or different from lung cancer? Dr. Vineeth Sukrithan from Ohio State University Comprehensive Cancer Center gives a comprehensive overview of lung NET and DIPNECH, including the work-up and treatment options. He also discusses open clinical trials and exciting advances in lung NET research on the horizon. LISTEN NOW EPISODE 25: WHAT TO KNOW ABOUT GRADE 3 POORLY DIFFERENTIATED NEUROENDOCRINE CARCINOMA (NEC) What are Grade 3 Poorly Differentiated Neuroendocrine Carcinoma (NEC)? What makes NEC unique? Can a NET transform to NEC? Dr. Nitya Raj from Memorial Sloan Kettering Cancer Center in New York City explains NEC tumor biology and how it guides treatment strategy. She also discusses current clinical trials and research. LISTEN NOW EPISODE 24: WHAT TO KNOW ABOUT GRADE 3 WELL-DIFFERENTIATED NETS What are grade 3 NETs and how is it different from grade 3 NEC and other types of NETs? Dr. Mohamad (Bassam) Sonbol from Mayo Clinic in Phoenix, Arizona, enlightens us on this fairly new entity, including treatment options, treatment sequencing and clinical trials. LISTEN NOW EPISODE 23: WHAT TO KNOW ABOUT HINDGUT & APPENDICEAL NETS What are Hindgut NETs (distal colon and rectum) and how are they treated? How is rectal NET different from rectal cancer? What makes appendiceal NETs difficult to diagnose? Dr. Hagen Kennecke from Providence Cancer Institute in Portland, Oregon shares insights on the diagnosis and management of hindgut NETs and appendix NET. LISTEN NOW EPISODE 22: WHAT TO KNOW ABOUT PANCREATIC NETS What is the difference between Pancreatic Neuroendocrine Tumor (PNET) and Pancreatic Cancer? Where exactly is the pancreas located and why is the tumor location important? NET Oncologist Dr. Jennifer Chan from Dana-Farber Cancer Institute takes us through how some treatments, imaging and blood work are unique to PNETs. She also expounds on several ongoing and active trials. LISTEN NOW EPISODE 21: WHAT TO KNOW ABOUT SMALL BOWEL NETs How are small bowel NETs diagnosed, treated, and monitored? How is it different from other types of NETs? What are some exciting new treatments for small bowel NETs? NET oncologist Dr. David Zhen of Fred Hutch Cancer Center in Seattle answers 10 common questions about small bowel NETs. LISTEN NOW EPISODE 20: GASTRIC NET, GASTRINOMAS & ZOLLINGER-ELLISON SYMDROME (ZES) Gastroenterologist and Neuroendocrinologist Dr. David C. Metz discusses important concepts in Gastric NET, Gastrinomas and Zollinger-Ellison Syndrome, including detection, treatments, associated risks and monitoring. He also lends valuable insight on ulcers, MEN and proton pump inhibitors. LISTEN NOW EPISODE 19: BEYOND THE BASICS: THE PATHOLOGY OF NET Take a glimpse through the microscope and learn how pathology determines your NET diagnosis and guides treatment. How does one interpret differing Ki-67 results from the same specimen? Why might a patient have two different Ki-67 results from different specimens? How does pathology distinguish G3 well-differentiated NET from NEC? How does pathology help with NET tumors of unknown origin? NET pathologist Dr. Andrew M. Bellizzi from the University of Iowa sheds light on just how much information a tiny tissue sample may contain. LISTEN NOW EPISODE 18: MENTAL HEALTH & NETS What are the common mental health issues associated with NET? How can they be managed? How does NET impact young adults, NET patients and children of NET patients? Health psychologist Dr. Kersting of the Medical College of Wisconsin elaborates on mental health challenges facing NET patients and their loved ones. Hear coping strategies for anxiety, eating and sleeping difficulties, fatigue and depression. Dr. Kersting discusses what you can expect when meeting a mental health professional and why supporting your mental health is an integral part of your overall care. LISTEN NOW EPISODE 17: KEY CONSIDERATIONS FOR NET SURGERY How do surgeons decide the type, extent, and approach of NET surgery? NET surgeon Dr. Alexandra Gangi of Cedars-Sinai answers 10 common questions about what to expect before, during, and after NET surgery. Gain insight on preparing for surgery and what is important for your surgeon to know about your recovery goals. Dr. Gangi’s comprehensive approach illustrates why surgeons are an integral part of your NET medical team. LISTEN NOW EPISODE 16: TOP 10 HIGHLIGHTS OF THE 2022 NANETS SYMPOSIUM In this special episode, Dr. Will Pegna shares 10 new and exciting discoveries from the 2022 North American Neuroendocrine Tumor Society (NANETS) Multidisciplinary NET Medical Symposium. Each year, hundreds of medical professionals gather to share the latest in NET research and medical advances. LACNETS and Dr. Pegna discuss the Symposium highlights and why they matter to the NET community. LISTEN NOW EPISODE 15: PSYCHO-ONCOLOGY What is psycho-oncology and how can it benefit those living with NET? Psychiatrist Dr. Mona Mojtahedzadeh of Simms/Mann UCLA Center for Integrative Oncology discusses whole person care for cancer patients and caregivers. From “scanxiety” to sleep hygiene, she acknowledges the range of challenges of living with cancer and shares solutions to improve mental well-being and overall health. LISTEN NOW EPISODE 14: PALLIATIVE CARE What is palliative care and how does this relate to NET? Palliative care physician Dr. Chandana Banerjee of City of Hope shares insights and tips on communication, coping, and managing grief and loss. LISTEN NOW EPISODE 13: NET ONCOLOGY Is it okay for NET patients to take “statin” medications to lower cholesterol or SSRI medication for depression? How often should full body scans be done? NET oncologist Dr. Jun Gong of Cedars-Sinai Medical Center addresses ten common questions you might ask your NET oncologist along your NET journey. LISTEN NOW EPISODE 12: PHEO & PARA In honor of Pheo Para Awareness Week, NET endocrinologist and medical oncologist Dr. Jaydira Del Rivero of the National Cancer Institute answers ten common questions about pheochromocytoma and paraganglioma (PPGL). Dr. Del Rivero defines PPGL and describes the unique symptoms, genetic testing, and treatment options for PPGL. LISTEN NOW EPISODE 11: PATHOLOGY FOR NETS How do you understand your pathology report? What is tumor grade, differentiation, mitotic index, and ki67? How do you get a second opinion on your pathology? NET expert and pathologist Dr. Sue Chang of City of Hope answers ten common questions about pathology for neuroendocrine tumors. Dr. Chang defines important keywords to help you understand your pathology report which is instrumental in guiding treatment decisions. LISTEN NOW EPISODE 10: PRRT (PART III) How can patients make decisions about where, when, and what kind of PRRT to receive? How does PRRT in the USA differ from other parts of the world? Why does each institution have different post-PRRT radiation safety precautions? Internationally recognized patient advocate and President of NorCal CarciNET Community, Josh Mailman, answers ten common questions about the past, present, and future of PRRT. Josh, whose journey has taken him from PRRT recipient to a seat on the Nuclear Regulatory Commission Advisory Committee, shares from his years of patient advocacy work in nuclear medicine and clarifies some misunderstandings about PRRT LISTEN NOW EPISODE 9: PRRT (PART II) Who is eligible for PRRT? What are the side effects? Should somatostatin analogues be continued? Can PRRT be repeated when there is disease progression? NET expert and Nuclear Medicine Physician Dr. Martin Auerbach of UCLA Health answers 10 common questions about the decision-making process of PRRT. Dr. Auerbach addresses how to manage side effects, carcinoid crisis, labs, and post-PRRT imaging. LISTEN NOW EPISODE 8: PRRT (PART I) Curious about PRRT? Wondering what a PRRT day looks like, what side effects you might experience, and what precautions you should take? NET expert and Administrative Nurse Lindy Gardner of UCLA Health answers 10 common questions about the before, during and after of PRRT. Lindy explains how to prepare for your treatment day, what to expect on the day of the treatment, and radiation precautions following PRRT including travel, vaccinations, and fertility and breastfeeding recommendations. LISTEN NOW EPISODE 7: IMAGING OF NETS Confused about scans? NET expert Dr. Gary Ulaner answers the top 10 questions about imaging for NETs. Dual board-certified in radiology and nuclear medicine, Dr. Ulaner explains different scans used in NET imaging including functional imaging scans such as Gallium-68 DOTATATE, Copper-64 DOTATATE, and FDG PET scans and anatomical scans such as MRI and CT scans. He addresses common questions about radiation safety, contrasts, and SUV. LISTEN NOW EPISODE 6: DECISION-MAKING FOR NETS How do NET experts decide what treatments are right for you? How do I learn about current clinical trials? In our sixth episode, NET expert and medical oncologist Dr. Daneng (Dan) Li of City of Hope answers 10 common questions about decision-making for NETs including finding the primary tumor site, bone mets, tumor grades, and the role of adjuvant therapy. LISTEN NOW EPISODE 5: TREATMENT FOR NETS What are the current treatment options for NETs? How do I know what treatments I should be on? In our fifth episode, NET expert and Medical Oncologist Dr. Randy Hecht of UCLA Health answers 10 common questions about current NET treatment options (including lanreotide, octreotide, everolimus, and PRRT), as well as future treatment options. LISTEN NOW SPECIAL EPISODE: THE LACNETS STORY In this special episode, we share the history of LACNETS – the who, what, and when. We journey down memory lane with eight special guests from before the birth of LACNETS to where it is today. This episode is dedicated to Giovanna Joyce Imbesi , the LACNETS Founder, whose vision and dedication inspires us all. LISTEN NOW EPISODE 4: NET BASICS Newly diagnosed? Or need to brush up on your NET basics? In our fourth podcast episode, medical oncologist and NET expert Dr. Andrew Hendifar of Cedars-Sinai Medical Center addresses 10 common questions including labs, scans, genetic testing, and prognosis. LISTEN NOW EPISODE 3: SURGERY FOR NETS To cut or not to cut? A common crossroad neuroendocrine cancer patients are faced with along their journey. NET surgeon Dr. Gagandeep Singh of City of Hope joins the podcast to answer the top 10 surgery questions for NETs. LISTEN NOW EPISODE 2: DIARRHEA & NETS NET expert and gastroenterologist Dr. David Metz joins us for this month’s episode to answer the top 10 GI questions for NETs. Dr. Metz addresses diarrhea, diet, carcinoid syndrome and effective symptom management. LISTEN NOW EPISODE 1: NUTRITION FOR NETS For our first episode, we welcome NET Dietician Meghan Laszlo, MS, RD, CSO of Cedars-Sinai Medical Center. Meghan answers the top 10 NET nutrition questions, covering topics including carcinoid syndrome, prescription enzymes, diarrhea, and recommended diet. LISTEN NOW THANKS TO OUR SPONSORS

The Neuroendocrine Cancer Foundation Podcast (previously known as the LACNETS Podcast) is a monthly series where we interview neuroendocrine tumor (NET) experts on various NET topics. Each expert will answer the top 10 FAQs in their area of expertise. Whether a listener is newly diagnosed, a longtime NET survivor, or a family member or loved one, the Neuroendocrine Cancer Foundation Podcast serves as a tool to help anyone better understand NET. The Neuroendocrine Cancer Foundation Podcast is also available on Apple Music, Spotify, Google Podcasts, and Amazon Music. A new episode will be released every month. Be sure to subscribe to our podcast to receive notifications when new episodes are released! EPISODE 41: TOP 10 HIGHLIGHTS OF THE 2024 NANETS SYMPOSIUM In this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist Dr. Guillaume (Will) Pegna recaps the North American Neuroendocrine Tumor Society (NANETS) 2024 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and how they matter to the NET patient community. LISTEN NOW EPISODE 40: NEN TREATMENTS: FOCUS ON EXTERNAL RADIATION THERAPY What is radiation oncology, and how is it used for neuroendocrine cancer? UCSF radiation oncologists Dr. Will Chen and Dr. Alexandra Hotca-Cho describe external radiation therapy (SBRT) and how, when, and where it may be used for select patients with neuroendocrine cancers. They address common concerns about the planning process, safety concerns, and treatment sequencing. LISTEN NOW EPISODE 39: NEN TREATMENTS: FOCUS ON LIVER-DIRECTED THERAPIES (Part II: Intra-Arterial Techniques & Sequencing) In this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this second episode, he details the embolization techniques including bland embolization (TAE), chemoembolization (TACE), and radioembolization (TARE, SIRT, y90). He discusses decision-making, sequencing, and follow-up after these procedures. LISTEN NOW EPISODE 38: NEN TREATMENTS: FOCUS ON LIVER-DIRECTED THERAPIES (Part I: Overview and Ablative Techniques Including Histotripsy) In this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this first episode, he outlines the types of liver-directed therapies and elaborates on ablative techniques including the newest technique, histotripsy. Listen to a frank discussion of how histotripsy works, when it might be used, and what its current limitations are. LISTEN NOW EPISODE 37: SUPPORTIVE ONCOLOGY FOR NEUROENDOCRINE CANCER What is supportive care or supportive oncology? What is cancer-related distress? How might NET patients benefit from supportive care? Yale oncologist Dr. Maryam Lustberg suggests strategies to manage cancer-related fatigue, diarrhea, nausea, mouth sores, peripheral neuropathy, distress, anxiety, and anxiety. She also addresses considerations for fertility and sexual health. LISTEN NOW EPISODE 36: NEN TREATMENTS: FOCUS ON IMMUNOTHERAPY What is immunotherapy? How effective are they for neuroendocrine neoplasms (NENs)? Dr. Jennifer Eads from Penn Medicine answers common questions about immunotherapy. She discusses the latest in CAR T therapy, DLL3, and vaccine therapy for NENs. LISTEN NOW EPISODE 35: NEN TREATMENTS: FOCUS ON CHEMOTHERAPY What is chemotherapy? When are they used for neuroendocrine neoplasms (NENs)? Dr. Pamela Kunz from Yale Medicine discusses the benefits, potential side effects and latest advances in chemotherapy for NENs. She explains how it differs from other treatments for NENs and how she counsels patients as they consider chemotherapy. LISTEN NOW EPISODE 34: NET TREATMENTS: FOCUS ON PRRT What is PRRT? How is it different from the more commonly used radiation treatment? What are the possible side effects? Dr. Riham El Khouli from the University of Kentucky in Lexington discusses common questions and concerns about PRRT and shares some of the latest advances. LISTEN NOW EPISODE 33: FOCUS ON TARGETED THERAPIES What are Targeted Therapies and how do they work? How and when would they be used in NETs? Dr. Scott Paulson from Baylor Cancer Center in Dallas discusses common questions and concerns about targeted therapies including side effects, dosing and treatment sequencing. Bonus: Dr. Paulson shares how we can learn from Harry Potter’s invisibility cloak in understanding treatment goals with NETs. LISTEN NOW EPISODE 32: FOCUS ON SOMATOSTATIN ANALOGUES (SSAs) How do SSAs work? Should all NET patients be on one? What are the side effects? Dr. Edward Wolin from Mount Sinai Health System answers several common questions about the current and future role of somatostatin analogues in NET treatment. LISTEN NOW EPISODE 31: CLINICAL TRIALS: EXPECTATIONS VS. REALITIES (PART I & II) In this 2-part series, we reprise “Navigating Clinical Trials: Expectations vs Realities” with Taymeyah Al-Toubah. This was previously broadcast on August 19th, 2023, as a LACNETS monthly educational webinar. In Part 1, Taymeyah discusses clinical trial terminology, timeline, questions to ask, and misconceptions. In Part 2, Taymeyah answers questions about logistics and practical aspects of clinical trials, such as costs, response time, and follow-up. She also answers frequently asked questions about PRRT trials, including alpha trials. LISTEN NOW EPISODE 30: BONE & BRAIN METASTASES IN NEUROENDOCRINE CANCER When and how often do NETs spread to the bones or brain? How are they found? What is the treatment? Dr. Robert Ramirez of Vanderbilt University addresses concerns surrounding bone metastases (or “mets”) as well as rare brain metastases. LISTEN NOW EPISODE 29: NUTRITION & DIET CONSIDERATIONS FOR NET NET dietician Sina Teskey from the Medical College of Wisconsin answers common questions about diet and nutrition raised among NET patients and caregivers. She addresses special diets, food restrictions, and whether sugar “feeds” cancer. Sina also speaks to diarrhea, and digestive enzymes and shares tips on how to maintain nutrition and weight. LISTEN NOW EPISODE 28: TOP 10 HIGHLIGHTS OF THE 2023 NANETS SYMPOSIUM In this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist, Dr. Guillaume (Will) Pegna, recaps the North American Neuroendocrine Tumor Society (NANETS) 2023 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and discusses why they matter to the NET patient community. LISTEN NOW EPISODE 27: WHAT TO KNOW ABOUT NEUROENDOCRINE TUMOR LIVER METASTASES What do you call NETs in the liver? How often do NETs spread and what causes NETs to spread? How do you determine if surgery is an option? Dr Xavier Keutgen from University of Chicago brings clarity to NET tumors found in the liver and describes how surgery fits in with other treatments for metastatic NETs. LISTEN NOW EPISODE 26: WHAT TO KNOW ABOUT LUNG NETS What are lung NETs? What is DIPNECH? How is lung NET similar or different from lung cancer? Dr. Vineeth Sukrithan from Ohio State University Comprehensive Cancer Center gives a comprehensive overview of lung NET and DIPNECH, including the work-up and treatment options. He also discusses open clinical trials and exciting advances in lung NET research on the horizon. LISTEN NOW EPISODE 25: WHAT TO KNOW ABOUT GRADE 3 POORLY DIFFERENTIATED NEUROENDOCRINE CARCINOMA (NEC) What are Grade 3 Poorly Differentiated Neuroendocrine Carcinoma (NEC)? What makes NEC unique? Can a NET transform to NEC? Dr. Nitya Raj from Memorial Sloan Kettering Cancer Center in New York City explains NEC tumor biology and how it guides treatment strategy. She also discusses current clinical trials and research. LISTEN NOW EPISODE 24: WHAT TO KNOW ABOUT GRADE 3 WELL-DIFFERENTIATED NETS What are grade 3 NETs and how is it different from grade 3 NEC and other types of NETs? Dr. Mohamad (Bassam) Sonbol from Mayo Clinic in Phoenix, Arizona, enlightens us on this fairly new entity, including treatment options, treatment sequencing and clinical trials. LISTEN NOW EPISODE 23: WHAT TO KNOW ABOUT HINDGUT & APPENDICEAL NETS What are Hindgut NETs (distal colon and rectum) and how are they treated? How is rectal NET different from rectal cancer? What makes appendiceal NETs difficult to diagnose? Dr. Hagen Kennecke from Providence Cancer Institute in Portland, Oregon shares insights on the diagnosis and management of hindgut NETs and appendix NET. LISTEN NOW EPISODE 22: WHAT TO KNOW ABOUT PANCREATIC NETS What is the difference between Pancreatic Neuroendocrine Tumor (PNET) and Pancreatic Cancer? Where exactly is the pancreas located and why is the tumor location important? NET Oncologist Dr. Jennifer Chan from Dana-Farber Cancer Institute takes us through how some treatments, imaging and blood work are unique to PNETs. She also expounds on several ongoing and active trials. LISTEN NOW EPISODE 21: WHAT TO KNOW ABOUT SMALL BOWEL NETs How are small bowel NETs diagnosed, treated, and monitored? How is it different from other types of NETs? What are some exciting new treatments for small bowel NETs? NET oncologist Dr. David Zhen of Fred Hutch Cancer Center in Seattle answers 10 common questions about small bowel NETs. LISTEN NOW EPISODE 20: GASTRIC NET, GASTRINOMAS & ZOLLINGER-ELLISON SYMDROME (ZES) Gastroenterologist and Neuroendocrinologist Dr. David C. Metz discusses important concepts in Gastric NET, Gastrinomas and Zollinger-Ellison Syndrome, including detection, treatments, associated risks and monitoring. He also lends valuable insight on ulcers, MEN and proton pump inhibitors. LISTEN NOW EPISODE 19: BEYOND THE BASICS: THE PATHOLOGY OF NET Take a glimpse through the microscope and learn how pathology determines your NET diagnosis and guides treatment. How does one interpret differing Ki-67 results from the same specimen? Why might a patient have two different Ki-67 results from different specimens? How does pathology distinguish G3 well-differentiated NET from NEC? How does pathology help with NET tumors of unknown origin? NET pathologist Dr. Andrew M. Bellizzi from the University of Iowa sheds light on just how much information a tiny tissue sample may contain. LISTEN NOW EPISODE 18: MENTAL HEALTH & NETS What are the common mental health issues associated with NET? How can they be managed? How does NET impact young adults, NET patients and children of NET patients? Health psychologist Dr. Kersting of the Medical College of Wisconsin elaborates on mental health challenges facing NET patients and their loved ones. Hear coping strategies for anxiety, eating and sleeping difficulties, fatigue and depression. Dr. Kersting discusses what you can expect when meeting a mental health professional and why supporting your mental health is an integral part of your overall care. LISTEN NOW EPISODE 17: KEY CONSIDERATIONS FOR NET SURGERY How do surgeons decide the type, extent, and approach of NET surgery? NET surgeon Dr. Alexandra Gangi of Cedars-Sinai answers 10 common questions about what to expect before, during, and after NET surgery. Gain insight on preparing for surgery and what is important for your surgeon to know about your recovery goals. Dr. Gangi’s comprehensive approach illustrates why surgeons are an integral part of your NET medical team. LISTEN NOW EPISODE 16: TOP 10 HIGHLIGHTS OF THE 2022 NANETS SYMPOSIUM In this special episode, Dr. Will Pegna shares 10 new and exciting discoveries from the 2022 North American Neuroendocrine Tumor Society (NANETS) Multidisciplinary NET Medical Symposium. Each year, hundreds of medical professionals gather to share the latest in NET research and medical advances. LACNETS and Dr. Pegna discuss the Symposium highlights and why they matter to the NET community. LISTEN NOW EPISODE 15: PSYCHO-ONCOLOGY What is psycho-oncology and how can it benefit those living with NET? Psychiatrist Dr. Mona Mojtahedzadeh of Simms/Mann UCLA Center for Integrative Oncology discusses whole person care for cancer patients and caregivers. From “scanxiety” to sleep hygiene, she acknowledges the range of challenges of living with cancer and shares solutions to improve mental well-being and overall health. LISTEN NOW EPISODE 14: PALLIATIVE CARE What is palliative care and how does this relate to NET? Palliative care physician Dr. Chandana Banerjee of City of Hope shares insights and tips on communication, coping, and managing grief and loss. LISTEN NOW EPISODE 13: NET ONCOLOGY Is it okay for NET patients to take “statin” medications to lower cholesterol or SSRI medication for depression? How often should full body scans be done? NET oncologist Dr. Jun Gong of Cedars-Sinai Medical Center addresses ten common questions you might ask your NET oncologist along your NET journey. LISTEN NOW EPISODE 12: PHEO & PARA In honor of Pheo Para Awareness Week, NET endocrinologist and medical oncologist Dr. Jaydira Del Rivero of the National Cancer Institute answers ten common questions about pheochromocytoma and paraganglioma (PPGL). Dr. Del Rivero defines PPGL and describes the unique symptoms, genetic testing, and treatment options for PPGL. LISTEN NOW EPISODE 11: PATHOLOGY FOR NETS How do you understand your pathology report? What is tumor grade, differentiation, mitotic index, and ki67? How do you get a second opinion on your pathology? NET expert and pathologist Dr. Sue Chang of City of Hope answers ten common questions about pathology for neuroendocrine tumors. Dr. Chang defines important keywords to help you understand your pathology report which is instrumental in guiding treatment decisions. LISTEN NOW EPISODE 10: PRRT (PART III) How can patients make decisions about where, when, and what kind of PRRT to receive? How does PRRT in the USA differ from other parts of the world? Why does each institution have different post-PRRT radiation safety precautions? Internationally recognized patient advocate and President of NorCal CarciNET Community, Josh Mailman, answers ten common questions about the past, present, and future of PRRT. Josh, whose journey has taken him from PRRT recipient to a seat on the Nuclear Regulatory Commission Advisory Committee, shares from his years of patient advocacy work in nuclear medicine and clarifies some misunderstandings about PRRT LISTEN NOW EPISODE 9: PRRT (PART II) Who is eligible for PRRT? What are the side effects? Should somatostatin analogues be continued? Can PRRT be repeated when there is disease progression? NET expert and Nuclear Medicine Physician Dr. Martin Auerbach of UCLA Health answers 10 common questions about the decision-making process of PRRT. Dr. Auerbach addresses how to manage side effects, carcinoid crisis, labs, and post-PRRT imaging. LISTEN NOW EPISODE 8: PRRT (PART I) Curious about PRRT? Wondering what a PRRT day looks like, what side effects you might experience, and what precautions you should take? NET expert and Administrative Nurse Lindy Gardner of UCLA Health answers 10 common questions about the before, during and after of PRRT. Lindy explains how to prepare for your treatment day, what to expect on the day of the treatment, and radiation precautions following PRRT including travel, vaccinations, and fertility and breastfeeding recommendations. LISTEN NOW EPISODE 7: IMAGING OF NETS Confused about scans? NET expert Dr. Gary Ulaner answers the top 10 questions about imaging for NETs. Dual board-certified in radiology and nuclear medicine, Dr. Ulaner explains different scans used in NET imaging including functional imaging scans such as Gallium-68 DOTATATE, Copper-64 DOTATATE, and FDG PET scans and anatomical scans such as MRI and CT scans. He addresses common questions about radiation safety, contrasts, and SUV. LISTEN NOW EPISODE 6: DECISION-MAKING FOR NETS How do NET experts decide what treatments are right for you? How do I learn about current clinical trials? In our sixth episode, NET expert and medical oncologist Dr. Daneng (Dan) Li of City of Hope answers 10 common questions about decision-making for NETs including finding the primary tumor site, bone mets, tumor grades, and the role of adjuvant therapy. LISTEN NOW EPISODE 5: TREATMENT FOR NETS What are the current treatment options for NETs? How do I know what treatments I should be on? In our fifth episode, NET expert and Medical Oncologist Dr. Randy Hecht of UCLA Health answers 10 common questions about current NET treatment options (including lanreotide, octreotide, everolimus, and PRRT), as well as future treatment options. LISTEN NOW SPECIAL EPISODE: THE LACNETS STORY In this special episode, we share the history of LACNETS – the who, what, and when. We journey down memory lane with eight special guests from before the birth of LACNETS to where it is today. This episode is dedicated to Giovanna Joyce Imbesi , the LACNETS Founder, whose vision and dedication inspires us all. LISTEN NOW EPISODE 4: NET BASICS Newly diagnosed? Or need to brush up on your NET basics? In our fourth podcast episode, medical oncologist and NET expert Dr. Andrew Hendifar of Cedars-Sinai Medical Center addresses 10 common questions including labs, scans, genetic testing, and prognosis. LISTEN NOW EPISODE 3: SURGERY FOR NETS To cut or not to cut? A common crossroad neuroendocrine cancer patients are faced with along their journey. NET surgeon Dr. Gagandeep Singh of City of Hope joins the podcast to answer the top 10 surgery questions for NETs. LISTEN NOW EPISODE 2: DIARRHEA & NETS NET expert and gastroenterologist Dr. David Metz joins us for this month’s episode to answer the top 10 GI questions for NETs. Dr. Metz addresses diarrhea, diet, carcinoid syndrome and effective symptom management. LISTEN NOW EPISODE 1: NUTRITION FOR NETS For our first episode, we welcome NET Dietician Meghan Laszlo, MS, RD, CSO of Cedars-Sinai Medical Center. Meghan answers the top 10 NET nutrition questions, covering topics including carcinoid syndrome, prescription enzymes, diarrhea, and recommended diet. LISTEN NOW THANKS TO OUR SPONSORS

The Neuroendocrine Cancer Foundation Podcast (previously known as the LACNETS Podcast) is a monthly series where we interview neuroendocrine tumor (NET) experts on various NET topics. Each expert will answer the top 10 FAQs in their area of expertise. Whether a listener is newly diagnosed, a longtime NET survivor, or a family member or loved one, the Neuroendocrine Cancer Foundation Podcast serves as a tool to help anyone better understand NET. The Neuroendocrine Cancer Foundation Podcast is also available on Apple Music, Spotify, Google Podcasts, and Amazon Music. A new episode will be released every month. Be sure to subscribe to our podcast to receive notifications when new episodes are released! EPISODE 41: TOP 10 HIGHLIGHTS OF THE 2024 NANETS SYMPOSIUM In this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist Dr. Guillaume (Will) Pegna recaps the North American Neuroendocrine Tumor Society (NANETS) 2024 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and how they matter to the NET patient community. LISTEN NOW EPISODE 40: NEN TREATMENTS: FOCUS ON EXTERNAL RADIATION THERAPY What is radiation oncology, and how is it used for neuroendocrine cancer? UCSF radiation oncologists Dr. Will Chen and Dr. Alexandra Hotca-Cho describe external radiation therapy (SBRT) and how, when, and where it may be used for select patients with neuroendocrine cancers. They address common concerns about the planning process, safety concerns, and treatment sequencing. LISTEN NOW EPISODE 39: NEN TREATMENTS: FOCUS ON LIVER-DIRECTED THERAPIES (Part II: Intra-Arterial Techniques & Sequencing) In this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this second episode, he details the embolization techniques including bland embolization (TAE), chemoembolization (TACE), and radioembolization (TARE, SIRT, y90). He discusses decision-making, sequencing, and follow-up after these procedures. LISTEN NOW EPISODE 38: NEN TREATMENTS: FOCUS ON LIVER-DIRECTED THERAPIES (Part I: Overview and Ablative Techniques Including Histotripsy) In this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this first episode, he outlines the types of liver-directed therapies and elaborates on ablative techniques including the newest technique, histotripsy. Listen to a frank discussion of how histotripsy works, when it might be used, and what its current limitations are. LISTEN NOW EPISODE 37: SUPPORTIVE ONCOLOGY FOR NEUROENDOCRINE CANCER What is supportive care or supportive oncology? What is cancer-related distress? How might NET patients benefit from supportive care? Yale oncologist Dr. Maryam Lustberg suggests strategies to manage cancer-related fatigue, diarrhea, nausea, mouth sores, peripheral neuropathy, distress, anxiety, and anxiety. She also addresses considerations for fertility and sexual health. LISTEN NOW EPISODE 36: NEN TREATMENTS: FOCUS ON IMMUNOTHERAPY What is immunotherapy? How effective are they for neuroendocrine neoplasms (NENs)? Dr. Jennifer Eads from Penn Medicine answers common questions about immunotherapy. She discusses the latest in CAR T therapy, DLL3, and vaccine therapy for NENs. LISTEN NOW EPISODE 35: NEN TREATMENTS: FOCUS ON CHEMOTHERAPY What is chemotherapy? When are they used for neuroendocrine neoplasms (NENs)? Dr. Pamela Kunz from Yale Medicine discusses the benefits, potential side effects and latest advances in chemotherapy for NENs. She explains how it differs from other treatments for NENs and how she counsels patients as they consider chemotherapy. LISTEN NOW EPISODE 34: NET TREATMENTS: FOCUS ON PRRT What is PRRT? How is it different from the more commonly used radiation treatment? What are the possible side effects? Dr. Riham El Khouli from the University of Kentucky in Lexington discusses common questions and concerns about PRRT and shares some of the latest advances. LISTEN NOW EPISODE 33: FOCUS ON TARGETED THERAPIES What are Targeted Therapies and how do they work? How and when would they be used in NETs? Dr. Scott Paulson from Baylor Cancer Center in Dallas discusses common questions and concerns about targeted therapies including side effects, dosing and treatment sequencing. Bonus: Dr. Paulson shares how we can learn from Harry Potter’s invisibility cloak in understanding treatment goals with NETs. LISTEN NOW EPISODE 32: FOCUS ON SOMATOSTATIN ANALOGUES (SSAs) How do SSAs work? Should all NET patients be on one? What are the side effects? Dr. Edward Wolin from Mount Sinai Health System answers several common questions about the current and future role of somatostatin analogues in NET treatment. LISTEN NOW EPISODE 31: CLINICAL TRIALS: EXPECTATIONS VS. REALITIES (PART I & II) In this 2-part series, we reprise “Navigating Clinical Trials: Expectations vs Realities” with Taymeyah Al-Toubah. This was previously broadcast on August 19th, 2023, as a LACNETS monthly educational webinar. In Part 1, Taymeyah discusses clinical trial terminology, timeline, questions to ask, and misconceptions. In Part 2, Taymeyah answers questions about logistics and practical aspects of clinical trials, such as costs, response time, and follow-up. She also answers frequently asked questions about PRRT trials, including alpha trials. LISTEN NOW EPISODE 30: BONE & BRAIN METASTASES IN NEUROENDOCRINE CANCER When and how often do NETs spread to the bones or brain? How are they found? What is the treatment? Dr. Robert Ramirez of Vanderbilt University addresses concerns surrounding bone metastases (or “mets”) as well as rare brain metastases. LISTEN NOW EPISODE 29: NUTRITION & DIET CONSIDERATIONS FOR NET NET dietician Sina Teskey from the Medical College of Wisconsin answers common questions about diet and nutrition raised among NET patients and caregivers. She addresses special diets, food restrictions, and whether sugar “feeds” cancer. Sina also speaks to diarrhea, and digestive enzymes and shares tips on how to maintain nutrition and weight. LISTEN NOW EPISODE 28: TOP 10 HIGHLIGHTS OF THE 2023 NANETS SYMPOSIUM In this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist, Dr. Guillaume (Will) Pegna, recaps the North American Neuroendocrine Tumor Society (NANETS) 2023 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and discusses why they matter to the NET patient community. LISTEN NOW EPISODE 27: WHAT TO KNOW ABOUT NEUROENDOCRINE TUMOR LIVER METASTASES What do you call NETs in the liver? How often do NETs spread and what causes NETs to spread? How do you determine if surgery is an option? Dr Xavier Keutgen from University of Chicago brings clarity to NET tumors found in the liver and describes how surgery fits in with other treatments for metastatic NETs. LISTEN NOW EPISODE 26: WHAT TO KNOW ABOUT LUNG NETS What are lung NETs? What is DIPNECH? How is lung NET similar or different from lung cancer? Dr. Vineeth Sukrithan from Ohio State University Comprehensive Cancer Center gives a comprehensive overview of lung NET and DIPNECH, including the work-up and treatment options. He also discusses open clinical trials and exciting advances in lung NET research on the horizon. LISTEN NOW EPISODE 25: WHAT TO KNOW ABOUT GRADE 3 POORLY DIFFERENTIATED NEUROENDOCRINE CARCINOMA (NEC) What are Grade 3 Poorly Differentiated Neuroendocrine Carcinoma (NEC)? What makes NEC unique? Can a NET transform to NEC? Dr. Nitya Raj from Memorial Sloan Kettering Cancer Center in New York City explains NEC tumor biology and how it guides treatment strategy. She also discusses current clinical trials and research. LISTEN NOW EPISODE 24: WHAT TO KNOW ABOUT GRADE 3 WELL-DIFFERENTIATED NETS What are grade 3 NETs and how is it different from grade 3 NEC and other types of NETs? Dr. Mohamad (Bassam) Sonbol from Mayo Clinic in Phoenix, Arizona, enlightens us on this fairly new entity, including treatment options, treatment sequencing and clinical trials. LISTEN NOW EPISODE 23: WHAT TO KNOW ABOUT HINDGUT & APPENDICEAL NETS What are Hindgut NETs (distal colon and rectum) and how are they treated? How is rectal NET different from rectal cancer? What makes appendiceal NETs difficult to diagnose? Dr. Hagen Kennecke from Providence Cancer Institute in Portland, Oregon shares insights on the diagnosis and management of hindgut NETs and appendix NET. LISTEN NOW EPISODE 22: WHAT TO KNOW ABOUT PANCREATIC NETS What is the difference between Pancreatic Neuroendocrine Tumor (PNET) and Pancreatic Cancer? Where exactly is the pancreas located and why is the tumor location important? NET Oncologist Dr. Jennifer Chan from Dana-Farber Cancer Institute takes us through how some treatments, imaging and blood work are unique to PNETs. She also expounds on several ongoing and active trials. LISTEN NOW EPISODE 21: WHAT TO KNOW ABOUT SMALL BOWEL NETs How are small bowel NETs diagnosed, treated, and monitored? How is it different from other types of NETs? What are some exciting new treatments for small bowel NETs? NET oncologist Dr. David Zhen of Fred Hutch Cancer Center in Seattle answers 10 common questions about small bowel NETs. LISTEN NOW EPISODE 20: GASTRIC NET, GASTRINOMAS & ZOLLINGER-ELLISON SYMDROME (ZES) Gastroenterologist and Neuroendocrinologist Dr. David C. Metz discusses important concepts in Gastric NET, Gastrinomas and Zollinger-Ellison Syndrome, including detection, treatments, associated risks and monitoring. He also lends valuable insight on ulcers, MEN and proton pump inhibitors. LISTEN NOW EPISODE 19: BEYOND THE BASICS: THE PATHOLOGY OF NET Take a glimpse through the microscope and learn how pathology determines your NET diagnosis and guides treatment. How does one interpret differing Ki-67 results from the same specimen? Why might a patient have two different Ki-67 results from different specimens? How does pathology distinguish G3 well-differentiated NET from NEC? How does pathology help with NET tumors of unknown origin? NET pathologist Dr. Andrew M. Bellizzi from the University of Iowa sheds light on just how much information a tiny tissue sample may contain. LISTEN NOW EPISODE 18: MENTAL HEALTH & NETS What are the common mental health issues associated with NET? How can they be managed? How does NET impact young adults, NET patients and children of NET patients? Health psychologist Dr. Kersting of the Medical College of Wisconsin elaborates on mental health challenges facing NET patients and their loved ones. Hear coping strategies for anxiety, eating and sleeping difficulties, fatigue and depression. Dr. Kersting discusses what you can expect when meeting a mental health professional and why supporting your mental health is an integral part of your overall care. LISTEN NOW EPISODE 17: KEY CONSIDERATIONS FOR NET SURGERY How do surgeons decide the type, extent, and approach of NET surgery? NET surgeon Dr. Alexandra Gangi of Cedars-Sinai answers 10 common questions about what to expect before, during, and after NET surgery. Gain insight on preparing for surgery and what is important for your surgeon to know about your recovery goals. Dr. Gangi’s comprehensive approach illustrates why surgeons are an integral part of your NET medical team. LISTEN NOW EPISODE 16: TOP 10 HIGHLIGHTS OF THE 2022 NANETS SYMPOSIUM In this special episode, Dr. Will Pegna shares 10 new and exciting discoveries from the 2022 North American Neuroendocrine Tumor Society (NANETS) Multidisciplinary NET Medical Symposium. Each year, hundreds of medical professionals gather to share the latest in NET research and medical advances. LACNETS and Dr. Pegna discuss the Symposium highlights and why they matter to the NET community. LISTEN NOW EPISODE 15: PSYCHO-ONCOLOGY What is psycho-oncology and how can it benefit those living with NET? Psychiatrist Dr. Mona Mojtahedzadeh of Simms/Mann UCLA Center for Integrative Oncology discusses whole person care for cancer patients and caregivers. From “scanxiety” to sleep hygiene, she acknowledges the range of challenges of living with cancer and shares solutions to improve mental well-being and overall health. LISTEN NOW EPISODE 14: PALLIATIVE CARE What is palliative care and how does this relate to NET? Palliative care physician Dr. Chandana Banerjee of City of Hope shares insights and tips on communication, coping, and managing grief and loss. LISTEN NOW EPISODE 13: NET ONCOLOGY Is it okay for NET patients to take “statin” medications to lower cholesterol or SSRI medication for depression? How often should full body scans be done? NET oncologist Dr. Jun Gong of Cedars-Sinai Medical Center addresses ten common questions you might ask your NET oncologist along your NET journey. LISTEN NOW EPISODE 12: PHEO & PARA In honor of Pheo Para Awareness Week, NET endocrinologist and medical oncologist Dr. Jaydira Del Rivero of the National Cancer Institute answers ten common questions about pheochromocytoma and paraganglioma (PPGL). Dr. Del Rivero defines PPGL and describes the unique symptoms, genetic testing, and treatment options for PPGL. LISTEN NOW EPISODE 11: PATHOLOGY FOR NETS How do you understand your pathology report? What is tumor grade, differentiation, mitotic index, and ki67? How do you get a second opinion on your pathology? NET expert and pathologist Dr. Sue Chang of City of Hope answers ten common questions about pathology for neuroendocrine tumors. Dr. Chang defines important keywords to help you understand your pathology report which is instrumental in guiding treatment decisions. LISTEN NOW EPISODE 10: PRRT (PART III) How can patients make decisions about where, when, and what kind of PRRT to receive? How does PRRT in the USA differ from other parts of the world? Why does each institution have different post-PRRT radiation safety precautions? Internationally recognized patient advocate and President of NorCal CarciNET Community, Josh Mailman, answers ten common questions about the past, present, and future of PRRT. Josh, whose journey has taken him from PRRT recipient to a seat on the Nuclear Regulatory Commission Advisory Committee, shares from his years of patient advocacy work in nuclear medicine and clarifies some misunderstandings about PRRT LISTEN NOW EPISODE 9: PRRT (PART II) Who is eligible for PRRT? What are the side effects? Should somatostatin analogues be continued? Can PRRT be repeated when there is disease progression? NET expert and Nuclear Medicine Physician Dr. Martin Auerbach of UCLA Health answers 10 common questions about the decision-making process of PRRT. Dr. Auerbach addresses how to manage side effects, carcinoid crisis, labs, and post-PRRT imaging. LISTEN NOW EPISODE 8: PRRT (PART I) Curious about PRRT? Wondering what a PRRT day looks like, what side effects you might experience, and what precautions you should take? NET expert and Administrative Nurse Lindy Gardner of UCLA Health answers 10 common questions about the before, during and after of PRRT. Lindy explains how to prepare for your treatment day, what to expect on the day of the treatment, and radiation precautions following PRRT including travel, vaccinations, and fertility and breastfeeding recommendations. LISTEN NOW EPISODE 7: IMAGING OF NETS Confused about scans? NET expert Dr. Gary Ulaner answers the top 10 questions about imaging for NETs. Dual board-certified in radiology and nuclear medicine, Dr. Ulaner explains different scans used in NET imaging including functional imaging scans such as Gallium-68 DOTATATE, Copper-64 DOTATATE, and FDG PET scans and anatomical scans such as MRI and CT scans. He addresses common questions about radiation safety, contrasts, and SUV. LISTEN NOW EPISODE 6: DECISION-MAKING FOR NETS How do NET experts decide what treatments are right for you? How do I learn about current clinical trials? In our sixth episode, NET expert and medical oncologist Dr. Daneng (Dan) Li of City of Hope answers 10 common questions about decision-making for NETs including finding the primary tumor site, bone mets, tumor grades, and the role of adjuvant therapy. LISTEN NOW EPISODE 5: TREATMENT FOR NETS What are the current treatment options for NETs? How do I know what treatments I should be on? In our fifth episode, NET expert and Medical Oncologist Dr. Randy Hecht of UCLA Health answers 10 common questions about current NET treatment options (including lanreotide, octreotide, everolimus, and PRRT), as well as future treatment options. LISTEN NOW SPECIAL EPISODE: THE LACNETS STORY In this special episode, we share the history of LACNETS – the who, what, and when. We journey down memory lane with eight special guests from before the birth of LACNETS to where it is today. This episode is dedicated to Giovanna Joyce Imbesi , the LACNETS Founder, whose vision and dedication inspires us all. LISTEN NOW EPISODE 4: NET BASICS Newly diagnosed? Or need to brush up on your NET basics? In our fourth podcast episode, medical oncologist and NET expert Dr. Andrew Hendifar of Cedars-Sinai Medical Center addresses 10 common questions including labs, scans, genetic testing, and prognosis. LISTEN NOW EPISODE 3: SURGERY FOR NETS To cut or not to cut? A common crossroad neuroendocrine cancer patients are faced with along their journey. NET surgeon Dr. Gagandeep Singh of City of Hope joins the podcast to answer the top 10 surgery questions for NETs. LISTEN NOW EPISODE 2: DIARRHEA & NETS NET expert and gastroenterologist Dr. David Metz joins us for this month’s episode to answer the top 10 GI questions for NETs. Dr. Metz addresses diarrhea, diet, carcinoid syndrome and effective symptom management. LISTEN NOW EPISODE 1: NUTRITION FOR NETS For our first episode, we welcome NET Dietician Meghan Laszlo, MS, RD, CSO of Cedars-Sinai Medical Center. Meghan answers the top 10 NET nutrition questions, covering topics including carcinoid syndrome, prescription enzymes, diarrhea, and recommended diet. LISTEN NOW THANKS TO OUR SPONSORS

The Neuroendocrine Cancer Foundation Podcast (previously known as the LACNETS Podcast) is a monthly series where we interview neuroendocrine tumor (NET) experts on various NET topics. Each expert will answer the top 10 FAQs in their area of expertise. Whether a listener is newly diagnosed, a longtime NET survivor, or a family member or loved one, the Neuroendocrine Cancer Foundation Podcast serves as a tool to help anyone better understand NET. The Neuroendocrine Cancer Foundation Podcast is also available on Apple Music, Spotify, Google Podcasts, and Amazon Music. A new episode will be released every month. Be sure to subscribe to our podcast to receive notifications when new episodes are released! EPISODE 41: TOP 10 HIGHLIGHTS OF THE 2024 NANETS SYMPOSIUM In this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist Dr. Guillaume (Will) Pegna recaps the North American Neuroendocrine Tumor Society (NANETS) 2024 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and how they matter to the NET patient community. LISTEN NOW EPISODE 40: NEN TREATMENTS: FOCUS ON EXTERNAL RADIATION THERAPY What is radiation oncology, and how is it used for neuroendocrine cancer? UCSF radiation oncologists Dr. Will Chen and Dr. Alexandra Hotca-Cho describe external radiation therapy (SBRT) and how, when, and where it may be used for select patients with neuroendocrine cancers. They address common concerns about the planning process, safety concerns, and treatment sequencing. LISTEN NOW EPISODE 39: NEN TREATMENTS: FOCUS ON LIVER-DIRECTED THERAPIES (Part II: Intra-Arterial Techniques & Sequencing) In this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this second episode, he details the embolization techniques including bland embolization (TAE), chemoembolization (TACE), and radioembolization (TARE, SIRT, y90). He discusses decision-making, sequencing, and follow-up after these procedures. LISTEN NOW EPISODE 38: NEN TREATMENTS: FOCUS ON LIVER-DIRECTED THERAPIES (Part I: Overview and Ablative Techniques Including Histotripsy) In this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this first episode, he outlines the types of liver-directed therapies and elaborates on ablative techniques including the newest technique, histotripsy. Listen to a frank discussion of how histotripsy works, when it might be used, and what its current limitations are. LISTEN NOW EPISODE 37: SUPPORTIVE ONCOLOGY FOR NEUROENDOCRINE CANCER What is supportive care or supportive oncology? What is cancer-related distress? How might NET patients benefit from supportive care? Yale oncologist Dr. Maryam Lustberg suggests strategies to manage cancer-related fatigue, diarrhea, nausea, mouth sores, peripheral neuropathy, distress, anxiety, and anxiety. She also addresses considerations for fertility and sexual health. LISTEN NOW EPISODE 36: NEN TREATMENTS: FOCUS ON IMMUNOTHERAPY What is immunotherapy? How effective are they for neuroendocrine neoplasms (NENs)? Dr. Jennifer Eads from Penn Medicine answers common questions about immunotherapy. She discusses the latest in CAR T therapy, DLL3, and vaccine therapy for NENs. LISTEN NOW EPISODE 35: NEN TREATMENTS: FOCUS ON CHEMOTHERAPY What is chemotherapy? When are they used for neuroendocrine neoplasms (NENs)? Dr. Pamela Kunz from Yale Medicine discusses the benefits, potential side effects and latest advances in chemotherapy for NENs. She explains how it differs from other treatments for NENs and how she counsels patients as they consider chemotherapy. LISTEN NOW EPISODE 34: NET TREATMENTS: FOCUS ON PRRT What is PRRT? How is it different from the more commonly used radiation treatment? What are the possible side effects? Dr. Riham El Khouli from the University of Kentucky in Lexington discusses common questions and concerns about PRRT and shares some of the latest advances. LISTEN NOW EPISODE 33: FOCUS ON TARGETED THERAPIES What are Targeted Therapies and how do they work? How and when would they be used in NETs? Dr. Scott Paulson from Baylor Cancer Center in Dallas discusses common questions and concerns about targeted therapies including side effects, dosing and treatment sequencing. Bonus: Dr. Paulson shares how we can learn from Harry Potter’s invisibility cloak in understanding treatment goals with NETs. LISTEN NOW EPISODE 32: FOCUS ON SOMATOSTATIN ANALOGUES (SSAs) How do SSAs work? Should all NET patients be on one? What are the side effects? Dr. Edward Wolin from Mount Sinai Health System answers several common questions about the current and future role of somatostatin analogues in NET treatment. LISTEN NOW EPISODE 31: CLINICAL TRIALS: EXPECTATIONS VS. REALITIES (PART I & II) In this 2-part series, we reprise “Navigating Clinical Trials: Expectations vs Realities” with Taymeyah Al-Toubah. This was previously broadcast on August 19th, 2023, as a LACNETS monthly educational webinar. In Part 1, Taymeyah discusses clinical trial terminology, timeline, questions to ask, and misconceptions. In Part 2, Taymeyah answers questions about logistics and practical aspects of clinical trials, such as costs, response time, and follow-up. She also answers frequently asked questions about PRRT trials, including alpha trials. LISTEN NOW EPISODE 30: BONE & BRAIN METASTASES IN NEUROENDOCRINE CANCER When and how often do NETs spread to the bones or brain? How are they found? What is the treatment? Dr. Robert Ramirez of Vanderbilt University addresses concerns surrounding bone metastases (or “mets”) as well as rare brain metastases. LISTEN NOW EPISODE 29: NUTRITION & DIET CONSIDERATIONS FOR NET NET dietician Sina Teskey from the Medical College of Wisconsin answers common questions about diet and nutrition raised among NET patients and caregivers. She addresses special diets, food restrictions, and whether sugar “feeds” cancer. Sina also speaks to diarrhea, and digestive enzymes and shares tips on how to maintain nutrition and weight. LISTEN NOW EPISODE 28: TOP 10 HIGHLIGHTS OF THE 2023 NANETS SYMPOSIUM In this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist, Dr. Guillaume (Will) Pegna, recaps the North American Neuroendocrine Tumor Society (NANETS) 2023 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and discusses why they matter to the NET patient community. LISTEN NOW EPISODE 27: WHAT TO KNOW ABOUT NEUROENDOCRINE TUMOR LIVER METASTASES What do you call NETs in the liver? How often do NETs spread and what causes NETs to spread? How do you determine if surgery is an option? Dr Xavier Keutgen from University of Chicago brings clarity to NET tumors found in the liver and describes how surgery fits in with other treatments for metastatic NETs. LISTEN NOW EPISODE 26: WHAT TO KNOW ABOUT LUNG NETS What are lung NETs? What is DIPNECH? How is lung NET similar or different from lung cancer? Dr. Vineeth Sukrithan from Ohio State University Comprehensive Cancer Center gives a comprehensive overview of lung NET and DIPNECH, including the work-up and treatment options. He also discusses open clinical trials and exciting advances in lung NET research on the horizon. LISTEN NOW EPISODE 25: WHAT TO KNOW ABOUT GRADE 3 POORLY DIFFERENTIATED NEUROENDOCRINE CARCINOMA (NEC) What are Grade 3 Poorly Differentiated Neuroendocrine Carcinoma (NEC)? What makes NEC unique? Can a NET transform to NEC? Dr. Nitya Raj from Memorial Sloan Kettering Cancer Center in New York City explains NEC tumor biology and how it guides treatment strategy. She also discusses current clinical trials and research. LISTEN NOW EPISODE 24: WHAT TO KNOW ABOUT GRADE 3 WELL-DIFFERENTIATED NETS What are grade 3 NETs and how is it different from grade 3 NEC and other types of NETs? Dr. Mohamad (Bassam) Sonbol from Mayo Clinic in Phoenix, Arizona, enlightens us on this fairly new entity, including treatment options, treatment sequencing and clinical trials. LISTEN NOW EPISODE 23: WHAT TO KNOW ABOUT HINDGUT & APPENDICEAL NETS What are Hindgut NETs (distal colon and rectum) and how are they treated? How is rectal NET different from rectal cancer? What makes appendiceal NETs difficult to diagnose? Dr. Hagen Kennecke from Providence Cancer Institute in Portland, Oregon shares insights on the diagnosis and management of hindgut NETs and appendix NET. LISTEN NOW EPISODE 22: WHAT TO KNOW ABOUT PANCREATIC NETS What is the difference between Pancreatic Neuroendocrine Tumor (PNET) and Pancreatic Cancer? Where exactly is the pancreas located and why is the tumor location important? NET Oncologist Dr. Jennifer Chan from Dana-Farber Cancer Institute takes us through how some treatments, imaging and blood work are unique to PNETs. She also expounds on several ongoing and active trials. LISTEN NOW EPISODE 21: WHAT TO KNOW ABOUT SMALL BOWEL NETs How are small bowel NETs diagnosed, treated, and monitored? How is it different from other types of NETs? What are some exciting new treatments for small bowel NETs? NET oncologist Dr. David Zhen of Fred Hutch Cancer Center in Seattle answers 10 common questions about small bowel NETs. LISTEN NOW EPISODE 20: GASTRIC NET, GASTRINOMAS & ZOLLINGER-ELLISON SYMDROME (ZES) Gastroenterologist and Neuroendocrinologist Dr. David C. Metz discusses important concepts in Gastric NET, Gastrinomas and Zollinger-Ellison Syndrome, including detection, treatments, associated risks and monitoring. He also lends valuable insight on ulcers, MEN and proton pump inhibitors. LISTEN NOW EPISODE 19: BEYOND THE BASICS: THE PATHOLOGY OF NET Take a glimpse through the microscope and learn how pathology determines your NET diagnosis and guides treatment. How does one interpret differing Ki-67 results from the same specimen? Why might a patient have two different Ki-67 results from different specimens? How does pathology distinguish G3 well-differentiated NET from NEC? How does pathology help with NET tumors of unknown origin? NET pathologist Dr. Andrew M. Bellizzi from the University of Iowa sheds light on just how much information a tiny tissue sample may contain. LISTEN NOW EPISODE 18: MENTAL HEALTH & NETS What are the common mental health issues associated with NET? How can they be managed? How does NET impact young adults, NET patients and children of NET patients? Health psychologist Dr. Kersting of the Medical College of Wisconsin elaborates on mental health challenges facing NET patients and their loved ones. Hear coping strategies for anxiety, eating and sleeping difficulties, fatigue and depression. Dr. Kersting discusses what you can expect when meeting a mental health professional and why supporting your mental health is an integral part of your overall care. LISTEN NOW EPISODE 17: KEY CONSIDERATIONS FOR NET SURGERY How do surgeons decide the type, extent, and approach of NET surgery? NET surgeon Dr. Alexandra Gangi of Cedars-Sinai answers 10 common questions about what to expect before, during, and after NET surgery. Gain insight on preparing for surgery and what is important for your surgeon to know about your recovery goals. Dr. Gangi’s comprehensive approach illustrates why surgeons are an integral part of your NET medical team. LISTEN NOW EPISODE 16: TOP 10 HIGHLIGHTS OF THE 2022 NANETS SYMPOSIUM In this special episode, Dr. Will Pegna shares 10 new and exciting discoveries from the 2022 North American Neuroendocrine Tumor Society (NANETS) Multidisciplinary NET Medical Symposium. Each year, hundreds of medical professionals gather to share the latest in NET research and medical advances. LACNETS and Dr. Pegna discuss the Symposium highlights and why they matter to the NET community. LISTEN NOW EPISODE 15: PSYCHO-ONCOLOGY What is psycho-oncology and how can it benefit those living with NET? Psychiatrist Dr. Mona Mojtahedzadeh of Simms/Mann UCLA Center for Integrative Oncology discusses whole person care for cancer patients and caregivers. From “scanxiety” to sleep hygiene, she acknowledges the range of challenges of living with cancer and shares solutions to improve mental well-being and overall health. LISTEN NOW EPISODE 14: PALLIATIVE CARE What is palliative care and how does this relate to NET? Palliative care physician Dr. Chandana Banerjee of City of Hope shares insights and tips on communication, coping, and managing grief and loss. LISTEN NOW EPISODE 13: NET ONCOLOGY Is it okay for NET patients to take “statin” medications to lower cholesterol or SSRI medication for depression? How often should full body scans be done? NET oncologist Dr. Jun Gong of Cedars-Sinai Medical Center addresses ten common questions you might ask your NET oncologist along your NET journey. LISTEN NOW EPISODE 12: PHEO & PARA In honor of Pheo Para Awareness Week, NET endocrinologist and medical oncologist Dr. Jaydira Del Rivero of the National Cancer Institute answers ten common questions about pheochromocytoma and paraganglioma (PPGL). Dr. Del Rivero defines PPGL and describes the unique symptoms, genetic testing, and treatment options for PPGL. LISTEN NOW EPISODE 11: PATHOLOGY FOR NETS How do you understand your pathology report? What is tumor grade, differentiation, mitotic index, and ki67? How do you get a second opinion on your pathology? NET expert and pathologist Dr. Sue Chang of City of Hope answers ten common questions about pathology for neuroendocrine tumors. Dr. Chang defines important keywords to help you understand your pathology report which is instrumental in guiding treatment decisions. LISTEN NOW EPISODE 10: PRRT (PART III) How can patients make decisions about where, when, and what kind of PRRT to receive? How does PRRT in the USA differ from other parts of the world? Why does each institution have different post-PRRT radiation safety precautions? Internationally recognized patient advocate and President of NorCal CarciNET Community, Josh Mailman, answers ten common questions about the past, present, and future of PRRT. Josh, whose journey has taken him from PRRT recipient to a seat on the Nuclear Regulatory Commission Advisory Committee, shares from his years of patient advocacy work in nuclear medicine and clarifies some misunderstandings about PRRT LISTEN NOW EPISODE 9: PRRT (PART II) Who is eligible for PRRT? What are the side effects? Should somatostatin analogues be continued? Can PRRT be repeated when there is disease progression? NET expert and Nuclear Medicine Physician Dr. Martin Auerbach of UCLA Health answers 10 common questions about the decision-making process of PRRT. Dr. Auerbach addresses how to manage side effects, carcinoid crisis, labs, and post-PRRT imaging. LISTEN NOW EPISODE 8: PRRT (PART I) Curious about PRRT? Wondering what a PRRT day looks like, what side effects you might experience, and what precautions you should take? NET expert and Administrative Nurse Lindy Gardner of UCLA Health answers 10 common questions about the before, during and after of PRRT. Lindy explains how to prepare for your treatment day, what to expect on the day of the treatment, and radiation precautions following PRRT including travel, vaccinations, and fertility and breastfeeding recommendations. LISTEN NOW EPISODE 7: IMAGING OF NETS Confused about scans? NET expert Dr. Gary Ulaner answers the top 10 questions about imaging for NETs. Dual board-certified in radiology and nuclear medicine, Dr. Ulaner explains different scans used in NET imaging including functional imaging scans such as Gallium-68 DOTATATE, Copper-64 DOTATATE, and FDG PET scans and anatomical scans such as MRI and CT scans. He addresses common questions about radiation safety, contrasts, and SUV. LISTEN NOW EPISODE 6: DECISION-MAKING FOR NETS How do NET experts decide what treatments are right for you? How do I learn about current clinical trials? In our sixth episode, NET expert and medical oncologist Dr. Daneng (Dan) Li of City of Hope answers 10 common questions about decision-making for NETs including finding the primary tumor site, bone mets, tumor grades, and the role of adjuvant therapy. LISTEN NOW EPISODE 5: TREATMENT FOR NETS What are the current treatment options for NETs? How do I know what treatments I should be on? In our fifth episode, NET expert and Medical Oncologist Dr. Randy Hecht of UCLA Health answers 10 common questions about current NET treatment options (including lanreotide, octreotide, everolimus, and PRRT), as well as future treatment options. LISTEN NOW SPECIAL EPISODE: THE LACNETS STORY In this special episode, we share the history of LACNETS – the who, what, and when. We journey down memory lane with eight special guests from before the birth of LACNETS to where it is today. This episode is dedicated to Giovanna Joyce Imbesi , the LACNETS Founder, whose vision and dedication inspires us all. LISTEN NOW EPISODE 4: NET BASICS Newly diagnosed? Or need to brush up on your NET basics? In our fourth podcast episode, medical oncologist and NET expert Dr. Andrew Hendifar of Cedars-Sinai Medical Center addresses 10 common questions including labs, scans, genetic testing, and prognosis. LISTEN NOW EPISODE 3: SURGERY FOR NETS To cut or not to cut? A common crossroad neuroendocrine cancer patients are faced with along their journey. NET surgeon Dr. Gagandeep Singh of City of Hope joins the podcast to answer the top 10 surgery questions for NETs. LISTEN NOW EPISODE 2: DIARRHEA & NETS NET expert and gastroenterologist Dr. David Metz joins us for this month’s episode to answer the top 10 GI questions for NETs. Dr. Metz addresses diarrhea, diet, carcinoid syndrome and effective symptom management. LISTEN NOW EPISODE 1: NUTRITION FOR NETS For our first episode, we welcome NET Dietician Meghan Laszlo, MS, RD, CSO of Cedars-Sinai Medical Center. Meghan answers the top 10 NET nutrition questions, covering topics including carcinoid syndrome, prescription enzymes, diarrhea, and recommended diet. LISTEN NOW THANKS TO OUR SPONSORS

The Neuroendocrine Cancer Foundation Podcast (previously known as the LACNETS Podcast) is a monthly series where we interview neuroendocrine tumor (NET) experts on various NET topics. Each expert will answer the top 10 FAQs in their area of expertise. Whether a listener is newly diagnosed, a longtime NET survivor, or a family member or loved one, the Neuroendocrine Cancer Foundation Podcast serves as a tool to help anyone better understand NET. The Neuroendocrine Cancer Foundation Podcast is also available on Apple Music, Spotify, Google Podcasts, and Amazon Music. A new episode will be released every month. Be sure to subscribe to our podcast to receive notifications when new episodes are released! EPISODE 41: TOP 10 HIGHLIGHTS OF THE 2024 NANETS SYMPOSIUM In this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist Dr. Guillaume (Will) Pegna recaps the North American Neuroendocrine Tumor Society (NANETS) 2024 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and how they matter to the NET patient community. LISTEN NOW EPISODE 40: NEN TREATMENTS: FOCUS ON EXTERNAL RADIATION THERAPY What is radiation oncology, and how is it used for neuroendocrine cancer? UCSF radiation oncologists Dr. Will Chen and Dr. Alexandra Hotca-Cho describe external radiation therapy (SBRT) and how, when, and where it may be used for select patients with neuroendocrine cancers. They address common concerns about the planning process, safety concerns, and treatment sequencing. LISTEN NOW EPISODE 39: NEN TREATMENTS: FOCUS ON LIVER-DIRECTED THERAPIES (Part II: Intra-Arterial Techniques & Sequencing) In this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this second episode, he details the embolization techniques including bland embolization (TAE), chemoembolization (TACE), and radioembolization (TARE, SIRT, y90). He discusses decision-making, sequencing, and follow-up after these procedures. LISTEN NOW EPISODE 38: NEN TREATMENTS: FOCUS ON LIVER-DIRECTED THERAPIES (Part I: Overview and Ablative Techniques Including Histotripsy) In this 2-part series, Dr. Osman Ahmed from University of Chicago covers liver-directed therapies for neuroendocrine neoplasms (NENs or neuroendocrine cancer). In this first episode, he outlines the types of liver-directed therapies and elaborates on ablative techniques including the newest technique, histotripsy. Listen to a frank discussion of how histotripsy works, when it might be used, and what its current limitations are. LISTEN NOW EPISODE 37: SUPPORTIVE ONCOLOGY FOR NEUROENDOCRINE CANCER What is supportive care or supportive oncology? What is cancer-related distress? How might NET patients benefit from supportive care? Yale oncologist Dr. Maryam Lustberg suggests strategies to manage cancer-related fatigue, diarrhea, nausea, mouth sores, peripheral neuropathy, distress, anxiety, and anxiety. She also addresses considerations for fertility and sexual health. LISTEN NOW EPISODE 36: NEN TREATMENTS: FOCUS ON IMMUNOTHERAPY What is immunotherapy? How effective are they for neuroendocrine neoplasms (NENs)? Dr. Jennifer Eads from Penn Medicine answers common questions about immunotherapy. She discusses the latest in CAR T therapy, DLL3, and vaccine therapy for NENs. LISTEN NOW EPISODE 35: NEN TREATMENTS: FOCUS ON CHEMOTHERAPY What is chemotherapy? When are they used for neuroendocrine neoplasms (NENs)? Dr. Pamela Kunz from Yale Medicine discusses the benefits, potential side effects and latest advances in chemotherapy for NENs. She explains how it differs from other treatments for NENs and how she counsels patients as they consider chemotherapy. LISTEN NOW EPISODE 34: NET TREATMENTS: FOCUS ON PRRT What is PRRT? How is it different from the more commonly used radiation treatment? What are the possible side effects? Dr. Riham El Khouli from the University of Kentucky in Lexington discusses common questions and concerns about PRRT and shares some of the latest advances. LISTEN NOW EPISODE 33: FOCUS ON TARGETED THERAPIES What are Targeted Therapies and how do they work? How and when would they be used in NETs? Dr. Scott Paulson from Baylor Cancer Center in Dallas discusses common questions and concerns about targeted therapies including side effects, dosing and treatment sequencing. Bonus: Dr. Paulson shares how we can learn from Harry Potter’s invisibility cloak in understanding treatment goals with NETs. LISTEN NOW EPISODE 32: FOCUS ON SOMATOSTATIN ANALOGUES (SSAs) How do SSAs work? Should all NET patients be on one? What are the side effects? Dr. Edward Wolin from Mount Sinai Health System answers several common questions about the current and future role of somatostatin analogues in NET treatment. LISTEN NOW EPISODE 31: CLINICAL TRIALS: EXPECTATIONS VS. REALITIES (PART I & II) In this 2-part series, we reprise “Navigating Clinical Trials: Expectations vs Realities” with Taymeyah Al-Toubah. This was previously broadcast on August 19th, 2023, as a LACNETS monthly educational webinar. In Part 1, Taymeyah discusses clinical trial terminology, timeline, questions to ask, and misconceptions. In Part 2, Taymeyah answers questions about logistics and practical aspects of clinical trials, such as costs, response time, and follow-up. She also answers frequently asked questions about PRRT trials, including alpha trials. LISTEN NOW EPISODE 30: BONE & BRAIN METASTASES IN NEUROENDOCRINE CANCER When and how often do NETs spread to the bones or brain? How are they found? What is the treatment? Dr. Robert Ramirez of Vanderbilt University addresses concerns surrounding bone metastases (or “mets”) as well as rare brain metastases. LISTEN NOW EPISODE 29: NUTRITION & DIET CONSIDERATIONS FOR NET NET dietician Sina Teskey from the Medical College of Wisconsin answers common questions about diet and nutrition raised among NET patients and caregivers. She addresses special diets, food restrictions, and whether sugar “feeds” cancer. Sina also speaks to diarrhea, and digestive enzymes and shares tips on how to maintain nutrition and weight. LISTEN NOW EPISODE 28: TOP 10 HIGHLIGHTS OF THE 2023 NANETS SYMPOSIUM In this special episode, Oregon Health & Sciences University (OHSU) Medical oncologist, Dr. Guillaume (Will) Pegna, recaps the North American Neuroendocrine Tumor Society (NANETS) 2023 Multidisciplinary NET Medical Symposium. He shares the latest developments in NET research and medical advances from the conference and discusses why they matter to the NET patient community. LISTEN NOW EPISODE 27: WHAT TO KNOW ABOUT NEUROENDOCRINE TUMOR LIVER METASTASES What do you call NETs in the liver? How often do NETs spread and what causes NETs to spread? How do you determine if surgery is an option? Dr Xavier Keutgen from University of Chicago brings clarity to NET tumors found in the liver and describes how surgery fits in with other treatments for metastatic NETs. LISTEN NOW EPISODE 26: WHAT TO KNOW ABOUT LUNG NETS What are lung NETs? What is DIPNECH? How is lung NET similar or different from lung cancer? Dr. Vineeth Sukrithan from Ohio State University Comprehensive Cancer Center gives a comprehensive overview of lung NET and DIPNECH, including the work-up and treatment options. He also discusses open clinical trials and exciting advances in lung NET research on the horizon. LISTEN NOW EPISODE 25: WHAT TO KNOW ABOUT GRADE 3 POORLY DIFFERENTIATED NEUROENDOCRINE CARCINOMA (NEC) What are Grade 3 Poorly Differentiated Neuroendocrine Carcinoma (NEC)? What makes NEC unique? Can a NET transform to NEC? Dr. Nitya Raj from Memorial Sloan Kettering Cancer Center in New York City explains NEC tumor biology and how it guides treatment strategy. She also discusses current clinical trials and research. LISTEN NOW EPISODE 24: WHAT TO KNOW ABOUT GRADE 3 WELL-DIFFERENTIATED NETS What are grade 3 NETs and how is it different from grade 3 NEC and other types of NETs? Dr. Mohamad (Bassam) Sonbol from Mayo Clinic in Phoenix, Arizona, enlightens us on this fairly new entity, including treatment options, treatment sequencing and clinical trials. LISTEN NOW EPISODE 23: WHAT TO KNOW ABOUT HINDGUT & APPENDICEAL NETS What are Hindgut NETs (distal colon and rectum) and how are they treated? How is rectal NET different from rectal cancer? What makes appendiceal NETs difficult to diagnose? Dr. Hagen Kennecke from Providence Cancer Institute in Portland, Oregon shares insights on the diagnosis and management of hindgut NETs and appendix NET. LISTEN NOW EPISODE 22: WHAT TO KNOW ABOUT PANCREATIC NETS What is the difference between Pancreatic Neuroendocrine Tumor (PNET) and Pancreatic Cancer? Where exactly is the pancreas located and why is the tumor location important? NET Oncologist Dr. Jennifer Chan from Dana-Farber Cancer Institute takes us through how some treatments, imaging and blood work are unique to PNETs. She also expounds on several ongoing and active trials. LISTEN NOW EPISODE 21: WHAT TO KNOW ABOUT SMALL BOWEL NETs How are small bowel NETs diagnosed, treated, and monitored? How is it different from other types of NETs? What are some exciting new treatments for small bowel NETs? NET oncologist Dr. David Zhen of Fred Hutch Cancer Center in Seattle answers 10 common questions about small bowel NETs. LISTEN NOW EPISODE 20: GASTRIC NET, GASTRINOMAS & ZOLLINGER-ELLISON SYMDROME (ZES) Gastroenterologist and Neuroendocrinologist Dr. David C. Metz discusses important concepts in Gastric NET, Gastrinomas and Zollinger-Ellison Syndrome, including detection, treatments, associated risks and monitoring. He also lends valuable insight on ulcers, MEN and proton pump inhibitors. LISTEN NOW EPISODE 19: BEYOND THE BASICS: THE PATHOLOGY OF NET Take a glimpse through the microscope and learn how pathology determines your NET diagnosis and guides treatment. How does one interpret differing Ki-67 results from the same specimen? Why might a patient have two different Ki-67 results from different specimens? How does pathology distinguish G3 well-differentiated NET from NEC? How does pathology help with NET tumors of unknown origin? NET pathologist Dr. Andrew M. Bellizzi from the University of Iowa sheds light on just how much information a tiny tissue sample may contain. LISTEN NOW EPISODE 18: MENTAL HEALTH & NETS What are the common mental health issues associated with NET? How can they be managed? How does NET impact young adults, NET patients and children of NET patients? Health psychologist Dr. Kersting of the Medical College of Wisconsin elaborates on mental health challenges facing NET patients and their loved ones. Hear coping strategies for anxiety, eating and sleeping difficulties, fatigue and depression. Dr. Kersting discusses what you can expect when meeting a mental health professional and why supporting your mental health is an integral part of your overall care. LISTEN NOW EPISODE 17: KEY CONSIDERATIONS FOR NET SURGERY How do surgeons decide the type, extent, and approach of NET surgery? NET surgeon Dr. Alexandra Gangi of Cedars-Sinai answers 10 common questions about what to expect before, during, and after NET surgery. Gain insight on preparing for surgery and what is important for your surgeon to know about your recovery goals. Dr. Gangi’s comprehensive approach illustrates why surgeons are an integral part of your NET medical team. LISTEN NOW EPISODE 16: TOP 10 HIGHLIGHTS OF THE 2022 NANETS SYMPOSIUM In this special episode, Dr. Will Pegna shares 10 new and exciting discoveries from the 2022 North American Neuroendocrine Tumor Society (NANETS) Multidisciplinary NET Medical Symposium. Each year, hundreds of medical professionals gather to share the latest in NET research and medical advances. LACNETS and Dr. Pegna discuss the Symposium highlights and why they matter to the NET community. LISTEN NOW EPISODE 15: PSYCHO-ONCOLOGY What is psycho-oncology and how can it benefit those living with NET? Psychiatrist Dr. Mona Mojtahedzadeh of Simms/Mann UCLA Center for Integrative Oncology discusses whole person care for cancer patients and caregivers. From “scanxiety” to sleep hygiene, she acknowledges the range of challenges of living with cancer and shares solutions to improve mental well-being and overall health. LISTEN NOW EPISODE 14: PALLIATIVE CARE What is palliative care and how does this relate to NET? Palliative care physician Dr. Chandana Banerjee of City of Hope shares insights and tips on communication, coping, and managing grief and loss. LISTEN NOW EPISODE 13: NET ONCOLOGY Is it okay for NET patients to take “statin” medications to lower cholesterol or SSRI medication for depression? How often should full body scans be done? NET oncologist Dr. Jun Gong of Cedars-Sinai Medical Center addresses ten common questions you might ask your NET oncologist along your NET journey. LISTEN NOW EPISODE 12: PHEO & PARA In honor of Pheo Para Awareness Week, NET endocrinologist and medical oncologist Dr. Jaydira Del Rivero of the National Cancer Institute answers ten common questions about pheochromocytoma and paraganglioma (PPGL). Dr. Del Rivero defines PPGL and describes the unique symptoms, genetic testing, and treatment options for PPGL. LISTEN NOW EPISODE 11: PATHOLOGY FOR NETS How do you understand your pathology report? What is tumor grade, differentiation, mitotic index, and ki67? How do you get a second opinion on your pathology? NET expert and pathologist Dr. Sue Chang of City of Hope answers ten common questions about pathology for neuroendocrine tumors. Dr. Chang defines important keywords to help you understand your pathology report which is instrumental in guiding treatment decisions. LISTEN NOW EPISODE 10: PRRT (PART III) How can patients make decisions about where, when, and what kind of PRRT to receive? How does PRRT in the USA differ from other parts of the world? Why does each institution have different post-PRRT radiation safety precautions? Internationally recognized patient advocate and President of NorCal CarciNET Community, Josh Mailman, answers ten common questions about the past, present, and future of PRRT. Josh, whose journey has taken him from PRRT recipient to a seat on the Nuclear Regulatory Commission Advisory Committee, shares from his years of patient advocacy work in nuclear medicine and clarifies some misunderstandings about PRRT LISTEN NOW EPISODE 9: PRRT (PART II) Who is eligible for PRRT? What are the side effects? Should somatostatin analogues be continued? Can PRRT be repeated when there is disease progression? NET expert and Nuclear Medicine Physician Dr. Martin Auerbach of UCLA Health answers 10 common questions about the decision-making process of PRRT. Dr. Auerbach addresses how to manage side effects, carcinoid crisis, labs, and post-PRRT imaging. LISTEN NOW EPISODE 8: PRRT (PART I) Curious about PRRT? Wondering what a PRRT day looks like, what side effects you might experience, and what precautions you should take? NET expert and Administrative Nurse Lindy Gardner of UCLA Health answers 10 common questions about the before, during and after of PRRT. Lindy explains how to prepare for your treatment day, what to expect on the day of the treatment, and radiation precautions following PRRT including travel, vaccinations, and fertility and breastfeeding recommendations. LISTEN NOW EPISODE 7: IMAGING OF NETS Confused about scans? NET expert Dr. Gary Ulaner answers the top 10 questions about imaging for NETs. Dual board-certified in radiology and nuclear medicine, Dr. Ulaner explains different scans used in NET imaging including functional imaging scans such as Gallium-68 DOTATATE, Copper-64 DOTATATE, and FDG PET scans and anatomical scans such as MRI and CT scans. He addresses common questions about radiation safety, contrasts, and SUV. LISTEN NOW EPISODE 6: DECISION-MAKING FOR NETS How do NET experts decide what treatments are right for you? How do I learn about current clinical trials? In our sixth episode, NET expert and medical oncologist Dr. Daneng (Dan) Li of City of Hope answers 10 common questions about decision-making for NETs including finding the primary tumor site, bone mets, tumor grades, and the role of adjuvant therapy. LISTEN NOW EPISODE 5: TREATMENT FOR NETS What are the current treatment options for NETs? How do I know what treatments I should be on? In our fifth episode, NET expert and Medical Oncologist Dr. Randy Hecht of UCLA Health answers 10 common questions about current NET treatment options (including lanreotide, octreotide, everolimus, and PRRT), as well as future treatment options. LISTEN NOW SPECIAL EPISODE: THE LACNETS STORY In this special episode, we share the history of LACNETS – the who, what, and when. We journey down memory lane with eight special guests from before the birth of LACNETS to where it is today. This episode is dedicated to Giovanna Joyce Imbesi , the LACNETS Founder, whose vision and dedication inspires us all. LISTEN NOW EPISODE 4: NET BASICS Newly diagnosed? Or need to brush up on your NET basics? In our fourth podcast episode, medical oncologist and NET expert Dr. Andrew Hendifar of Cedars-Sinai Medical Center addresses 10 common questions including labs, scans, genetic testing, and prognosis. LISTEN NOW EPISODE 3: SURGERY FOR NETS To cut or not to cut? A common crossroad neuroendocrine cancer patients are faced with along their journey. NET surgeon Dr. Gagandeep Singh of City of Hope joins the podcast to answer the top 10 surgery questions for NETs. LISTEN NOW EPISODE 2: DIARRHEA & NETS NET expert and gastroenterologist Dr. David Metz joins us for this month’s episode to answer the top 10 GI questions for NETs. Dr. Metz addresses diarrhea, diet, carcinoid syndrome and effective symptom management. LISTEN NOW EPISODE 1: NUTRITION FOR NETS For our first episode, we welcome NET Dietician Meghan Laszlo, MS, RD, CSO of Cedars-Sinai Medical Center. Meghan answers the top 10 NET nutrition questions, covering topics including carcinoid syndrome, prescription enzymes, diarrhea, and recommended diet. LISTEN NOW THANKS TO OUR SPONSORS