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UPCOMING EVENTS

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July 10, 2025

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August 26, 2025

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Donate today and help us provide support, and information on diagnosis, treatment options, research, and resources for neuroendocrine cancer patients and caregivers.

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Stay up-to-date with neuroendocrine cancer news, educational information, monthly newsletters and ways to connect with other neuroendocrine cancer patients and caregivers.

Make a Difference

Donate today and help us  provide support, and information on diagnosis, treatment options, research, and resources for NET patients and caregivers.

ABOUT THE NEUROENDOCRINE CANCER FOUNDATION

The Neuroendocrine Cancer Foundation provides a community of support and education for neuroendocrine tumor (or neuroendocrine cancer or NET) patients and caregivers.

Learn

Our educational programs, including webinars, patient education conferences, a video library, podcast, and blog, provide information on diagnosis, treatment options, research and resources. We develop patient-friendly educational content that brings the latest medical information and research studies to NET patients and caregivers.

Advocate

We advocate for all people impacted by this rare disease to improve health outcomes through early diagnosis. We raise awareness about neuroendocrine and carcinoid cancers among healthcare professionals and the public.

Connect

Our inclusive global community includes NET patients, family members, and caregivers. The Neuroendocrine Cancer Foundation makes it possible for patients to share experiences, encouragement, and hope through support groups, Health Coaching, and NETCONNECT, a buddy program connecting a newly-diagnosed NET patient with a long-time patient.

Seven Facts About NET

  • Neuroendocrine cancer is also known as neuroendocrine tumor, or NET.

  • NET is a rare cancer. In the United States, 7 in 100,000 people are diagnosed per year. 

  • NET can affect neuroendocrine cells throughout the body.

  • NET is a difficult cancer to diagnose.

  • Some (but not all) NET patients have symptoms from their cancer.

  • The cause of NET is unknown.

  • Seeking the opinion of a NET specialist is important for all NET patients.

LATEST ON CLINICAL TRIALS

Dr. Halfdanarson on ITM’s COMPETE Trial • 2025 ENETS • Neuroendocrine Cancer Foundation
05:30
Dr. Jennifer Chan Discusses Results of CABINET Trial (Cabozantinib) as Effective Treatment at ESMO24
05:27
Dr. Aman Chauhan About the Most Exciting Progress in the Neuroendocrine Cancer Field @ NANETS Miami
04:44
Breaking News: NETTER-2 Trial Supports Lutathera® as 1st Line Treatment - Dr. Singh Explains
03:51
Dr. Soulen Talks About 2023 Highlights and His Hopes for 2024
04:05
Dr. Kunz Shares 2023 Highlights and Her Hopes for 2024
02:14
Dr. Strosberg Shares 2023 Highlights and Hopes for 2024
04:01
Dr. Halfdanarson Shares 2023 Highlights and His Hopes for 2024
03:40

LATEST FROM NCF

RECENT EDUCATIONAL EVENTS 

Living with NET: The Patient Perspective • 2025 NCF Event • July 10, 2025
01:16:25
"Evolving Management of Carcinoid Heart Disease" • Prashanth Venkatesh, MD, FACC • April 29, 2025
01:33:27
"Understanding Treatments for NETs and Rationale for Sequencing of Therapy" • Dr. Wolin • Apr 1, 25
01:30:51
"PRRT Nurse's Perspective: What to Expect with PRRT" • Linda Gardner, MSN, RN, VA-BC • Mar 7, 2025
01:49:57
"Deciphering Genetics & Genomics in Neuroendocrine Cancers" • Dr. Perez • Feb 7, 25
01:28:12
"Understanding GI NETs Found on Endoscopy: Gastric, Duodenal, Colon & Rectal" • Dr. Metz •Jan 28, 25
01:33:06
"Large Cell Neuroendocrine Carcinoma & Small Cell Lung Cancer" • Session B • LACNETS • Dec 10, 2024
01:28:05
"Typical Carcinoid & Atypical Carcinoid" • Session A • LACNETS Event • Dec 10, 2024
01:33:36

LATEST PODCAST EPISODES 

RESOURCES & INFORMATION FOR YOU

Quotation Marks

I was officially diagnosed on June 29, 2022. I didn’t even know NETs existed. And today...less than a month later, I’ve learned so much thanks to the incredible resources that exist as a result of the beautiful NETs community. The resources available, especially the videos from the (Neuroendocrine Cancer Foundation) and the NET VITALS document, are so life-giving and helpful for the newly diagnosed. The Neuroendocrine Cancer Foundation contributes so much useful information to the NET community.

— NET Patient

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