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Antibody Drug Conjugate ADCT-701 in Neuroendocrine Tumors and Carcinomas << Back Antibody Drug Conjugate ADCT-701 in Neuroendocrine Tumors and Carcinomas IDENTIFIER ( ClinicalTrials.gov ) : NCT06041516 DRUG/TREATMENT : ADCT-701 is given through a tube attached to a needle inserted into a vein in the arm. PHASE : First-in-Human Phase I Trial STATUS : Recruiting SPONSOR : National Cancer Institute (NCI) https://www.youtube.com/watch?v=ZmffIH9J3v8 DESCRIPTION: This is a first in human phase 1 study to test a new drug, ADCT-701, in people with Neuroendocrine neoplasms (NENs). ADCT-701 is an antibody drug conjugate (or ADC) that specifically targets "Delta Like Non-Canonical Notch Ligand 1" or DLK1, an antigen which has recently been found to be expressed on neuroendocrine cancers. The hope is this drug will suppress tumor growth, shrink tumors after tumor growth, and improve survival. *Note: This study includes all neuroendocrine neoplasms including neuroendocrine tumors, neuroendocrine carcinomas (i.e. "high grade neuroendocrine cancers"), pheochromocytoma, paraganglioma and adrenocortical carcinoma (ACC). For more information on eligibility criteria, trial locations, study details, etc., go to ClinicalTrials.gov to view this trial here. CONTACT : National Cancer Institute Medical Oncology Kimberley J Cooper EMAIL: kimberley.cooper@nih.gov PHONE: 240-858-5798 Principal investigator: Jaydira Del Rivero, M.D.,National Cancer Institute (NCI) LOCATIONS : National Instititues of Health Clinical Center: Bethesda, Maryland, United States 20892

<< Back Pheochromocytoma/ Paraganglioma Alpha PRRT with Pb-212 VMT Alpha PRRT with RYZ401 in PRRT-naive Solid Tumors Expressing SSTRs Antibody Drug Conjugate ADCT-701 in Neuroendocrine Tumors and Carcinomas Belzutifan/MK-6482 in PNET + PPGL + VHL BRAVESST2: CRN09682 in SST2-Expressing NENs and Other Solid Tumors IL13Rα2 CAR T Cell Study for Solid Tumor Cancers Olaparib + Usual Chemotherapy (Temozolomide) in PPGL NETTER-P: Lutathera in Adolescent Patients LAMPARA: LAnreotide in Metastatic Pheochromocytoma/PARAganglioma Tarlatamab in DLL3-Expressing Tumors Including Neuroendocrine Neoplasms

<< Back Other INSULINOMA upLIFT: Ersodetug in Insulinoma/Tumor Hyperinsulinism OTHER Belzutifan/MK-6482 in PNET + PPGL + VHL ENET STUDY: Quality of Life and Well-Being for NET Patients STELLAR-311: Zanzalintinib Versus Everolimus in pNET and epNET with Locally Advanced or Metastatic Neuroendocrine Tumors Tarlatamab in DLL3-Expressing Tumors Including Neuroendocrine Neoplasms

<< Go back to the Podcast page EPISODE 23: WHAT TO KNOW ABOUT HINDGUT & APPENDICEAL NETS Download a Transcript of this Episode >> ABOUT THIS EPISODE What are Hindgut NETs (distal colon and rectum) and how are they treated? How is rectal NET different from rectal cancer? What makes appendiceal NETs difficult to diagnose? Dr. Hagen Kennecke from Providence Cancer Institute in Portland, Oregon shares insights on the diagnosis and management of Hindgut NETs and appendix NET. MEET DR. HAGEN KENNECKE Dr. Hagen Kennecke is a Medical Oncologist and Medical Director of GI Oncology at Providence Cancer Institute and Associate Member of the Chiles Research Institute in Portland, Oregon. He has worked passionately to improve the treatment, education and outcomes of those affected by neuroendocrine tumors. Dr. Kennecke is an active clinician researcher, the recipient of numerous research awards and has authored numerous guidelines on the treatment of neuroendocrine tumors. He is a member of the US NCI GI Steering Committee and is a prior member of the NCI-NET Task Force, and has worked extensively within the neuroendocrine community including NANETS, Carcinoid Cancer Foundation, LACNETS and Healing NETS. TOP 10 QUESTIONS What are hindgut NETs? Where are they located? What are the different types of hindgut NETs? How are hindgut NETs found? What are the symptoms of a hindgut NET? What types of labs, scans, or testing is done to determine if someone has a hindgut NET? Could you discuss why people with appendix NET often have a challenging time getting a diagnosis. How is rectal NET different from rectal cancer? What are some ways that hindgut NETs differ from other types of NETs? What makes rectal NET unique? How do you decide if the hindgut NET(s) can be surgically removed? What type of surgeon would make that determination? There are people diagnosed with appendix NET who have been told by their doctor to have a hemicolectomy. What is your opinion about this? How are hindgut NETs treated medically or nonsurgically? How are treatments sequenced? How are the treatments different from other NETs? How are hindgut NETs monitored What types of bloodwork or tests should be done and how often should they be done? What is the best type of scan for hindgut NETs? What are clinical trials we should be aware of or exciting new treatments in the pipeline for hindgut NETs? And what words of hope would you like to share with the NET community? RESOURCES WATCH https://www.youtube.com/watch?v=2mfxKxBYdoY Bob Shares His NET Journey READ An Update on Appendiceal Neuroendocrine Tumor s Management of Appendix Neuroendocrine Neoplasms: Insights on the Current Guidelines - December 2022 Are Hemicolectomies Justified for Appendiceal Neuroendocrine Tumours Smaller Than 2 CM? Hemicolectomy Versus Appendectomy for Patients with Appendiceal Neuroendocrine Tumours 1-2 CM in Size: A Retrospective, Europe-Wide, Pooled Cohort Study NANETS Guidelines Library DISCLAIMER LACNETS Podcasts are created for educational purposes only and do not substitute for medical advice. The views shared in this Podcast are the personal opinions of the experts and do not necessarily reflect the views of LACNETS. Please contact your medical team with questions or concerns about your individual care or treatment. THANK YOU TO OUR SPONSORS

<< Go back to the Podcast page EPISODE 34: NET TREATMENTS: FOCUS ON PRRT Download a Transcript of this Episode >>> ABOUT THIS EPISODE What is PRRT? How is it different from the more commonly used radiation treatment? What are the possible side effects? Dr. Riham El Khouli from the University of Kentucky in Lexington discusses common questions and concerns about PRRT and shares some of the latest advances. MEET DR. RIHAM EL KHOULI, MD, PHD Associate Professor of Radiology, UK College of Medicine Chief, Division of Nuclear Medicine/Molecular Imaging & Radiotheranostics (NM/MI&R) Director, Radiotheranostics Program University of Kentucky Dr. Riham El Khouli, MD PhD, is the director of the Radiotheranostics program and Chief of the division of NM/MI&R at the University of Kentucky and an Associate Professor of Radiology, Nuclear Medicine and Molecular Imaging at UK school of Medicine. The Radiotheranostics Program at UK is a multidisciplinary program that provides state of art standard of care clinical radiopharmaceutical therapy (RPT) techniques as well as a robust research program that constantly runs multiple RPT clinical trials aiming to explore new RPT management options for various cancers. Dr. El Khouli is fellowship trained double board certified, ABR and ABNM, academic Nuclear Radiologist with two decades of clinical and research experience. Her research initially focused on the evaluation and improvement of the acquisition and interpretation of advanced MRI techniques such as dynamic contrast enhanced (DCE) MRI, Diffusion weighted imaging (DWI), and 1H MR Spectroscopy in breast cancer. On 2013, Dr. El Khouli started a new journey in Nuclear Medicine, Molecular Imaging and Radioheranostics (NM/MI&R) and completed a nuclear medicine and dedicated PET/CT fellowships. During her new training, her passion toward molecular imaging and PET/CT grew and she participated in multiple nuclear medicine and PET/CT related research projects. Dr. El Khouli is passionate about research and education and active in the field of neuroendocrine tumor. She is one of the key team members of the dedicated biweekly intramural NET tumor boards. She also attended and presented in multiple regional NANETS and NET awareness group meetings (NCAN). Dr. El Khouli serves as a peer reviewer for multiple prestigious Journals such as Radiology and Radiographics, among others, and is an active member of the Radiologic Society of North America (RSNA), Society of Nuclear Medicine and Molecular Imaging (SNMMI), and the American College of Radiology (ACR). She serves as an active member of the RSNA Awards Committee, RSNA Scientific Abstract Review Committee, and Radiographic NMMI review panel committee. Dr. El Khouli is an active panel member of multiple ACR Appropriateness Criteria Panels. TOP TEN QUESTIONS ABOUT NET TREATMENTS: What is PRRT? How does it work? What is theranostics and what does it mean? What are the terms radiotheranostics, radiopharmaceutical, radioligand therapy, PRRT? How do you determine who is eligible for PRRT? When is PRRT given in one’s treatment journey? How does PRRT differ from other treatments? What are the common side effects of Lutathera? Does Lutathera have long-lasting effects? Would receiving Lutathera affect one’s blood counts? How might Lutathera affect one’s liver function? When, if ever is there concern about liver failure? How might PRRT affect my quality of life and my day-to-day ability to work and function? What is the risk and effects of radiation with receiving Lutathera? What precautions do I need to follow? Can I hug my child? Can I pet my dog? Would receiving Lutathera cause someone to be immunocompromised? How to you decide who should get PRRT? What is peritoneal disease and how effective is PRRT with peritoneal disease? How do you assess the response to PRRT? What advances in PRRT are you most excited about? RESOURCES PRRT Clinical Trials PRRT Resources WATCH https://www.youtube.com/watch?v=oSqUgq6QdnM May 2024 LACNETS Educational Event with Dr. Aman Chauhan: "High Grade Neuroendocrine Neoplasms & Small Cell Lung Cancer" DISCLAIMER LACNETS Podcasts are created for educational purposes only and do not substitute for medical advice. The views shared in this Podcast are the personal opinions of the experts and do not necessarily reflect the views of LACNETS. Please contact your medical team with questions or concerns about your individual care or treatment. THANK YOU TO OUR SPONSORS

Newly Diagnosed < Back to Topics Play Video Play Video 01:37:36 "The Latest in the Management of Functional Neuroendocrine Cancers • Jan, 2026 • Dr. Del Rivero Join this @NCFCancer educational patient event for an easy-to-understand overview of functional neuroendocrine tumors (NETs) with Dr. Jaydira Del Rivero, a medical oncologist and endocrinologist at the National Cancer Institute. Functional NETs can cause the body to produce too many hormones, leading to challenging symptoms such as low blood sugar (often seen in insulinoma), high blood sugar (glucagonoma), and other hormone-related issues. Dr. Del Rivero will explain what these syndromes are, how they’re diagnosed, and the latest updates in treatment. She will also discuss conditions that can occur because of NETs or their treatments. She will help patients understand why symptoms like hypoglycemia are more common in some NET types. Whether you’re a patient, caregiver, or simply want to better understand functional NETs, this webinar will offer practical, up-to-date information to help you feel more informed and empowered. Potential Topics: Functional NET, Hormone-producing, Insulinoma, Gastrinoma, VIPoma, Zollinger-Ellison syndrome (ZES), Carcinoid, Hypoglycemia, Diarrhea, Flushing ABOUT DR. JAYDIRA DEL RIVERO Medical Oncologist & Endocrinologist National Cancer Institute, National Institutes of Health Dr. Del Rivero earned her medical degree from the University of Veracruz in Veracruz, Mexico and completed her internal medicine residency at Woodhull Medical and Mental Health Center/NYU-Langone Medical Center. Dr. Del Rivero completed a fellowship in Endocrinology, Diabetes and Metabolism at The Inter-Institute Endocrinology Training Program (IETP) at the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), The National Institute of Child Health and Human Development (NICHD), and The National Institute of Dental and Craniofacial Research (NIDCR) where she was part of a research team developing clinical trials for pheochromocytoma and paraganglioma. She then joined as Assistant Professor at the Montefiore Einstein Center for Cancer Care (MECCC) where she specialized in endocrine oncology involving thyroid cancer, parathyroid and adrenal tumors, and clinical research for gastroenteropancreatic neuroendocrine tumors. She subsequently completed a second fellowship in medical oncology at the National Cancer Institute (NCI) with a research focus on endocrine malignancies. Dr. Del Rivero is board certified in Internal Medicine, Endocrinology, Diabetes and Metabolism and Medical Oncology. Dr. Del Rivero is a Physician Scientist in the Developmental Therapeutics Branch. She is the Principal Investigator of the Natural History Study for Neuroendocrine Neoplasm and Adrenocortical Cancer to provide the basis of further development of therapeutic interventions, prevention/screening guidelines, endpoints for future clinical trials, and patient reported outcome measures. Dr. Del Rivero’s current efforts is the development of novel treatment approaches and targeted therapies for endocrine malignancies such as advanced gastroenteropancreatic neuroendocrine tumors, adrenocortical cancer and pheochromocytoma/paraganglioma. For more information, visit https://www.ncf.net/events/jan2026 Play Video Play Video 17:45 04. NETs 101: NET Terms & Concepts You Need to Know • Bassam Sonbol, MD • Arizona • @NCFCancer ⁩ Play Video Play Video 25:45 "NETS 101" • Jaydira Del Rivero, MD • 2023 NET Cancer Day Symposium @NCFCancer Jaydira Del Rivero, MD • 2023 NET Cancer Day Symposium • Santa Monica, CA Speaker: Jaydira Del Rivero, MD Medical Oncologist Endocrinologist National Cancer Institute, NIH For more information, visit LACNETS.org. Play Video Play Video 35:16 "Understanding NET Diagnosis" with Dr. Chandrasekharan • 2024 #LACNETS Patient Conference 2. "Understanding NET Diagnosis" with #Dr.Chandrasekharan Our 2024 LACNETS Neuroendocrine Tumor Patient Conference is designed for neuroendocrine cancer (NET) patients and caregivers to deepen your understanding of NETs. Whether you are newly diagnosed or have been living with NET for many years, we encourage you to attend: - Learn from top NET experts from across North America on a range of topics relevant to the NET patient journey. - Topics include work-ups, scans, surgery, carcinoid crisis, liver-directed therapy, PRRT, systemic treatments, treatment sequencing, NET guidelines, and clinical trials. - Gain insight into NET decision-making through the NET tumor board panel discussion. - Hear stories from NET patients and caregivers. - Join virtually, where you can pause, rewind, or replay. - There is no cost to attend. This event is made possible by the generosity of donors and sponsors. #LACNETS #neuroendocrinecancer #clinicaltrials #lungcancer #NETcancer #Letstalkaboutnets For more information, visit LACNETS.org. Play Video Play Video 21:51 NETS 101: Overview of NET Terms & Concepts • Dr. Aman Chauhan • 2023 LACNETS Patient Conference Watch "NETS 101: Overview of NET Terms & Concepts" with Dr. Aman Chauhan. This presentation is part of the 2023 LACNETS Neuroendocrine Tumor Patient Education Conference held on June 17, 2023. For more information, visit, LACNETS.org. Play Video Play Video 15:22 05. NET Surgery: Making Decisions & Preparing for Surgery (Dr. Clarke) - 2022 LACNETS Conference Dr. Callisia Clarke addresses surgery for neuroendocrine cancer including decision-making & preparing for surgery. Presenter: Callisia Clarke, MD Surgical Oncologist Medical College of WI 2022 LACNETS NET Patient Conference Presented by LACNETS For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 07:50 Patient Story: NET Patient shares about the first year of her NET journey (LACNETS) NET Patient Laurie shares about the first year of her NET journey. November 7, 2020 To learn more about LACNETS, visit www.LACNETS.org. Play Video Play Video 01:37:42 LACNETS Webinar: "Sequencing of Neuroendocrine Tumor Treatments" with Dr. Eric Liu LACNETS webinar - “Sequencing of Neuroendocrine Tumor Treatments" Friday, May 24th, 2020 SPEAKER: Dr. Eric Liu, General Surgeon & Neuroendocrine Specialist Rocky Mountain Cancer Center Learn more here: www.LACNETS.org Audio/Video - www.TVPlive.com Play Video Play Video 01:04:39 LACNETS - NET VITALS Webinar - September 6th, 2018 Download NET VITALS here: www.lacnets.org/netvitals NET VITALS Webinar - Question Timing Guide: Introductions: Start - 10:25 Q1. My neuroendocrine tumor (NET) was found: 10:41 Q2. I am a neuroendocrine tumor (NET) patient and my primary (origin) tumor is: 11:05 Q3. My NET has spread (metastasized) to: 11:57 Q4. My Ki-67 index is 14:20 Record-keeping: 14:38 Pathology report example: 17:25 Q5. My neuroendocrine tumor is: 18:15 Q6. My neuroendocrine tumor is: 22:17 Q7. I have symptoms: 23:50 Q8. I have had symptoms for ____ years (if applicable). 23:50 Q9. I have had the following types of imaging, and possess the disk and/or report: 29:30 Q10. I have had the following labs, and possess the report (if applicable): Indicate if abnormal. 32:55 Q11. Surgery to remove primary tumor(s): 38:45 Q12. Surgery to remove metastatic tumor(s): 39:05 Q13. Other surgery 39:40 Q14. Liver-Directed treatment: 40:10 Q15. Somatostatin Analogs (SSA) & Others: 42:48 Q16. Chemotherapy / Biologically-Targeted / Immunotherapy, including Clinical Trials/ PRRT (Peptide Receptor Radionuclide Therapy, i.e. Lutathera®): 44:03 Q17. I am diabetic: 47:50 Q18. ALLERGIES (Medications/Food): 48:05 Q19. FAMILY HISTORY (Specify cancer and/or rare diseases): 48:20 Q20. I have had Genetic Testing: 48:37 Q21. MEDICATIONS/SUPPLEMENTS (including vitamins, digestive enzymes): 49:01 Q22. CURRENT PHYSICIAN(S) & MEDICAL TEAM 49:29 Q23. SOCIAL SUPPORT 50:13 Q&A with the NET VITALS Team 52:23 What is NET Vitals? LACNETS created NET VITALS as a quick snapshot of the most important questions for patients and healthcare professionals to know about neuroendocrine cancer. NET VITALS is a 20-question tool designed to highlight the vitals of NET cancer, all in one document. This allows the physician and patient to more easily communicate with all of the basics in one place. Webinar Leaders: Giovanna Joyce Imbesi, MBA, Executive Director, LACNETS Lisa Yen, NP, NBC-HWC, Program Director, LACNETS Dan Li, MD, Medical Oncologist, City of Hope Josh Mailman, MBA, President, NorCal CarciNET Learn more here: https://www.lacnets.org/lacnets-blog/netvitals Play Video Play Video 20:22 "Qué esperar de una consulta de expertos de NET" con Dr. Heloisa Soares (LACNETS) "Qué esperar de una consulta de expertos de NET" con Dr. Heloisa Soares (LACNETS) Presentadora: Heloisa Soares, MD, PhD Medical Oncologist; Huntsman Cancer Institute Para obtener más recursos en español, visite www.LACNETS.org. Play Video Play Video 30:23 04. What to Expect with a NET Expert Consultation (Dr. Soares) - 2021 LACNETS Virtual Conference 2021 Los Angeles Neuroendocrine Tumor Patient Education Virtual Conference Presented by LACNETS Presenter: Heloisa Soares, MD, PhD Medical Oncologist Huntsman Cancer Institute This presentation is also available in Spanish, found here: www.LACNETS.org/spanish-resources. For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 42:50 Finding a NET Expert + Surgery for NETs - 2020 LACNETS Virtual NET Conference Virtual 2020 Los Angeles Neuroendocrine Tumor Patient Education Conference Presented by LACNETS Presentations & Times: LACNETS Conference Welcome (0:00 - 5:44) Lindsey Jeu De Vine, Director of Communications, LACNETS Lisa Yen, NBC-HWC, Program Director, LACNETS "Finding a NET Expert" (5:44 - 22:25) Cindy Lovelace , Executive Director Healing NET Foundation "Surgery for NETs" (22:25 - end of video) Alexandra Gangi, MD , Surgical Oncology Cedars-Sinai Medical Center For more information, please visit www.LACNETS.org. @LACNETS (Facebook, Twitter, Instagram) Video produced by tvplive.com. Play Video Play Video 43:19 "NETs 101" with Medical Oncologist Dr. Sandy Kotiah of Mercy Medical Medical oncologist and NET expert Dr. Kotiah covers what to expect during your first visit with your medical oncologist – plus labs, scans, and prognosis. Speaker: Sandy D. Kotiah, MD Medical Oncologist, Hematologist Mercy Medical To learn more about LACNETS, visit www.LACNETS.org. < Back to Topics Next Topic >

NET Quiz TEST YOUR NET KNOWLEDGE QUIZ #31 - UNDERSTANDING FATIGUE & NETS Here’s a short quiz based on NETRF's NETWise Podcast Episode 30: "Understanding Fatigue & NETs." TAKE THE QUIZ QUIZ #30 - MERKEL CELL NETS Here’s a short quiz based on NETRF's NETWise Podcast Episode 29: "Merkel Cell NETs." TAKE THE QUIZ QUIZ #29 - NETS & RACE Here’s a short quiz based on NETRF's NETWise Podcast Episode 27: "NETs & Race." TAKE THE QUIZ QUIZ #28 - GYNECOLOGIC NETS Here’s a short quiz based on NETRF's NETWise Podcast Episode 24: "Gynecologic NETs." TAKE THE QUIZ QUIZ #27 - PARENTING WITH NETS Here’s a short quiz based on NETRF's NETWise Podcast Episode 23: "Parenting With NETs." TAKE THE QUIZ QUIZ #26 - ADJUSTING TO & NAVIGATING THE NEW NORMAL Here’s a short quiz based on NETRF's NETWise Podcast Episode 21: "Adjusting to the New Normal" and Episode 22: "Navigating the New Normal." TAKE THE QUIZ QUIZ #25 - NET RESEARCH (PART 2) Here’s a short quiz based on NETRF's NETWise Podcast Episode 20: “NET Research – Part Two.” TAKE THE QUIZ QUIZ #24 - NET RESEARCH (PART 1) Here’s a six question quiz based on NETRF's NETWise Podcast Episode 19: “NET Research – Part One.” TAKE THE QUIZ QUIZ #23 - HIGH-GRADE NETS AND NECS Here’s a five question quiz based on NETRF's NETWise Podcast Episode 18: “High-Grade NETs and NECs.” TAKE THE QUIZ QUIZ #22 - LIVER NETS Here’s a five question quiz based on NETRF's NETWise Podcast Episode 17: "Focus on Liver NETs." TAKE THE QUIZ QUIZ #21 - NETS AND NUTRITION Here’s a five question quiz based on NETRF's NETWise Podcast Episode 16: “NETs and Nutrition.” TAKE THE QUIZ QUIZ #20 - SUPPORTIVE CARE FOR THE MIND, BODY, AND SOUL Here’s a five question quiz based on NETRF's NETWise Podcast Episode 15: “Supportive Care for the Mind, Body, and Soul.” TAKE THE QUIZ QUIZ #19 - PHEOS & PARAS Here’s a six question quiz based on NETRF's NETWise Podcast Episode 14: “Pheos & Paras.” TAKE THE QUIZ QUIZ #18 - NETS AND GENETIC SCREENING Here’s a six question quiz based on NETRF's NETWise Podcast Episode 13: “NETs and Genetic Screening.” TAKE THE QUIZ QUIZ #17 - THE IMPORTANCE OF CAREGIVING Here’s a five question quiz based on NETRF's NETWise Podcast Episode 12: "The Importance of Caregiving." LACNETS’ Program Director and a NET caregiver, Lisa Yen, is a guest on this episode! TAKE THE QUIZ QUIZ #16 - AYA (ADOLESCENTS & YOUNG ADULTS) AND NETS Here’s a four question quiz based on NETRF'w NETWise episode 11, "AYA (Adolescents and Young Adults) and NETs." TAKE THE QUIZ QUIZ #15 - SMALL BOWEL NETS Here’s a five question quiz based on NETRF'w NETWise special episode, "Small Bowel NETs.” TAKE THE QUIZ QUIZ #14 - PANCREATIC NETS Here’s a seven question quiz based on NETRF's NETWise episode #10, “Pancreatic NETs.” TAKE THE QUIZ QUIZ #13 - LUNG NETS Here’s a six question quiz based on NETRF's NETWise special episode, “Lung NETs.” TAKE THE QUIZ QUIZ #12 - CLINICAL TRIALS Here’s a six question quiz based on NETRF's NETWise podcast episode, “Clinical Trials.” TAKE THE QUIZ QUIZ #11 - MANAGING SYMPTOMS OF NETS Here’s a seven question quiz based on NETRF's NETWise podcast episode, “Managing Symptoms of NETs.” TAKE THE QUIZ QUIZ #10 - MEDICAL MANAGEMENT OF NETS Here’s a seven question quiz based on NETRF's NETWise podcast episode, “Medical Management of NETs: Understanding SSAs, Chemotherapy, and Targeted Therapy” . TAKE THE QUIZ QUIZ #9 - NUCLEAR MEDICINE FOR NETS: WHAT IS PRRT? Here’s a quick six question quiz based on NETRF's NETWise podcast episode, “Nuclear Medicine for NETs: What is PRRT?” TAKE THE QUIZ QUIZ #8 - COVID-19 AND NETS Here’s a quick seven question quiz based on NETRF's NETWise podcast episode, “COVID-19 and NETs.” TAKE THE QUIZ QUIZ #7 - SURGERY AND INTERVENTIONAL RADIOLOGY FOR NETS Here’s a six question quiz based on the NETRF's NETWise podcast episode #3, “Surgery and Interventional Radiology for NETs.” TAKE THE QUIZ QUIZ #6 - IMAGING, TESTING, & BUILDING A CARE TEAM (PART 2) Here’s a six question based on NETRF's NETWise podcast episode #2: “Imaging, Testing, and Building a Care Team.” TAKE THE QUIZ QUIZ #5 - IMAGING, TESTING, & BUILDING A CARE TEAM (PART 1) Here’s a quick five question quiz based on NETRF's NETWise podcast episode #2: “Imaging, Testing, and Building a Care Team.” TAKE THE QUIZ QUIZ #4 - WHAT YOU NEED TO KNOW ABOUT NETS We put together a quick quiz based off of the first episode of NETRF’s NETWise podcast, “What You Need to Know About NETs. ” TAKE THE QUIZ QUIZ #3 - REVIEW NET BASICS Review your NET basics by taking this five question quiz! This quiz is just a fun way to learn! If you get it wrong, don't stress! Now you know the correct answer! TAKE THE QUIZ QUIZ #2 - LEARN TO SPEAK NET LACNETS put together a quick five question quiz to help you learn to speak NET! TAKE THE QUIZ QUIZ #1 - TEST YOUR KNOWLEDGE ON NET In honor of Rare Disease Day 2019, LACNETS put together a quick four-question quiz to test your knowledge on neuroendocrine cancer! TAKE THE QUIZ

Educational Events < Back to Topics Play Video Play Video 01:33:05 Novel Targeted Therapies in Neuroendocrine Cancers • 2026 NCF Event • Mar 9, 2026 Some Topics Covered: Neuroendocrine, NET, NEC, High-grade Clinical trials, PRRT, RLT, Antibody Drug Conjugate (ADC), DLL3 ABOUT Learn from a discussion of targeted therapies in neuroendocrine cancer, one of the fastest-growing areas of NET treatment. Unlike traditional chemotherapy, targeted therapies focus on specific pathways or features of cancer cells. Understanding how these treatments work can help patients feel more confident and informed when discussing options with their care team. In this session, Dr. Rohit Thummalapalli, medical oncologist at Memorial Sloan Kettering Cancer Center, explores novel, innovative targeted treatments used or being studied in NETs, such as DLL3 and antibody–drug conjugates (ADCs). Dr. Thummalapalli will explain what these therapies are, how they work, and why they are becoming increasingly important in NET care. Whether you’re newly diagnosed or considering later-line treatments, this webinar will help you better understand the evolving landscape of targeted therapy and what it may mean for your care. Visit the event page at https://www.ncf.net/events/mar2026 Play Video Play Video 01:29:26 The Latest in Neuroendocrine Cancer Clinical Trials • 2026 NCF Event • Feb 20, 2026 Topics Covered: Neuroendocrine, NET, clinical trials, PRRT, RLT, neoadjuvant trials, adjuvant trials, metastatic NET, symptom control ABOUT Join us for an overview of the latest clinical trials in neuroendocrine cancer with Dr. Heloisa Soares, a medical oncologist and physician-scientist at the Huntsman Cancer Institute (HCI) in Salt Lake City. Dr. Soares will walk through key neuroendocrine cancer clinical trials including what they are studying, what makes them exciting, and how they may shape future treatment options. She will also explain why clinical trials matter, how they benefit patients, and what to consider when exploring whether a trial might be right for you. Whether you’re a patient, caregiver, or simply trying to stay informed, this webinar will provide clear, practical insights to help you better understand emerging research and what it means for the neuroendocrine cancer community. The presentation focuses on current NET clinical trials. For information on NEC clinical trials, go to our high grade resources page: https://www.ncf.net/high-grade-nen-resources. Visit the event page at https://www.ncf.net/events/feb2026 Play Video Play Video 01:31:30 The Latest on Immunotherapy for Neuroendocrine Cancer • 2025 NCF Event • Dec 11, 2025 Immunotherapy is an exciting and rapidly advancing area in the treatment of neuroendocrine cancer. Join Dr. Aman Chauhan, Medical Oncologist at the University of Miami Sylvester Cancer Center, as he discusses the latest developments in immunotherapy for neuroendocrine cancer. This webinar will cover current standard-of-care treatments as well as cutting-edge clinical trials involving DLL3-targeted therapies, oncolytic viruses, CAR T-cell therapy, and combination approaches. Whether you’re newly diagnosed or exploring new treatment options, this session will help you better understand the evolving landscape of immunotherapy in neuroendocrine cancer. Aman Chauhan, MD Medical Oncologist University of Miami Sylvester Cancer Center Aman Chauhan, MD, earned his medical degree from the Kasturba Medical College in Manipal, Karnataka, India, followed by a dual residency in internal medicine and pediatrics at Louisiana State University in New Orleans. Dr. Chauhan completed his fellowship in hematology and oncology at the University of Kentucky, especially focusing on neuroendocrine tumor (NETs). Additionally, Dr. Chauhan completed a Cancer Therapy Evaluation Program (CTEP) physician externship at the National Cancer Institute (NCI) that focused on designing clinical trials and clinical research projects. His clinical interests include treating NETs, including carcinoid tumors, high-grade neuroendocrine carcinomas, and small and large cell neuroendocrine carcinoma. Dr Chauhan leads the University of Miami Neuroendocrine Cancer Program and co-leads Sylvester Theranostics Drug Development Program. He is the national principal investigator on several investigator-initiated neuroendocrine cancer clinical trials. He has authored over 70 scientific publications and book chapters and has received a career development award from NCI CTEP. Dr Chauhan also serves on AJCC and ASCO NET guideline committees and is an active member of NANETS communication committee. Dr. Chauhan is board certified in internal medicine and medical oncology. He is a member of the American Society of Clinical Oncology as well as the American Association of Cancer Research and the North American Neuroendocrine Tumor Society. Visit https://www.ncf.net/events/dec2025 for more information. Play Video Play Video 01:27:39 Understanding Alpha & The Evolving PRRT Landscape • Dr. Grewal • 2025 NCF Event • September 22, 2025 The field of PRRT (Peptide Receptor Radionuclide Therapy) is evolving rapidly, and patients are hearing more about new developments like alpha therapies, the recent NETTER-2 and COMPETE trial results, and other advances. Join medical oncologist Dr. Udhayvir Singh Grewal from the Winship Cancer Institute of Emory University as he breaks down what these changes mean for people living with neuroendocrine cancer. This webinar will help patients and caregivers make sense of emerging research and therapies—and what they may mean for the future of NET treatment. For more information, visit https://www.ncf.net/events/sep2025. Play Video Play Video 01:25:23 Nutrition & Diet Considerations for NETs • 2025 NCF Event • August 26, 2025 Nutrition can play a key role in living well with neuroendocrine cancer (neuroendocrine tumors or NETs). Join NET dietitian Meghan Laszlo for an informative session on nutrition and diet considerations for people living with neuroendocrine cancer. She will cover key topics including the use of pancreatic enzymes, managing hyperglycemia, navigating special diets, and understanding supplements. Whether you're newly diagnosed or further along in your journey, this webinar offers practical guidance to help you make informed nutrition choices that support your health and quality of life. For more information, visit ncf.net. Play Video Play Video 01:16:25 Living with NET: The Patient Perspective • 2025 NCF Event • July 10, 2025 Patients share their experiences on topics, including decision-making, coping strategies, lessons learned, challenges, and navigating relationships while living with neuroendocrine cancer. Hear about their personal journeys—filled with resilience, realities, and hope, that offer powerful insight into what it's like living with neuroendocrine cancer. Visit NCF.net/July2025 for more information. Play Video Play Video 01:33:27 "Evolving Management of Carcinoid Heart Disease" • Prashanth Venkatesh, MD, FACC • April 29, 2025 Learn from Cardiologist and Congenital Heart Disease Specialist, Dr. Prashanth Venkatesh from Cedars-Sinai Smidt Heart Institute in a virtual educational event on carcinoid heart disease. Dr. Venkatesh demystifies the topic and shares the latest developments in its diagnosis and treatment, including a novel minimally invasive approach to replace heart valves damaged by carcinoid heart disease. For more information and resources, visit NCF.net. Play Video Play Video 01:30:51 "Understanding Treatments for NETs and Rationale for Sequencing of Therapy" • Dr. Wolin • Apr 1, 25 Learn from internationally-renowned neuroendocrine cancer expert Dr. Edward Wolin in a discussion on the latest in neuroendocrine tumor treatments and understanding how to sequence them. Dr. Wolin has pioneered many of the NET treatments including somatostatin analogues (SSAs, sandostatin and octreotide), mTOR inhibitors (i.e. everolimus), anti-angiogenic drugs (i.e. cabozantinib), and peptide receptor radiotherapy (PRRT, i.e. Lutathera). Join us for an insightful presentation and live question and answer session. Learn more at https://www.ncf.net/events/apr2025 Play Video Play Video 01:49:57 "PRRT Nurse's Perspective: What to Expect with PRRT" • Linda Gardner, MSN, RN, VA-BC • Mar 7, 2025 Learn about PRRT from UCLA's Lead PRRT Nurse Linda Gardner. She addresses common questions about what to expect before, during, and after the treatment, as well as concerns about radiation safety. Learn more at https://www.ncf.net/events/mar2025 Play Video Play Video 01:28:12 "Deciphering Genetics & Genomics in Neuroendocrine Cancers" • Dr. Perez • Feb 7, 25 Learn the latest in genetics and genomics for neuroendocrine cancers from medical oncologist Dr. Kimberly Perez from Dana Farber Cancer Institute (DFCI) in Boston, Massachusetts. Dr. Perez has expertise in hereditary cancer syndromes and deciphers the topics of genetics and genomics. Learn more at LACNETS.org. Play Video Play Video 01:33:06 "Understanding GI NETs Found on Endoscopy: Gastric, Duodenal, Colon & Rectal" • Dr. Metz •Jan 28, 25 Learn from renowned Neuroendocrinologist Dr. David Metz, who discusses neuroendocrine tumors (NETs) found on endoscopy, including gastric, duodenal, colon and rectal NETs. Dr. Metz discusses which NETs can be found on endoscopies and how they are managed and treated. For more information, visit LACNETS.org. Play Video Play Video 01:28:05 "Large Cell Neuroendocrine Carcinoma & Small Cell Lung Cancer" • Session B • LACNETS • Dec 10, 2024 This is a 2-session comprehensive guide to lung neuroendocrine cancers. Session A covers Typical Carcinoids and Atypical Carcinoids. Watch Session A here: https://youtu.be/owZRDf3ISM4 Session B covers Large Cell Neuroendocrine Carcinoma and Small Cell Lung Cancer. ABOUT AMAN CHAUHAN, M.D. Aman Chauhan, MD, earned his medical degree from the Kasturba Medical College in Manipal, Karnataka, India, followed by a dual residency in internal medicine and pediatrics at Louisiana State University in New Orleans. Dr. Chauhan completed his fellowship in hematology and oncology at the University of Kentucky, especially focusing on neuroendocrine tumor (NETs). Additionally, Dr. Chauhan completed a Cancer Therapy Evaluation Program (CTEP) physician externship at the National Cancer institute (NCI) that focused on designing clinical trials and clinical research projects. His clinical interests include treating NETs, including carcinoid tumors, high-grade neuroendocrine carcinomas, and small and large cell neuroendocrine carcinoma. Dr Chauhan leads the University of Miami Neuroendocrine Cancer Program and co-leads Sylvester Theranostics Drug Development Program. He is national principal investigator on several investigator initiated neuroendocrine cancer clinical trials. He has authored over 70 scientific publications and book chapters and has received a career development award from NCI CTEP. Dr Chauhan also serves on AJCC and ASCO NET guideline committees and is an active member of NANETS communication committee. Dr. Chauhan is board certified in internal medicine and medical oncology. He is a member of the American Society of Clinical Oncology as well as the American Association of Cancer Research and the North American Neuroendocrine Tumor Society. For more information, visit LACNETS.org. Play Video Play Video 01:33:36 "Typical Carcinoid & Atypical Carcinoid" • Session A • LACNETS Event • Dec 10, 2024 This is a 2-session comprehensive guide to lung neuroendocrine cancers. Session A covers Typical Carcinoids and Atypical Carcinoids. Session B covers Large Cell Neuroendocrine Carcinoma and Small Cell Lung Cancer. Watch Session B here: https://youtu.be/LxXdXMKpaCo ABOUT AMAN CHAUHAN, M.D. Aman Chauhan, MD, earned his medical degree from the Kasturba Medical College in Manipal, Karnataka, India, followed by a dual residency in internal medicine and pediatrics at Louisiana State University in New Orleans. Dr. Chauhan completed his fellowship in hematology and oncology at the University of Kentucky, especially focusing on neuroendocrine tumor (NETs). Additionally, Dr. Chauhan completed a Cancer Therapy Evaluation Program (CTEP) physician externship at the National Cancer institute (NCI) that focused on designing clinical trials and clinical research projects. His clinical interests include treating NETs, including carcinoid tumors, high-grade neuroendocrine carcinomas, and small and large cell neuroendocrine carcinoma. Dr Chauhan leads the University of Miami Neuroendocrine Cancer Program and co-leads Sylvester Theranostics Drug Development Program. He is national principal investigator on several investigator initiated neuroendocrine cancer clinical trials. He has authored over 70 scientific publications and book chapters and has received a career development award from NCI CTEP. Dr Chauhan also serves on AJCC and ASCO NET guideline committees and is an active member of NANETS communication committee. Dr. Chauhan is board certified in internal medicine and medical oncology. He is a member of the American Society of Clinical Oncology as well as the American Association of Cancer Research and the North American Neuroendocrine Tumor Society. For more information, visit LACNETS.org. Play Video Play Video 01:26:11 "Palliative Care for Neuroendocrine Cancer" Dr. Chandana Banerjee • 2024 #LACNETS Educational Event Learn about Palliative Care: what it is, what it is not, and how it may help those affected by neuroendocrine cancer. Dr. Chandana Banerjee, a palliative care and hospice specialist from the City of Hope Cancer Center in Los Angeles, demystifies these topics. Visit LACNETS.org for more information. Play Video Play Video 01:35:06 "Evolving Management of NET Liver Metastases" Dr. Gagandeep Singh • 2024 #LACNETS Educational Event Join us to hear renowned liver and pancreas surgeon Dr. Gagandeep “Gaugs” Singh discuss the evolving algorithms in the management of NET liver metastases. Dr. Singh, Chief of Surgical Oncology at City of Hope® Cancer Center in Phoenix, asks the question of whether it is prudent to be aggressive surgically or if it is all about timing and strategy. For more information, visit LACNETS.org. Play Video Play Video 01:27:16 "2024 Updates on Clinical Trials in Neuroendocrine Tumors" • 2024 LACNETS Event • April 25, 2024 Join us to learn about the latest in clinical trials for neuroendocrine tumors with NET expert Dr. Heloisa Soares, a medical oncologist at the Huntsman Cancer Institute (HCI) at the University of Utah. For more information about Clinical Trials, visit https://www.lacnets.org/clinical-trials. For more information, visit LACNETS.org. Play Video Play Video 01:18:47 "TKIs: Tyrosine Kinase Inhibitors & Neuroendocrine Tumors" • 2024 LACNETS Event • March 29, 2024 Learn about Tyrosine Kinase Inhibitors (TKIs), what they are and how they work with NET expert Dr. Jennifer Chan. Dr. Chan is the Vice President of the North American Neuroendocrine Tumor Society (NANETS) and the principal investigator of the CABINET trial. Hear the positive findings from that TKI study using Cabozantinib. She will discuss the latest in TKI treatments and how they may be a possible treatment option for many NET patients. For more information, visit lacnets.org. Play Video Play Video 01:29:36 "Carcinoid Heart Disease" • 2024 LACNETS Event • Feb 14, 2024 Learn about Carcinoid Heart Disease from Cardiologist Dr. S. Allen Luis, at the Mayo Clinic in Rochester, MN. He will describe the cause and symptoms of carcinoid heart disease and discuss diagnosis, treatment and surveillance. Visit LACNETS.org for more information. Play Video Play Video 01:12:47 "PRRT: What We Know, Special Considerations & Clinical Trials" with Dr. Strosberg • Jan 11, 2024 Learn the latest on PRRT with NET expert Dr. Jonathan Strosberg. Dr Strosberg was the principal investigator of the NETTER-1 study which led to the FDA approval of Lutathera and has authored numerous articles on PRRT. He will discuss the latest in PRRT, including special considerations and current clinical trials. Visit LACNETS.org for more information. Play Video Play Video 01:19:50 "Minimally Invasive Treatments for Neuroendocrine Liver Metastases" • Dr. Yilun Koethe • Dec 9, 2023 "Minimally Invasive Treatments for Neuroendocrine Liver Metastases" with Dr. Yilun Koethe, Interventional Radiologist, TRG Imaging. Learn more about minimally invasive liver directed therapies targeting liver metastases with interventional radiologist Dr. Koethe. She discusses ablations including the recently approved histotripsy and embolizations including bland, chemo and radioembolization. ~ Visit LACNETS.org for more information. Play Video Play Video 01:33:48 LACNETS • "Symptom Management" with Dr. David Metz • Oct 2023 Join LACNETS to hear Neuroendocrinologist, Dr. David Metz from University of Pennsylvania discuss symptom management. The presentation will cover carcinoid syndrome, pancreatic enzymes, bile acid secretion, and short bowel syndrome. He will explain current treatments, supplements, and diets that might be helpful to control NET-related symptoms. For more information, visit LACNETS.org. Play Video Play Video 01:30:11 LACNETS • "Navigating Clinical Trials: Expectations vs. Realities" with Taymeyah Al-Toubah •Aug 2023 Join LACNETS to hear Taymeyah Al-Toubah, MPH, Senior Research Project Manager at the Neuroendocrine Tumor Program of Moffitt Cancer Center. About Our Speaker: Taymeyah Al-Toubah, MPH Senior Research Project Manager Neuroendocrine Tumor Program at Moffitt Cancer Center, Tampa, FL Taymeyah Al-Toubah is a clinical researcher, currently at Moffitt Cancer Center, who has been in the research field for 10 years. She began her career in 2013 while obtaining her bachelor’s degrees in biomedical sciences and psychology, working in pediatric and neonatal research at Johns Hopkins All Children’s Hospital. In 2016, she shifted her career focus to oncology, beginning with phase I trials and working in all solid tumors. She completed her Master of Public Health in Epidemiology in 2017 and focused her graduate thesis on neuroendocrine tumors. In 2018, she switched departments to focus exclusively on NETs. From 2018 – 2023, she was the primary NET coordinator in the GI department, managing all clinical trials while leading the GI team, managing the NET clinic coordination amongst the ancillary departments, and working on all retrospective and non-interventional NET research. She has worked on protocol development, database analysis, and manuscript writing, resulting in over 30 published manuscripts and presented her research at several national and international oncology and NET conferences, with oral abstracts at several ENETS and NANETS conferences. In April 2023, she formally transitioned to a new position as a project manager of the NET program, where she will continue to mentor new coordinators while working on protocol development and writing, manuscript writing, non-interventional clinical trials, and retrospective NET research. One of her first major projects will be to curate and develop a master database of all NET patients seen at her institution that will provide the basis for all future NET research to be published at Moffitt. She is currently on the board of one of the first NET patient advocacy groups in Florida (FLaNET Carcinoid Community), which kicked off alongside the Tampa Regional NANETS meeting in November 2022. She is an active member of NANETS on the Continuing Education and Symposium Planning committees. She plans to dedicate the remainder of her career to this disease and community. Her ultimate plan is to attend medical school, specialize in medical oncology, and continue to serve the academic NET community and patient base as a physician and clinical investigator. For more information, visit LACNETS.org. Play Video Play Video 01:25:46 "Surgery: The What, Where & When" with Dr. Eric Liu • LACNETS • July 2023 Join LACNETS to hear NET expert Dr. Eric Liu of Rocky Mountain Cancer Centers discuss “Surgery: The What, Where & When.” To learn more, visit LACNETS.org. Play Video Play Video 01:04:08 LACNETS • "High Grade Neuroendocrine Neoplasms (NEN)" with Dr. Jason Starr • May 2023 Join LACNETS on May 4th for an educational event dedicated to high grade neuroendocrine neoplasms (NENs). Medical oncologist Dr. Jason Starr from Mayo Clinic in Jacksonville, Florida, will discuss the management and treatment of high grade NENs, including the latest updates and clinical trials. For more information, visit LACNETS.org. Play Video Play Video 01:28:20 LACNETS • "What's New in PRRT" with Dr. Amir Iravani • Apr 2023 Join Dr. Amir Iravani, a Nuclear Medicine Physician and Theranostics Director at Fred Hutchinson Cancer Center, to hear the latest on Peptide Receptor Radionuclide Therapy (PRRT). Better understand the difference between beta and alpha PRRT, current trials and updates on PRRT for Lung NET, adolescents and dosimetry. For more information, visit LACNETS.org. Play Video Play Video 01:32:12 LACNETS • "Update on NET Clinical Trials" with Dr. Heloisa Soares • Mar 2023 Join us for an "Update on NET Clinical Trials" with special guest Dr. Heloisa Soares, a medical oncologist at the Huntsman Cancer Institute (HCI) at the University of Utah, to hear the latest in NET clinical trials. Visit LACNETS.org/Mar2023 for more information. Play Video Play Video 01:29:21 LACNETS • "Genetics of NET: Do I Need Genetic Testing?" with Samantha Greenberg • Feb 2023 Do I need genetic testing? Do my family members need to be tested? What does genetic testing entail? What genetic mutations are possible and what does it mean for my family if I carry a mutation? Join Genetic Counselor Samantha Greenberg of the University of Texas, Southwestern, for a discussion about genetic testing for NETs. For important information and resources about this topic, visit LACNETS.org/Feb2023. To learn more about LACNETS, visit LACNETS.org. Play Video Play Video 01:34:45 LACNETS • "Novel Translational Research for Metastatic NET Patients at the NCI" • Jan 2023 Join LACNETS for this special educational event. What if you could both undergo surgery for your metastatic disease and also donate your liver tumor to find a cure for NET? Learn how you can contribute to NET research. The NET team at the National Cancer Institute (NCI) will give us a behind-the-scenes look at their innovative NET research. Be inspired by their hard work and dedication to the NET community. For more information, visit LACNETS.org. Play Video Play Video 01:42:02 "Focus on Pheochromocytoma and Paraganglioma" - Jan 2023 LACNETS Educational Event Join LACNETS for a Rebroadcast of the unique webinar presentation of three pheochromocytoma and paraganglioma (PPGL) cases and an engaging panel discussion with experts Dr. Jaydira Del Rivero, Dr. Erik Mittra, and Dr. Karel Pacak. (Original broadcast on Wednesday, January 11, 2023) Play Video Play Video 01:49:16 LACNETS • December 2022 Monthly Webinar - "2022: YEAR IN REVIEW" with Dr. Halfdanarson Join LACNETS and medical oncologist Dr. Thorvardur Halfdanarson of Mayo Clinic for the live webinar, “2022: Year in Review” on Friday, December 9 at 11 am Pacific Time. Have non-case specific questions for Dr. Halfdanarson? There will be a live Q&A following his presentation. To submit your questions, go to www.slido.com/LACNETS12. To learn more about LACNETS, visit www.LACNETS.org. Load More < Back to Topics Next Topic >

Xermelo Resources https://www.xermelo.com/ Talk to a NET nurse about carcinoid syndrome diarrhea. Go to www.enrollxermelo.com . Download the TerSera Nursing Support Program brochure Download the Xermelo Patient Brochure

Resources from our Partners AAA resources: Facts about PRRT, patient brochures, and contact information Click here for AAA Resources Ipsen resources: Patient brochures, copay information packet, SOMATULINE® DEPOT prescribing information packet, and contact information Click here for Ipsen Resources TerSera resources: Patient brochures, nurses patient brochure, nutrition guide & recipes for Carcinoid Syndrome, and contact information Click here for TerSera Resources RayzeBio resources: Clinical trial information, and contact information Click here for RayzeBio Resources Lantheus resources: Azedra patient brochure, Azedra Service Connection Patient Services brochure, and Azedra and Lantheus websites Click here for Lantheus Resources Crinetics Resources: Information about Patient Insights Program, Patient Leadership Council, and clinical trial information Click here for Crinetics Resources DISCLAIMER: These resources are for informational and educational purposes only and are not substitute for professional medical advice. This information is not intended to provide a medical professional’s opinion or advice. You are advised to seek appropriate licensed medical professional help. Please do not delay treatment based on this information. Talk to your medical team if you have any questions or concerns about your individual care or treatment.

Save the Date - June 17, 2023 Watch the 2023 LACNETS Neuroendocrine Tumor Patient Conference 2023 LACNETS Neuroendocrine Tumor Patient Conference 2023 LACNETS Neuroendocrine Tumor Patient Conference Play Video Share Whole Channel This Video Facebook Twitter Pinterest Tumblr Copy Link Link Copied Now Playing Welcome & Introduction • 2023 LACNETS Neuroendocrine Tumor Patient Conference • June 17, 2023 13:08 Play Video Now Playing NETS 101: Overview of NET Terms & Concepts • Dr. Aman Chauhan • 2023 LACNETS Patient Conference 21:51 Play Video Now Playing A Conversation with Three NET Surgeons • Dr. Clarke, Dr. Gangi & Dr. Anaya • 2023 LACNETS Conference 27:33 Play Video Join us virtually for our biggest event of the year to hear from 12 NET experts from North America. Click Here to Read Speaker Bios Visit Sponsor Booths 2023 Conference Sponsors VISIT SPONSOR BOOTHS IPSEN Booth TerSera Booth Curium Booth AAA Booth Crinetics Booth Camurus Booth The information provided is for educational purposes only and does not substitute for medical advice. Talk to your medical team if you have any questions or concerns about your individual care and treatment. The opinions expressed in this program are those of the speakers and do not represent the opinion of LACNETS.

Supporters of the Neuroendocrine Cancer Foundation Thanks to our Sponsors NCF partners with sponsors to connect patients and caregivers to the most up-to-date resources, financial help, and access to treatments and trials. SPONSOR THE NEUROENDOCRINE CANCER FOUNDATION Sponsors and donors make our work possible. Contact us to learn how you can support us. First Name Last Name Email Send Thanks for submitting!